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sharon13

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1 reviews

Review for Lupus Foundation Of Northern California, San Jose, CA, USA

Rating: 5 stars  

Hello, I am a Lupus Nephritis survivor. I was diagnosed about the same time that LFNC was started, about 30 years ago. I immediately looked lupus up in the encyclopedia where I found the words, "life expectancy is 5 years." Luckily my neighbor knew a woman who was involved in the Lupus Foundation. I called her and I immediately went to a meeting of lupus sufferers like myself. I ordered pamphlets and any information I could to understand this disease I had contracted. The issues of the Lupus Foundation that came twice a year and the newsletters from LFNC I read and studied and I believe that it is because I learned about my disease that I am still living today. The internet didn't exist then and had it not been for the Lupus Foundation where would I have gone? I learned how to communicate with my doctors and how to cope with living a life that was so different from the life I had imagined. I know that LFNC helps people like me everyday and I am proud of my membership and I will always stay a member.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  Client Served & I received counseling and support.