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Sepsis Alliance

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Nonprofit Overview

Causes: Health, Public Health

Mission: Save lives and reduce suffering by raising awareness of sepsis as a medical emergency.

Programs: Sepsis awareness and education programs for the general public and health professionals. Support to sepsis survivors and loved ones of sepsis patients.

Community Stories

161 Stories from Volunteers, Donors & Supporters

karisolis

Volunteer

Rating: 5

In early December of 2016 I had sever sepsis and organ dysfunction. I cried to my mom in the ICU, “I don’t know if I can fight through this”. But I did and on Christmas Eve I was discharged to go home to my husband and daughter. But 11 months later I went back to the ER with a 105.5 fever. I had some GM seizures and after an MRI I went into septic shock. My heart rate plummeted from 80 bpm to 14 bpm. Alert and awake I felt my organs shutting down. This couldn’t have lasted more than 1-2 minutes and they had hung some meds to help my heart regulate. Seconds later and I would have lost my life. Both causes for sepsis remain unknown, however having Rheumatoid Arthritis, for 8 years I was on weekly chemotherapy and biweekly biological injections. Because of these immunosuppressants, I was not capable of recovering from whatever was invading my body. The Sepsis Alliance Group has been amazing to me and have provided educational material that I have been able to share with the Arthritis Foundation to help educate the millions of adults and children taking immunosuppressants warning them of the urgent dangers of sepsis and the warning signs that can save their lives. Please support the Sepsis Alliance, raise awareness and educate the world.

1

General Member of the Public

Rating: 5

I Contracted septic shock in 2017. My parents and I had never heard of it. I was placed under heavy sedation and knock out while the medical team worked around the clock to save me. I was 34 and otherwise completely healthy. When i awoke, nearly three weeks later, they doctors were amazed at my progress. Today I live a full live with no side effects. I believe that awareness about sepsis in the emergency room I went to saved my life. The smart doctors knew what to do. Otherwise I would not be here today. Thank you Sepsis Alliance for working to educate the medical community about the techniques to recognize and treat sepsis quickly. You are saving lives.

1

Client Served

Rating: 5

I developed sepsis in December 2017. I went into septic shock and had to be put into a medically induced coma. The medications that were used to stabilize my blood pressure caused me to lose blood flow to my extremities, and my right leg had to be amputated below the knee. When I was finally back home, I went online to learn more about the condition that cost me my leg and almost cost my life. I learned that I was lucky that the hospital where I was treated had a code sepsis protocol, and I was amazed to find out how many hospitals don't. Sepsis Alliance was a great resource for me to find out more about sepsis. They have so much information on their site, and they are fighting to get information about sepsis out to hospitals, doctors, first responders, and patients so that people can survive.

1

General Member of the Public

Rating: 5

Sepsis Alliance is an incredible organization compiling and sharing information about a terrible condition that effects millions of people every year. Despite their size, the impact they have made for families and friends touched by sepsis has been enormous. Thank you for all your hard work!!

1

Advisor

Rating: 5

This is a great organization that promotes awareness for one of the most important causes of death in the US and the world. Tremendous progress has been made thanks to this organization.

1 Karen Y. M.

Advisor

Rating: 5

I absolutely love Sepsis Alliance. They have worked hard to help save the lives of many through sepsis education and awareness. Their research, educational materials and resources are incredible. Sepsis Alliance is definitely a valuable and much needed resource. Thank you for the work that you do.

Previous Stories
3

General Member of the Public

Rating: 5

Sepsis is now the “WHY” behind what I do. It is because of sepsis that I’m so passionate about my health and that of others. Over the last 9 years sepsis has reared its ugly head twice in my life. In 2009 I lost my husband, soulmate, business, partner and Bestie (Yes, he was all of that) to sepsis.

In 2016 my life was altered yet again as I was now staring this ugly illness square in the face. The only reason that I’m here today is that I fought for my life. My kidneys started to fail and shut down, my blood sugar level shot through the roof! My blood count totally abnormal. Fevers, chills, diarrhea, depression and the worst pain imaginable! All I can say is But God! He saved me.

1 Lisa K.8

Client Served

Rating: 5

Sepsis Alliance is much needed and amazing organization. Their research and educational materials have helped so many, including myself.

1 Dianne Prisco B.

Client Served

Rating: 5

I had sepsis 22 months ago. It was devastating to my family and me. We did not know much about it, but learned quickly how much damage it can do. Fortunately, I recovered relatively unscathed , but was left with emotional scars. I needed support and found it at the Sepsis Alliance! Not only is it a great site for people and their families, but it is also great for getting the word out—what sepsis is, symptoms, etc. Knowledge is power and that knowledge can save lives. Time is of the essence to get the necessary care! Thanks, Sepsis Alliance, for all your support and for saving lives through education!

1 Sue C.3

Client Served

Rating: 5

Great site and it has been a great help to me in learning about my post sepsis syndrome and what to expect. I value reading the site on a weekly basis.

1

General Member of the Public

Rating: 5

After a secondary diagnosis of septic shock due to appendicitis, a week’s stay in the hospital, and returning home; I spent weeks and months suffering from certain pain and without answers as to why this was happening. I found Sepsis Alliance and the support I needed to ask the right questions and be my own advocate. Many specialists could not give me answers to what was happening the weeks after my event - from incredible pain in my shoulder area to losing control of some muscles in that region to forgetfulness to lethargy - Bit Sepsis Alliance gave me the courage to be persistent, speak up, and stay strong during my 2-year recovery.

1

General Member of the Public

Rating: 5

February 2018 my husband felt ill as if he had the flu which was going around our community. Within 5 days he was in the emergency room as the doctors attempted to find the cause of the various symptoms he had. Within the next 24 hours he had to be flight for lifed to a large hospital that had an ICU that would save his life. He had gone into septic shock and had staph aureus throughout his body. After reading so many stories on the Sepsis Alliance site I learned that this is a serious illness that so many people and health professionals don't react quickly enough to the obvious symptoms. This non-profit has convinced me I need to help others in any way I can so another family doesn't have to go thru this.

1

General Member of the Public

Rating: 5

I read the survivors' stories with much interest as my mom died unexpectedly of septic shock. My heart goes out to them. My husband and I are both college educated professionals, well-respected and established in our community. But we were unaware of the symptoms of sepsis and trusted the medical professionals with mom's care. Unfortunately, the system let mom down and we lost her. I think there are still many medical professionals who don't fully understand and recognize the indications of sepsis, and there are still hospitals without effective sepsis protocols in place. This is especially true in small towns with mediocre staff. We still have a lot of questions regarding how and why mom died, but it is a great comfort to us to have the Sepsis Alliance readily available to assist.

2

General Member of the Public

Rating: 5

I knew next to nothing about sepsis util I ended up spending a week in the hospital being diagnosed and treated for sepsis. Afterwards, I did some internet research on the topic and found Sepsis Alliance. After reading dozens of posts I realized that little is known of sepsis within the general public. Many people begin experiencing the symptoms of sepsis and do not realize that they are confronting a serious and even deadly disease. The more people can be taught about sepsis, its symptoms and its seriousness, the better chance they will have to seek treatment timely and, in many cases, survive this horrible, deadly condition.

2 gaillynda

General Member of the Public

Rating: 5

My mother died due to Sepsis and it took her life very quickly and unexpectedly. This website has comprehensive information on the ways Sepsis can take a fatal grip on you from something seemingly insignificant like a minor cut or insect bite. In my mother's case it started with a kidney infection. Unfortunately, Doctors and Nurses are not fully aware or do not act quickly enough when the signs are noticed.

3

General Member of the Public

Rating: 5

I developed Sepsis in April 2011 after the birth of my daughter. It was caused by retained placenta products that were not discovered until almost two weeks after the birth. I had hemorrhaged so many products got left behind and later became infected despite an antibiotics course after I was discharged home. I made lots of calls to the doctor during that time due to pain and constant fevers only to be told my estrogen levels were coming back down. Having never had a child prior, I never questioned it.
It was not until I spike a 105 temp, an emergency U/S was done and then a D&E was performed that the toxins were released into my bloodstream and I went into septic shock. An All Hands Code was called and streams of doctors and nurses came in and out of the room. I was finally moved to ICU and stabilized.
I discovered Sepsis Alliance when I was home looking for information to finally understand the depths of what happened and what could have resulted. It was harrowing at best. I am here and do whatever I can to raise awareness and funds for this fabulous group. It is amazing how few people really know what sepsis is.

Review from Guidestar

3

General Member of the Public

Rating: 5

I am a Sepsis/Septic Shock Survivor as a result of an obstructed Kidney Stone. I spent eight days in ICU, six days on a ventilator & medically induced coma, requiring dialysis treatments, several kidney procedures following, and numerous plastic surgeries on my feet and fingers due necrotic tissue. Needless to say, I was very uneducated about Sepsis and the damage it does to a person both physically & emotionally.

Sepsis Alliance Organization has provided me, my healthcare providers, and family with critical information on what to look for & how TIME plays such an important role. Most importantly, by reading Sepsis Survivor Stories & sharing my own experience, it has enabled me to gain the validatation I need to know I am not alone.

2

General Member of the Public

Rating: 5

After I suffered Septic Shock caused from a bladder infection, and spent 6 nights in Critical ICU and 9 nights in hospital overall I was desperate to learn more about this condition and to read other survivors stories.
Sepsis Alliance taught me so much more about the condition and reading others stories helped me to heal.
I had never thought I would ever suffer from this and not knowing much about it could not identify it until I nearly died. Thank you so much to Sepsis Alliance. I will definitely be supporting them always in the future

2

Client Served

Rating: 5

As a septic shock survivor, and now a health care professional (nurse), Sepsis Alliance has been an invaluable resource for me along the way. I have been able to share my story, hear the stories of others (which has helped with reminding me I’m not alone) as well as been a wealth of info for me.

1 Phcygal

Professional with expertise in this field

Rating: 5

Sepsis alliance is one of my favorite non profits-I recommend it as a resource for many of my patients and I have benefited from it myself as I also was diagnosed with sepsis several years ago. Raising awareness and providing information in ways that everyone can understand are things that Sepsis Alliance excels at.

1 Lynn S.1

Volunteer

Rating: 5

I started working with the Sepsis Alliance in 2016 after my college best friend died suddenly from Sepsis. I wanted to honor her memory by holding an event and did so in April 2018 by holding the Inaugural Washington DC Sepsis Awareness event.

Everyone at Sepsis Alliance was very supportive with the event and made sure I had everything I needed.

As a small non-profit, they do a tremendous job of spreading awareness about Sepsis and as a result have reached millions of people to educate them about the signs and symptoms of this condition, albeit with their limited staff and budget.

I feel confident in asking others for donations for this organization, as I have seen first hand that they use their funds very effectively.

I would encourage anyone seeking to donate to a cause that will help save lives to think about Sepsis Alliance as their first choice.