June 12, 2011
My 7 year old son was diagnosed three years ago with Nephrotic Syndrome. Until we found NephCure, we felt so lost and alone. NephCure connected us with the right doctors, who got our son on the right medication and provided support for us. In addition, they connected us with other families in our area coping with this very difficult disease. They truly care. Their executive director has visited our family TWICE to check up on us. Before NepCure we felt scared and hopeless. Now we feel like we have a safety net and are optimistic about the future.
The Great!
I've personally experienced the results of this organization in...
Helping us to find care for our son and support for our family.
Ways to make it better...
If I had to make changes to this organization, I would...
change nothing. I can't say enough about how amazing this committed group is.
MY ROLE:
Client Served & NephCure helped find our son the right doctor and has given us support emotionally.