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1 reviews

Review for Encephalitis Global, Inc., Tarrytown, NY, USA

Rating: 5 stars  

I joined Encephalitis Global in February 2011. Ten months prior I was in a coma and had been diagnosed with Meningoencephalitis. This illness left me with memory problems, speech problems, problems walking, weakness down my left side, constant nausea and vertigo and severe fatigue. Returning to functionality has been hugely challenging and, for the most part, lonely. No one around me knew anyone who had survived Encephalitis.

Then my wife and I discovered Encephalitis Global. It was like a homecoming! Suddenly there were 1,000+ people who knew what I was going through as a patient, and what my wife was going through as a caregiver. The comaraderie has been immensely strengthening and encouraging. I don't know what we would do without E Global!

Thank you Wendy and Ingrid for your perseverence for the past 10 years. It has paid off in my life... and in the lives of countless others.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Very Well

How did you find this group?

I found this group through a Google search for Encephalitis.

What, if any, change in your life has this group encouraged?

This group has given me a possible new direction for my volunteer time and energy. I want to help Encephalitis Global alleviate suffering -- both the suffering of isolation brought on by the illness, as well as the direct physical and cognitive suffering of this debilitating illness.

When was your last experience with this nonprofit?


Role:  Client Served & After one year I returned to work as an Episcopalian Priest, though working fewer hours.