My Nonprofit Reviews

sharon13 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

sharon13

153 profile views
1 reviews

Review for Lupus Foundation of Northern California, San Jose, CA, USA

Rating: 5 stars  

Hello, I am a Lupus Nephritis survivor. I was diagnosed about the same time that LFNC was started, about 30 years ago. I immediately looked lupus up in the encyclopedia where I found the words, "life expectancy is 5 years." Luckily my neighbor knew a woman who was involved in the Lupus Foundation. I called her and I immediately went to a meeting of lupus sufferers like myself. I ordered pamphlets and any information I could to understand this disease I had contracted. The issues of the Lupus Foundation that came twice a year and the newsletters from LFNC I read and studied and I believe that it is because I learned about my disease that I am still living today. The internet didn't exist then and had it not been for the Lupus Foundation where would I have gone? I learned how to communicate with my doctors and how to cope with living a life that was so different from the life I had imagined. I know that LFNC helps people like me everyday and I am proud of my membership and I will always stay a member.

I've personally experienced the results of this organization in...

the information and support they provide to help lupus patients understand their disease and live the best life possible.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  Client Served & I received counseling and support.