June 22, 2011
CCAN is the result of a truly dedicated team focused on the support of Carcinoid/Neuroendocrine patients and their families.
The Great!
I've personally experienced the results of this organization in...
I've participated in a patient-oriented conference sponsored by CCAN.
Ways to make it better...
If I had to make changes to this organization, I would...
Perhaps the single suggestion one could make would be to ensure that NET physicians are available to discuss specific patient questions as they are raised. I recall reading with some pain the story of a patient who travelled to South America for surgery for a Carcinoid lesion of the heart when 5 prior patients with a similar problem had been managed with targeted nonsurgical therapy by the Mt. Sinai team in NYC. This type of patient could benefit from appropriate physician input at a critical time.
MY ROLE:
Professional with expertise in this field & I've observed the Wahmanns at national and international Carcinoid/NET conferences; their dedication has been incredibly consistent.