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jeaniehanley

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2 reviews

Review for CF Roundtable (published by the United States Adult Cystic Fibrosis Association (USACFA)), Beaverton, OR, USA

Rating: 5 stars  

The US Adult CF Assn (USACFA) is an excellent organization that I have been proud to be part for 7 years. CF Roundtable and the accompanying website are tremendous support for me and, I believe, for the CF community. I'm able to meet others with CF through the CF Roundtable social media sites, share our stories, learn from each other and laugh too.
The newsletter is engaging and chockfull of information on all aspects of CF. I look forward to its arrival in my mailbox. I encourage any adult with CF to subscribe to it!

Role:  Board Member
 

Review for CF Roundtable (published by the United States Adult Cystic Fibrosis Association (USACFA)), Beaverton, OR, USA

Rating: 5 stars  

CF Roundtable is fabulous source of support for me, my husband and family. The articles are so informative and inspiring such as Beth's legal and Laura's research updates, Isa's spirituality, Julie's Wellness and Kathy's getting older columns. The focus topics often leave me chuckling, commiserating, awed or taking notes depending on the topic. I read it cover-to-cover as do members of my family. We feel great after reading from the validation that there is world out there that understands!

If I had to make changes to this organization, I would...

As a volunteer and director for several years, USACFA and its CF Roundtable are constantly improving on all aspects - website, newsletter, etc through infusion of new ideas with the result being a continually improving organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer