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1 reviews

Review for Carcinoid Cancer Awareness Network Inc, North Bellmore, NY, USA

Rating: 5 stars  

I can not say enough about this wonderful organization. I went to the first CCAN Lung carcinoid conference in Nashville, TN in April 2013. I met the founder of CCAN, her husband, and her family, all who work tirelessly for carcinoid awareness and the support of carcinoid patients. Before the conference I had been sent a packet of materials including DVDs of past conferences. This information did much to educate me about carcinoid cancer and to give me a sense of hope and renewal. I was no longer alone. Carcinoid cancer is very rare and let's face it most people who don't have it, don't want to talk about it. CCAN Talks. CCAN listens. CCAN has made a positive difference in hundreds if not thousands of people's lives because of their dedicated advocacy. They have made information available to cancer patients, helped to reeducate the medical community about this disease and banish the liaise faire attitudes from the past. One last point, they have also found and built relationships with the top carcinoid/NET doctors around the world. Many of these doctors give of themselves and their time to carcinoid awareness, research, diagnoses, and care. Please consider giving to CCAN. They are a great nonprofit.

If I had to make changes to this organization, I would...

Absolutely nothing!!!

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Role:  Donor