MYASTHENIA GRAVIS FOUNDATION OF ILLINOIS INC
June 30, 2011
I have seen the MGF of Illinois help hundreds of patients and their families. I have attended support group meetings where patients are relieved that others know they are not making things up - their frustrations are real. I wish we could do more - MG poses significant challenges to continuing "normal" life and work. Many do fine but some have greater challenges. I would like to see better treatment options, earlier diagnosis and better education of our physicians.
I've personally experienced the results of this organization in...
seeing patients and families better educated and feeling better!
Ways to make it better...
If I had to make changes to this organization, I would...
Like to see a social worker or nurse practitioner who could travel to physician offices or serve as outreach and education outside the office.
Advisor & I am a business owner.