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Cindy91

113 profile views
1 reviews

Review for Trisomy 18 Foundation, Woodbridge, VA, USA

Rating: 1 stars  

I have not had a positive experience with this organization and would certainly direct other families just learning of a trisomy diagnosis to more informative and supportive groups: SOFT, Hope for Trisomy, etc. The website and blog boards have not changed in the 4.5 years since i have been navigating in the world of trisomy and don't understand why. There are supportive parents out there that want to help whether a child is surviving and thriving or your angel has gone home too soon. Accurate information can empower a parent in crisis to make the best decision for their family and I do not feel that this foundation provides the most current or accurate information. They have a website that provides information for parents who have lost a child but very few to no resources for those that children survive!

Was your donation impactful?

Unlikely

How likely is it that you would recommend that a friend donate to this group?

No

How likely are you to donate to this group again?

No

When was your last experience with this nonprofit?

2013

Role:  Donor