June 9, 2010
The LAM Foundation is a God send for the women who have the rare disease Lymphangioleiomyatotis. They have financed Millions of $$ for reseach that was badly needed for this rare disease. In a short 15yrs much has been learned but still no treatments or cure.
I have been able to go to the National Institute Of Health for testing and answers for my many questions only because the LAM foundation got it started. I have also been in a durg trial at the NIH.
I have been to there convention in Cincinnate a couple of times but the most inportant and daily help is a chat room called the listserv for women with LAM. It has helped many of us get through many hard times. Susan Russo
The Great!
I've personally experienced the results of this organization in...
As stated above this foundaion stared to raise money for the rare disease LAM. It spreads awareness and raises funds for much needed reasearch. This rare disease effects only women and there would not be any help. This LAM foundation has even helped drs.
More feedback
What I've enjoyed the most about my experience with this nonprofit is...
There is no other help for me.
The kinds of staff and volunteers that I met were...
Kind and eager to help and have been like friends to me.
If this organization had 10 million bucks, it could...
Find a cure or treatment for the rare disease LAM
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
MY ROLE:
Client Served & Helped raise funds for reasearch.