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Christopher C.

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1 reviews

Review for Brendan B. McGinnis Congenital CMV Foundation, Wheat Ridge, CO, USA

Rating: 5 stars  

My son is now 11 years old and was born with Congenital CMV. It wasn't until he was 10 years old that I found this foundation. For 10 years I felt completely alone. Through the CMV foundation I am now connected with literally hundreds of CMV families world wide and can get almost any CMV question answered with-in minutes thanks to the vast on line network of other CMV affected families and professionals. Without the CMV Foundation, I would still be alone.

I've personally experienced the results of this organization in...

By attending an event put on by the CMV foundation called "Making Tracks". It was amazing spending 3 days with CMV families from across the US, sharing stories and hardships, and making a forever bond of friendship, not only for the parents, but the kids as well.

If I had to make changes to this organization, I would...

I would continually look for new and creative ways to raise awareness.

Role:  Client Served & I co-sponsored a CMV Walk-N-Rollathon to raise public awareness. Having 2 major news networks covering the walk and walking with us was amazing.