June 6, 2010
My experience with the Myasthenia Gravis Assoc has been wonderful. Since the disease was considered fairly rare when I was diagnosed just over 2 years ago, I had difficulty finding information. I was referred to MGA and received information on treatment, medications,clinical research and other resources. This was invaluable because I was also able to interact with other MGA patients and learn from their experiences. So I became a Board member.
I've personally experienced the results of this organization in...
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
MY ROLE:Board Member & Joined to Board to help others become more informed.