I would like to express my gratitude and deep appreciation to The Assistance Fund for the financial assistance I was able to qualify and receive. Last month I received my first benefit and was extremely surprised and elated to find out I did not owe a co-pay for my medication!
I was diagnosed with Parkinson Disease Nov. 2018 at the age of 48. I am one of the primary care takers for my aging parents. I moved back home to help them financially among other ways after my mother was diagnosed with breast cancer. PD (Parkinson's Disease) has affected my life in many ways and financially is one of them. Even with company medical insurance, I need to pay $200/month out of pocket for a 30 day supply of my medication. Without insurance my medication can cost well over $1,000 a month. The Assistance Fund is going to cover my medication 100% for 2020. This is a tremendous help to me and my family. I can now use my money I would have paid towards my medication to help my parents with their medication and household expenses.
Thank you so much for foundations like yours that care for us and make a difference in our lives. PD is a lifelong chronic and progressive disease, but I'm a very positive person and will continue to work at keeping healthy. Thank you to TAF for allowing me some 'breathing room' to be able to meet our daily needs.
With deep appreciation - Rachel Reyes
Hello my name is Wasilah Suid. I have been diagnosed with PBC since 2008, Stage 1-2 and in mid January 2020 after my 2nd biopsy I have progressed to Stage 2. Little did I know that the medication that was prescribed to me would cost over $5500 with my health insurance ! This was the most terrifying news I could ever receive because I would not know whether to choose treatment or support my family. My oldest daughter was the one who did not think twice and started doing the leg work and reaching out to people on Facebook til they told her about "The Assistance Fund". It was then that I got some relief knowing that their was hope in getting assistance for my medication. I have no words to express the gratitude I feel knowing that (TAF) helps out all kinds of rare diseases. With this said, I have been on my new medication for my liver for a month now and doing great ! God willing, it will continue to prolong my condition so that I can continue to enjoy life. I will be forever thankful!
The Assistance Fund (TAF) provides financial assistance through donor funding. They cover over 60 diseases helping patients pay for prescribed medications, co-pays and medical insurance premiums. I was diagnosed with Myasthenia Gravis in January 2017. TAF has made it possible for me to receive life saving medications and infusions that I could not otherwise afford to pay for on my own. The staff and management team at TAF are very professional and efficient. They always treat me with respect, kindness and make me feel special. Thank you TAF for all you do to help patients Your assistance has made my journey a lot less stressful not having to worry about the financial aspect. God Bless!
Ya all have been a savior for me. With out your kindness and program we would not have been able too fix our furnace when it went out last week. I appreciate everything you do for us thanks again Dennis
I want to thank The Assistance Fund, Inc. for the help it provided in supporting the cost of Nuplacid, the drug developed for Parkinson's patients' hallucinations. It really helped in the beginning and it was a horrible fight with his doctor in memory care to keep him on it. Finally he was taken off it, which still upsets me. He had Lewy Body Dementia, or maybe never had Parkinsons and instead Lewy Body. He died a horrible, horrifying death of insanity in a few short years. The Nuplacid assistance was so very helpful in the beginning as he started his bewildering descent into madness, with terrible support from clueless neurologists. He died in September and our family is still traumatized. A terribly misunderstood disease, punctuated by moments of light, like the assistance from TAF. Thank you and Blessings.
After a cardiac arrest, I was diagnosed with stiff heart syndrome. Not long after (about 1.5 years ago) I was also diagnosed with Myasthenia Gravis. We had been searching for a diagnosis for nearly 30 years, and because it had taken so long, much damage was done to my body. I could barely get out of bed, and worst of all, I constantly struggled to breathe. I literally could not breathe and talk at the same time. There were other problems, but the breathing was a pretty big thing to me.
The doctor tried many different treatments, all to which I had very severe reactions. Finally, he chose Soliris. There was no way on God's green earth that we could afford the treatment - even with insurance. My caseworker suggested I call TAF. I was approved right away, and started treatments about six months ago. For the first time in several years, I can finally breathe.
Also, because TAF was covering insurance premiums, I was able to save for a mobility scooter. I've not been able to leave my home really, except for doctor's appointments, and even those were difficult, because walking is so difficult, but with the scooter, I feel like I finally have my life back.
This odyssey began in my 20s, and after 30 years, I was grateful for a diagnosis, because I could finally begin to deal with things, but TAF had made it so I can actually begin to live.
Everyone at TAF has been remarkably kind and helpful. I could never thank them enough for giving me the means to really begin living my life.
Thank you is not even close to enough to express my gratitude for this gift for the upcoming year.
Because of your assistance, I have not had an HAE attack in FOUR AND A HALF YEARS. No swelling, no missed work. No writhing in absolute torturous pain from my intestines swelling up. No having to plan my day out differently because a hand or foot swelled and I can't use them. No depression from thinking about a bleak future of pain or medical debt.
Twice a week I do my injections, on my couch before work while I drink my coffee. It's so regular to me now that I don't even bat an eye. But every single injection, I say a quick thank you prayer for the ability to have this. I know it's one of the most expensive drugs out there. I am thankful beyond measure to have access to it.
Sometimes I think I will wake up and all of this will have been a dream. I never imagined I would live a life this fulfilling.
Thank you from the bottom of my heart. Your organization has truly saved my life.
At a point where I wasn't sure how we were going to manage to pay for my MS medication, I found The Assistance Fund. Not only was it a tremendous help financially, the staff was patient and helpful and kind. I don't have the words to tell you how much of a blessing you have been to me and to so many others. You allow us to again find some security and joy. You all have a huge fan club in your clients and their loved ones. Thank you!
I have spoken many times with different representatives, both through the chat system online and on the phone, and they all have been very knowledgeable, professional, and kind. I truly appreciate everything that they all do. Without this service I would not be able to afford my medicine that keeps me walking, talking and even breathing. So thank you all from the bottom of my heart!