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Marissa G.

350 profile views
1 reviews

Review for World Eye Cancer Hope, Saint Louis, MO, USA

Rating: 5 stars  

I am a 32 year old survivor of bi lateral RB. I have vision in my right eye only and my left is a prosthesis. I had long been looking for a support group and also a way to become involved with RB in some capacity. Through joining DECF as a board member I have been introduced to many survivors and parents of children with RB. The survivor Facebook group has been an amazing resource because I had never been able to talk with another survivor before. We chat about our histories, concerns, problems and even have laughs sometimes. What is great is there is a wide variety of ages, locations and experiences so the information that is shared is very diverse. I am very thankful that these resources have been made possible by DECF USA.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Board Member