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Turner Syndrome Society Of The United States

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Nonprofit Overview

Causes: Health

Mission: Our mission is to create awareness, promote research, and provide support for all persons touched by turner syndrome.

Programs: Turner syndrome awareness - assistance and information to individuals affected by turner syndrome, a chromosomal condition

Community Stories

4 Stories from Volunteers, Donors & Supporters

Kym H.1

General Member of the Public

Rating: 1

I have ts and found this organization not helpful . Their social media director does not know what to do and overall very unwelcoming presence. Trying to get in touch they never get back. I.found other organizations more helpful.

Review from Guidestar

Client Served

Rating: 4

I am 53, and never imagined I would be led to so many connections I call "Sisters". My mother found out, through a Dear Abby column, all information To guide her to more awareness and help.The TS Society is amazing and I am proud to call myself part of a great "Sisterhood" chapter in New York.



Rating: 5

The Turner Syndrome Society of the US gave my daughter her first experience of meeting another girl with TS. For years she "knew" she had TS and went through daily injections and more doctor visits than her friends, but it wasn't until she met four other girls with Turner syndrome that she said, "I thought I was the only one with TS." Being able to give her a place to meet with girls going through the same thing she goes through is so valuable! TSSUS is the only organization that offers support in that kind of way and we will forever be grateful for the hard work and dedication to bringing people with TS together that TSSUS has. Every donation helps do this very thing and so much more! Please donate today!



Rating: 5

As a local officer in Kansas City I can assure you your money will be used for the purpose you intended.. Helping women of all ages touched by Turner Syndrome. There are only 2 paid employees at the National Office in Houston Texas and all local officers are volunteers. Local activities are approved through a funding committee to ensure no money is wasted. Your donations are much appreciated and necessary to keep the society alive and moving forward.

Review from Guidestar