November 13, 2012
I am a 32 year old survivor of bi lateral RB. I have vision in my right eye only and my left is a prosthesis. I had long been looking for a support group and also a way to become involved with RB in some capacity. Through joining DECF as a board member I have been introduced to many survivors and parents of children with RB. The survivor Facebook group has been an amazing resource because I had never been able to talk with another survivor before. We chat about our histories, concerns, problems and even have laughs sometimes. What is great is there is a wide variety of ages, locations and experiences so the information that is shared is very diverse. I am very thankful that these resources have been made possible by DECF USA.
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MY ROLE:Board Member