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mh36099

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Myasthenia Gravis Association of Kansas City
June 6, 2010

My experience with the Myasthenia Gravis Assoc has been wonderful. Since the disease was considered fairly rare when I was diagnosed just over 2 years ago, I had difficulty finding information. I was referred to MGA and received information on treatment, medications,clinical research and other resources. This was invaluable because I was also able to interact with other MGA patients and learn from their experiences. So I became a Board member.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2007

MY ROLE:
Board Member & Joined to Board to help others become more informed.