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The Dragonfly Foundation

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Nonprofit Overview

Causes: Cancer, Gift Distribution, Health, Human Services, Patient & Family Support

Mission: The Dragonfly Foundation supports families of pediatric cancer patients by: • Building a network that connects Dragonfly families to each other and the community • Providing programs to enhance quality of life • Enhancing programs in partner Children’s Hospitals in Ohio and Illinois • Partnering on psychosocial research with Cincinnati Children’s Hospital Medical Center

Results: Dragonfly has been credited with helping "change the paradigm of patient care" by Cincinnati Children's Hospital's director of Oncology (see video: https://youtu.be/1QekSF1eafA) Since 2010, Dragonfly has grown to serve more than 4,700 registered Dragonfly patients, siblings/offspring, parents/caregivers, and thousands of others who benefit from quality of life enhancements at 5 locations of 4 partner hospitals in Cincinnati and Dayton, OH and Chicago, IL.

Target demographics: young cancer and bone marrow transplant patients (ages 0-30) and their families. We also help enhance quality of life programs at partner hospitals.

Direct beneficiaries per year: thousands. Since 2010, we have supported thousands and thousands of UNREGISTERED patients and caregivers and more than 900 REGISTERED patients and their families (totaling more than 4,000 adults and kids)

Geographic areas served: Cincinnati, OH since 2010; Chicago, IL since 2015; Dayton, OH since 2016. Our patients/families come from all over the US and abroad to be treated at partner hospitals.

Programs: Patient & Family Programs • Gifting • Multiple Weekly Events (3-12 events A WEEK in Cincinnati) • Adopt-a-Family • Urgent Needs • Resource Books The Landing (our 6,000 sq. ft. patient/family space) & Dragonfly Suite at US Bank Arena • Scheduled Events • Open Play Hospital Programs • Care Bags • Quality of Life Enhancements • Urgent Needs • Technology • Community Connections • I Am Still Me(R) • Beads of Courage(R) AND MORE!

Community Stories

61 Stories from Volunteers, Donors & Supporters

5 Kristen K.1

Volunteer

Rating: 5

The Dragonfly Foundation is my sorority's philanthropy; every year we are able to give back to an organization that does so much for families affected by serious medical issues. Dragonfly is is much more than just a support group, it really changes the lives of those involved and is able to provide the kids with one in a lifetime experiences. Weather it is a simple task that you need done, or support to give your kids the Christmas they deserve, Dragonfly is one of the greatest, whole-hearted, and down to earth organizations that I have been able to be a part of. Seeing the kids at events and how even one day can have a huge impact on their mental health is truly heartwarming. I hope that others are able to give back to this organization and see how life-changing the Dragonfly Foundation is.

Professional with expertise in this field

Rating: 5

As a nurse at cchmc, I can not speak highly enough of the Dragonfly Foundation. From gifting, supporting and hosting events for our patients and families, this foundation is a true blessing to our community.

Ron S.3

Volunteer

Rating: 5

Being able to watch these children and families have a normal moment makes it all worth while!

Volunteer

Rating: 5

I am a volunteer and I love the way TDF cares for its dragonflies and their families! So proud!

Tammy79

Client Served

Rating: 5

I can’t say enough about the dragonfly foundation. Being a dragonfly family they have done so much for our family in our darkest days. They helped us see the light through the darkness through support, events, gifts, beautiful cards and a place to land like the landing. A smile on my grandchild means the world and I can’t say thank you enough. To all the volunteers who work tremendously hard day and night to help make magic happen for so many kids and their families and our family thank you we love you and all you do each and everyday =|=

Previous Stories
3

Volunteer

Rating: 5

My grand daughter was diagnosed with Osteosarcoma at age 6 in Dec. 2011 we became a dragonfly family in 2012. Watching your child go through such horrific ordeal that no child should ever have to endure is the hardest thing to go through. Watching a lifeless body laying in the hospital bed until the chemo kicks in and your left with a very sick weak little girl. Staying in those dark lonely rooms day after day night after night is very sad lonely place to be until you get a phone call saying I'm with The Dragonfly Foundation can you come downstairs. Wow I was so excited to see what they have for my precious little girl to brighten up her day. Let me tell you even for that one moment a smile comes over Y and it brightens up the whole room like the rays of the sun shinning through a window. Tears of joy to see that smile that's what The Dragonfly Foundation has done for my little girl and for my family. Y has been two years clear now but she still has ups and downs pain, side effects from chemo, surgeries it still doesn't stop after chemo and neither does The Dragonfly Foundation they still continue to bring joy and comfort not only to Y but also to her two siblings as well. We can't say enough about them and all they do for our family and so many others. We were in such a cold dark box and The Dragonfly Foundation opened that box and shined such beautiful rays of light onto our family so with that being said Thank You To The Dragonfly Foundation for bringing our family so much joy and comfort each and everyday! =!=

Comments ( 1 )

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TheDragonflyFoundation 09/30/2014

Thanks, T, for taking the time to share your and Ys story. We are so glad that you all love being Dragonflies!!

1

Client Served

Rating: 5

This organization goes above and beyond to help not only the patient but all the caregivers and family involved in their loved ones journey. My family was doubly blessed by the Dragonfly foundation when two of my sisters daughters both battled cancer. We cannot day enough good about these people. We will be forever grateful for their love and support❤️❤️❤️

2 Camryn B.

General Member of the Public

Rating: 5

My brother was diagnosed with Leukemia when I was only twelve years old. At that age I physically and mentally did not know what was going on with my brothers health. The Dragonfly Foundation not only gave comfort and joy to my brother but they also gave me and my parents the same comfort and joy. The Dragonfly Foundation made my family feel normal for a few hours out of the day/night. From sporting events to shows we felt like a normal family because of this amazing foundation. I also got the chance to speak at their golf outing about how The Dragonfly Foundation impacted me.

1 Christen Hawtin D.

Volunteer

Rating: 5

Wow where to start.. this foundation warms my heart.. think about them everyday .. I volunteered at the beginning..
I categorized toy donations.. went to events .. met families .. delivered the Joy bags to Children’s..
Many hours at the First Landing .. a place where families could get away from the hospital and meet their extended families ,pets etc
Scheduled outings for families to games and meet and greets..
How this organization warmed my heart and now have manyyyy connections to new forever friends that feel like family.. big time prayer chains always .. always someone there to speak to you and bring you comfort and Joy!!
Working with the families at events put a couple stent smile on my face ..
Miss the times volunteering..because I moved. But still family!!

1 Lora W.

Client Served

Rating: 5

my Daughter was one of the first Dragonflies she was able to attend a Kieth Urban concert and go bag stage for a meet and greet, that is something that she will never forget the star even took time to take pictures with her and the other Dragonflies .and I love them for the parents page where I can go and express my anxiety over the multiple things that arise from having a child with cancer that often does and know that all of the others on the site understand completely my feelings and can offer support or advice and sometimes even make you understand something that you just can’t see because of your anxiety. In my opinion this is the best non profit organization I have ever been affiliated with they never ask there members for anything but they give so much to us,we truly are a family!!!!

Donor

Rating: 5

Our youngest son Matt was diagnosed with cancer in 2010. That day changed our lives forever. We are very blessed to have a community of great supporters that have led to the creation of The Dragonfly Foundation. We couldn't do it alone, and we will work to make sure we continue to help more families facing this devastating diagnosis.

1

Board Member

Rating: 5

My involvement with The Dragonfly Foundation began in 2012 and and continues to this day. I have seen, firsthand, the work being done for families of pediatric cancer patients. At a time in life that no family wants to face, The Dragonfly Foundation anticipates the needs of families that are watching a loved-one suffer through the challenges associated with cancer and cancer care. TDF provides emotional comfort and real-life practical support to enable families to focus on what is most important - their loved ones. My long-term hope is that TDF support spreads throughout this region and the country to provide families the support they need to endure the twists and turns associated with the processes and challenges of pediatric cancer care.

1 Paul L. W.

Volunteer

Rating: 5

I have not needed Dragonfly’s help for my family, but I’ve seen the great work they have done for families I love! Because of this I gave of my time to volunteer in their first annual ride for Dragonfly and we raised $20,000. I challenge you to help them too!

3

Volunteer

Rating: 5

I've had a length of experiences with Dragonfly over the past few years. Initially I participated in a couple Greek Life philanthropies where the proceeds went to the Dragonfly Foundation. My girlfriend ended up working full-time with Dragonfly post-grad, and I've subsequently volunteered within the organization since. Dragonfly is the textbook definition of a model nonprofit organization. Every day, they go above and beyond to ensure that no child with cancer feels like less of person because of their condition, and they do their best to make children and their families cope and forget about the situation, and just experience being a kid. Not only are there endless opportunities for the "dragonflies" to see sporting events, get out and enjoy life, but there are a multitude of resources available for parents and the rest of the family. No parent is an "expert" on having a child with cancer, and many don't know where to look for help--Dragonfly provides the help they need.

2

Volunteer

Rating: 5

We LOVE The Dragonfly Foundation! They make it so easy and fun to volunteer and be a part of giving back! We have seen the faces of the children and families they help and it is amazing to see the impact they have on these families. We are honored to be able to help them in their mission!

6 Morgan18

Client Served

Rating: 5

When I was diagnosed with Wilms tumor in 2014, I was super scared and felt so alone. Within a day of my diagnosis, I had recieved a care package from dragonfly of all the necessities I would need in the hospital. There were toothbrushes, deodorant, toothpaste, laundry detergent, etc. Since then, they have helped me meet other patients that are experiencing the same things I am, made new friends, and gave me some great experiences that wouldn't be possible without dragonfly.

4 Nancy Y.

Client Served

Rating: 5

The dragonfly foundation provides amazing support to its families. It also offers relief - even if for a blissfully short time - for patients and their families dealing with cancer and blood diseases by offering free opportunities such as tickets to concerts, festivals, sporting events and much more. These are geared toward patients up to age 30 which is very unusual! The Facebook group also offers a confidential forum for parents. The founders have stayed very true to their original mission.

2 Patricia162

Client Served

Rating: 5

When my son Noah was diagnosed with brain cancer, I felt so all alone! I have little family and what I do have is out of state. When a social worker told me about Dragonfly foundation, my first reaction was to decline as I felt that we would never have fun again. Dragonfly has bought back smiles in our lives! Yes, there can still be fun after a cancer diagnosis. They are also a surrogate family. When I am down, just one of Ria Davidson's hugs can make me feel like I can face another day!

2 Kyrie K.

Client Served

Rating: 5

The greatest thing that could have happened to us in such a dark time in our lives. We will be forever grateful.

Previous Stories
7

Client Served

Rating: 5

My daughter Samantha had a bone marrow transplant in October of 2013, and has been a Dragonfly since that time. They have supported our entire family in countless ways. They provided us with a parent bag that had many valuable items, they have sent care packages for Sam that included all of her favorite things. When Samantha was risking being admitted for not eating we went to the landing and Ria spent hours trying to convince Sam to eat and offering her different treats. The whole family has been lucky enough to go to a few events and it is SO nice to just enjoy something and not worry about being sick for a little while. The thing that Ihave valued the most is the emotional support: The staff and fellow Dragonfly families have been an emotionallife support for me on Samantha's darkest days. The Dragonfly Foundation was the bright shining light I followed out of our worst storms :) =|= ♥

Comments ( 1 )

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TheDragonflyFoundation 09/30/2014

Oh, Kyrie!!!! Thank you so much for your kind words and endorsement!!! It has been a privilege to get to know your family!

4

Donor

Rating: 5

Our daughter was 24 years old when diagnosed with EHE liver cancer. She was referred to Cincinnati Children's because of the rarity of this cancer. There are no organizations that I know of besides the Dragonfly Foundation that provided encouragement and activities for families to build memories for young people over 18. Our daughter was twice given less then two weeks to live but we had her for another 9 months. I forgot to mention she had a daughter only 1 1/2 yrs old when diagnosed. Through Dragonfly they went to Disney on Ice, The Reds baseball games, and a special Christmas gathering for Dragonflys. These times were so special to our family and especially to our daughter Alicia and granddaughter Lillian. When given no chance of survival, Alicia survived by looking forward to the next outing. This year in memory of Alicia's birthday, her daughter asked for friends and families to donate new toys and gift cards to Dragonfly. When we delivered all our donations there was over $1100 donated. They are growing so quickly I know it is hard for them to keep up with the demands but there are not enough positive adjectives to describe what this organization means to the families they support not just in gifts and activities but in the moral strength and support they give even after one of their dragonflys pass on. If there us anyone reading this that can help a remarkable group, please consider The Dragonfly Foundation. Debbie Thomason mom of a Dragonfly who has her wings

3

Client Served

Rating: 5

The Dragonfly Foundation has not only been there for my son through his bone marrow transplants but they kept my family with smiles as well. They continue to bless children and their families with everything from a listening ear to a night away from "it all!" Thank you Tia and Christine you ladies are Awesome. (All who make our babies smile)