Such a beautiful organization that has helped me connect with others with similar experiences as mine!!
My mother fell down and couldn’t get back up. We were told she needed emergency surgery due to severe nerve damage and spinal stenosis or she would be paralyzed. We agreed to the surgery. She ended up having surgery on her neck due to the findings on another CT or MRI. She never recovered. My mother was not able to stand on her own or walk. She was bedridden. When she was discharged from the hospital she went to a rehab facility with skilled nursing care. She never improved and then reached her maximum limit of rehab and skilled nursing care and was discharged.
I cared for her at my home and then her health started failing so she back to the hospital again. Eventually she was given IV antibiotics again and then had to be transferred to an acute care facility where she later died of septic shock due to bedsores. (Sepsis and Pressure Ulcers/Injuries) I fought for her as long as I could but still feel like I should have done more. I am still angry and upset that the healthcare system failed her. I love you mom you are so strong. I am dedicating this tribute to you. More needs to done to prevent this from happening. When your loved one is not acting right say something. My mother was getting so confused and I knew it wasn’t ICU delirium. Demand to see your loved ones back and sides to see if they have bedsores. Please advocate for them.
Source: Maria James, daughter
The Sepsis Alliance has helped me tremendously with information and coping mechanisms for my sepsis recovery. It's been a long road since returning from Nepal having acquired a Staph infection that spread through my bloodstream and getting out of the Himalayas safely. I appreciate everything they do!
I had never heard of sepsis until I ended up with Urosepsis, brought on by a UTI, and other health issues I was unaware I had.
Discharged after two months in hospital my main issues were a continual feeling of 'De Ja Vu', and flashbacks reliving my time in the hospital on a daily basis, which I now understand is a form of PTSD.
Searching the internet for some answers I came across the Sepsis Alliance website, full of much useful information. What I found particularly helpful was reading the stories of other survivors of sepsis, and also the stories of those who unfortunately passed away from this illness.
Reading such life stories was a comfort to know that others whom had suffered much more than myself, and had survived, and continue to do so.
It is a useful website to shine a light on this illness, so that others, including those in the medical world, can be aware of it, what to look for, and hopefully catch it early enough before it can cause havoc in a patients body and life.
I found Sepsis Alliance after I had septic shock, they are a fantastic organisation who HELP. You can feel very alone after your illness, but with the resources and knowledge available it is a great comfort.
I can be a really dark period of your life, but with them you can find some positivity.
Sepsis Alliance leads successful efforts to advance sepsis care and research by engaging and educating both patients and multiple professional stakeholders. It is the definitive nonprofit authority in this important field.
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I am a 65 year old who survived a colon perforation, septic-shock, fecal contamination and many complication. No one prepared me for the 9 month journey of healing from two extensive surgeries (7 wks), and 2 weeks of hospitalization from C-diff infection. My trauma started in 2020 and in 2023 I found Post sepsis alliance. Because reading my med chart is a trigger for PTSD, I asked my PA-C who was new to read through and see if I could have post sepsis syndrome. She did and is treating me and working with my physical therapist (to address stamina and muscle weakness) and mental health therapist (PTSD, anxiety and depression) input as well. Those of you who have suffered a sepsis trauma, should use these resources for treatment information.. Finding out there was a reason why I was not progressing helped me accept the new quality I have in my life. Still grateful to be a survivor.
Sepsis Alliance is doing incredible work to shine a like on this devastating condition.
After my wife lost her life due to maternal sepsis, the team at Sepsis Alliance reached out to me to offer their condolences as well as gave me a safe space to share her story. 80% of maternal sepsis cases are preventable - but if people aren't more aware of the signs of sepsis and how quickly action must be taken, more mothers will continue to lose their lives and these awful statistics won't improve. No family should have to lose their mother and wife simply trying to bring a new baby into the world. Sepsis Alliance is doing their part to save lives, one mother at a time.
Hi there,
My name is Kate. I am a sepsis survivor. I have been newly getting involved as I was just discharged last week Thursday from being admitted due to sepsis. I am grateful Sepsis Alliance is there for support, resources and knowledge about such a very little known and diagnosed health crisis. I was very blessed that the ER doctor worked quickly and swiftly to treat the infection [they did not know what kind of infection I had or where it was located in my body]. They did a wonderful job with how they handled my case, my care and my recovery in the hospital.
Now going forward I want to make others aware, I want doctors to understand this is not "rare" as many think it is. I want to ensure no one else gets passed by thinking it was just a "minor" illness or having "anxiety" because another few hours I may not have made it.
I want to thank God, as He us absolutely sovereign and it is only by His grace I am here and alive.
Please support Sepsis Alliance and their work and all they do for us Survivors, Caregivers, people who's lives have unfortunately been claimed by sepsis and how important the word needs to get out that sepsis can happen at any time, to anyone and anywhere. The #1 question we should be asking - Could this be sepsis? ASK.
I lost my mother to sepsis less than three months ago, and in trying to cope with the shock and trauma of it all, Sepsis Alliance has been an extremely helpful resource. I appreciate being able to share my mother's story through their "Faces of Sepsis" website, and all of the tools they provide to help me understand what happened to her. Our sepsis experience was confusing and chaotic and I was left on my own to make decisions for my mom that I didn't want to have to make. Saying I miss her doesn't even begin to describe how I feel. I am so glad they are raising awareness about sepsis to hospital staff and the general public. They also offer a support group for grieving families I am grateful to learn about. Thank you for being there for people like me.
This is such important work and a valuable resource in the community it brings together and as an educational resource for survivors and their families. Sepsis is scary, and the impact, both physically and psychologically, is profound. Thank you to the staff, volunteers and researchers that devote their time to keeping us safe and healthy.
Sepsis Alliance provided me a platform to share my story and advocacy. I will forever be grateful for all they do! Please contribute to their cause if you are able
I am a sepsis survivor. "Barely survived" sounds melodramatic; I assure you, it is not.It was one the most terrifying experiences of my life. Having spent many years working with problem horses, I've had my share of injuries and close calls. But nothing like this.
I'd heard of sepsis and septic shock, but I thought it was a rarity, something unheard of in our modern medical world. Wrong. So wrong.
After recovering from the near death part of this hideous experience, I felt so damaged and thought I was suffering a breakdown.
After some research, I found the Sepsis Alliance. Thank God. Through this amazing nonprofit organization, I learned about Post Sepsis Syndrome(PSS). Learning about symptoms, other stories, the support resources and what to expect gave me such hope. I was not alone anymore.
I should never have been left to suffer PSS unexpectedly and so uninformed. The fact that my case is not an exception is infuriating. It is essential that the Sepsis Alliance be supported. Awareness must be escalated especially in the medical community, as misdiagnosis almost cost me my life.
The compassion and help provided to me by the Sepsis Alliance were as essential to my recovery as my lengthy ICU stay.
It is my desire to support this admirable and critically needed organization. A simple thank you is not nearly enough.
good site good info having been through sepsis my self several times and should be dead but i`m not wound up z leg short and brain injuried but it helped
When I was recovering from Sepsis Shock, I was desperate to understand what happened to me. I found Sepsis Alliance. Their organization and website was so helpful. I had not known anything about the signs of Sepsis, or what my recovery might look like. The information they share has been helpful not only to me but will also be helpful as I try to help change my rural doctor's/hospital's own awareness and protocol about Sepsis - for example my doctors questioned wether I actually had Sepsis because my urine cultures were "negative" (they were unaware of "Negatve Culture Sepsis"). I also want our hospital to give specific informtion to surgery patients and their caregivers about the signs of sepsis - mine was extreme tiredness/fatigue that did not get better, and increasing incoherence/inability to respond cognitively. Within 24 hours after returning home from outpatient surgery, my husband had to call 911. These signs were nowhere to be found in my outpatient surgery packet. The word Sepsis was not mentioned. This needs to change so that no one else has to die or go through experiencing Severe Septic Sock. Sepsis Alliance is working hard to improve awareness, policies and procedures. I am forever grateful for this organization.
I had sepsis, and was in septic shock in 2007. Fortunately, I was able to survive. Over the years I have gotten involved with charitable organizations. Because of my experience, I wanted to help spread Sepsis Awareness. In 2012, I found Sepsis Alliance. Tom and his team has done a tremendous job of growing his outreach and spreading the word of how to help stop/mitigate sepsis. Each year, they continue to bring health professionals, hospitals and survivors togetehr to continue their quest of raisin sepsis awareness. They have done a really wonderful job.
I first contacted sepsis alliance after I had sepsis in 2022 I had never heard of sepsis before until the day I was so sick and felt like I was dying this experience have been traumatic for me even though it has been a year since I recovered I now have ptsd because of it I wish there was more awareness of the condition that nobody talks about or even hear about until there love ones have died from it if you are concerned about sepsis please go to the hospital asap and say I’m concerned about sepsis it will save your life before it’s too late
Sepsis Alliance is a phenomenal organization that has daily impact through education of healthcare providers and the community.
They are doing important work to save lives! They actively promote sepsis awareness to the general public and healthcare professionals. They provide links to support groups and resources to families who've lost a loved one to sepsis, as well as sepsis survivors. They advocate at the local, state, and federal level to improve sepsis awareness and encourage elected officials to hold hospitals and care providers accountable to follow the standards of sepsis detection and management. Through their Sepsis Institute site, they offer free education for nurses and physicians on evidence-based practice, innovation in diagnosis and treatment, and program development. People are more likely to develop sepsis and die of it than heart attack or stroke, but unlike those conditions, they don't know the signs and symptoms or understand what's happening to them is a medical emergency; Sepsis Alliance is working tirelessly to fix this knowledge gap. Since their inception, awareness has grown significantly but there is more work to be done. Sepsis Alliance can offer these services and more because of individual donors and volunteers like me and others committed to this work, and corporate sponsors. They are a worthy investment! By supporting them in their efforts, the life you may help to save could be your own.
I first contacted Sepsis Alliance in 2013 after the tragic death of my 40-year-old husband, Jeff Davis, in 2012. I hosted an Annual in Loving Memory of Jeffrey Ray Davis 5K Run/Walk for Sepsis Awareness. I have been a Sepsis Ambassador for 7 years, a monthly Circle of Friends/Carl's Champions contributor since April of 2014, and was named a 2016 Sepsis Hero.
https://www.sepsis.org/faces/jeffrey-davis/
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I lost my 40 year old husband, Jeffrey Ray Davis, to sepsis in 2012. Sepsis was missed by 2 different ED Dr. until he was in septic shock. I did not know what sepsis was. I did a Google search after he died and the Sepsis Alliance website came up first. They have been instrumental in my healing from becoming a widow. They have been with me from the first day I contacted them and have supported me ever since. They are no longer strangers to me, they are family! We are all in this fight together, and I am proud to be raising sepsis awareness and saving lives with them! 2018 will be the 5th annual In Loving Memory of Jeffrey Ray Davis Sepsis Challenge and to date I've raised over $20,000 for Sepsis Alliance, while educating the community on sepsis being a medical emergency and preaching the symptoms over and over again. I want them to be embedded in as many peoples brains that I can touch, so more survive! I have gotten my will to live back with Sepsis Alliance's help, and each time I get something accomplished to save more lives, I feel proud because I know my husband's memory lives on and his fight continues through me and his children!
Jeff's story: http://www.sepsis.org/faces/jeffrey-davis/
News stories I've done:
http://www.koaa.com/story/35832910/your-healthy-family-race-to-raise-sepsis-awareness-in-colorado-springs-saturday-july-8th
http://www.koaa.com/story/33735461/your-healthy-family-surviving-losing-a-loved-one-to-sepsis
Member of Sepsis Alliance Advisory Board:
http://www.sepsis.org/about/advisory-board/lisa-bartlett-davis/
2016 Sepsis Hero:
http://www.sepsis.org/sepsis-heroes/lisa-bartlett-davis/
This charity has been helpful, kind, and is needed to support a cause few even know is a problem.
There are a few issues which seem to receive the lion's share of attention. Surviving sepsis changes your body itself; you cannot hit rewind. Glad these people are here!
After recovering from Sepsis, I found Sepsis Alliance. I found really helpful information about what I had went through and of course the stories from other people effected by Sepsis gave me a sense of not being alone in this. Overall a great organization.
Sepsis Alliance is becoming a one stop shop for anything sepsis related. Patients, families as well clinicians find value in the Sepsis Alliance offerings. Sepsis Alliance is also pushing the envelope to find new and different ways of identifying & treating sepsis early therefore saving more lives!
Best organization in its class!!! Sepsis Alliance brings the latest information and awareness on Sepsis as well as highlighting Patients' Stories!
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Our experience with Sepsis Alliance has been nothing short than fantastic! Not only their knowledge is immense but they are the easiest organization to work with.
I have been fortunate to present a couple of times at their Conferences and I would encourage anyone to reach out to these folks and collaborate with them.
Top class in their field!!!
Sepsis Alliance has taken on an important mission to increase awareness and improve outcomes of Sepsis. The team has embraced relationships with patients, clinicians, policy makers, and industry to align efforts and work towards common objectives.
Great organization to work with!
I first approached Sepsis Alliance (SA) as a paramedic who wanted to understand more about sepsis. Not only did the subject matter experts at SA help me grasp the impact of sepsis and the importance of sepsis care, they asked questions about how they could better prepare other prehospital clinicians to treat patients with sepsis. They are such an amazing organization that I began to volunteer for them to contribute to their mission.
Sepsis is frightening; and it truly was one of the most frightening experiences of my life! There is a great lack of awareness in the world in addition to a complete disconnect from the medical community. I did not have one doctor out of 7 that I saw tell me, when I left the hospital after 2 weeks, about post-sepsis syndrome, what to expect, the symptoms that you can't see, the emotional toil it takes on your life and relationships and how long it could last. Thank you Sepsis Alliance for being a voice for all of us survivors and caregivers. You have allowed me to not feel alone, you have given me information no one else out there has, you have continuously connected with me. You are a non-profit organization that I will recommend to everyone to donate to for all of the good you are doing. Please keep it up. Please continue your awareness to the medical community! I have shared everything I've learned from Sepsis Alliance with my primary care doctor and I will also share it with the CEO of the hospital I was at. You have been a gift from above!
As an independent video producer I have worked with Sepsis Alliance for many years. It's been a distinct pleasure to work with the entire SA team. Producing educational content for them has been one of the highlights of my career. Creating content aimed at specific groups and the general public is having an impact on increased public awareness of sepsis and improved outcomes. Being a part of this effort has been extremely rewarding.
Went to emergency room feeling so sick did some test and sent me home called me back said I had a blood infection I beat it on my own by some kind of miracle. Recently emergency room again chronic sinus I fection once again sent me home no treatment for si nus in fiction I'm afraid I'm sepsis again no one listening again so sick
I am a grieving mum who lost her princess because of sepsis and want to raise awareness about this silent killer unknown to most people.
My starting point will be my daughter’s story.
Sandra, my beautiful baby, was a healthy and happy girl who never had health problems or a history of any serious illness. She was almost 4 years old when Sepsis hit her body and took her life.
It started with a fever and normal flu, nothing to worry about. After one day, the infection invaded her whole body and she passed away because of the non -identification of the symptoms in an early stage.
We lost her in a limited frame of time. It started with “Nothing to worry about” and ended up with “Sorry, we couldn’t save her life”. Sandra is gone but I don’t want to see other angels leave this world because of Sepsis. I don’t want other mums to go through this tough journey.
I was lucky to find Sepsis Alliance, it helped me to learn about sepsis and connect with other people who are in the same boat.
This action will honor my daughter and give purpose to my present and future.
Help me raise awareness by sharing our story. When sharing is equal to saving lives, I will do it until the last day of my life.
❤️Sandra’s Hope❤️
My dear mother recently died of sepsis totally unexpectedly.
The initial mild symptoms were so insidious that they caused no concern. As a health care professional myself it is so vital that symptoms are not overlooked and that the bigger picture of potential sepsis is always considered.
The Sepsis Alliance provides vital information and is a wealth of resources. The survivor and tribute stories contributed on the site are also a reminder of how sepsis affects so many lives and takes so many lives in so many ways.
The Sepsis Alliance is a needed resourse for both the public and health care professionals so that awareness of this wretched killer is more widespread and lives can be saved by early recognition.
Thank you Sepsis Alliance for your wonderful resource and knowledge
I am so thankful for Sepsis Alliance and the awareness they raise for Sepsis. I have read so many stories that help me to feel like I am not alone. I have a better understanding of Sepsis and what happened to me thanks to Sepsis alliance.
So grateful for this organization and the awareness they bring to such a common yet rarely talked about dilemma . I lost my hero, my big brother to this recently, due to a missed diagnoses and premature discharge after a heart procedure. He passed 3 days later. He had several symptoms, but his doctor wrote it off as complications from his heart procedure. Had we known sepsis was even a thing to be aware of, I believe we would have asked more questions. Anyhow, it's comforting to know Sepsis Alliance exists, not only for support of survivors and families of those who lost someone, but also the hard work they do to further educate healthcare workers and the public in general . :)
I was two years old the first time that I had sepsis. It left lifelong debilitating effects on me as a child and adult. I had sepsis in my left hip eating away at my cartilage and had to have surgery. I don't remember any of it but it left a huge scar on my left hip and I would endure many surgeries throughout my life. I'm 54 now and in my second successful hip replacement.
In April 2021 I was home recuperating from my bladder removal surgery (I'm a bladder cancer survivor today) and I was so ill I barely could walk in to my follow up appointment with the surgeon/urology oncology specialist that was two hours away. I told him I was worse and he took out my stents and sent me to get labs before sending me home. My pain intensified and I became so sick that I was scared I would die. The day after my appointment my local ER diagnosed me with severe sepsis and AKI and I was life flighted in a helicopter back to the hospital where I had my surgery and admitted to the ICU for four days. I had urosepsis from a UTI! I did not know I could still get the without my bladder! I survived this and yet another hospitalization 2 weeks later for infection. I struggled to recuperate from my bladder removal surgery and my new life with a stoma and urinary bag attached to the right of my abdomen. I was weak and short of breath and everything became difficult. I still had terrible pain and my anxiety worsened. I constantly feared getting sepsis again. My family noticed that I had lost my sense of humor and I became short fused and angry. I couldn't connect to anybody and I could not follow a conversation. My loss of memory embarrassed me. I isolated and could not figure out why I was not getting better! Bladder removal surgery is a difficult adjustment already and I was having effects from my severe sepsis but I didn't know this until by accident I came across an article about why sepsis patients were not getting better after they left the hospital and I found the Sepsis Alliance and I was not alone. I was not crazy. I was not unable to heal. Every single symptom I had was a symptom of post sepsis syndrome and I finally knew what was going on with me. The Sepsis Alliance has educated me on the sepsis that affected me as a child and as an adult. I am doing better today although I still battle with post sepsis effects that affect my life daily. I am so grateful for the Sepsis Alliance because their education efforts have made a huge difference in my life. They educated and connected me.
Finding a website that actually provided factual information about sepsis shock and allowed me to read accounts of other survivors helped me realize that I wasn’t alone. Sharing my story with others who have also suffered from Sepsis Shock has helped me emotionally to try to move on with the changes in my body.
Sepsis Alliance helps all of us, survivors, and caregivers of those who didn’t survive a place to try to understand what happened to us and the loved ones that didn’t survive. Thank you Sepsis Alliance
A Hayes
I have been a donor to Sepsis Alliance for more than 10 years, and have watched the organization grow to serve the public and medical professionals in highly effective, applicable, and beneficial ways: providing quality sepsis education; providing emotional and community support to sepsis survivors and their families; supporting the government in sepsis research and legislation. The staff is dedicated, hard working, respectful and caring. This is truly a nonprofit that embodies its mission and beyond on a tight budget.
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I have been donating to Sepsis Alliance for several years, ever since I learned about the mission of this nonprofit: to educate medical professionals and the public about sepsis, its prevention and treatment, and to support the victims of sepsis and their families. Sepsis is a major cause of death in this country, and, with some education about treatment, is preventable. This nonprofit runs on the passion to save lives. Their budget is minimal, and the funds raised are used entirely to serve their cause.
I found Sepsis Alliance nine years ago after surviving septic shock from a perforated small bowel. I nearly died. I wasn't prepared for the long recovery process and felt lonely and abandoned by my doctors and friends. I didn't know what Post Sepsis Syndrome, PSS, was and my doctors certainly didn't know about it. I also suffered from PTSD from being near death, being in ICU on a ventilator and spending Christmas in the hospital during a severe ice storm. It was at that point that I started my search to educate myself and found Sepsis Alliance. It may sound cliche to say that they saved my life but they absolutely did! I didn't reach out to them but I read every word that was on their website and was finally able to start processing what had happened. I'm a RN, but we don't see this side of patients. After they leave the hospital you may often think about their outcome but you don't hear their outcome. Over the years I've had sepsis 12 times, twice in septic shock and many additional bloodstream infections that didn't progress to sepsis due to early treatment. That's all thanks to Sepsis Alliance and the educational materials provided on their website. I've used that material to educate my doctors along the way too. I've had the distinct pleasure to be involved in the Sepsis Alliance Connect initiative and participate in the zoom support groups for survivors. It's been a source of great satisfaction for me. Keep doing what you do, SA!! ❤️
As a two time sepsis survivor it is my obligation and duty to raise awareness for sepsis.
The Sepsis Alliance Organization has helped me meet others that understand the turmoil my body has been through and some issues post sepsis.
I can't rave enough. God bless.
Sepsis Alliance has been an in valuable lifeline of support for our journey with our daughters battle with post sepsis syndrome. Finding this community and the support tools that come with it has allowed me to find my feet beneath me in some of our hardest days. Using the Sepsis connect live support groups has also allowed me to meet people across the world who have shared experiences as caregivers of Sepsis survivors- I look forward to all of the live and recorded programs that bring an incredible amount of insight to the sepsis and post sepsis experience. Lastly the Sepsis alliance team is some of the most kind, generous and thoughtful people I have ever met. The supportive nature and true drive to save lives lets me know that there is always a team of amazing people behind each and every one of us on our journy!
Hello,
We lost my sister Linda Sawyer to a Sepsis infection in 2019 and decided to get more involved in the fight to combat this horrible disease.
We have hosted a charity golf event supporting Sepsis Alliance for the last two years which has been incredibly rewarding and succesful.
The entire team at Sepsis Alliance is supportive, incredibly motivated and transparent in all their dealings.
We could not be happier with a partner to fight this good fight.
Bill Mooney & Akiko Yamada
I am a sepsis survivor living in the U.K. and this organisation has helped me process what happened to me and how to learn to deal with my recovery. There are great resources and I cannot recommend them highly enough. Please support them through fundraising and donations
Wow. To be able to connect to a community with so much valuable resources and education was life changing and I say that because as I struggled to recover, this non profit was an outlet and educational resource to learn that was I was experiencing was normal.
I found the Sepsis Alliance on Instagram while vlogging about my long recovery journey from Septic Shock due to acute diverticulitis and colon perforation on May 22, 2021. That day I was more tired than usual and my left hip was in excruciating pain. It felt like it weighed a thousand pounds and I was unable to move my leg after a restless night were I was unable to sleep. My family called 911. I was near death when I arrived in our local ER where the doctor ordered a CT scan which showed the perforation. My blood pressure kept dropping and after being stabilized I was flown to Baltimore for live saving surgery. I was on a ventilator and then in ICU for a week and a half before going to the step down unit. The surgeon had to place a temporary colostomy and I lost about a third of my colon. I was unable to walk and swollen almost beyond recognition. My 20 year old daughter said my hands looked like "doll's hands." I spent almost 3 week at in-patient rehabilitation, learning to walk again and to get strong enough to return home. At home I received home care and physical therapy before being discharged to start out-patient physical therapy in September. I don't remember the Spring or Summer of 2021. I spent every morning and most of the days crying. I couldn't sleep or sit still. I was afraid and terrified of dying and rarely would sit for any type of medical or dental procedure last summer and fall. I was having panic attacks several times a day and still deal with PTSD from post-sepsis and ICU syndrome. I bailed out of the dentist chair, THREE times, and left the infusion center where I was to receive iron infusions to prepare me for the colostomy reversal surgery in December. The sepsis destroying my iron stores and I was very anemic. I lost a lot of hair, which is finally starting to return to it's previous fuller state. I eventually sat for the iron infusions because of the constant hand holding of my husband, my children, our mental health therapist and very dedicated and caring friends who talked to me every day via phone or video chat and helped us in so many ways. The nurses and doctors who took care of me were also very kind and patient as they helped me get through procedures and tests. I went through with the reversal surgery thanks to a caring staff member in the hospital admissions department who literally held my hands and calmed me down enough to get me registered and upstairs to the pre-op area. The reversal was performed by the same surgeon who saved my life in May and was successful, and I began documenting my recovery on Instagram. That's when I found the Sepsis Alliance and began following them immediately. Their information has been a lifesaver and the Pilot peer-to-peer support group that I participated in on Zoom last night REALLY hit home for me. I have very understanding and supportive family and friends who have pulled me through a lot of the mess that my life became after sepsis. What helped me through the Sepsis Alliance pilot support group last night was seeing others who had had sepsis, and were still alive to tell the tale. Somehow, I got it into my head that my days were still numbered even though I survived the initial sepsis in May. I Googled "sepsis" and only saw studies that suggested our health prognosis after sepsis wasn't that good. Even with all the help and support of those around me, I was terrified, until last night, and seeing others in the group and listening to them relate stories from their experience that echoed my thoughts and feelings post sepsis. It gave me more HOPE to not give up on the hard work and lengthy recovery program I'm currently doing to live my best life possible and be as healthy as I can be despite having had sepsis. I work hard every single day to walk at least 4 miles, do physical therapy twice a week and do all the homework they give me at home. I'm doing stretching and weight lifting, balance and coordination, every day. I'm making plans again for the future, to join our local Y with my family and continue my exercise and strengthening program there after I'm discharged from out-patient physical therapy. The Sepsis Alliance is an organization is much NEEDED and I hope it continues to grow and establish local chapters, I definitely want to help make that possible. Not enough is known about sepsis, and many of us feel so all alone after going through something so horrific. The Sepsis Alliance, through it's peer to peer support groups especially, can truly help give us solace, peace, and hope for having a future again. Thank you so much Sepsis Alliance! This organization has been a game changer for me.
My Pat passed away from sepsis. The only thing I remember hearing about sepsis before my
wife's passing is that Christopher Reeve died from sepsis. I feel there are many people out there that don't know about sepsis or know little about it just like me. My wife Pat was allergic
to opioid medications which includes most everything except Tylenol. The pain she had from sepsis her last 2 weeks she lived must have been excruciating. Sepsis is very hard to diagnose, but sepsis always starts with an infection that can not be controlled. People know about heart disease & cancer, but know little about sepsis. If I can convince just one of you just how deadly sepsis is, I hope that person is you.
Jack Termini
My mom developed septic shock from a spine infection (the doctors never found out where the infection came from). My mom fought the infection and sepsis for 90 days, until she lost her battle on October 30, 2021. She was 56. The doctors were very much under educated on sepsis and how to treat it. I am so glad Sepsis Alliance is raising awareness for sepsis that is all too common.
I developed sepsis in the summer of 2020 after giving birth to my first child. When I got home the Sepsis Alliance website was the first place I found information about sepsis. I have witnessed firsthand how dedicated this organization is to raising awareness about this frightening condition that took so much away from my early weeks as a mother.
Tops! At such a devastating time for our family, they listened and offered encouragement. This helped us put one foot in front of the other to keep going after our loss.
Oh my gosh i never knew there would be such a place. PRAISE JESUS IM GETTING GOOD CHILLS, MY MOM IS PHYSICALLY DISABLED AND IM REALLY CONCERNED SHES EVEN SEPTIC RIGHT NOW AND THE YEAR BEFORE THAT SHE WAS IN THE HOSPITAL 6-7 TIMES FOR BEING SEPTIC, I AS A STRUGGLING DRUG ADDICT CURRENTLY AM WAITING TO GET INTO A TREATMENT FACILITY AND I JUST SPENT 586 JUST ON INSURANCE AND REALLY I ONLY MAKE BARELY MAKE 1000 A MONTH AND CURRENTLY MY MOM IS DEFINITELY NOT IN THE BEST OF HOUSING THAT SHES IN IF SHE JUST EVEN HAD SOMEONE COME IN AND CLEAN HER HOUSE OF COCKROACHES I BELIEVE THEY CRAWL IN HER EARS SINCE SHES BASICALLY BED RIDDEN SHE NEVER LEAVES HER HOUSE AND PROBABLY JUST THE SITE OF HER FLOWERS I PLANTED FOR HER WOULD GIVE HER THE BIGGEST SMILE IN THE WORLD I DONT EVEN WEIGH 150 TO BE PICKING HER UP THE LOCAL IHSS COMPANY AT THE OFFICE IN OROVILLE ISNT DOING ANYTHING TO HELP I REFUSE TO LET MY OWN MOM WHO NEVER LEAVES DOESN'T HAVE ANYONE TO VISIT WITH HER SO PLEASE I DO BELIEVE IN GOD AND THERES GOTTA BE SOMETHING OR SOMEONE TO HELP LORD PLEASE MY NAME IS TIFFANY AND THANK YOU FOR LISTENING TO ME COMPLAIN GOD BLESS YOU AND HAVE A WONDERFUL DAY
What a fantastic nonprofit leading critical work in the health care space. We need more organizations like the Sepsis Alliance! Their team works tirelessly to raise education and awareness of sepsis, one of the leading causes of death in our nation. They provide tools and resources to better sepsis care for all patients and survivors, and are leading the charge on an issue that does not get nearly enough attention. They are committed to ensuring systemic change through policy and advocacy work, in addition to working with a large coalition of hospitals to standardize care. They are also a group of highly professional, competent, and wonderful individuals that are easy to work with and understand how to drive change in this space.
I've been a part of nonprofits for years and have never seen such a broadly engaged group of experts and passionate supporters as I have with Sepsis Alliance. Their multi-pronged advocacy involves awareness and education for providers, survivors, caregivers, and others. Their focus on technology enables data-driven approaches that will lead to solutions and saved lives. The effectiveness of their messaging, success in fundraising, experts on board and advising, and more makes them the best organization of its type with which I have ever been associated.
Sepsis Alliance is a remarkable organization. They are passionate about sepsis prevention and they are compassionate about the lived experience of sepsis. As a nursing program director and sister of someone who died from sepsis, I am engaging with Sepsis Alliance to promote prevention of this devastating illness through integrating sepsis prevention into the nursing curriculum . I am also sharing the story of my brother's unfortunate outcome from having sepsis to prevent others from having the same outcome. Martha
As a nurse and Infection Preventionist, I am so thankful for the Sepsis Alliance. My mother died of sepsis so I know first hand the importance of your work. (You can find her story under Faces of Sepsis- Mary Lansing). This website has so many helpful resources for families, patients, and providers. The Sepsis Alliance has truly been instrumental in getting the word out. Thank you from the bottom of my heart!
Our 8 month old daughter, Hadley Rae Fowler died unexpectedly from Klebsiella Oxytoca Sepsis on March 19th 2019. It has been our mission to spread awareness to possibly help prevent this from happening to someone else. On the day of her death, March 19th, we marked it as "Hadley Rae Day". It's a day to spread little acts of kindness to others & tell her story to help others. https://www.facebook.com/hadleysraeofsunshine
When I wrote into Sepsis Alliance this year to tell our story for Faces of Sepsis, the response was immediate and warm! They let me know the details of where our story and link would be posted but there is more... They are posting her story on March 19th!
Thank you Sepsis Alliance for all that you are doing and this little act of kindness in memory of Hadley, means more than you know. This is so special to us!
You can take a look at her story on March 19th 2021-https://www.sepsis.org/faces/hadley-rae/
Please donate and support Sepsis Alliance!
After two boughts with sepsis realized that many individuals including medical professionals do not understand sepsis issues. Sepsis Alliance will help to educate the general public and medical personnel.
Back in January of 2016 I became severely ill with Sepsis. Even though I was a registered nurse, trained to recognize Sepsis, I failed to recognize it in myself. I was so used to sending patients (I worked in a nursing home) to the hospital with urinary tract infections to avoid becoming septic, and yet I still somehow didn't grasp the true seriousness of Sepsis. Sepsis Alliance has been incredible in educating the public, healthcare workers and hospitals in understanding the symptoms of Sepsis, the importance of proper and immediate treatment of Sepsis. Sepsis is a 911 Emergency. Please donate if you can and/or go online at Sepsis Alliance and read Sepsis.
The Sepsis Alliance was instrumental in getting me through a big part of my recovery. Sepsis left me a multiple amputee. I worked really hard in rehab. I took my first steps one month post bilateral below the knee amputations. 5 1/2 months post original trauma my hair started coming out in handfuls. I started suffering panic attacks, having nightmares. I would forget words and what I was saying midsentence. My doctors said there was nothing physically wrong with me and I was just suffering PTSD. When I was discharged, my confidence was low. And some family members even whispered brain damage… It was horrifying!
When I found the Sepsis Alliance site... I honestly thought I was losing my mind. You cannot understand unless you’ve been there, cannot understand the relief I felt when reading about post sepsis syndrome. Knowing I wasn’t the only one, that I wasn’t alone was enormous. I started sending SA links, infographics and information guides to help others understand what had happened to them. I’m a believer that #knowledgeispower! Information provides opportunity to be proactive in ones recovery.
When I started publicly speaking about Sepsis. Sepsis Alliance “angels” Marijke and Alex went the extra mile to help me prepare a presentation with recent stats and infographics. THIS will never be forgotten. Thank you Sepsis Alliance!
I gave Sepsis Alliance the well-deserved highest rating (five stars) because of the indefatigable dedication from its whole team to the cause of saving lives by making those working in the medical field, as well as the general public, aware of how deadly sepsis is and how crucial it is to recognize its early symptoms in order to act upon it swiftly and effectively.
Many people have never heard of sepsis until they found themselves in an ER surrounded by doctors desperately trying to win the battle against such mercilessly deadly condition.
Making the general public aware that seeking emergency treatment as soon as the symptoms become evident greatly improves the chances of survival and recovery is precisely one of the goals of Sepsis Alliance.
I am giving Sepsis Alliance 4 stars because they are committed to spreading awareness about Sepsis by sharing real-life stories that will hopefully help other survivors feel a connection and possibly help other peoples lives.
The Sepsis Alliance is a wonderful nonprofit organization that truly promotes community well being and spreading the truth about sepsis so that more people can be saved by prevention, treatment, and quick recognition. By being able to read actual survivor stories that are TRUE, it helps put the reality of sepsis into perspective and also helps those who have experienced sepsis to feel like they are not alone. Sepsis is a true killer, and this organization is here to spread the word about how we can protect ourselves and our loved ones and offer resources to those suffering from sepsis or long term effects physically/mentally from this. Great organization.
I was looking for info re Sepsis, Sepsis Shock, and Post Septic Syndrome as I almost died twice this year and was heading for a third time that luckily was caught in time with sepsis. My husband researched SS and PSS b/c the doctors never made us aware of the consequences etc. and it seems that the only thing he could find was info outside of the US. I went through a horrible year. I found Sepsis Alliance and wrote to them and they communicated very promptly. I also sent in my story and how I am coping with the after affects of this ordeal. Any questions we have have also been promptly answered. It is wonderful how communicative they are, which means they do care about what they are doing. I ran several nonprofits in my time and am very pleased with this one!
There has not been a more useful tool in my opinion on the web for teaching the public about sepsis than Sepsis Alliance. They not only share information on this beast that most don't know of, but they also honor those we've lost and who have battled and won, some more than once. A lot of awareness sites aren't as in-depth as SA gets, and that is another aspect that makes it great.
Everything I know about what my mom went through before septic shock took her from me is thanks to this wonderful site. Everything I continue to learn comes from them. There are few sites like it and I'm grateful for its existence
I'm very grateful that I have found the Sepsis Alliance. I had looked for 10 years after my mother passed from sepsis to find a non profit that brought awareness to the forefront. I don't think it was by accident, that I shared their post on a Friday and that very afternoon a friend saw it and went to the ER. She is a nurse but had ignored the symptoms until I posted a
FB post on creating awareness. In a day.... Sepsis Alliance helped save a friend's life.
I'm incredibly grateful I found the Sepsis Alliance after my diagnosis and treatment. I'm experiencing some trouble with post-sepsis syndrome, and it was incredibly helpful to find a place that offered learning materials and support for my condition.
My first and only experience with sepsis began when I was taking care of patients who were going through this as a nurse in the 5 ICUs I was working in as a float nurse. The thought never crossed my mind when I consented to have surgery to remove a uterine fibroid that was causing me to be severely anemic. My small intestine was punctured during my surgery and was not found to be the cause of my feeling ill for 2 days post-operatively, even though I returned to the hospital twice. When I couldn't breathe on the 3rd day and went to the ER, the cause was found, my intestine was emergently repaired over 7 surgeries in 11 days. I was in septic shock with the maximum amount of blood pressure medication used to sustain my blood pressure. I stayed a total of 39 days in the hospital, losing and regaining my kidney function, dealing with painful procedures that gave me perspective on what the patients I took care of go through. The after effects of my life-saving medication caused me to lose my toes, which as a runner and triathlete was devastating to me. Sepsis Alliance has done great work to provide awareness with their more than daily posts that tell stories of those affected by sepsis, the patient and family and friends!
I did some research into a close family members' death, shared my story while on the website. I felt like I was in a learned community, finally, that understood the absolute shock and devastation that is sepsis. I am so pleased that others can read about my personal experience, and I can reach out if I need to. There is hope that sepsis can be cured if caught early, and it is so easy to misdiagnose. Sepsis can happen to anyone at any time. I feel like this nonprofit is getting this message across! Thank you.
I survived sepsis after childbirth. I knew little about sepsis when I caught it...what this organisation does in terms of the knowledge and support and raising awareness of sepsis is outstanding.
Being a terrible sepsis survivor I have been very grateful for the help and information the sepsis alliance puts forth! Being able to read others stories and not feel alone in these issues has been a blessing. Thank you!
I am very grateful to be able to share my story in Sepsis Alliance. I have been able to compare experiences with so many people that have experienced sepsis. Its an incredible source of information, contacts and motivation.
For so many reasons this organization is special to my heart. As an amputee, I have countless friends who have lost limbs due to sepsis. As a yoga practitioner I have been fortunate to practice yoga with your current director who has deepened my awareness of this silent disease . This organization is necessary and helps so many, i am grateful to be some small part of it.
When I had sepsis and went into severe septic shock a year and a half ago, Sepsis Alliance was an incredible resource for my family and has been an amazing support for me as I have recovered. I have been incredibly impressed by the quality of the staff as well as the depth and breath of online resources and informational materials. I have such faith in this organization that I recently committed three years of my life to being a board member, volunteering my time and energy to help spread sepsis awareness with this amazing group of people.
MY MOM WENT INTO THE HOSPITAL WITH A UTI. BECAUSE SHE DID NOT GET THE CORRECT TREATMENT IT THEN TURNED TO SEPSIS. SHE DIED FROM SEPSIS 2 1/2 MONTHS LATER.
Sepsis alliance has served not only me as a sepsis survivor but has helped me with patients I encounter as a student nurse. Sepsis Alliance also serves the many individuals and families that are faced with sepsis. They provide awareness, research and educational tools needed for patients families and medical staff. I don’t know what I would have done without their resources.
I am a sepsis survivor and find the Alliance such a great organization. From sharing stories to providing valuable information on many topics on sepsis.
Your love support effort and hard work is brilliant it fills my heart with pure and deep gratefulness. It is so necessary to spread the word so less people have to die or suffer so much.
Thank you and god bless you
My daughter, Millie Rose Giani, died unexpectedly of sepsis and myocarditis at age 5 on October 27, 2019. The Sepsis Alliance has been a tremendous resource for me to find more information on sepsis, this terrible disease that took my baby from me. I want to arm myself and others with this knowledge. For me, it gives me some understanding of something that is otherwise incomprehensible. For others, I hope that raising awareness will empower caregivers and medical providers to make smart, quick, lifesaving decisions in as many situations as possible. I am grateful to the Sepsis Alliance for giving me and others an outlet to share our stories and for helping to disseminate information and raise awareness of sepsis.
My Daughter, Gracelynn Hope, passed away at the age of 7 months old from sepsis. I reached out the the Sepsis Alliance for information that I could provide to the senators in order to get more education about sepsis. The hospital my daughter was at does not know all the signs and symptoms of sepsis. When she passed I ordered her medical records and she tested positive for sepsis 7 days before she passed away. They waited the day before she gained her wings to start heavy doses of antibiotics. She had mottling and they said she was bruising. The Sepsis Alliance has been a huge help.
SURVIVOR
I had gastric bypass revision on 9/24/19. Came home on 9/26. (Sepsis and Surgery) Two weeks later terrible pain in my back and went to ER. I had a leak from my surgery, severe UTI and a collapsed lung. I had no idea I had any of that going on. (Sepsis and Urinary Tract Infections)
I ended up with sepsis, had to have a chest tube, over a liter of fluid was drained from the collapsed lung. I had a fungal infection in that lung. (Sepsis and Fungal Infections) I was on an antifungal medication for that and had to have additional surgery for the stomach. I woke up in ICU with breathing tube down my throat and a tube down my nose. I was terribly weak for some time.
I came home on 11/20/19. I’m still weak and when I take the occasional deep breath, I have pain on my side. I have a 2nd follow up with my regular doctor in a few days. I fear I will feel weak and have that lung pain for the rest of my life. It’s so depressing but since I had no signs but the pain in my back that brought me to the ER, I believe God was looking out for me, saved me.
My elderly mother suddenly became very ill one evening. It turned out that her body went into septic shock. I am so very thankful that St. Jude Medical Center, in Fullerton, CA, is "code sepsis" trained and had us watch patient educational videos from Sepsis Alliance, which also contained patient testimonies. The videos clearly explained what sepsis is and cleared up the misconceptions that sepsis is not "caught" in hospitals, but the body's response to an infection that has threatened or affected organs. Sepsis Alliance's mission in helping educate the public and medical professionals to promptly recognize and treat sepsis is an absolute must when a mere 36 hours can make all the difference between life and death. My dear friend recently lost her sister to sepsis, and I can't help but think if the medical professionals had been better trained to recognize sepsis, she might still be with her family today. It's for this reason that I have shared my mother's testimony with Sepsis Alliance and offered to volunteer to team up with them to help others. They care about making others aware.
I've been an avid reader of the Sepsis Alliance's website, have shared my story as a septic shock survivor, raised almost $1,000 through birthday donations on Facebook and have taken courses and attended webinars to learn more about the illness. The Sepsis Alliance was very appreciative of my donation and personally contacted me to thank me. I do believe this non-profit does an excellent job with their concentration on raising sepsis awareness in order to save lives by offering an extensive amount of learning opportunities and printable handouts for educational purposes.
Desarrolle Sepsis por una infección urinaria después del parto de mi bebé que subio a mi riñon izquierdo y luego a la sangre positivo por bacteria E coli
Recibi tratamiento de antibióticos y fluidos IV de inmediato tuve fiebre de 101 grados dolor de cabeza y dolor fuerte en mi riñon
Ingresada por 4 dias
Luego fui a casa y regrese al hospital por 7 dias mas con un catéter intravenosa para recibir antibióticos
Gracias a Dios por una nueva oportunidad de Vida
This is an outstanding organization that brings awareness to many people. Sepsis is such an unknown disease that affects so many patients, family and friends. It is easy to miss if there is no education on the subject. It has truly affected my life in so many ways. I wish I had known more about the disease and not allowed myself to be so near death because of it. I am one of the blessed that have come out fairly unscathed. Not so many are so lucky and education is the key! Keep up the great work!
My healthy happy 5 year old daughter developed sepsis from pheumonia. She nearly died. She survived and is here to tell the tale. Unfortunately she was seen at a&e and was sent home with a virus with no further tests. This was 24 hours before I called 999. We are so grateful for the work of this charity. Everyone needs to know. I will keep shouting sepsis from the rooftop.
This team does excellent work in increasing awareness about sepsis, even amongst health care personnel! I wished they had been in existence longer so that my youngest son could have lived! I very much appreciate their continued education to prevent recurrences with our current loved ones.
I am do glad that I discovered Sepsis Alliance. This is a great organization of survivors and of outreach.
AS soon as I found them I felt less alone and I also gained the courage to share my story here locally in Rhode Island with local newspapers. I am trying to make people aware of Sepsis and am also using my blog on Blogger "Back in the Bucket" to make more people world-wide aware of this global threat.to out health.
I'm so thankful for the service, care, dedication and information provided by the people at Sepsis Alliance. I was thought to be in excellent health at 37 years old, when out of nowhere 6 months ago I fell ill with a racing heartbeat, mental decline, fever. After two days in the hospital I learned what sepsis was, however to this day I don't know what caused it or why it happened. I never heard about sepsis until I almost became just another statistic. I've turned to Sepsis Alliance many times since then and I educate as many people about sepsis as possible now. Take care of yourselves.
I have worked with Sepsis Alliance in two capacities--as a source for content to develop community awareness campaigns for my company and as a vehicle to share my personal story about losing my father to sepsis. They are extremely knowledgeable on the topic and committed to eradicating this horrible disease. Everyone I have dealt with is professional and caring, and the resources they provide are top-notch. They are passionate about their cause, and it shows.
As a sepsis survivor, I'm excited to see the Sepsis Alliance raising awareness to educate and protect the public!
My name is Shaun Wertz,
My sepsis story begins in late February of 2019. As I was laid up in a hospital in south Florida recovering from a serious 3rd burn covering about 20% of my body. I started to notice I was not only feeling the pain of the burn, but also starting to get bouts of fevers, and shakes. My shakes started to be constant and uncontrollable, and my fevers began to spike. My health care providers became increasingly more concerned as well as myself.
My doctors contacted the in-house intensivist who came up to see and speak with me in the burn ward. He began to tell me I was septic and that I was being moved to the ICU for more intensive treatment. I was scheduled for surgery the following morning to cover my wounds with a skin graft, and about that point my memory goes blank and I only remember tiny bits and pieces until I came too about a week later. Only accounts from loved ones, medical records, and my amazing army of health care providers tell the true devastation that septic shock had on my body.
After surgery my blood pressure began to drop. I had lost so much blood I needed several blood transfusions. My kidneys had failed, and I lost my ability to breathe on my own. They had to intubate me and put me in a medically induced coma for 6 days by dripping propofol into my system to keep me asleep so my body could heal. As well, they pumped vasopressors, antibiotics, and IV fluids through me to try and clean out my system from the infection. The only bits and pieces I remember during those 6 days were waking up with my hands tied to the bed rail because I was trying to pull the tube out of my throat because it felt like I was choking, but couldn’t. I remember being terrified because I had no idea what was going on, but only to succumb to the propofol and fall back to sleep. After that week in that terrible situation I finally came to, and began to find out exactly what happened to my body. I’m a testament to how devastating sepsis and septic shock can be to a human body. But more importantly how amazing my doctors and nurses were! They saved my life, and without their quick and decisive actions, I wouldn’t be here today to share my story. Quickness I’ve come to learn, is absolute and paramount to treating sepsis! Because it can go from bad to destructive in very little time if not noticed and treated quickly. My parting words are these. If you feel you may be septic you need to speak up and find help immediately, because if not it could be your last regret.
In 2008 I survived septic shock. To this day the doctors are not sure why I became septic. I had ankle surgery and within 48 hours had a high temperature. I was lucky in that I was still in the hospital. My condition deteriorated quickly. I was diagnosed with sepsis and the race to find the critical combination of antibiotics to cure me was on. Within a week I had to be moved to the ICU; a coma induced so that I could be intubated and kept alive. The first organs to fail were the lungs which means I had ARDS (Acute Respiratory Distress Syndrome). I was in the ICU for 46 days with one crisis after another. At one point, my husband was told my chances of survival were 15% at best. I survived but suffer from Post Sepsis Syndrome (PSS). The ICU days were frightening for my family as they rode the rollercoaster of sepsis shock. The nightmare for me didn’t start until I was transferred to the rehabilitation hospital. I suffered from an acute case of delirium. Overall the delirium lasted for about four weeks, diminishing over time. For me that was the start of the nightmare. I had no idea where I was and what had happened to me. I was living in a frightening world where everyone was trying to hurt me. At the same time, no muscle in my body worked, which means I was physically helpless. It took me two long years and a tremendous amount of effort to come back to the point where I could hold a job. I am told by specialists that I have had an “amazing recovery”. I was spared the death penalty, but PSS is a life sentence. One of the most difficult things during recovery is that people, including medical professionals, have no concept of the long-term effects of this killer. The Sepsis Alliance is working to raise awareness and educate both the general public and the medical profession. In addition, they provide support for survivors. Knowledge and awareness of this condition is critical. We need much more research into what causes sepsis, effective ways to treat it and the long-term care of survivors. I look forward to continuing to support this cause. If anyone is interested in learning more about the journey from a caretaker’s perspective, I recommend reading Two Weeks in Winter by Mike Maranhas (my husband), available on Amazon.
On November, 2018, I was admitted to a local hospital in acute pain and spent 5 days on an acute care floor under the care of several physicians who were trying to isolate and diagnose my infection. I am a 69 year old female who has been in excellent health my entire life, but after struggling for a couple of weeks with what I thought to be flu symptoms, it turned into a call to 911. I am also in the medical field and I thought sepsis struck only the critically ill or patients with compromised immune systems. I experienced the sobering reality of sepsis personally. Fortunately, I survived and I discovered Sepsis Alliance while seeking information about post-sepsis care. I have come to learn that they are an amazing organization that provides education and support for survivors of sepsis. I am grateful I found them and I want to be proactive by helping raise awareness in my own community.
Sepsis Alliance has been very instrumental in helping me after my sepsis diagnosis! They are just amazing!
In early December of 2016 I had sever sepsis and organ dysfunction. I cried to my mom in the ICU, “I don’t know if I can fight through this”. But I did and on Christmas Eve I was discharged to go home to my husband and daughter. But 11 months later I went back to the ER with a 105.5 fever. I had some GM seizures and after an MRI I went into septic shock. My heart rate plummeted from 80 bpm to 14 bpm. Alert and awake I felt my organs shutting down. This couldn’t have lasted more than 1-2 minutes and they had hung some meds to help my heart regulate. Seconds later and I would have lost my life. Both causes for sepsis remain unknown, however having Rheumatoid Arthritis, for 8 years I was on weekly chemotherapy and biweekly biological injections. Because of these immunosuppressants, I was not capable of recovering from whatever was invading my body. The Sepsis Alliance Group has been amazing to me and have provided educational material that I have been able to share with the Arthritis Foundation to help educate the millions of adults and children taking immunosuppressants warning them of the urgent dangers of sepsis and the warning signs that can save their lives. Please support the Sepsis Alliance, raise awareness and educate the world.
I Contracted septic shock in 2017. My parents and I had never heard of it. I was placed under heavy sedation and knock out while the medical team worked around the clock to save me. I was 34 and otherwise completely healthy. When i awoke, nearly three weeks later, they doctors were amazed at my progress. Today I live a full live with no side effects. I believe that awareness about sepsis in the emergency room I went to saved my life. The smart doctors knew what to do. Otherwise I would not be here today. Thank you Sepsis Alliance for working to educate the medical community about the techniques to recognize and treat sepsis quickly. You are saving lives.
I developed sepsis in December 2017. I went into septic shock and had to be put into a medically induced coma. The medications that were used to stabilize my blood pressure caused me to lose blood flow to my extremities, and my right leg had to be amputated below the knee. When I was finally back home, I went online to learn more about the condition that cost me my leg and almost cost my life. I learned that I was lucky that the hospital where I was treated had a code sepsis protocol, and I was amazed to find out how many hospitals don't. Sepsis Alliance was a great resource for me to find out more about sepsis. They have so much information on their site, and they are fighting to get information about sepsis out to hospitals, doctors, first responders, and patients so that people can survive.
Sepsis Alliance is an incredible organization compiling and sharing information about a terrible condition that effects millions of people every year. Despite their size, the impact they have made for families and friends touched by sepsis has been enormous. Thank you for all your hard work!!
This is a great organization that promotes awareness for one of the most important causes of death in the US and the world. Tremendous progress has been made thanks to this organization.
I absolutely love Sepsis Alliance. They have worked hard to help save the lives of many through sepsis education and awareness. Their research, educational materials and resources are incredible. Sepsis Alliance is definitely a valuable and much needed resource. Thank you for the work that you do.
Previous Stories
Sepsis is now the “WHY” behind what I do. It is because of sepsis that I’m so passionate about my health and that of others. Over the last 9 years sepsis has reared its ugly head twice in my life. In 2009 I lost my husband, soulmate, business, partner and Bestie (Yes, he was all of that) to sepsis.
In 2016 my life was altered yet again as I was now staring this ugly illness square in the face. The only reason that I’m here today is that I fought for my life. My kidneys started to fail and shut down, my blood sugar level shot through the roof! My blood count totally abnormal. Fevers, chills, diarrhea, depression and the worst pain imaginable! All I can say is But God! He saved me.
Sepsis Alliance is much needed and amazing organization. Their research and educational materials have helped so many, including myself.
I had sepsis 22 months ago. It was devastating to my family and me. We did not know much about it, but learned quickly how much damage it can do. Fortunately, I recovered relatively unscathed , but was left with emotional scars. I needed support and found it at the Sepsis Alliance! Not only is it a great site for people and their families, but it is also great for getting the word out—what sepsis is, symptoms, etc. Knowledge is power and that knowledge can save lives. Time is of the essence to get the necessary care! Thanks, Sepsis Alliance, for all your support and for saving lives through education!
Great site and it has been a great help to me in learning about my post sepsis syndrome and what to expect. I value reading the site on a weekly basis.
After a secondary diagnosis of septic shock due to appendicitis, a week’s stay in the hospital, and returning home; I spent weeks and months suffering from certain pain and without answers as to why this was happening. I found Sepsis Alliance and the support I needed to ask the right questions and be my own advocate. Many specialists could not give me answers to what was happening the weeks after my event - from incredible pain in my shoulder area to losing control of some muscles in that region to forgetfulness to lethargy - Bit Sepsis Alliance gave me the courage to be persistent, speak up, and stay strong during my 2-year recovery.
February 2018 my husband felt ill as if he had the flu which was going around our community. Within 5 days he was in the emergency room as the doctors attempted to find the cause of the various symptoms he had. Within the next 24 hours he had to be flight for lifed to a large hospital that had an ICU that would save his life. He had gone into septic shock and had staph aureus throughout his body. After reading so many stories on the Sepsis Alliance site I learned that this is a serious illness that so many people and health professionals don't react quickly enough to the obvious symptoms. This non-profit has convinced me I need to help others in any way I can so another family doesn't have to go thru this.
I read the survivors' stories with much interest as my mom died unexpectedly of septic shock. My heart goes out to them. My husband and I are both college educated professionals, well-respected and established in our community. But we were unaware of the symptoms of sepsis and trusted the medical professionals with mom's care. Unfortunately, the system let mom down and we lost her. I think there are still many medical professionals who don't fully understand and recognize the indications of sepsis, and there are still hospitals without effective sepsis protocols in place. This is especially true in small towns with mediocre staff. We still have a lot of questions regarding how and why mom died, but it is a great comfort to us to have the Sepsis Alliance readily available to assist.
I knew next to nothing about sepsis util I ended up spending a week in the hospital being diagnosed and treated for sepsis. Afterwards, I did some internet research on the topic and found Sepsis Alliance. After reading dozens of posts I realized that little is known of sepsis within the general public. Many people begin experiencing the symptoms of sepsis and do not realize that they are confronting a serious and even deadly disease. The more people can be taught about sepsis, its symptoms and its seriousness, the better chance they will have to seek treatment timely and, in many cases, survive this horrible, deadly condition.
My mother died due to Sepsis and it took her life very quickly and unexpectedly. This website has comprehensive information on the ways Sepsis can take a fatal grip on you from something seemingly insignificant like a minor cut or insect bite. In my mother's case it started with a kidney infection. Unfortunately, Doctors and Nurses are not fully aware or do not act quickly enough when the signs are noticed.
I developed Sepsis in April 2011 after the birth of my daughter. It was caused by retained placenta products that were not discovered until almost two weeks after the birth. I had hemorrhaged so many products got left behind and later became infected despite an antibiotics course after I was discharged home. I made lots of calls to the doctor during that time due to pain and constant fevers only to be told my estrogen levels were coming back down. Having never had a child prior, I never questioned it.
It was not until I spike a 105 temp, an emergency U/S was done and then a D&E was performed that the toxins were released into my bloodstream and I went into septic shock. An All Hands Code was called and streams of doctors and nurses came in and out of the room. I was finally moved to ICU and stabilized.
I discovered Sepsis Alliance when I was home looking for information to finally understand the depths of what happened and what could have resulted. It was harrowing at best. I am here and do whatever I can to raise awareness and funds for this fabulous group. It is amazing how few people really know what sepsis is.
Review from Guidestar
I am a Sepsis/Septic Shock Survivor as a result of an obstructed Kidney Stone. I spent eight days in ICU, six days on a ventilator & medically induced coma, requiring dialysis treatments, several kidney procedures following, and numerous plastic surgeries on my feet and fingers due necrotic tissue. Needless to say, I was very uneducated about Sepsis and the damage it does to a person both physically & emotionally.
Sepsis Alliance Organization has provided me, my healthcare providers, and family with critical information on what to look for & how TIME plays such an important role. Most importantly, by reading Sepsis Survivor Stories & sharing my own experience, it has enabled me to gain the validatation I need to know I am not alone.
After I suffered Septic Shock caused from a bladder infection, and spent 6 nights in Critical ICU and 9 nights in hospital overall I was desperate to learn more about this condition and to read other survivors stories.
Sepsis Alliance taught me so much more about the condition and reading others stories helped me to heal.
I had never thought I would ever suffer from this and not knowing much about it could not identify it until I nearly died. Thank you so much to Sepsis Alliance. I will definitely be supporting them always in the future
As a septic shock survivor, and now a health care professional (nurse), Sepsis Alliance has been an invaluable resource for me along the way. I have been able to share my story, hear the stories of others (which has helped with reminding me I’m not alone) as well as been a wealth of info for me.
Sepsis alliance is one of my favorite non profits-I recommend it as a resource for many of my patients and I have benefited from it myself as I also was diagnosed with sepsis several years ago. Raising awareness and providing information in ways that everyone can understand are things that Sepsis Alliance excels at.
I started working with the Sepsis Alliance in 2016 after my college best friend died suddenly from Sepsis. I wanted to honor her memory by holding an event and did so in April 2018 by holding the Inaugural Washington DC Sepsis Awareness event.
Everyone at Sepsis Alliance was very supportive with the event and made sure I had everything I needed.
As a small non-profit, they do a tremendous job of spreading awareness about Sepsis and as a result have reached millions of people to educate them about the signs and symptoms of this condition, albeit with their limited staff and budget.
I feel confident in asking others for donations for this organization, as I have seen first hand that they use their funds very effectively.
I would encourage anyone seeking to donate to a cause that will help save lives to think about Sepsis Alliance as their first choice.
Thank you so much for promoting awareness about sepsis. I just recently lost my father to sepsis and reading the stories about others who have experienced such an illness makes me feel less alone!
My heart got shattered the day I found out that my mother had sepsis. At first doctors just said she had an infection and needed to stay in the hospital for treatment. They never told me she had sepsis u til my mother got a septic shock. I never knew what sepsis was until my mother was diagnosed with it. She had two septic shocks and after that she was in life support for 3 weeks. The doctors heartlessly had encouraged me to let her go since day one but my mother was a warrior and never gave up. She was resuscitated twice and survived it. She was able to fight off sepsis, however sepsis had already done enough damage to all of her organs and there wasn’t much to do about it. This has forever changed my life and it took away the most precious treasure God had given me. The doctors didn’t seem too concerned about it as it seemed like they didn’t know what to do. There was plenty of other patients going through a similar experience and my mother got sepsis after a surgery and negligence. I feel obligated to spread the word about sepsis, this is a life and death matter and your whole life can change within a few days! My heart is broken and I miss my best friend, first love, my amazing mother Rosa Peña. I will forever remember her and will do whatever I can to spread the word about sepsis and for doctors to find a way to preventing it in hospitals after a surgery and have enough knowledge to save more people’s lives. We’re here to fight off sepsis with the sepsis alliance organization and I am ecstatic that they exist! I wish there were more organizations recognizing how dangerous Sepsis is. I love you Mommy! I will fight for you because you taught me how to be a fighter and never give up till my very last breath, just like you mommy!
I didn’t know about Sepsis until it affected me personally with my father. I’m so glad there is a platform spreading awareness and also letting the people share their own stories from their viewpoints. There is nothing I miss more than my sweet father. I will always fight for Sepsis!
My dear Dad passed away in January 2018 of sepsis. At the time of diagnosis at the hospital my family and I had no idea what sepsis was. I found the Sepsis Alliance while searching for information online. This organization has helped me immensely while grieving my Dad. Reading the stories of the survivors and those that are no longer here have really opened my eyes to this terrible illness.
I became septic in 2016 from a typical UTI that progressed faster than I thought could ever happen. After finding Sepsis Alliance on Facebook, I have learned a lot from the site and from the stories they've published of people who've suffered from this little known condition. Their work in promoting the awareness of sepsis is critical in helping people to live and become aware of the signs and symptoms of sepsis.
April 2017 I went into septic shock and my chances of surviving were slim. After spending weeks in surgical intensive care I was well enough to go home. Scared and confused as to why this happened to me, I was searching the internet for answers and found Sepsis Alliance. I spent days on their website researching all the information and the stories of other people who encountered sepsis. Sepsis Alliance answered my questions when no one else could.
The Sepsis Alliance provides a wealth of important information regarding Sepsis. We were able to share our son's illness in hopes to continue to educate and promote Sepsis.
My family is very grateful for the staff & volunteers at Sepsis Alliance for providing support and resources for sepsis survivors and for families that have been forever changed from this illness.
Thank you.
https://www.sepsis.org/faces/christian-wong/
I feel like I have been given a voice to try to be understood. It really matters that I don't feel alone in this experience. Sepsis Alliance has shown me that I am not the only one & I cannot express what that means. I don't really understand all the "after effects" of sepsis that I am going through. But today I have a place to go to find answers. Thank you from the bottom of my heart.
My beautiful 28 yr old, seemingly healthy daughter, died from sepsis on October 4, 2016.
No one knew the signs. She just thought she was fluish and wanted to rest. Little did she know, as she was resting, her body was shutting down with organ failure. She was too ill to even reach for her phone to get some help. When her boyfriend got home and realised how sick she was the paramedics were called.
She went into cardiac arrest, not once. but 5 times while in the ER.
None of us including the Drs. even thought of sepsis. They kept asking if she was on drugs, could she have mixed meds together etc. I told them she didnt use drugs.
She had kidney, liver, heart amd brain damage. It was too late. She couldn't be saved. We often ask ourselved had she gotten help earlier instead of resting, would she be alive today?
This is an incideous disease. No one thought of sepsis as she was not in the hospital etc for anything.
Her septic shock came from Enterocolitis. From being constipated since birth, her intestinal walls had thinned out so much that one day fecal matter seeped through and killed her. No one should die from being constipated. My goal is to get the word out there and let people know about sepsis.
As you can imagine we are heartbroken. She was a sweet, caring person who loved life. She was taken much too soon.
I had "severe" sepsis and 28 days of 24/7 intravenous antibiotics followed by antibiotic pills, in a hospital and then even longer in a nursing home. The doctors and nurses never said anything about potential sepsis after effects but after getting home I certainly did have some, so online I went and soon found Sepsis Alliance, thank goodness. I had never even heard of sepsis yet the Sepsis Alliance website provided very useful answers to my questions. And that meant, and does mean, a lot to me. I thank you, Sepsis Alliance sepsisalliance.org !
Sepsis Alliance helped in my recovery by connecting me to stories of survival and knowing I am not alone. Their awareness raising is essential
Our son survived septic shock at only two weeks old. We are very fortunate the hospital staff knew the symptoms and acted quickly. The information provided by the Sepsis Alliance is so important and needs to be shared!
My father-in-law's son was a victim of sepsis who ultimately died of cancer not too long ago.
My parents, both retired medical professionals (my father a retired Army veteran and anesthesiologist; my mother a retired Critical Care nurse) saw many sepsis cases during their professional careers. There are sepsis survivors in my family.
Like the Bill & Melinda Gates Foundation, Sepsis Alliance wants to inspire people to take action.
Sepsis accounts for nearly $24 billion in annual costs, making it the most expensive condition to treat in the entire U.S. healthcare system. It is the number cost of readmissions to hospitals, and the number one killer of children.
38 sepsis patients require amputation every day.
The CDC, always exploring ways to reduce patient risks and preventable deaths, analyzed hospital discharges between 2000-2010, and over that 10-year span, the top eight deadliest diagnoses all had double-digit declines in inpatient mortality except for one: sepsis.
Studies conducted by the National Institutes of Health (NIH), as well as the VA, showed that exposure to carcinogens, such as herbicides during the Vietnam War and contaminants from oil-well fires during the Persian Gulf War, left veterans with significantly higher rates of certain types of cancer than the general population.
Cancer patients, with their high frequency of hospital stays are particularly at risk of sepsis infection. One NIH study published in 2004 revealed that cancer patients are at almost 4 times greater risk to be hospitalized with severe sepsis ' which has at least a 28% mortality rate' than the general population.
Sepsis does not discriminate. It can affect anyone ' healthy or sick, young, old, and those in-between.
Its effects are devastating, and sepsis victims are not the only ones to suffer. Survivors, their families and caregivers, too are affected by the trauma caused by sepsis. All reasons why Sepsis Alliance created a Faces of Sepsis campaign to help support survivors and victims' families, by giving them a place to share their stories.
Effectively half the population of the U.S. has not heard of sepsis, and is not aware that recent research indicates sepsis is now increasingly acquired in the community, not as a hospital-acquired infection (HAI).
The Bill & Melinda Gates Foundation is on the front lines, helping combat infectious diseases, and we see good synergies on this basis and others, knowing where the foundation puts its emphases.
Sepsis Alliance is the nation's largest sepsis advocacy organization, and we work in collaboration with individuals and organizations nation-wide across the healthcare continuum ' from hospitals, those helping to translate scientific discoveries into solutions, to those working to develop and deliver innovative approaches to deliver health services in a bid to raise awareness in the public for sepsis - which the CDC this last fall raised to the status of a 'medical emergency'.
All lives have equal value. And Sepsis Alliance can save more lives with support from and in collaboration with the Bill & Melinda Gates Foundation.
Thank you for your support.
Review from #MyGivingStory
I went into severe Sepsis shock the day after Christmas 2015- I just thought I was unwell following a shorter than usual discharge from hospital due to the holiday season.Luckily my surgeon has an angel called Kathleen as his practice nurse who,luckily for me took my phone call and told me to,return ASAP to my hospital.
Following a record triage in ER ,and many tests I ended up in emergency surgery as I had developed severe Sepsis shock- everything was shutting down from my kidneys onwards.i remember seeing my family crying and me not knowing why - until about 3 weeks later when my Infectious disease doctor was telling me ,I was 45 minutes from death.i don't recall much except awful nightmares and visions,and having no ability to control my body.Luckily I recover physically a bit,but was shot emotionally as I had a feeling of not really being here and questioning why I was here.After nearly two years,of ongoing confusion about myself and my conditions,I was lucky enough to find the Sepsis Alliance website and it was
Ike a light went on.I finally understood what was going on and. I was not alone in feeling as I do today.Like many others,I found myself crying with relief as I now had answers.Thank you for your information,stories from fellow 'survivors ' and ideas about what I have been going through.Thank you for giving me a part of my old self back by giving me information.I am in Australia so maybe our protocols might be different as our medical systems are very different but that does not detract from the value of this Alliance.
After surviving sepsis in 1988, I was glad to find this great nonprofit alliance, raising the public's awareness of sepsis, by posting stories of victims and survivors of this little understood but deadly disease.
I have nothing but good things to say about the Sepsis Alliance. As I work with hospitals in Colorado on sepsis identification and treatment, the Alliance has been most helpful in providing time and resources to assist. I never hesitate to email or call, because i know they will be right there to help. They have helped me connect with sepsis survivors, propose a state proclamation for Sepsis Awareness Month, and so much more. They are my go-to organization for resources and education.
Sepsis Alliance has been instrumental in promoting sepsis awareness, recognition, and early intervention. They have developed tools and resources for health care clinicians and to the community. As a critical care educator and university faculty member, I have used several of Sepsis Alliances resources for teaching staff and students. I also use their resources for patients, family, and community member education.
The staff and volunteers at Sepsis Alliance are very helpful. My husband is a septic shock survivor. This organization has helped both me and my family with follow-up questions and providing a network of others to talk with. They are transparent with how my donations and time are used.
Thank you,
Sharon Hansen, MN, RN, CCRN
My interactions with Sepsis Alliance have mostly been with Thomas Heymann who was very informative about this growing problem. Since becoming aware, I have heard numerous stories of how this touched others directly or a loved one. The stories are quite harrowing, often sadly fatal. We have tried to connect make connections to further the awareness in the DFW area of this condition. Hence our donation(s) as a wellness company, Wello Inc. www.welloinc.com .
Exceptional organization. Provides excellent resources to professionals and the public to improve early recognition and treatment of sepsis.
Sepsis Alliance (SA) is the world's leading nonprofit for sepsis awareness. Working with dedicated medical professionals and advocates SA provides real-time information and education about sepsis prevention and early detection. There is a common theme at SA and it is a deep passion and strong desire to save lives by providing sepsis awareness.
The Sepsis Alliance was the only responsive and active resource for me, a sepsis survivor. They are doing truly amazing work saving lives and educating the public and health community.
Thank you Sepsis Alliance. You have helped me to understand what I went through and what other people go through!
Sepsis Alliance was invaluable to me after my Mom died with Septic Shock in 2010. I didn't know what Sepsis was and was stunned, utterly speechless, when the doctors at a Level 1 Trauma Center told us that Mom was going to die. We thought Mom had the flu; her only symptom was a shaking chill. Despite their best efforts, Mom went from walking into the ER and talking to being in an induced coma, on dialysis, having 8 IV lines and many other treatments, all in the same day. Mom died two days later. I reached out to Sepsis Alliance and the fine people there cared so much, listened to me and taught me a lot. I raise awareness of Sepsis whenever and wherever I can.
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Sepsis Alliance informs and educates the public and healthcare professionals. It is a valuable resource for all in learning more about this devastating condition. I will always be grateful to Sepsis Alliance for all it does, in memory of my Mom, who died before our eyes with septic shock.
The information I've gained from Sepsis Alliance has been invaluable in terms of understanding all that my body went through and the after effects of Sepsis. S.A. saves lives by spreading awareness. They also provide info and support to those who have survived Sepsis!
Sepsis alliance has been invaluable to me as a sepsis survivor. I've learned so much about sepsis that I never knew. I've also met other survivors, it's nice to know you're not alone. It's wonderful how SA educates the public and healthcare workers about this condition, and how they're fighting for mandatory sepsis protocols. I'm sure many lives have been saved due to this. It would've made all he difference for me if the ER I went to recognized sepsis as a medical emergency.
We lost our son to Sepsis in 2014. The information and on-going support of the Sepsis Alliance has been invaluable. If the medical community knew more about Sepsis in 2014, our son might still be with us.
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The Sepsis Alliance has gone above and beyond in helping us cope with losing our son to Sepsis. In addition, the information that they provide, we have been able to share with many family, friends and co-workers -- and in return, raise funds for their cause. They are responsive to personal requests and never cease to amaze me. The information on their website is great and helped us make serious decisions at a critical time in our lives.
I got sick in March 2016 with what I thought was just a sinus infection. 7 days later I was fighting for my life. I had strep throat, a sinus infection, DIC and double lower lobe pneumonia, that lead to becoming severely Septic. I had never heard of sepsis before. My husband and mom were called back only to be told they needed to call my friends and family to have them come say good bye, because I was too sick to live.
I spent 2 weeks on a ventilator, sedated and the next month learning how to do simple things again like washing my hands, brushing my teeth and walking.
My body still feels foreign to me and without Sepsis Alliance I would have never known that Post Sepsis Syndrome even existed and that I also had PTSD. The information on this site is amazing and I sat and cried for an hour because of all the information. And it was everything that I was dealing with.
It took my ICU doctors 2 days to figure out what was wrong with me, so more awareness needs to be shared with hospitals and doctors.
Thank you so much for all the work you and your team do!! It has definitely helped me more than words could ever express!!!
My son was 14 when he was diagnosed with sepsis. It was the worst moments of our life and i was lucky to have this site for support and knowledge. Sepsis.org has been a place for me to browse though other stories and not feel so alone in this.
no one should die from sepsis I lost my father although he had several nurses who should have known how ill he was it was overlooked I myself also got sepsis from changing his diabetic needle I have copd and got a stick from his needle. my father died while I was in the hospital for sepsis and although I called 911 they said I had the flu and the hospital could not do nothing. thanks to your campaign many lives can be saved my son who is running for our state rep in mi did get new fire men put on in westland god bless him and my sister who saved my life.
As a survivor of sepsis, I found the Sepsis Alliance not only an invaluable source of information but a source of comfort for those who have lost loved ones of all ages to this frightening condition. Those of us fortunate enough to come through will continue to raise awareness through this non-profit organisation so that others will know what to ask and do should they, or a loved one, become affected. The Sepsis Alliance is doing a marvellous job.
I am a survivor of sepsis - I contracted it just in 2011 following abdominal surgery for bowel cancer. I had my colon removed, and the resection itself leaked. Fortunately, an eagle-eyed junior doctor noticed that something was up and insisted on a CT scan, despite the consultant disagreeing with her. I owe my life to that wonderful doctor.
I have recovered and now live a 'normal' life, but sepsis has changed me as a person. I was in intensive care for over a month and all my organs suffered. I had horrific hallucinations and still experience flashbacks. I was so weakened by the illness that I could not walk and could barely talk - I had severe memory problems and muscle weakness. People who don't know me would not suspect that I still suffer from side effects of sepsis; processing difficulties, some short term memory problems, weakness in my muscles, and a depressed tolerance for pain. Those who knew me before are aware of the changes in me, but relieved that I survived.
Finding information about sepsis was difficult for my family, and this website really provides help for those in a similar situation. It is overwhelmingly frightening, and hearing about others' experiences is incredibly helpful, as is reading about research and symptoms.
My mom was diagnosed with sepsis in may of 2016 and unfortunately passed away from sepsis and liver condition on may 11th 2016.beautiful soul full of life got cut short...before her, i never heard of sepsis before.now in honor of my mom i make it a priority to spread the word about sepsis every chance i get.thankyou for Sepsis Alliance for doing the same.God bless
After surviving sepsis, I started following everything related to sepsis and came across Sepsis Alliance. This organization immediately caught my attention with their personal stories from other sepsis survivors and of loved ones lost due to sepsis. I have learned so much from the information they have provided daily and they stand out to me in raising awareness. Sepsis Alliance is an excellent organization and great a great resource for those who had sepsis and those who want to learn about it.
I had no knowledge of sepsis prior to my cousin contracting this illness. Now I am very informed and seek to inform as many people as I can through social media. Sepsis Alliance is a wonderful resource for knowledge and prevention, as well as knowing the signs to look for in a person who is on there way to septic shock. If there is one takeaway I've learned, it's Time Is Of The Essence! Know the signs and get medical attention asap. My cousin is doing well and eight months later she is determined to live life to the fullest for herself as well as her family. She is the most courageous, strong and determined person I know!
I am 4 years post sepsis shock. Without the sepsis alliance I would have had NO understanding of what had happened to me or how to fight for my care post sepsis. Four years ago when I left the hospital I was told to rest for a couple of weeks and I would be fine. I was not fine in two weeks. I went through 1 1/2 years not knowing what to think. Then I found Sepsis Alliance and quickly found, by reading the tales of other survivors, that I was not alone. The Sepsis Alliance has continued to educate me as new information, such as Post Sepsis Syndrome, came to light. It has provided documents I can use to educate my Drs and others. It has provided simple facts I can use to raise awareness on FB. Sepsis Alliance not only raises awareness, but equips others to raise awareness.
The Sepsis Alliance allowed me to put into print the facts about the loss of my Wife, Maureen Aveyard, to this most horrible of conditions.
Neither of us were aware of Sepsis when my wife fell ill, symptoms were diarrhoea and sickness along with the odd few seconds of shacking and shivering. Working in a care home these symptoms were not unusual and the first thought was novo virus which clears in 48 to 60 hours. We were just passing the time until it cleared. It didn't and less than 48 hours after seeing the first signs of illness Maureen passed away. 1a Sepsis. 1b. pneumonia.
Being able to relate this on the Sepsis Alliance Web site helped me to clear my mind a little and I hope that awareness is raised as a result. In England we now have a saying at the first sign of illness, ask "Could it be Sepsis". Ask it loudly and clearly, and ask it of professionals who will take it seriously and can, hopefully, help. Be aware, Be very aware.
Thank you Sepsis Alliance.
I am a septic shock survivor and my story has been published on the Sepsis Alliance website. The website has provided me with a lot of information and resources as I begin my recovery from Sepsis.
My mom was diagnosised twice with sepsis at the same hospital so the awareness was not there! This organization has certainly been helpful in getting awareness out for her! She lost her life to this infection. It's so important to spread awareness as it can be an infection that is preventable!
I truly can't thank this organization enough for all the work they do to spread awareness of this horrible infection. I thank them also for allowing me to tell my father, Richard Gorton's story. My hope is that the more people that have knowledge of Sepsis the more lives can be saved, even one is worth the fight. I love and miss my father every moment of every day. Thank you Sepsis Alliance for allowing my father's story to be told. Each and every one of you are angels in this fight to help prevent Sepsis. -Stacey Gorton (Richard Gorton's daughter)
My story starts out with a brown recluse spider bite that turned into necrotizing fasciitis and sepsis. I remember nothing except a few hallucinations. I came very close to losing my life because of all this and I have a poor immune system due to diabetes. I am alive but even 2 years later I'm still suffering from PTSD and severe depression from it. This site is wonderful. It has made me realize I'm not alone. Thank you Sepsis Alliance!
My scariest time of my life 12-15-14 - I had a very bad UTI and had already gone to my primary care Doctor earlier the week before and given medications for treatment - of course i am recounting these memories from my husbands accounts because from Dec 13- 2014 I really have no recollection of the events I was that sick - Dec - 15 - 2014 I was found incoherent by my husband - talking out of my head he said I was arguing with him because he said he was going to call an ambulance - well he did because I passed out - the next 10 days I was in a medically induced coma with basically no urine output - my organs were failing - I was in heart failure - simply put I was dying - I had severe septic shock - the Doctors were not telling my family much except that my chance for making it through this was 20 % - well all I can say is the wonderful staff of Doctors at Wellstar Cobb Hospitajl left no stone unturned - you have like a six hour window and praise God I hit it with an inch of my life - a lot happened to much to explain here while I was under ( the dreams , the nightmares , the waking up to finding out what had happened - I thought I had wreaked my car - I had no clue - I had to learn to walk again - to eat - and all I wanted to do was go home but I had and still have memory issues - fatigue - muscle soreness - PTSD - heart problems - kidney problems - liver issues - I fall all the time - I got MRSA - lets just say the new me is a complete work in progress - Sepsis Alliance has helped me so very much with there vast knowledge and message boards and being able to talk with people that have experenced the very things I went through - knowledge is power and all I can say is please support this very important Nonprofit - it will save life's and it very well may be your own - I am blessed by the Lord to still be here - and my heart hurts for some that never made it - ones that survived but lost limbs - I will never understand why I was saved and others were not but I do know that the old me ( that very sick girl died that day ) and the new me is still learning and with Gods grace I can call myself a suviver !! Today I am a work in progress and none of it could have been done without Sepsis Alliance - please find a way to support them please !! Never take for granted your time on this earth - I am a caregiver for my father who is 84 and suffered a stroke and can not walk he lives with us - I am a mother with 2 beautiful Sons and I am a grandmother to 3 gorgeous grandsons and last but not least I am a wife - a partner - I am married to my best friend without him I don't know where I would be - thank god for my family- my best friend and my daughter-in law they are my rock
I found Sepsis Alliance to be user friendly, helpful and courteous. It's important for those who are chronically ill due to Sepsis to find answers in order to understand why & how their lives have been changed. I don't think the public is aware of these issues unless they or a member of their family are afflicted. Kudos to those who volunteer for Sepsis Alliance in order to help those who are looking.
I wish I could have found this organization a lot earlier than I did. It could have saved my niece's life. They spread awareness of a disease most people don't know exists. Not only that, but they educate the symptoms. They save lives!!! I'm glad that I have found this organization, because it has helped our family cope by reading other people's stories who have been stricken with Sepsis. They also let us share our little girl's story, so hopefully someone who reads it will be able to save another child's life! I am so grateful for the wonderful leaders at Sesis Alliance. They do an amazing job!
Almost a year later, I thought sepsis was just another word for infection. Then I found this website after I read about how Patty Duke died: Sepsis Alliance. I guess I never fully realized how much trouble I was really in. Then I started reading stories about similar experiences and symptoms...many much worse. I am disabled but thankful to be alive. This sepsis condition needs to be in the forefront of the things all hospitals and emergency look for when someone just continues to decline for no apparent reason. I am so glad I found this website and I continue to visit it and get emails from it.
Their cause is so incredibly important
in spreading the urgent message regarding Sepsis awareness. I would highly recommend.
With all of the misconceptions out there about sepsis, Sepsis Alliance is a vital resource for credible and reliable information about what this scourge is, how to recognize it and how to advocate for proper, effective care. Far too many people still die of sepsis every day, and yet most people don't have any idea that's the case or that they too might be stricken. SA gets the word out in a way that makes sense to everyone. Kudos!
Sepsis Alliance is remarkably effective at providing resources and support to those affected by sepsis, and at reaching out to both the public and medical communities with educational initiatives. They've fostered genuine grass roots engagement so that folks are learning, sharing experiences, and enjoying themselves in healthy, wholesome ways, such as walks and volleyball tournaments, as they learn and raise funds to support and educate others about the signs of and treatment for sepsis. Sepsis Alliance is doing an amazing job with a skeletal staff. Bravo!!
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I have been involved with Sepsis Alliance for two years, donating and attending their Sepsis Heroes awards event each autumn. During that period through the efforts of SA and collaborating organizations public awareness of sepsis has increased significantly and lives have been saved. In addition to educating the public and medical community about the symptoms, timeline, and treatment for sepsis, SA provides much-needed support for sepsis victims and their families. SA is directed by a small group of incredibly caring, committed volunteers who give generously of their time, talents, and expertise because they believe so strongly in the importance of their mission.
Thanks, Sepsis Alliance, for sharing your life stories and bringing greater awareness to this deadly disease.
I've found this organization's website to be very helpful in terms of educating non-medical people about the signs and treatment of sepsis. The information is straightforward and up to date, and I trust this source completely.
This non profit organization is top on the list. Not only does it allow tributes but most importantly, it brings awareness of this horrible condition. I, along with many others never understood how this affects society. Anyone can be affected. Sepsis.Org has brought and will continue to bring awareness to the population and save many lives while doing so.
I lost my mother to Sepsis and was able to find comfort reading other families accounts of their loss and survival of Sepsis. The information on the website was helpful for me in understanding the progression and cause of the disease. I also wrote a tribute memorial for my mother and it has already been featured on social media and the website. Thank you to the Sepsis Alliance for bringing this important medical issue out in the open and hosting honest discussions about the fatalities and loss as well as the survivors of Sepsis.
I told my sepsis story on the sepsis alliance website and it was truly an inspiration for me to read just a couple of the personal stories from others who have survived sepsis. Their website brings me hope and relief. I felt anxious because I have been sick with sepsis 3 times and twice went into shock. The memories sometimes come up in my mind as pictures and I was struggling with fear about getting sepsis again but not being strong enough to fight for my life. I googled sepsis and when I found this website my mind was put to ease and gaining more understanding about sepsis from the site was calming. I am thankful to those running the site.
Without sepsis alliance I would not have the information I needed to help my recovery from septic shock. There is little or no support for victims and their families in the UK. If you have cancer or any other critical illness there is support for you throughout your recovery but for sepsis survivors there is nothing. Thank you sepsis alliance for being there.
This organization was a Godsend to me after my diagnosis with Sepsis. All the questions I had that no one in the immediate medical industry had answers for. I was able to gather information, read other survivors stories and understand more about my condition. Not only is it alarming to know so many people as myself had never heard of this, but the number in the medical field who were not aware of the symptoms. Sepsis Alliance is top notch in communication and education.
My story is very simple I have been diagnosed with sepsis placed on the count of dr. Mistakes I now have kidney problems due to the fact that one doctor did not want to be fine for me being in the hospital twice within 30 days for sepsis and gave me 30 days to bactrim 10 - 14 days is to match those how was on it for 16 days and now I have kidney problems and I have to see a nephrologist been my experience that the doctors from Gastonia North Carolina or incompetent incapable and hide the fact that they make mistakes the cover for one another and they're not worth seeing and they plain don't care if you die as long as it doesn't cause somebody
Brilliant with communication. The advise and knowledge is useful. Greatful to have had my story published
Very good innovation to spread awareness. To spread such good to humanity and given space to share individual stories. In future no one should death due to sepsis lately diagnose. Thanks million times.
This organisation helped me to share my story of sepsis and raise awareness to others. It has helped me in so many ways.
Thank you! Thank you! Xx
I can only give these people 5 stars, but they deserve so much more!
I am a Fast Moving, flesh eating form
Of sepsis called Necrotizing Faceitus.
It is as nasty as it sounds!
I had never really paid attention to the
Severity of this illness, let alone really
New anything about it.
That's where the education that these
People provide comes in.
There are so many victims you will not believe it.
I'm not an alarmest, or anything of the kind, it's just the facts of the numbers of people that are affected!
This IS a very important site!
You can find my story on their site, and my motivation for why I am asking you for your support
Really terrific organization that is working to raise awareness around Sepsis and to educate on the symptoms of this illness. Without this awareness many people will lose their lives.
I personally am grateful to all the information on their site around recovery. The information helped me navigate the 3 months of my recovery with more hope, joy and gratefulness.
Thank you, Sepsis Alliance.
Really fantastic organisation doing their very best to raise awareness of such a serious Illness. Very grateful for the information and guidance I have received from their website for dealing with PTSD. I am a sepsis survivor and no longer feel alone in how I am dealing with the aftermath of the illness thanks to Sepsis Alliance.
Sepsis Alliance is a fantastic organization with the purely unselfish goals of raising awareness and educating about sepsis. As the mom of a sepsis survivor, I was glad to find such an organization existed. The Sepsis Alliance website is the perfect place to find important information or just community support.
Review from Guidestar
Thanks to Sepsis Alliance, I am more informed as a septic shock survivor - and more importantly, I am informing others, as well.
Thank you, Sepsis Alliance, for raising awareness about sepsis. More people, including health care providers, should know this terrible health condition. The term should be as known as for example flu... Good luck!
Sepsis Alliance is a great non profit organization! They do so much to get the word out about sepsis and help so many families involved. Thanks Sepsis Alliance for all u do!
Sepsis Alliance helped me to understand my condition after I developed septic shock in 2013. Their explanations for my lingering issues helped me tremendously over the years and they continue to raise awareness to help prevent this condition for other people. They are a top notch organization that I am proud to support.
This is an excellent organization playing a leadership role in education and awareness about this devastating disease.
Five stars plus for Sepsis Alliance. When I had sepsis in 2002 there was a great void in knowledge and awareness but when I found SA in 2008, it was like a new wave had taken the cause forward. The people at SA are always kind, gracious and accommodating for ANYTHING you need. And most all they are passionate about all aspects of the cause. I have never been a part of a better organization and have the utmost confidence in everyone affiliated with Sepsis Alliance. I have referred many people to SA and do so gladly as it takes a dedicated effort on many front to spread the word. Thanks Carl Flatley for having the vision and the passion to found and support SA.
As a person that survived sepsis, it has been wonderful to know that people have gone through this horrible illness and survived as well. It is incredibly helpful to read other people's stories, to know how they have coped, to see what they have overcome. Sepsis alliance does a great job with their website and increasing awareness of this fatal condition. I wanted to add to their page as well, so I wrote my own story. Representatives from the organization responded to me within hours. They've been so helpful and supportive. I feel like I have a new community of support and encouragement. Thank you , sepsis alliance!
My husband survived sepsis, after being Airlifted to a hospital 200 miles away, 2 neurosurgeries, 70 days in the hospital, rehab through inpatient, home health, and outpatient. We are the lucky ones and he arrived at an ER that included sepsis assessment. I have been shocked to find out how many medical providers don't realize how rapid and deadly sepsis can progress. Sepsis Alliance has many informative posts that I share through social media and privately. It is critical that the general public and medical personnel increase their awareness of what sepsis is and how critical it is to respond rapidly. Sepsis Alliance is helping me in my personal mission. Thank you, SA
Raising awareness will hopefully save lives. If signs were recognized sooner my husband might still be alive.
Thank you so much for your efforts and the opportunity to share my story.
Dawn
Having lost my mother to sepsis/septic shock, I committed to find out all I could, how I could help, how I could keep people informed so they aren't sideswiped like we were. 27 hours from diagnosis to death. Thank you for an informative alliance, people just don't know.
I am so thankful for the great work the Sepsis Alliance is doing to raise awareness of the serious nature of Sepsis. I hope that the medical profession will work to do better in educating themselves and their patients about Immune Deficiency and what that can cause.
This is a great website for information about Sepsis. It took me losing my husband to truly understand how devastating septic shock can be. In my opinion, awareness needs to be raised about the risk of sepsis from infections and especially people living without their spleen.
This is a great place for people to share what they are going through and to get the support from others who can light a candle in a dark place. I am a sepsis survivor who was having trouble coping with all the stuff that follows after a disease like this. After searching online and finding their website i felt that this had to be one of the best support sites ive ever found. As soon as my story was published messages started flooding in from others that have gone through or are going through the stuff i have been struggling with. Please keep up the awesome work you people are dojng to get awareness out there for this aweful diseaee.
The Sepsis Alliance website is an excellent resource for the public as well as healthcare providers. They make opportunities to volunteer so easy- fundraising links, contributions to Faces of Sepsis stories, and educational materials to help spread awareness. It's all right there. The Sepsis Alliance staff if responsive and professional. This is a nonprofit that is a pleasure to support!
The Sepsis Alliance provides a great service in getting the message out to all medical & general public about the warning signals of Sepsis & the dangers.
We need to do more to find ways to cure this, & the Sepsis Alliance is leading the way. Great job!
My beautiful 15 year-old daughter, Mallory, died from sepsis 17 days after critical injuries suffered in a car accident. I am a nurse and have cared for septic patients, never dreaming I would lose my own precious child from the complication of infections. This is not a reflection of my daughter’s care. Mal had superb care; she was monitored for infections and immediately treated. We were told the very first day she could die from an infection in 3 weeks. I was introduced to the sepsis alliance when I was invited to attend the sepsis campaign kick-off after sharing Mallory's story with someone sponsoring a sepsis table of materials at a conference I attended. I cannot overstate how impressed I am with the Sepsis Alliance and their goal to educate medical professionals and the general public about the importance of rapid recognition and treatment of sepsis. At my request, the Sepsis Alliance generously brought their Sepsis Awareness Month Colorado Bus Tour Event to our small rural hospital in NE CO and spent several hours educating both the medical professionals and the general public. The event was educational and the medical simulation staff was so knowledgeable and engaged – the staff is still talking about it. I have no doubt that the campaign and the Sepsis Alliance's objective to increase sepsis awareness will save many lives.
I have been working with the Sepsis Alliance to help educate hospital staff and physicians. They have provided me with vital information for my educational goals. In May of this year, I was admitted to the hospital with sepsis - me ! The Sepsis Disease Manager ! I shared my story as a Sepsis Survivor on the Sepsis Alliance website. Just goes to show you how dangerous this condition can be ! Anyway, I fully support the Sepsis Alliance and recommend utilization of it's resources to help to impact this deadly disease ! Thank you Sepsis Alliance !
I told my story on here and I will tell it again. I went septic a few months ago and all most died. I am 30 years old, married and they believe mine was caused by my crones disease because I had just taken prednizone and they believe that weakened my immune system and weakened the lining of my stomach and that is how 4 bacteria entered my bloodstream. I had a lot of pain in my lmbst we couldn't see anything. By the time i decided to go to the ER, I couldn't walk and my husband had to carry me and even that hurt so bad. The doctors took my blood but I could tell they thought I was crazy because they could not see anything that would be causing me to be in so much pain. However when my blood work came back they saw my inflammatory markers were 10 times what they should have been and they saw one bacteria in my bloodstream. They admitted me to the hospital and told me my chances of survival were very low with organ damage because at this time they found a total of 4 bacteria in my bloodstream. The doctors put me on a total of five antibiotics and fluids and kept me as comfortable as they could. I survived and healed quick with No organ damage, which my doctor then said I was very lucky and that I was a perplexing case to him because I had not only survived with No organ damage but I was discharged from the hospital a little over a week after I was admitted. I was very lucky in this aspect however the long term effects I have suffered from sepsis have been hard to deal with and manage. I have severe anxiety of hospitals and having my blood taken which I never had before. I have had and still have a lot of follow up appointments and my anxiety makes this hard. Also I am still very tired all the time, get weak fast and I am still limited in what I can do on a daily basis. The important thing is I survived and this site is what helped give me an idea of what could have been wrong with me. This site is very informative and since everyone can have a different experience with sepsis and since this site let's you tell your story, I know that helped me and my husband make the decision to go to the hospital that night. The doctor said if I had waited one more day I would not be here today. So Thank you to this site and everyone that has shared their stories and thank you for letting me share mine as I hope we all can help others the same way everyone helped me.
Excellent forum for informing and educating people about the lives touched by sepsis, and providing resources for help/information.
More people need to know the word Sepsis in order to stop its high mortality rate. Even medical professionals are not clear on diagnosing and treating sepsis. I was in septic shock and one emergency physician was ready to release me. Had it not been for the night shift physician coming in and reviewing my chart, I would not be here today. After six days in ICU and 2 in step down, I am thankful to be a survivor. "SAY SEPSIS. SAVE LIVES."
Sepsis Alliance is definitely a great resource. I came across this organization after my husband passed away from sepsis on 12/21/2013, caused by the common flu. He was 3 days from his 38th birthday. I had no idea what sepsis was before then. Sepsis alliance does a great job with raising awareness through various methods of information and resources. I find that the printable "Spot Sepsis" cards they have on their site, is one of the many ways they help save lives.
I thank sepsis alliance for creating awareness and wish them all the best in their endeavors!
Yadira T. New York
The Sepsis Alliance website has been an excellent source of information for me and my family. I found the Sepsis Alliance website in February when my dad was first diagnosed with sepsis. The website was incredibly informative and gave me a lot of information about sepsis. The website also helped me formulate questions to ask my dad's medical team. It is helpful to know that there is a larger community working to educate the public regarding the warning signs of sepsis. Until my dad's diagnosis with it, I had never heard of sepsis. Unfortunately it was sepsis that was the cause of my dad's death in March. I still remember reading his death certificate: "sepsis, cause unknown" and feeling shocked. Watching the avalanche of sepsis take over a loved one's body is devastating. I appreciate the work that Sepsis Alliance had done and continues to do to create awareness.
Sepsis alliance provided information for me in multiple times of uncertainty. The stories whether for a tribute or survivor allowed me to feel less alone in my sickness. Additionally being able to understand that after-effects I was experiencing weren't terribly out-of-the-ordinary was a relief. I appreciate sepsis alliance and their mission.
Two years ago I didn't know what Septic Shock was and clearly see that I was lucky with many different illnesses due to ignoring chronic symptoms. Thanks to Sepsis Alliance, their informative, educational and caring outreach is reaching their number one goal, saving lives.
As a survivor of septis I cannot thank Sepsis Alliance enough they answered so many questions that no one else could understand let alone answer. I'm now back working, found that lost confidence, and understand how to live with fortunately only the small things Sepsis has left behind.
My husband went into Septic Shock and passed away June 2013. I was on edge for 2 and 1/2 months with the ups and downs of sepsis and all that one goes through. It was not until after he passed when I came upon the Sepsis Alliance website where I was able to read and study the process, the survivors, the loss and the stories. This sight has helped me with my grief process. I went to many grief counselings and nothing helped. Sepsis Alliance has helped me tremendously, I have met so many wonderful loving people who bring each other comfort. I thank Sepsis Alliance for allowing me to share my story, perhaps help others if I can. Excellent program
I am a Septic Shock survivor who experienced the horrific ordeal 18 years ago in 1996 and at a time when even fewer people than today had even heard of it. After a recent move to San Francisco the UCSF Medical Center staff brought to my attention how much more prevalent Sepsis and Septic Shock have become so I felt compelled to contact Sepsis Alliance to inquire about how I could help in the way of creating awareness and education. From my first communication and interaction with the President, a board member and the staff medical writer I was very impressed with how much I was respected and appreciated for wanting to help in any way I can. The Sepsis Alliance team is the most professional and caring group of individuals who are genuine in their mission to help all those affected by Sepsis & Septic Shock including survivors, families and the medical professionals who must deal with this medical emergency.
Sepsis? What is that? Well in 2011, at the age of 61, I found out when sepsis attacked me. I was one of the fortunate ones. I left the hospital after fighting for my life, with all of my limbs, all of my organs and most importantly, with my life! I was indeed fortunate because the health care workers at my local hospital had immediately recognized the symptoms of sepsis when I presented myself in the ER. But I only had a vague idea of what sepsis was. I certainly was not aware that sepsis maims and kills. I didn't know when I got to the ER
I was within two hours of death.
The day before I had a kidney stone removed on an outpatient basis at another hospital. I had the same procedure several other times and thought I knew what to expect in the way of discomfort and pain following the surgery. As a precaution, I had my husband and son read the discharge sheet of instructions regarding adverse symptoms that might appear while I was recuperating.
This time, things didn't follow the normal course of recuperation. I slept poorly that night and experienced moderate pain. But that is what I expected following the extraction of a large kidney stone. What I didn't expect was an increase in the severity of the pain and the onset of a fever. My son was immediately concerned when he realized that over the course of a half hour that my temperature was climbing. This was one of the adverse symptoms mentioned on the surgical discharge sheet. I wasn't concerned, but I realized later that my mental state had already been compromised and I wasn't capable of making wise decisions. My son insisted that I go to the ER for immediate attention. His insistence literally saved my life.
Sepsis was ramping up in my body. By the time I was admitted, I had a very high fever, I was disoriented and had difficulty breathing. The first couple of days in ICU are difficult to remember. I had dangerously low blood pressure, pneumonia, E-coli and yeast infection throughout my body. I remember being very weepy and irrationally angry. I had no control over my emotions. Modern medicine and a great nursing staff pulled me back from the brink of death. Ten days later I returned home to recuperate.
I didn't know what to expect after surviving sepsis. That is when I went online and eventually found The Sepsis Alliance site. I read all about sepsis. You might say that Sepsis Alliance provided me with an education regarding sepsis, considering that my previous knowledge had been meager. I am grateful to find Sepsis Alliance and equip myself with vital information regarding sepsis and what to expect in my life after sepsis.
Reading the personal accounts of other survivors has been invaluable to me. The accounts of those who didn't survive is heartbreaking. I am convinced that the death rate due to sepsis could be lowered if only there was more awareness of sepsis. That awareness needs to be on all levels: both in the general community and in the medical community. We all need to be aware of sepsis and to be educated about this disease.
We all need to know what immediate actions need to be taken to combat sepsis. It is a horrible, terrifying experience. Sepsis maims, kills and forever changes our lives. The Sepsis Alliance site is the only place I found to be waging that war against the ignorance many of us have regarding sepsis. Sepsis Alliance reaches out to everyone to warn us about this little known disease.
Thses days I find myself returning to the Sepsis Alliance site searching for more and more information about life after sepsis. I have many symptoms that have appeared post-sepsis and questions about their connection to sepsis. At Sepsis Alliance I have discovered that there is a connection between sepsis and post traumatic stress disease. Knowledge is a powerful tool in recovery. The work of The Sepsis Alliance has meant a lot to me.
As a nurse and patient, I found this site extremely helpful for myself as well as my family. I was diagnosed with Septic shock in Jan. 2014, and was admitted to the ICU. My blood pressure was extremely low, and I needed medication and fluid boluses to survive. After a few days, the doctors found a kidney stone blocking the flow of my urine. I immediately went to surgery, and had a stent placed. After 4 days in the ICU, I was transferred to a Med-Surg floor. My recovery has been a slow process. Sepsis Alliance has helped me and my family to understand my recovery. The effects of Septic shock: extreme fatigue, sleepless nights, and depression were explained though this web site. Its been 6 months and I suffer from memory loss, inability to concentrate and difficulty in organizing my thoughts. I hope that I can make a difference in telling my story to other survivors and the community.
As both a nurse and a patient, I have turned to this charity for multiple reasons.
The education provided is wonderful, and the support I have received as a patient has been invaluable.
This illness will absolutely knock you down in a heartbeat. This charity lets you know you are not alone.
I'm a medical writer, and I find this organization very helpful for information. Sepsis is a condition that does not receive anywhere near enough attention.
My 15 year old daughter passed away from Sepsis in July, 2013. Before this, I had never heard of Sepsis. After doing searches on-line, I came across Sepsis Alliance and read everything on their website. I've donated in honor of my daughter's memory because I know that they are putting funds to good use by raising awareness with the medical community and the public. More people need to know about this deadly disease since it takes more lives per year than most illnesses. Knowing the signs and symptoms as well as saying the word out loud to personal physicians may save loved ones. I'm so thankful for everything that this organization is doing and I am looking forward to participating in future fund raising events.
Sepsis Alliance puts forth the most effort possible in informing the general population about a toxic response infection that many are unfortunately in the dark about. The content of the Sepsis Alliance website is clear, concise, and informative beyond compare. After reading the other reviews, especially reviews by those sharing stories about surviving sepsis, and how the Sepsis Alliance has helped them become more informed about the disease, I felt I needed to say my piece. I wish more non-profits were as active in their communities as Sepsis Alliance is within theirs. Few non-profits put forth the time and effort necessary to have such an amazing group of members be so involved in a community, all in hopes of educating and helping others.
I will not only start donating more to Sepsis Alliance in the coming year, but I will make sure that my friends and family become more informed with regards to the infection.
In March 2014 I went to the doctor not feeling well for a few months. Upon arrival it was determined I needed to be seen at the ER due to extremely low blood pressure. After a few hours in the ER I was then transferred to a specialty hospital and admitted to the ICU for septic shock. The next few days were a blur it wasn't until after my illness I discovered the Sepsis Alliance website. It has been a huge help in my recovery knowing what I could/can expect during the recovery process as well as help to educate me and others on the signs and symptoms of sepsis. Reading others survival stories were very helpful knowing I was not alone in this!
I have been caring for patients with sepsis for 15 years. Too often over those years, I have to tell families their loved one is dying of something of which they've never heard. So many lives would be saved with increased awareness driving sepsis to be treated as a medical emergency.
GIn Feb. 2013 I had went to the doctor I found out I was having a boy! The baby and myself was both fine on Feb 7, 2013... I was fine on Feb 8 I went to sleep around 11:45pm and woke my mother up aroun 2 am feeling awful. I thought it was the flu... I had everything but the flu I lost my son my organs. was shutting down I. Was in labor, and had sepsis and going into septic shock. I nor my family knew anything about it... but thanks to the sepsis alliance we are able to find out so.much information and help spread awareness through the help of them
I developed a meningococcal infection in July 2011 that triggered septic shock, and nearly killed me. Fortunately, I recovered well. In March 2012, a friend sent me a link to the "Sepsis: Emergency" video produced by Sepsis Alliance (SA), and so I contact the organization to see how I could become involved. Within hours of my writing to them, I received a response from the founder, who was at that moment in Europe at a conference, and he welcomed my participation. Through Sepsis Alliance, I found a vehicle through which I could share my story and help spread the word which begins with: "Suspect Sepsis. Save Lives." I've since shared my story on the SA and other websites, made presentations to community and public health organizations, and participated in a national SA webinar. I plan to continue spreading awareness of sepsis for as long as I am able. SA has saved thousands of lives, and has the promise to save hundreds of thousands more.
I got involved with Sepsis Alliance in 2013. Sepsis Alliance lives by its mission to raise awareness of sepsis by educating patients, families, and healthcare professionals to treat sepsis as a medical emergency. With the alarming number of medical emergencies each year globally, healthcare policy reform, rising costs and limited understand of sepsis, being able to support and drive the advancement of Sepsis Alliance’s mission is essential to improving outcomes - Awareness is integral to defeating this disease.
-Sean Cuttler
Sepsis Aliance serves a mission and role no other not-for-profit provides - to give a voice to those affected by sepsis. We remain a largely volunteer organization with passionate people who know what is at stake.
Previous Stories
I got involved with Sepsis Alliance in 2009. Sepsis Alliance lives by its mission to raise awareness of sepsis by educating patients, families, and healthcare professionals to treat sepsis as a medical emergency. Sepsis affects 1 of every 187 Americans every year and kills more than breast, lung and prostrate cancer combined. At least half of these deaths are due to lack of applying readily available therapies (antibiotics and fluids) and treating sepsis as a medical emergency. The natural history of sepsis can be changed in the next five years with therapies we currently have. Awareness is integral to defeating this disease.
This nonprofit organization brings awareness and education about Sepsis... which sad to say most people still to this day have never heard of... we lose more patients to sepsis now then we do certain cancers... and with increased awareness and education we could save so many lifes and even cut health care cost... but it is not easy to be heard.. i have tried to get grants to educate the hospitals i work with... and i have not recieved any support... i went to my 1st Sepsis Heroes award event in New York... and was overwhelmed with what this organization has done already... and i hope to become a volunteer and i help spread the word about sepsis, so hopefully soon it will be as well known as stroke and heart attacks are to the public..
This organization brings awareness and education about the dangers of sepsis. The personal stories bring healing and education for many people. Losing a friend to sepsis was unnecessary and this needs to be prevented! Education and awareness about sepsis is imperative to save lives!
Sepsis Alliance is a very important organization committed to spreading awareness about sepsis. My father died last year due to septic shock. The cause has remained unknown. I had never heard of sepsis or septic shock until the drs at the hospital told us about it. Had we been educated about sepsis, we would have known what was happening to him and taken him to the hospital sooner. Sepsis Alliance is committed to making sure everyone is aware of this deadly condition, its symptoms and causes.
Two years ago I went to surgery center for simple outpatient procedure..Week later woke up in icu with heart attack,blood clots in lungs,kidney failure..Took hospital too long to figure out what was wrong with me..Time wasted equals more damage..I have learned so much from the sepsis alliance..Doctors don't give you any info,neither did the hospital..God bless them for spreading the word..As a woman in my 50's I can say I never heard of it until it happened to me..The info the alliance gives out saves so many lives..
The Sepsis Alliance is an amazing organization with the potential to save millions of lives. I am a recent sepsis survivor. In Jan. 2013, at the age of 21 years old, I became septic. I was induced into a medical-coma and spent 10 days in the ICU with my friends and family scared I wasn't going to make it.
Luckily, I fought through it and made a miraculous recovery. No one knew what sepsis was before I had it. I never even knew about it, but if I did, I could have prevented going into septic shock and now living with a compromised immune system which has been affecting me tremendously since January.
Sepsis Alliance is working to prevent this, because we can. If you know the signs of sepsis, you can prevent all of this. Help us save millions of lives by donating to the Sepsis Alliance.
Together, we can make a difference.
This young foundation has dedicated itself to eradicating sepsis, the third highest killer around the world. I have been involved since its inception in spreading the word and we are up to 41% of the US public knowing what sepsis is. When we get to 100% and have implemented procedures in hospitals around the country, then I will rest assured that sepsis has been eliminated.
My Uncle passed away years ago at a young age from what now is known as Sepsis. At the time, this awful condition was not widely known and I can't help but feel that if the Sepsis Alliance had been in place back then spreading awareness, that we may have been able to have him diagnosed and treated sooner and not lost him.
I have worked with patients and their families dealing with sepsis, it is a terrible illness. Sepsis kills more than 250,000 people each year and it can be preventable! Sepsis is a relatively unknown illness to most people, fewer than half of Americans know this term. I have seen the wonderful work that Sepsis Alliance has done to bring together survivors to share their stories and have a support system.
The Board of the Sepsis Alliance works tirelessly to provide life saving information and awareness. The Sepsis Alliance was the only place we could turn to after our daughter survived sepsis. The medical community needs greater information to save lives and the public also needs to be made aware as to the signs of symptoms and to immediately seek urgent care/
My daughter is a sepsis survivor. TheSepsis Alliance is the only organization bringing awareness to the disease and providing support to survivors. I hope the Alliance will receive enormous recognition so that anyone stricken with sepsis will recognize the signs and symptoms of this deadly disease and will not be misdiagnosed.
i first encountered Sepsis Alliance as a survivor. Sepsis Alliance had an enormous impact on my recovery by providing essential resources and support that were not available to me anywhere else. I then became involved with the organization as a volunteer and currently serve on the Board of Directors. Sepsis Alliance is a vital resource at the forefront of raising awareness about a common yet under-recognized killer.
Sepsis Alliance fills a unique position as a charity in that it is the only organization focused on increasing awareness of sepsis in the U.S. The organization has helped drive increases in awareness that will help save lives. The organization operates very efficiently with more thank 80% of its income going to programs. Having lost a good friend to sepsis, I have seen up close and personal the work that Sepsis Alliance does to help prevent sepsis and to also provide support to survivors of sepsis and to the families and loved ones of those who have been lost.
Previous Stories
The Sepsis Alliance gave me footing in very unsettled ground; a place to start from as I began learning about sepsis after a personal experience with sepsis and septic shock in January of 2012. Not only was the SA a place to start and work from, it was clearly the place to return to, regularly, for current and up to date information. The Sepsis Alliance, founded by Dr. Carl Flatley, is The Nucleus of sepsis information; a reliable center for learning and teaching. I'm grateful to all who are involved with efforts to raise awareness of sepsis. ~ Paige
Review from Guidestar
My sister, Erin, died from sepsis on April 30th 2002. She developed sepsis after having a simple, outpatient procedure! At the time of her death, I had never heard the word sepsis before. A huge part of me died with her that day and my life has never been the same! She passed away 4 months before my wedding and 2 weeks before my birthday. Erin was young, just 23 years old. She was pretty, smart, fun, loving, kind and loyal. Her zest for life was contagious and she is missed everyday by so many of us who loved her! My father, Carl Flatley, founded the Sepsis Alliance shortly after her death and I marvel at what it has become today! I am so proud to be a part of this great organization that is truly saving lives! Awareness of sepsis is key in reducing the death rate from this equal opportunity killer! Suspect Sepsis, Save Lives and Limbs!!
I felt guilty that I had survived septic shock, and bewildered by the side effects that left me physically tired and with cognitive problems. I battles insomnia as my mind tried desperately to piece together missing days. I was unable to connect with other septicemia survivors until I found Sepsis Alliance on the internet. It started with a few email exchanges with other survivors, and has blossomed into a network of supporters who have helped me overcome my negative feelings about surviving, and provided encouragement as I improve physically. At the same time, I have learned more about recognizing the early symptoms of septicemia. I have made efforts to personally contact friends who have loved ones in the hospital, especially those battling infections of any kind, with information about recognizing symptoms and asking health care providers is they have a sepsis protocol to follow. This condition causes far too many deaths, especially in hospitalized patients, and this organization helps save lives by disseminating information and helps enrich lives by giving the survivors a voice.
I nearly passed of Sepsis in May 2009. I am a single mother of 2. I am blessed to be alive. However, there have been complications. I felt like my concerns were not being heard. In June 2012, I was perusing videos on Sepsis within YouTube. I was blessed and stumbled upon Dr. James O'Brien's video. I was compelled by how informative his video was. I then took a chance and reached out. Dr. O'Brien personally returned my call. He validated a lot of my concerns. He suggested connecting with the Sepsis Alliance. I did by submitting my story under Faces of Sepsis. www.sepsisalliance.org/faces/angie_lembo/ I started to network with other Survivors, family members of those lost to Sepsis. Finally, I felt validated. Then, on Sept 13, 2012, Sepsis Heroes Gala in NYC. I was honored to be present and volunteer by "tweeting" on the event. Moreover, I was honored to just be present. The experience gave me goosebumps. To hear and meet such wonderful people who are devoted to Sepsis Awareness gave me hope. And, the drive and motivation to spread Sepsis Awareness. Before, I felt like a leper. I've encountered both MD's and EMT's that when you mention Sepsis, they have a befuddled look on their faces. A big Congratulations to The Sepsis Alliance for receiving the Edwards LifeSciences Grant! The Sepsis Alliance needs to be #1 for 2012! ~Angie Lembo, Sepsis Survivor
November 2012 my 3 week old son became terribly ill and doctors were unable to diagnose his condition/illness. On our 2 (maybe 3rd) day out of 30 in the hospital, the infectious diseases doctor mentioned sepsis and septic shock. I was clueless. I began researching what sepsis was and learned enough to understand what it did to the body, but nothing else. Thank God my son survived and we made it home. I continued my research of sepsis and came across Sepsis Alliance. I began to read their "Faces of Sepsis" stories and learned so much more than I had imagined. I learned that sepsis is a very common killer and yet very little people know about it. Sepsis Alliance allowed me and many others to share our experiences with the world and to educate and spread awareness. That mission is to spread awareness (KNOW SEPSIS) and save lives. I have been fortunate to share my son's story, as well as the Sepsis Alliance website and Faces of Sepsis stories and educate friends and family. Me telling my experience was just one "incident" and if others can read and learn about how common and dangerous this actually is , then lives CAN be saved. This is why I nominate Sepsis Alliance for this award/recognition.
This site helped me understand that I am not the only person who survived SEPSIS and that the post symtoms I had are shared by many people who survive SEPSIS. I hope this continues to educate people, the general public and researchers who work to spread the SEPSIS does not have to be a deadly disease but a disease that can be caught in its early stages and be treated quickly and effectively.
Sepsis Alliance shines light and educates about this killer. It has brought me friendships and support that will last a lifetime. We are blessed to have such an organization.
When I lost my sister in 2010 to this deadly disease, I was stunned to find out how few knew anything about it. The blank looks people gave when I told what claimed this vibrant person. The Sepsis Alliance has done so much to educate the world about this preventable sickness. In addition it has provided me with a group of people I now consider my good friends. Their understanding and compassion has put me on a path of healing. I will forever be thankful.
My husband and I got involved with Sepsis Alliance when my husband came home from WakeMed Hospital in Raleigh, NC. Until he was admitted to the ICU, we had never heard of Sepsis. Carl Flatley and the Alliance have been a great source of information about the deadly killer within. Carl and Jim travel and speak to individuals and groups. Gary is one of the faces of sepsis posted on the sight and was inspired to write: Gyroscope: A survival of sepsis and to start a website to help with awareness. www.sepsisawarenesstoday.com click on events to see recent videos. Again we thank Carl and Jim and all the others at Sepsis Alliance.
The Sepsis Alliance helps educate the public and healthcare professionals alike. As the Founder, who lost a young daughter to sepsis and a victim myself, I can say my involvement helping others and saving lives and limbs has been therapy for me to live on with out my daughter. This organization of dedicated lay individuals and health care professionals provides comfort to me and solace that I am doing something positive to continue to heal from a personal tragedy . This work will keep me alive! SA will save " Lots of Erins"!
I became involved with Sepsis Alliance about two years ago. When I worked actively as an RN, I did care for patients with sepsis but I didn't realize the issues behind it. I just helped treat them and, hopefully, get them well enough to be discharged. Since becoming involved with SA, speaking to people who have survived sepsis and those who have lost someone to sepsis, I am more dedicated than ever to help raise awareness about this disease.