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Mervin Hernandez

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1 reviews

Review for Hermansky Pudlak Syndrome Network, Oyster Bay Cove, NY, USA

Rating: 5 stars  

As a volunteer, concerned citizen, but most importantly a proud member, I am very enthusiastic and passionate of the needed work the HPS Network is doing. Finding dedicated researchers and advocates for a rare genetic disorder affecting thousands of albinos around the world. Gathering and educating anyone willing to learn and spread the word, our mission is to find a cure!

What I've enjoyed the most about my experience with this nonprofit is...

the environment that all the members are surrounded by (affection and support) as well as the education provided to us about the medical conditions we share.

The kinds of staff and volunteers that I met were...

warmhearted, helpful, willing to teach, and visibly engaged and dedicated to our cause.

If this organization had 10 million bucks, it could...

gather more members, tell all the medical schools in the country about our condition, and help fund research to find us a cure!

Ways to make it better...

my vision was better.

In my opinion, the biggest challenges facing this organization are...

seeking out the lost and helpless albinos wondering why they can't stop bleeding...and other such cases.

One thing I'd also say is that...

I am very attached to this cause, and I am certainly committed to this organization for life.

When was your last experience with this nonprofit?

2009

Role:  Client Served & I have received emotional support and directive guidance for my medical condition.