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The Leukemia & Lymphoma Society

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.

Target demographics: create a world without blood cancers.

Geographic areas served: USA / Canada

Programs: Research LLS is at the forefront of the fight to cure cancer. Compared to other blood cancer nonprofits, LLS is the largest funder of cutting-edge research to advance cures. We have invested nearly $1.3 billion in research. We are leaders in advancing breakthroughs in immunotherapy, genomics and personalized medicine. This research saves lives. These revolutionary new treatments originally discovered through blood cancer research are now being tested in clinical trials for other cancers. Patient Access As the leading source of free blood cancer information, education and support for patients, survivors, families and healthcare professionals, LLS helps patients navigate their cancer treatment and ensures they have access to quality, affordable and coordinated care. Research will help us achieve an end to cancer. In the meantime, patients need help before, during and after their diagnosis and treatment. LLS is the leading nonprofit that does just that. Policy and Advocacy Through our nationwide grassroots network of more than 100,000 volunteers, we advocate for policies at the state and federal level in a commitment to remove barriers to care for cancer patients. Our efforts have helped increase federal research funds, speed the review and approval process of new therapies and ensure patients are able to access lifesaving treatments. Many of the policies that we advocate for, at the state and federal levels, are universally beneficial for all cancer patients.

Community Stories

182 Stories from Volunteers, Donors & Supporters

4 Joel B.3

Client Served

Rating: 5

The care, concern, information, and resources I received from my interaction with Kritstin at LLS was life-giving. Plus she followed up by sending me recap info and resources that solidified all the rather sketchy info I had collected from my doctors and google. I had ironically hosted a few fundraising events for LLS before I was even diagnosed with Lymphoma. I am so grateful to know that they are putting their resources to such good use by helping patients like me navigate the rough journey of blood cancer. I get my confidence and peace from God, but these angels have helped me maintain that peace.

Jeanne B.9

Donor

Rating: 3

TRYING TO FIND OUT HOW SOMEONE WHO DONATED TO THIS ORGANIZATION CAN CONFIRM HIS DONATION. I POSTED IT ON FACEBOOK IN HONOR OF MY HUSBAND WHO PASSED AWAY ON OCT 22 FROM THIS HORRENDOUS DISEASE. CAN SOMEONE PLEASE DIRECT ME TO FINDING THIS INFO OUT..THANK YOU IN ADVANCE.

JEANNE BRODKORB
jbrody022@aol.com

Review from Guidestar

Client Served

Rating: 5

My dad was recently diagnosed with CLL. It's been such a scary time, not only because of this cancer diagnosis, but because of the pandemic, too. I read a study that COVID-19 vaccines have little to no effect on people with blood cancers (because of treatment medications or because of the nature of the cancer) and that prompted me to reach out to The Leukemia & Lymphoma Society with a question about the study.

The next day, a woman named Jennifer called me and spent over thirty minutes on the phone with me. She explained the study, answered all the questions I had, talked to me about my dad and how to protect him from Covid as an immunocompromised person, and sent me an email full of information - not only about the study and vaccine efficacy, but with links to patient support chats, caregiver support chats, in-person support groups, educational videos, podcasts, links to nutritionists, tips on how to manage CLL, helpful apps, financial aid, a local contact, an educational booklet, and a YouTube education channel. She also sent me some things to give to my dad through the mail (a pill organizer, book of information, blanket, and a few other things to help with managing CLL treatment).

I am so heartened by the love and giving that a complete stranger (and this organization and countless donors) showed me and my family. This is a scary and sad time, but I'm very grateful for people like Jennifer and The Leukemia & Lymphoma Society. If my dad has to go through this, I'm happy that there are people out there like this who can help him.

Review from Guidestar

Volunteer

Rating: 5

The Leukemia society has been extremely helpful to me in navigating through a very complicated disease, and help with a very complicated insurance industry.
Their support has greatly assisted me with help , with information, guidance, and support with financial services.
For this I am humbally, internally greatful.
From the bottom of my heart thank you so very, very much !
Mr. A. nathan L.

Review from Guidestar

Volunteer

Rating: 5

I called LLS with a specific question about whether I was immunocompromised as a result of TKI treatment for my CML. I talked to Regineak Ruffin and she was fantastic. She listened carefully to my concerns and indicated that she would get back to me. The following day, she responded with a detailed answer to my question. Thanks to all at LLS for what you do.

George Christiansen

Review from Guidestar

Walt H.1

Volunteer

Rating: 5

I have been involved in a lot of charities over the years, but none compared to LLS. I have been riding and raising money as part of the Scenic Shore 150 for 5 years. The experience has been no less than amazing. The Volunteers and Staff works relentlessly to ensure the 1200 bikers are safe, fed and feel like royalty. Most inspiring has been the large number of survivors that have been help by LLS riding along side of me with the biggest smile. Over the last year have become an official Engagement Lead for the Upper Plains, which has been the same consistent respect and appreciation for my help. I would like to single out Kelsey Kidd, who has been so patient with me teach me my role and tasks. Finally, the story after story of how LLS has help the Cancer patients make me so emotional. I have several folks I personally know who has been helped and is now survivors and in turn help others through LLS.

Volunteer

Rating: 5

I relocated to El Paso, Texas all the way from Hawaii in December 2020. After getting acclimated to my new surroundings, I thought to start volunteering so I could get to know my community, but of course Covid pandemic made that difficult, and so, I browsed online to see if there were any volunteer opportunities and the volunteer website led me to LLS website, filled out some information about myself and submitted the application, and Lisa Ball was my go to person. She is so knowledgable and inspiring to me, sharing her story and listening to my needs as I expressed how I wanted to volunteer and help where I could. I never looked back and this was in April 2021. Initially I felt I wanted to with the children in the hospital, but then so much restrictions due to Covid, but luckily Lisa said that I could volunteer remotely from home and support the LLS Desert Region behind the scenes and I met my new LLS family. Awesome bunch of ladies, so glad I reached out.

1

Volunteer

Rating: 5

I am a story volunteer for LLS and it has been the most pleasant and integral volunteer experience I have had. Their volunteer managers are resourceful and supportive. This org, their mission, and all of the people behind it are amazing.

Volunteer

Rating: 5

During my second year of law school, I noticed a small, raised bump on my right shoulder. I didn't think much of it at first; however, after a few month, it had not gone away. I then noticed two other similar bumps - one on my left arm near my elbow and another near my left collarbone. I scheduled an appointment with my dermatologist, and after a biopsy, I was diagnosed with Non-Hodgkin marginal zone lymphoma in July 2014. Hearing the words "it is cancer" was incredibly scary and overwhelming. After meeting with a wonderful oncologist and running additional tests, I was told that my form of lymphoma would not require any treatment but it would be something to continue to monitor throughout my life.

Shortly after my diagnosis, I began to look for resources and found the Leukemia and Lymphoma Society. At the time, Light the Night was coming up, and I joined in my first walk in Cincinnati, OH in 2014. I have walked every year since, and I have also started doing Climb for the Cure the past two years. After participating in so many fantastic events with LLS, I wanted to become a bigger part of the organization. I started volunteering this summer with the Volunteer Story team. I have had the wonderful opportunity to talk with LLS volunteers around the county and share their incredible stories. LLS is an amazing organization, and I feel so lucky to be a small part of it through volunteering and attending events!

2

Client Served

Rating: 2

Very frustrating organization to deal with got approved for copay assistance and every time I send for rembersment it’s one hurdle one hoop after another to get them to pay

Client Served

Rating: 5

I just happened across LLS website that I could possibly receive some help with medical bills from you. I emailed you and Amy Lane promptly responded to me what could be available. I had no idea this was available possibly with all the extreme bills we encountered fighting off this Mantle Cell Lymphoma Diagnosis. Thank you so very much for everything. I lost my job due to this illness and am hoping someday to return to what use to be my somewhat normal life. I just applied so hoping I can get approved. You all are wonderful and I am so happy I found you. Thank you for all you do for us battling these diseases.
Warmly, Kevin Niles

Review from Guidestar

Client Served

Rating: 5

Every time I need information I call them and they provide me with the latest information they have. They can also identify local specialists and hospitals by zip code. The had great information on Covid Vaccines this time.
I wish these organizations could provide with doctor advice as well. Sometimes people need to make desicions and by getting information it helps patients to make wiser desicions.I am very grateful for their services.

Review from Guidestar

General Member of the Public

Rating: 5

Reached out to LLS by email for information on mgus. I received an extremely helpful and quick response. Very thankful.

Review from Guidestar

Volunteer

Rating: 5

I recd. excellent CS from a rep in Va. named Amanda. She was thorough & very helpful/professional aiding me in a time of need. She walked me through Fin aid process & I'm grateful for any/all resources I'm referred to. Many thanks to Leuk/Lymphoma society for kindness.

Review from Guidestar

Volunteer

Rating: 5

The Leukemia & Lymphoma Society provides valuable information from a very professional perspective, I suggest you go to their website and consult the different topics that they offer us.
The Leukemia & Lymphoma Society provides valuable information from a very professional perspective, I suggest you go to their website and consult the different topics that they offer us.
At this time my family is going through a very difficult time in relation to my brother Jaris Alvarado who was diagnosed with Acute Myeloid Leukemia M2 and also due to frequent blood transfusions contracted Hepatitis C and also last week he was diagnosed with COVID-19 , possibly and because in the previous week he was receiving antibiotics the Covid has not been so strong, but even so we have had to apply a very expensive treatment without stopping the one that corresponds to him for Leukemia, for these reasons I approached LLS and I learned of his important work. Thanks

Review from Guidestar

1

Volunteer

Rating: 5

I spoke with Ms. Sharon Cohan. She was unbelievably caring and helpful, directing me to a plethora of resources I was not aware of.
When the call ended I was feeling very much encouraged as well as grateful for being heard.

Review from Guidestar

Client Served

Rating: 5

Their information specialist are knowledgeable and helpful to patients who have blood cancers.

Review from Guidestar

1

Client Served

Rating: 5

I recently consulted the Leukemia & Lymphoma Society because I am a longstanding chronic lymphocytic leukemia (CLL) survivor, and was startled to learn from an article in The New York Times ("Vaccines Won't Protect Millions of Patients with Weakened Immune Systems") that the 2 doses of the Pfizer vaccine I received, meant to shield me against COVID-19, might not be effective in preventing the disease. I then contacted the Leukemia & Lymphoma Society for additional information, particularly concerning the safety of international flights to visit family members. The LL&S representative who promptly responded to my query was as thorough as could be, based on current knowledge, sensitive to my needs, and underscored how important it was for immuno-compromised individuals of any sort to continue to take extra precautions (social distancing, mask-wearing, and hand-washing) to protect their health. Heartfelt thanks for her considerate response.

Review from Guidestar

General Member of the Public

Rating: 5

A friend of mine with cancer suggested I get in touch with LLS because my wife was diagnosed with AML a month ago. What a pleasure it was talking with Nikki. She is everything someone would want that is starting out trying to navigate this road. Nikki was kind, knowledgeable, comforting, caring and genuinely a pleasure to start on this journey with.

Review from Guidestar

Client Served

Rating: 5

I am a semi-retired Nazarene pastor in Greeley, CO. I was recently diagnosed with T Cell LGL Leukemia. Took about 2 1/2 months to finally get my diagnosis. One of my MD's suggested chemo with a med that has 33 bad side effects!! Yep: Aye Caramba! No thank you! In my research to try to find a less toxic med, I found you-LLS. I spoke this am with Amy Lane. Mega-Wow!! She is above primo! She helped me SO MUCH!! Great info and links including to the leading MD on LGL Leukemia in the US., Dr. Loughran. You should DOUBLE her salary!! What a wonderful lady! And a tremendous asset to LLS! I am so very grateful to her and to you! Keep up the great work!
Sincerely, Jim Schisler, Greeley, CO.

Review from Guidestar

Client Served

Rating: 5

I am a CLL patient and about to start treatment. I had a number of questions and Kristina took a great deal of time with me. She answered each question and made it very understandable. She gave me resources and help and connected me with a Nurse Clinician. She was terrific and I'm very grateful that LLS exists.

Linda West

Review from Guidestar

Client Served

Rating: 5

The Leukemia & Lymphoma Society (LLS) has the most comprehensive and current Information and resources for a newly diagnosed blood cancer patient, one who is undergoing treatment and beyond. A perfectly healthy woman hit with an advancing NHL lymphoma diagnosis needs knowledge and guidance fast. LLS Information Specialist social workers responded quickly with information that has helped me every step of the way. I have a personalized volunteer advocate I can turn to; a local, on-the-ground social worker who helped me navigate a host of issues; chat and support groups, and more. A worthy organization helping patients every day in every way.

Review from Guidestar

Volunteer

Rating: 5

I have volunteered with LLS for several years. LLS is an amazing organization with an important mission to help those with blood cancers. Through research, patient care, and advocacy they are making difference in the Blood Cancer fight.

Frank Walter J.

Client Served

Rating: 5

In early 2017 I was diagnosed with Acute Myeloid Leukemia. I spent about 70 days over three separate visits at the Hospital of the University of Pennsylvania in Philadelphia. The folks at HUP told my wife and I about the Leukemia and Lymphoma Society. They have been a Godsend. They have supported us with grants to help with my medical treatment co-pays and the other associated costs of my treatment and regular checkups. When I recovered enough to volunteer with them I have, as often as I could, in a feeble attempt to pay back what they have done for my wife and I.

1

Volunteer

Rating: 4

I volunteered with LLS in the Student of the Year fundraising event. This nonprofit is very reliable, unwaveringly committed to its purpose of continuing to fight for blood cancer patients and their families, and consistently communicates with its volunteers, such as me. They always answered any questions we had, shared resources to aid us in our fundraising efforts, encouraged us via emails, and hosted valuable opportunities like webinars on how to increase our outreach. I even got to meet inspiring role models like King. I would definitely volunteer with this nonprofit again.

2

General Member of the Public

Rating: 5

I just want to thank The Leukemia & Lymphoma Society and to all the donors . Our life turned upside down a day before Thanksgiving 2019 when we got the news that our little princess was diagnosed with Acute Lymphoblastic Leukemia A.L.L. As a parent you have the need to protect your children of all harm. Hearing the words " Your child has Cancer " , everything just turn to slow motion. You feel like something is trying to take over . Lizzie is strong , brave , courageous, and always looks at the positive side of everything. We know this is a long journey for her as well as for us . Thanks for the support of this organization and donors we are blessed and eased to think we are not a lone .
We truly are grateful for all you guys do .
Esteban family

Jose M. G.

Client Served

Rating: 5

On September 15, 2017 I was diagnosed with Acute lymphoblastic Leukemia while my wife was 7 months pregnant at that time.

It all began when I thought I injured my back when I was working out at the gym. I started to have lower back pain. Within days turning into weeks with the pain, I would end up going to 2 emergency rooms and 1 visit to urgent care. All resulted of not sure what was causing the pain. Until I was referred to an orthopedic surgeon and got x rays and MRI done To see the root of the problem. I wasn’t sure if it was a herniated disk or pinched nerve. At first it appeared to be lump around it. Around the same time, I had an annual check up . My pregnant wife at the time was very concern for my health. I would appear pale, fatigue, my heart racing, and anemic symptoms. Furthermore, I would blame myself for not being care while working out properly, and not being in adequate health for my unborn child soon coming to this Earth. On September 15, 2017 I get a call from my primary doctor where I did my annual check up and requested me to go to the emergency room to get checked out; my doctor said I was severely anemic. She highly motivated me to go to NYU Langone Brooklyn hospital, the nurses immediately took me in as they were expecting me. They did regular check ups and withdrew about 8 tubes of blood for further test. I didn’t think nothing of it. I wasn’t sure what was going on with me., I just felt very fatigue and weak. While I was in the emergency room I called my wife as I have told her during the process that I was at the emergency room and will continue to keep her updated. Little did I know, within minutes of me being there laying down in an emergency room, I was seen by a specialist and told me the most breath taking news of my life. “It appears you have what it appears to be leukemia.” I moments later my wife calls me and asked me if everything is okay and should she head to the hospital. I didn’t tell her what i just found outs i was calm and collective and told her yes. She should come. She asked me what’s wrong , i didn’t want to worry her as I knew she would be driving from the Bronx to Brooklyn and wouldn’t want her to get into an accident. communication on what was going on.

Moreover, my wife finally arrives looking for me and I had to break the defeats ring news of my life. That’s where my long year and half journey began...

I was afraid of not knowing the future. I wasn’t sure if I would see my unborn son, or would I survive this; live or die? The only thing I had left was my faith onto God and trusting His will that everything will fall according to his perfect will and purpose over my life. “I had to trust the process. “It was the most difficult season of my life. The day I was diagnosed I stayed in NYU Langone hospital for a week , where I had to endure the unknown. The doctors and nurses had to insert me a chatterer on the left side of my arm where I would receive my first rounds od chemotherapy and stay in the hospital for a week. During that time, I had reassurance : love and support from my friends and family that woukd visit me. The support was outstanding and unmeasurable. Nurses and doctors were surprised on the amount of love and visitors coming to visit me. In addition, all the prayers from my church family and loved ones. I even had my personal barber give me a haircut during my stay. It was very emotional journey. I had determination and focal point was to be there for my wife’s and my soon to be born son. Mind over matter as they say. Through my journey , it was a painful roller coaster. Many changes and transitions. going through several chemotherapy sessions. In the midst of my process, I was diagnosed with type 2 Diabetes due to the steroids I had to take I was able to to at pause my chemo sessions to have time to enjoy my wife’s pregnancy and be strong for her pregnancy and have some normalcy. After 2 weeks worth of non stop chemo, I was able to rest. That very next week my son came to the world on December 5, 2017. My son Noah Jose Gomez was born. I was able to count his 10 toes and 10 fingers. My journey didn’t end there. Furthermore, after almost 2 months of Normalcy. I had to start my chemo sessions after 2 months. My sessions began again at NYU outpatient clinic. And soon after, being prepared to possibly have a bone marrow transplant. My wife and I weren’t ready to endure another nightmare and after our son being born it felt some normalcy. We were afraid and wasn’t sure what to do? After time to think and pray we made the decision to go for it. It meant I would have to live for the next 30days or so in a hospital room for the entire process. In addition, after the transplant, I would be different. Needing someone to be a caregiver, monitoring me, having a diet change. I would have no immunity. I would be very fatigue and tired all the time from the process. My wife and I had to be mentally prepare on what would come to us. This would save my life but yet another challenging journey. I knew I had to be there for my son and he was my focus and motivation. “ i was ready to take up the challenge, I made it this far.” This also meant, more chemo and take radiation, 2x a day for 5 days.

When the time came, I had to say bye to my son because I would have to live in the hospital for a month. It was again another Challenging moment to endure. I had many people praying for me. I want able to touch my wife and not have as many people to come visit me due to me having no immunity, and be in isolation from the world. Altogether it was an emotional , physical and mental 30 days. Moreover, I eventually had my bone marrow transplant in which my brother was a 50% match. He donated more stem cells than normally taken. The bone marrow was a huge success. During my stay, I would loose over 50 pounds, loose my hair though I was bald, and I would still hug my wife though I was recommended to touch no one so I won’t get sick. But nothing more precious than human touch as part of my healing and recovery process. My wife and I are one at the end of the day,; my rib my life partner and best friend. Her too a warrior; my Wonder Woman. After my long stay, I I would then later recover at home and had my family supporting me and taking turns in taking care of me. I would soon be in full remission soon after that. I would stay home for several more months, gain my strength and immunity again. I would also be a stay home dad, as I bonded with my son at home and it would be part of my recovery and healing. I was proud to say I was fully healed and cured. And oh yeah, I no longer had type 2 diabetes.
As of today I am almost 3 years free of cancer and no diabetes.

Client Served

Rating: 5

my name is Rebecka and i am 35 years old. i am an artist and am a single mother of one beautiful 11 year old daughter and just moved from california to georgia last year. I got a job working at a grocery store and everything for us was going so smooth. all of a sudden, i had a weird growth on my neck and i convinced myself that it was a thyroid problem and just kept on working and doing my schedule. One day at work my boss saw the growth on the neck and demanded i go to urgent care on my lunch break. i laughed and went because i was forced. since that day i found out i had stage 3 hodgkins lymphoma and started chemo immediately and had to take time off work. i had no imcome, no family, no help. the nurses told me about this society and i got financial help as well as emotional help anytime i needed. honestly, it has been a life saver and i feel confident and strong and now im almost done. thank you for whomever started this to help others. I am truely grateful

Client Served

Rating: 5

Excellent list of resources Thanks for your help.I have already made an appointment with a dietitian.

Review from Guidestar

Julie Barnes M.

Volunteer

Rating: 5

In 2002 my 17 month old daughter was diagnosed with stage IV Non-Hodgkin's Lymphoma and Acute Lymphocytic Leukemia of the Pre-B Cell. She followed a 2 year protocol of chemotherapy that included oral, IV and intrathecal (spinal tap) delivery. She had ups and downs. Set backs and triumphs. One day while sitting in the waiting room at the Rose Cancer center one of the other mom's was reading a Team In Training pamphlet... and the rest is history. My baby would cross the finish-line of treatment and ever since then I have been swimming, biking and running and fundraising over finish-lines to support cancer research and patient care. LLS has been a support for our family as well as an outlet to give back and help in the fight to end cancer! There is no finish-line until there's a cure! Catie Jane is now a 16 year survivor thanks to the research efforts of LLS!

Tina L. N.

Client Served

Rating: 5

TINA L. NELKIN
HODGKIN’S LYMPHOMA

In 2003 I was diagnosed with Hodgkin’s Lymphoma.
Treatment included Surgery and 6 months of Chemotherapy.
In 2004, I was in Remission !!

2004, I participated in the
“Light The Night Walk”.
In 2007 I joined The Leukemia & Lymphoma Society’s
“Team In Training : Hike Team”.

In 2015, I Earned my Team in Training“Triple Crown“ by completing 3 Team Sports.

Later in 2015 I developed a Life-Threatening Pneumonia, Respiratory Failure, Ventilator and Induced Coma.
Following my discharge from the ICU & Hospital, my Long road to recovery began with relearning how to walk.
My determination to continue with TNT and Support from my TNT Friends, gave me the motivation to rebuild my strength.

7 months out of the hospital, I hiked in the Grand Canyon with TNT.
I Cried in Triumph at the Top of the Canyon with my Teammates
TNT keeps me Strong & Inspired.

My Fundraising for The Leukemia & Lymphoma Society has totaled over $90,000 for Research and Patient Services.
I am also a “ First Connection ” advocate for newly diagnosed patients.

I want to thank the Leukemia & Lymphoma Society : Team In Training,
Family, Friends, Medical Team and Blood Donors for helping me to regain my strength.
I am now 16 years in Remission.

Thank You From A Survivor.
Tina

1

Client Served

Rating: 5

I have High Risk Multiple Myeloma.
I was diagnosed 6 years ago. My only symptom was being unusually tired. So, I was shocked! to say the least. Things for me moved very quickly since it was determined that I had High Risk MM. I had my first Transplant using my own cells 4 months after diagnosis. My doctor knew this was only a temporary thing to do until a donor could be found. I had a Donor Transplant 4 months after that. Not an easy thing to go through!!!!
That was 5 years ago.
On top of the medical issues, I was so stressed out due to money issues. Overnight, my income changed! I had to leave my job. Leaving my job meant not only would my paycheck cease, so would my health insurance, when I needed it most! I was panicking since COBRA was very expensive. When I voiced my concerns to the Psychologist/Social Worker at the cancer center I was being treated at, she help me apply for assistance to LLS. She said that they were the best! She was absolutely right! Their assistance took so my pressure off me & my husband. They enabled me to face my Stem Cell Transplant a bit more relaxed & allowed me to focus on empowering myself to get through what I would be facing physically .
I am happy to still be here & count every day as a Blessing.
Lots of ups & downs-chronic GVHD, especially respiratory issues.
LLS was & still is truly a God send. I am so grateful for their continued help.

Volunteer

Rating: 5

I am a chronic lymphocytic leukemia (CLL) patient/survivor. I am also a volunteer with the Leukemia and Lymphoma Society First Connection program. This program connects newly diagnosed CLL patients with people like me, who have been through treatment and can offer our perspective on life with CLL. It is an incredibly powerful program. Often the newly diagnosed CLL patients are terrified because they have just been told that they have cancer. Based on my experiences I am able to comfort them and help them to understand that being diagnosed with CLL is not necessarily a death sentence. Below is an example of the kind of impact that I can have on a new CLL patient.


“This is so promising to read, and I so appreciate the conversation that you took the time to have with me this past week. ... It meant more than you know to speak to someone who has dealt with, and is currently dealing with the same. “

1 Steven H.5

General Member of the Public

Rating: 5

Helps Greatly with Medical Information:
Also Helps with Financial Information
Very Helpful in Many Other Ways:

Volunteer

Rating: 5

As someone who has volunteered to help raise money to fight against cancer, I can be proud to say this charity organization provides all three: hope, compassion, and love to all. Leukemia and Lymphoma Society is genuinely invested in creating a better future not just for cancer patients but also for those passionate about helping. When I found out about my role and how I can help, LLS provided me and a bunch of others like me, a platform to be heard and raise awareness. I looked forward to each meeting where we brainstormed creative ways to fundraise. As members of the Student of the Year team, we were provided with caring supervisors who encouraged our contributions and helped make all our efforts possible. LLS has helped inspire small individuals like me, band together, and help create a difference in the world of cancer. Words cannot truly describe the amazing experience and community that LLS has provided. Therefore, I encourage everyone to reach out and be a part of something truly amazing. Join Leukemia and Lymphoma Society in their journey to help fight cancer today!

Sarah G.3

Volunteer

Rating: 5

The Leukemia and Lymphoma Society is a great organization to be a part of! I was diagnosed with Acute Myeloid Leukemia when I was 23 years old and my family relied heavily on the educational materials published by LLS. I have also benefitted from their events that provide an opportunity to meet other blood cancer survivors and navigate life after cancer.

I've also become an active volunteer with their fundraising event, Light the Night. It's been a wonderful experience networking with other volunteers, getting connected with others who have been affected by blood cancer, and raising money to help combat these diseases!

Inthe V.

Client Served

Rating: 5

I had just lost my freezer and all of the food in it and the bills were piling up. I was so upset with the donation that I had relieved from the L. L. S. I was able to purchase a new freezer and fill it up with food. Also my excess bill are gone I wan to thank the society for all of their help.

1

Client Served

Rating: 5

When I first contacted the society I was greeted with such enthusiasm i was amazed. I found someplace that was able to assist me and they were happy to help. I was treated respectfully and courteously. The young woman was professional and kind. All these skills were hreat combinations for me.

Client Served

Rating: 5

I was diagnosed with multiple myeloma at the age of 40. It has been tough navigating the process of treatment, working part time and going to school. I have 3 kids, ages 6, 4 and 2 and my wife was not working at the time. Surviving was tough, money was very limited and getting around was hard due to high price of gas. The help that I got from Leukemia and Lymphoma society was a huge break. The 6 month gas fee was like a manner from heaven.
I want to thank the Leukemia and Lymphoma society for their kind gesture. They are truly God sent and I appreciate them for all the good works that they are doing for our society. May God bless them richly.

Pamela D.2

Client Served

Rating: 5

LLS is invaluable to our family. Living with CLL nearly 20 years which has recently progressed to rare marker 17p. I am now 67 and have a short window of energy daily. I am on treatment consistently, now on Imbruvica, until it doesn't work and then on to the next new drug out there to keep me alive. I may have to get a bone marrow transplant in the future. I am grateful for all the new oral targeted therapy drugs always coming out. I also receive IVIG immunoglobulin infusions every 8 weeks to help me fight infections and stay healthy. I am mostly in self imposed quarantine. I get outside to walk when weather permits and I practice yoga. My husband is my caretaker. He grocery shops, cooks and takes care of the household. We are on a fixed income and with the help of LLS I am able to get the treatments required to keep living. I am very grateful for LLS

Michelle M.21

Client Served

Rating: 5

LLS has always been there for me. I have chronic leukemia, for 11 years know. They have helped with education on my disease, provided financial assistance, given me a platform to share my story, an app to track my health, and to help me connect with others so I know I am not alone. LLS keeps me going, engaged in my community and treatment, and provides the 1:1 support when needed. Nothing is more meaningful than when you call someone will pick up the phone and do their best to help you. That is a blessing!

Erica Shannon W.

Donor

Rating: 5

My son Anthony Wise was diagnosed with AML and ALL in July of 2017. LLS visited with him in the hospital to let him know they were in this fight with him and that if he needed anything they were there for him. My son passed away in November 2017. I will always donate to LLS and Light the night every year in honor of my son. LLS is making a difference for these patients and families. Im forever grateful even though we never needed assistance they were there for us if we did.

Joan G.3

Professional with expertise in this field

Rating: 5

They didn’t just help me through my Stem Cell Transplant. But they helped my oldest son and daughter with their Transplants. They also have helped my family dealing with the idea of know that we are the only family in the United States and the second family in the world to have a mutation that causes a family to have Cancer. They gave us education and strength to get through this.

Client Served

Rating: 5

When I was first diagnosed I was scared, confused and i felt like I was completely alone. No one at the hospital mentioned any support groups so I had to look for organizations myself. When I found LLS it saved my life.
When scared I would post on the community pages and start talking with other current or in remission patients. But the greatest impact was the peer to peer program. I was matched with someone who also had cancer while pregnant. She helped me a lot. You see I carried feelings of the guilt for not recognizing that my bodies reaction may be more than pregnancy symptoms. She shared that she had same thoughts and took similar actions while pregnant. It was only in this group I was able to find that one in a million match - someone who had same life altering experiences as I. Hearing her story and getting her support and validation meant untangling the guilt that was eating me alive. It allowed me to breath just a little more while I was grieving for the loss of my daughter who only lived short 2 days. I’m forever grateful for the platform that was created for patients to seek help while undergoing treatment- from the hired staff to the incredible volunteers and especially the donors who help this organization maintain its life source so patients like me can find healing. Thank you

Advisor

Rating: 5

The Pennies for Patients campaign that is held every February at Marvin Sisk Middle School is one of the most educational, and worthy public service opportunities for my students. Guest speakers, relevant educational and program guides make this campaign easy to manage. Our students enjoy this annual campaign to showcase students and families in our district that are impacted by Leukemia and Lymphoma. We have taken the next steps with Be The Match to further our impact. The support we receive or questions we have are just a phone call away.

Volunteer

Rating: 5

I really enjoyed the fundraiser. I was happy that we had the opportunity to help kids and need.

Robert Jay S.

Client Served

Rating: 5

LLS. What a great resource and ongoing support system.
The LLS is a readily available multi-faceted well staffed organization.
Thank you for being a comforting presence.

General Member of the Public

Rating: 5

My Oncology Hematologist recommended the leukemia society for the treatments I needed. Very, very expensive treatments, I might add, but they picked up the expenses and I only had a small copay. Signing up was very informative, very smooth and over all these years, they have kept me informed of any changes, any new information regarding my treatments.

I am so very grateful to this organization. Had it not been for them, I would still be doing blood transfusions, which I would have had to stop because of my fear of COVID-19 and possibly tainted blood.

Thank you to the Leukemia & Lymphoma Society for being there and for helping me.

B.Stewart

Joy Lowe M.

Client Served

Rating: 5

Lls has been very generous in helping me! When I found out I have MDS which is a blood disease, I didn’t have the kind of health insurance that paid for good doctors so I called LLS and they gave me a $7,000 grant to pay for my Medicare insurance and a better advantage plan so I could see better doctors. They have also given me $850 for other things like car expenses which I used recently for a new battery for my car and gas and valet parking when I go for transfusions 1 to 2 times a week. I don’t know what I would do without the help I have received from this organization that is dedicated to helping people with the expenses of treating our diseases and hopefully keeping us alive longer

Volunteer

Rating: 5

I was diagnosed with ALL when I was three years old. My family was able to get involved with LLS through the Light the Night program, which I loved And still do. Now I’m 15, and I’m volunteering as the New England Honored Hero for the Students of the Year Campaign. I’m so excited to keep working with LLS. Every person working at LLS that I’ve met with has been amazing, and I really love that I can help contribute at such a young age. It’s amazing!

Client Served

Rating: 5

After going through my first round of chemotherapy, I contacted LLS for assistance in understanding what other treatments could be available to me. I found the nurse educators and other staff to be so knowledgeable, compassionate and practical with their assistance. Not only that, LLS was a Godsend in terms of helping me financially with support. They have helped me more than once with care issues and finances as well as they continue to contact me as a follow-up to see how I am doing. Additionally they have put me in contact with other patients as part of a support group. I am truly grateful that they exist and that I got in touch with them.

Client Served

Rating: 5

I developed a lump on the right side of my neck. For years my family doctor insisted that it was a cist. About 3 years went by. I wasn’t feeling well, my sister said to me you don’t look well. I had to go to the VA for my yearly checkup. I had a new doctor who asked about my lump. I told him that it was a cist. He wanted me to have a biopsy. A few days later the results were that I had non Hoskins lymphoma. I was sent to an oncologist who did a PT scan. When those results came in I had Lymphoma throughout my body. I was told there was nothing they could do for me! I was basically told to go home and die. For a few days I never left my house. I cried and felt sorry for myself. Then I got mad! I was to young to die! I contacted the Leukemia & Lymphoma Society. Then in turn hooked me up with an experimental treatment program. They saved my life! I’ve been in remission since 2006. Every day is a new lease on life for me! I’m so grateful for the LLS! I’m walking proof that they save lives! Donate to this wonderful organization! Do the walk benefit! Thank you for helping!

Volunteer

Rating: 5

Where does my story begin? I was being treated for a "pulled muscle" on my left arm, but the doctor NEVER did his own x-rays - he went on my diagnosis. Anyway, I went through a whole year of pain and not being able to lift my arm higher that my shoulder. I was sent to therapy for 3 months - to relieve that "pulled shoulder". I finally decided to seek a 2nd opinion and went to another doctor. I told him my story and he suggested looked like a "frozen shoulder" but he ordered an MRI. Two weeks later, I was diagnosed with Non-Hodgkins Diffuse Large B-Cell Lymphoma!!!!There was a tumor intertwined in my shoulder and surrounding muscles. I was sent to 2 doctors, one a surgeon - the most wonderful lady I had ever met. She led us in a prayer in her office. She said surgery was not an option because the tumor was in my shoulder muscle. The other doctor, an oncologist was just as amazing. He said it was a very rare form of cancer, but it was treatable. He told me we would do 6 rounds of chemo and then maybe radiation. He gave me the name of a few organizations, including the LLS. I made the phone call and received immediate assist and support. The closest support system was 240 miles away in Albuquerque. There was nothing here locally!
LLS put me in touch with "my fellow sister" who lived in Idaho, who had also battled the same type of cancer I had. My new sister and I talked, cried, laughed and cried some more to many, many phone calls. She told me about her experiences and what helped her deal with it. She was awesome!!! Yes, I had my family and my support system here at home in El Paso, but they didn't know what I was going through, my feelings, my deepest darkest moments.
I was also touched by another wonderful lady, Margaret, she was the nutritionist. She told what types of food to eat and what to avoid to help me keep up my energy and strength as I went through my treatment. October 4, 2018 was my last chemo treatment. I lost my hair but I was ready with wigs that made it look like it was me. I wanted to look as "normal" as possible. I worked through my treatments, taking 2 days off from work (one for the all-day treatment and the other for resting). I teach kindergarten. Only a few colleagues knew about what I was going through. October 29, 2018, the doctor ordered a PET/CT to see what had happened. I went October 31, to get the results! The doctor came in with the Biggest Smile I had ever seen. There was NO more tumor. Everything looked clean and clear. He sent me to MD Anderson for a consultation about radiation. I didn't want to do it because I had heard so many horror stories. There I met another wonderful doctor, she was ready to begin radiation the following week. I told her I needed to go back home to "my support system" She said radiation was like "my security blanket" to continue to kill any tiny cells that my have still be in my system. Well, I did 17 rounds of radiation after school every day. Both doctors said My Goal is to stay clean for 2 years, I pray every day that it continues. My Faith played a big part in my journey and continues to do so. My target date: October 31, 2020. LLS played an unbelievable part in my journey! I would never have been able to go through it without them.
A few months ago, I received an email that they needed volunteers. I figured it was time for me to give back to them. I want to start helping patients going through what I went through, simply because there is NO support for Lymphoma here at home. I am excited about beginning this new journey in my life of giving back and helping others!
Connie Hernandez
El Paso, Texas

Professional with expertise in this field

Rating: 5

Committed to funding leukemia and lymphoma researchers through a competitive peer review process

Inna K.

Client Served

Rating: 5

Dear LLS!
You do wonderful things for people! You help not only us, leukemia patients, but also give a peace of mind to our caregivers and family members.
I have a leukemia with FLT3 mutation. I had a bone marrow transplant. I am taking a very expensive drug, XOSPATA, and without LLS’ help I couldn’t afford it.
My prognosis was very grim at the beginning. But with your help I was able to celebrate my transplant’s first anniversary.
Thank you! Thank you! Thank you!

General Member of the Public

Rating: 5

Diagnosed with CLL in January 2017. First it was a great shock to know that I even had cancer. There's were so many questions and we didn't even know what questions to ask. LLS put us in touch with one of the leading experts in Miami at UM Sylvester to guide us through this process I underwent chemo. LLS advised us that we could apply for assistance which we did to help us with the financial burdens we had. Thank God for that as we are elderly and older citizens only on Social Security. Right now I am on what they call remission but know that LLS will always be there to guide us through our next steps. Their blood conference each year in March has been invaluable. We couldn't have asked for a better organization and mentorship to support us through this tough time

Client Served

Rating: 5

Hi
This is Edith and I would like to take this time out to let you know that I have multiple myeloma all of you who don’t know what that is it’s a blood cancer and bone marrow cancer.
I have had this for 4 1/2 years the type of cancer I have never goes into remission so therefore I will be on maintenance chemo therapy for the rest of my life one of my infusions is $19,500 sometimes I go four times a month now I only go twice so just think about that ,that’s a lot of money times four and it’s also a lot of money just for one but I Thank God For LLS they not only help me out with grants to help me pay my bills but they also help me emotionally by the wonderful people that are on the other side of the phone for me five days a week that I could speak with talk about my cancer talk about treatments ask of my bills are being paid and who is being paid to I follow Up through I probably talk to them at least once a week they become my best buddies they give me a great incentive to beat this cancer up before it beats me up and then tell me What a Great attitude I have and that’s what you need to stay well with all this treatment They are so thoughtful and wonderful and keep us abreast of everything they even gave us $250 for the Covic they cover us for transportation it’s very expensive for me to get into the city I have a separate grant for that I just can’t begin to tell you how wonderful to know that this foundation is out there helping me out looking over me and the other many of thousands of people who have the same disease or similar I thank you LLS for being there not only for me but all of us God bless all of you and thank you for helping me stay strong . And most of all I would like to Thank my doctors an my PAFor always figuring out a new cocktail and keeping me stay here she is the best I’ve been with her team four an half years so God bless them all with out my multiple myeloma oncologist at Weill Cornell medicine I don’t know if I would still be here!!!







Thank You LLS
Edith

Donor

Rating: 5

My husband and I have been walking the leukemia road for almost 20 years. In the past 10 years our finances have become strained from trips to the cancer center, hotel costs, unexpected prescriptions that are vital in order to keep him from walking that heavenly road just yet. We are so thankful for LLS and their unlimited source of information, financial help and the opportunity to give back to help others when we are able. We praise God for this organization and for their vigilance and vision to to help everyday people like us. I know full well that the number of my husband's days are known only to God but we are so grateful to have the support and encouragement of the Leukemia & Lymphoma Society. This is an organization that can be trusted and who wisely distributes help with discernment and compassion. We are thankful to be both recipients and givers in this battle. G & E, Florida

Client Served

Rating: 5

My name is Amanda and I was diagnosed with AML Leukemia in 2017. I was blindsided by my diagnosis and was so scared about what I would be going through. My social worker sat down with me and showed me the LLS website. She explained all the grants that were available and showed me all the resources that I could use. I was so grateful to find out the the LLS was available 24/7 to help me with my needs. The LLS was a huge lifeline for my family and I. Through my diagnosis it was hard for my son to understand what mommy was going through but when his favorite WWE wrestler Roman Reigns announced he had leukemia it made my son realize that other people had leukemia also. It was remarkable to see the connection my son made between cancer and strength when we watched WWE Raw that Monday night in October. My sons idolization of Roman Reigns turned into hope for his mom. I was able to discuss aspects of cancer with my young son all because Roman Reigns was honest and gracious enough to announce he had leukemia. Throughout my journey, we watched updates on Roman and when he announced he was partnering with the LLS, it became crucial for me to do the same. The LLS has given me hope time and time again. When the time came to choose between cancer medication or paying bills the LLS stepped right in. Their help made me able to fight hard and be able to still provide for my son. I will forever have a spot in my heart for the LLS and their donors.

Client Served

Rating: 5

I am very satisfied with the assistance LLS has provided for me. There was a time when my co-pay was quoted to me as being $10,000.00 a month for my oral Chemotherapy medication. I was in a panic. As a matter of fact it was earlier this year shortly after the quarantine.
With the quarantine, pandemic and a 10-day supply of medication left I felt lost. Finally I reached out to LLS and was able to get the financial assistance I needed to get the medication I needed. Thank you very much for all the donors and supporters of the LLS Foundation.

Valerie B.4

Client Served

Rating: 4

I was diagnosed in September 2018. I went from a healthy, individual to one with cancer. I was working as a RN for a home care agency. My supervisor kept telling me I look so tired. I was but I didn't think much of it. My husband and I took a quick vacay to Colorado. September 4th I had an appointment with my new primary care provider. I thought about rescheduling but something told me I needed to go. My new primary care provider drew a bunch of labs since I was new to her. The following day, she called me and told me my Creatinine was 6 and some other labs looked wonky as well. She asked me to go to the lab and have my labs drawn again. She called me that evening that my Creatinine remained 6, other labs were wonky. She told me to go to the ER. While there I met my kidney doctor who looked over my labs and told me I had cancer, Multiple Myeloma to be more specific. He wanted to get me in treatment asap. I did a couple of months of dialysis. My creatinine had come down to acceptable level so he took me off dialysis. I was seeing my Oncologist each week for treatment and blood work.After several weeks of chemo I was in a kind of remission and I could go forward with a Stem Cell Transplant. That is when I met my MM oncology physician. It took a few months for me to get to the transplant but May 15, 2019 I received my transplant. The chemo they gave me made my hair fall out so I had my husband to shave my head. The recovery from the SCT was long and difficult at times but when I saw my MM Oncologist, he told me I was in complete remission. That was music to my ears and my husbands. I still go for chemo (Velcade) each week and once a month I get a bone strengthener called Xgeva. I am so grateful to my Oncologist for going after my cancer so hard and my MM Oncologist who did my transplant. I feel healthier than I have in years. But I take a lot of precautions which means I really don't get out of the house with exception of my trips to doctor' s appointment, chemo, grocery shopping, and trips to the pharmacy.

William H. Barker I.

Client Served

Rating: 5

As a CLL patient for 13 years, with a brother who had MDS/AML, I am so grateful to the Leukemia & Lymphoma Society for their support throughout the course of our respective diseases.

The LLS is how we have gotten much needed support and information pertaining to our leukemias. The various conferences and webinars put on by the Society provide excellent resources for new and established patients to find out about the blood cancers they have, and their respective treatments.

The grants available through the Society and its donors have helped to relieve some of the financial burdens that have come with living through a blood cancer and its treatment.

In my case, the Society is an ongoing resource for publications and programs that give me the latest information on my disease and its treatment. In my late brother's case, the Society provided him much needed information to make informed decisions as to his treatment protocols, and what to expect from his diagnoses of MDS and AML.

I can't express enough thanks to the LLS and their donors for their help through our diseases. I only wish my brother had survived to join with me in expressing our thanks to the Leukemia & Lymphoma Society.

Thank you Leukemia & Lymphoma Society, your staff, your volunteers, and your donors!

Our diseases would have been so much more difficult without your help.

William Barker
Westminster, Colorado

General Member of the Public

Rating: 5

I never know about LLS until I was diagnosed with Leukemia almost a year ago. An old colleague reached out to me after being diagnosed. His amazing son was participating in a fundraiser with a few other high school kids to raise money through a program that (I believe) the school does every year. He came over to my house and interviewed me to learn my story and some of the struggles that I faced. I could tell in his face that it was really hitting home. This wasn’t something that happens once in a while to people you never know, it can happen to anyone. He did a wonderful job raising money for your organization and raising awareness. I was very proud to be a part of his campaign.

Volunteer

Rating: 5

I do the pennies for Patient at Rivervalley. Also have been affected by Cancer. My step son is in Remission of Lekumia. Lost Sister to Cancer lost Dad to Cancer now my Sister just Diagnosed with Cancer. Lost a family member just yesterday to stage 4 Cancer Stomach. My good friend lost her daughter on the 16th of this month to Cancer. I Hate Cancer

Susan A.7

Client Served

Rating: 5

LLS has been a valuable resource during my journey with blood cancer. When I was first diagnosed in 2011, they armed me with a basic understanding of CLL/SLL so I knew what questions to ask when seeking a hematology oncologist. When I was told I had chromosomal abnormalities which made my disease aggressive and more difficult to treat, they pointed me towards support groups in my area to help me with the emotional and mental cancer rollercoaster. During my initial chemo treatment, their nutritionist helped me so I was able to stay healthy and manage the side effects, and LLS’s financial assistance programs made it possible to fight my battle without the worries of paying for my medicine. When I relapsed in 2018 and my oncology team suggested a clinical trial, I once again turned to LLS for information and financial assistance. But the most dramatic benefits of my relationship with LLS, was from the research they helped fund. Since my first remission in 2012, advances meant a bone marrow transplant was no longer my only hope; in fact, it wasn’t even provided as an option! The new targeted therapies, combined with the clinical trial I chose led to deep remission with no measurable residual cancer and I was able to discontinue all treatment. Thank you, LLS for being there every step of the way!