This is an amazing grass-roots organization that educates the public and carcinoid cancer patients. It is run by a couple in Long Island who started with nothing. The wife is a carcinoid patient who answers her phone night and day, runs conferences (the last one was in NOLA and had more than 450 registrants), fund-raising walks and galas and has come up with a large amount of money for research and support.

I have seen this organization grow larger for the last 8 years. The education program is phenomenal, involving the key professionals in the area of carcinoid cancer and neuroendocrine tumors appearing at every function. This group represents international and national patients. The fundraisers are conducted in a professional manner and more and more people have been educated and helped by the money raised by this vibrant, undying, and unrelenting organization run by a woman with carcinoid cancer and her husband and other family members. The founder has appeared on radio programs, television programs, and has been a keynote speaker at many of the professional conferences. She is articulate, caring, and always available to those who have a need or desire to know about these diseases which have been virtually ignored, until recently, thanks to her work and the works of others.