My Nonprofit Reviews
lscaney
Review for NephCure, Philadelphia, PA, USA
Nephcure has been our safety net. When our son was diagnosed with Nephrotic Syndrome 5 years ago, at age 4, we had no one to talk to. We were scared, alone and had no clue what to do. Nephcure connected us with families going through the same thing, with doctors to get the best treatment and with research to help us make the best medical decisions. Nephcure is family to us and we are so thankful to the organization. It does incredible work--on the research front and with the families being affected.
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If I had to make changes to this organization, I would...
Nothing!!
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
Review for NephCure, Philadelphia, PA, USA
My 7 year old son was diagnosed three years ago with Nephrotic Syndrome. Until we found NephCure, we felt so lost and alone. NephCure connected us with the right doctors, who got our son on the right medication and provided support for us. In addition, they connected us with other families in our area coping with this very difficult disease. They truly care. Their executive director has visited our family TWICE to check up on us. Before NepCure we felt scared and hopeless. Now we feel like we have a safety net and are optimistic about the future.
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I've personally experienced the results of this organization in...
Helping us to find care for our son and support for our family.
If I had to make changes to this organization, I would...
change nothing. I can't say enough about how amazing this committed group is.
