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mike100

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NEPHCURE FOUNDATION
June 13, 2011

My 8 year old son was discovered to have FSGS about two years ago. With no where else to turn and with very little hope, my wife and I discovered NephCure. We emailed NephCure asking for information about FSGS and any assistance they could provide. Almost immediately they responded to us. They were caring, concerned and provided so much support to my wife and I.

Additionally, they asked us if we wanted to be put in touch with other parents dealing with FSGS. That night, we received a call from a Board member of NephCure who has a child dealing with FSGS. He spent well over 2 hours on the phone with us providing both information and overall support. He as well as the members of NephCure always ask how my son is doing and if we need anything - they truly care.

In summary, NephCure is a truly amazing organization with the most dedicated people working for it. They always go the extra mile and will not give up until there is a cure for FSGS.

The Great!

I've personally experienced the results of this organization in...

Helped my family in some many ways - exceptional organization.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue to grow and get the message out about the wonderful things NephCure does.

MY ROLE:
Client Served & NephCure gave my family hope and the support we needed. Awesome organization!.