November 10, 2012
At 45 years old my life was up-ended by a cancer caused by the medication DES that was so rare that experienced physicians at a the University of Minnesota didn't believe it was possible. DES action gave me the tools, information and contacts to make sense of a life changing event. I tell everybody who will listen about the effects of DES, the impact it has on women, and the shameful coverup and continued medical world denial and ignorance of so many affected women and families. There is so much to learn, and when you have to explain to an oncologist at a major universities clinic for gynecology what DES exposure actually does to a body (and not the misinformation they've gleaned from a brief mention in medical school), you know there's a lot of advocacy to be done....DES Action is the only voice I know of doing this work.
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