My Nonprofit Reviews
Laura88
267 profile views
1 reviews
Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA
Our son was diagnosed 23 years ago, when little was known about this disease. We didn't have a gene marker (let alone 2) for the disease. We had no idea what the impact of the disease might be for our son. Most of the doctors we saw knew as little as (or less than) we did. The TS Alliance has been a long-standing source of expertise and advocacy for our son and our family. We have benefitted in many ways, the least of which is the Alliance's commitment to research and bringing new knowledge and expertise to this disease. We are forever grateful.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
Role: Client Served