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lscaney

380 profile views
2 reviews

Review for NEPHCURE KIDNEY INTERNATIONAL, Berwyn, PA, USA

Rating: 5 stars  

Nephcure has been our safety net. When our son was diagnosed with Nephrotic Syndrome 5 years ago, at age 4, we had no one to talk to. We were scared, alone and had no clue what to do. Nephcure connected us with families going through the same thing, with doctors to get the best treatment and with research to help us make the best medical decisions. Nephcure is family to us and we are so thankful to the organization. It does incredible work--on the research front and with the families being affected.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer

Review for NEPHCURE KIDNEY INTERNATIONAL, Berwyn, PA, USA

Rating: 5 stars  

My 7 year old son was diagnosed three years ago with Nephrotic Syndrome. Until we found NephCure, we felt so lost and alone. NephCure connected us with the right doctors, who got our son on the right medication and provided support for us. In addition, they connected us with other families in our area coping with this very difficult disease. They truly care. Their executive director has visited our family TWICE to check up on us. Before NepCure we felt scared and hopeless. Now we feel like we have a safety net and are optimistic about the future.

Role:  Client Served & NephCure helped find our son the right doctor and has given us support emotionally.