Brendan B. McGinnis Congenital CMV Foundation
July 3, 2011
My son is now 11 years old and was born with Congenital CMV. It wasn't until he was 10 years old that I found this foundation. For 10 years I felt completely alone. Through the CMV foundation I am now connected with literally hundreds of CMV families world wide and can get almost any CMV question answered with-in minutes thanks to the vast on line network of other CMV affected families and professionals. Without the CMV Foundation, I would still be alone.
I've personally experienced the results of this organization in...
By attending an event put on by the CMV foundation called "Making Tracks". It was amazing spending 3 days with CMV families from across the US, sharing stories and hardships, and making a forever bond of friendship, not only for the parents, but the kids as well.
Ways to make it better...
If I had to make changes to this organization, I would...
I would continually look for new and creative ways to raise awareness.
Client Served & I co-sponsored a CMV Walk-N-Rollathon to raise public awareness. Having 2 major news networks covering the walk and walking with us was amazing.