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CARCINOID CANCER AWARENESS NETWORK INC
March 19, 2014

For years, CCAN has been there for Carcinoid/NET patients, and they strive steadfastly to educate the medical community about these orphan tumors. CCAN is there for you...they deserve to have all of us in their corner as well.

Ways to make it better...

If I had to make changes to this organization, I would...

Emphasize the need to fight insurance carrier denials and help prevent patient/family bankruptcy by helping to negotiate with drug companies which provide the costly medications.

More feedback

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

MY ROLE:
Professional with expertise in this field

CARCINOID CANCER AWARENESS NETWORK INC
June 22, 2011

CCAN is the result of a truly dedicated team focused on the support of Carcinoid/Neuroendocrine patients and their families.

The Great!

I've personally experienced the results of this organization in...

I've participated in a patient-oriented conference sponsored by CCAN.

Ways to make it better...

If I had to make changes to this organization, I would...

Perhaps the single suggestion one could make would be to ensure that NET physicians are available to discuss specific patient questions as they are raised. I recall reading with some pain the story of a patient who travelled to South America for surgery for a Carcinoid lesion of the heart when 5 prior patients with a similar problem had been managed with targeted nonsurgical therapy by the Mt. Sinai team in NYC. This type of patient could benefit from appropriate physician input at a critical time.

MY ROLE:
Professional with expertise in this field & I've observed the Wahmanns at national and international Carcinoid/NET conferences; their dedication has been incredibly consistent.