The Great!
I've personally experienced the results of this organization in...
I heard about Hope Haven at an NDSS conference. I was excited to have my daughter with Down syndrome evaluated from a clinic with an educational focus. We had our first eval done when she was just beginning kindergarten and had a follow up eval 4 years later when she was in third grade. We have regular evals at home in Texas, however we are always amazed at the wonderful information we receive at Hope Haven. We have taken that information and shared it with her school and have implemented the suggestions there and at home with great success. While the PT, OT and ST suggestions have been beyond what we have received at home, the ideas for furthering her reading comprehension have been the best part. We have been able to easily express the techniques to others and implement them at home. We plan to have another follow up in a couple of years.
Ways to make it better...
If I had to make changes to this organization, I would...
Branch it out to Texas
More feedback
What I've enjoyed the most about my experience with this nonprofit is...
The eval with the educator
The kinds of staff and volunteers that I met were...
PT, ST, OT, Physician
If this organization had 10 million bucks, it could...
Train other therapists to do their evaluations with education primarily in mind. Maybe create branches in other areas of the nation.
Ways to make it better...
We could have seen the ST and Physician on both trips. The times we could attend were limited and these two were not available that second follow up eval.
In my opinion, the biggest challenges facing this organization are...
Growing too fast and losing the educational focus
One thing I'd also say is that...
The clinic needs to maintain an Educator as the Director to maintain the educational focus. While all the therapists we have seen are excellent, the biggest difference in this clinic vs one at home is the educational focus.
How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2009