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Sepsis Alliance

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Nonprofit Overview

Causes: Health, Public Health

Mission: Save lives and reduce suffering by raising awareness of sepsis as a medical emergency.

Programs: Sepsis awareness and education programs for the general public and health professionals. Support to sepsis survivors and loved ones of sepsis patients.

Community Stories

145 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

I am a Sepsis/Septic Shock Survivor as a result of an obstructed Kidney Stone. I spent eight days in ICU, six days on a ventilator & medically induced coma, requiring dialysis treatments, several kidney procedures following, and numerous plastic surgeries on my feet and fingers due necrotic tissue. Needless to say, I was very uneducated about Sepsis and the damage it does to a person both physically & emotionally.

Sepsis Alliance Organization has provided me, my healthcare providers, and family with critical information on what to look for & how TIME plays such an important role. Most importantly, by reading Sepsis Survivor Stories & sharing my own experience, it has enabled me to gain the validatation I need to know I am not alone.

General Member of the Public

Rating: 5

After I suffered Septic Shock caused from a bladder infection, and spent 6 nights in Critical ICU and 9 nights in hospital overall I was desperate to learn more about this condition and to read other survivors stories.
Sepsis Alliance taught me so much more about the condition and reading others stories helped me to heal.
I had never thought I would ever suffer from this and not knowing much about it could not identify it until I nearly died. Thank you so much to Sepsis Alliance. I will definitely be supporting them always in the future

Client Served

Rating: 5

As a septic shock survivor, and now a health care professional (nurse), Sepsis Alliance has been an invaluable resource for me along the way. I have been able to share my story, hear the stories of others (which has helped with reminding me I’m not alone) as well as been a wealth of info for me.

Phcygal

Professional with expertise in this field

Rating: 5

Sepsis alliance is one of my favorite non profits-I recommend it as a resource for many of my patients and I have benefited from it myself as I also was diagnosed with sepsis several years ago. Raising awareness and providing information in ways that everyone can understand are things that Sepsis Alliance excels at.

Lynn S.1

Volunteer

Rating: 5

I started working with the Sepsis Alliance in 2016 after my college best friend died suddenly from Sepsis. I wanted to honor her memory by holding an event and did so in April 2018 by holding the Inaugural Washington DC Sepsis Awareness event.

Everyone at Sepsis Alliance was very supportive with the event and made sure I had everything I needed.

As a small non-profit, they do a tremendous job of spreading awareness about Sepsis and as a result have reached millions of people to educate them about the signs and symptoms of this condition, albeit with their limited staff and budget.

I feel confident in asking others for donations for this organization, as I have seen first hand that they use their funds very effectively.

I would encourage anyone seeking to donate to a cause that will help save lives to think about Sepsis Alliance as their first choice.

Tif S.

General Member of the Public

Rating: 5

Thank you so much for promoting awareness about sepsis. I just recently lost my father to sepsis and reading the stories about others who have experienced such an illness makes me feel less alone!

9 Pena86

General Member of the Public

Rating: 5

My heart got shattered the day I found out that my mother had sepsis. At first doctors just said she had an infection and needed to stay in the hospital for treatment. They never told me she had sepsis u til my mother got a septic shock. I never knew what sepsis was until my mother was diagnosed with it. She had two septic shocks and after that she was in life support for 3 weeks. The doctors heartlessly had encouraged me to let her go since day one but my mother was a warrior and never gave up. She was resuscitated twice and survived it. She was able to fight off sepsis, however sepsis had already done enough damage to all of her organs and there wasn’t much to do about it. This has forever changed my life and it took away the most precious treasure God had given me. The doctors didn’t seem too concerned about it as it seemed like they didn’t know what to do. There was plenty of other patients going through a similar experience and my mother got sepsis after a surgery and negligence. I feel obligated to spread the word about sepsis, this is a life and death matter and your whole life can change within a few days! My heart is broken and I miss my best friend, first love, my amazing mother Rosa Peña. I will forever remember her and will do whatever I can to spread the word about sepsis and for doctors to find a way to preventing it in hospitals after a surgery and have enough knowledge to save more people’s lives. We’re here to fight off sepsis with the sepsis alliance organization and I am ecstatic that they exist! I wish there were more organizations recognizing how dangerous Sepsis is. I love you Mommy! I will fight for you because you taught me how to be a fighter and never give up till my very last breath, just like you mommy!

2 abell106

General Member of the Public

Rating: 5

I didn’t know about Sepsis until it affected me personally with my father. I’m so glad there is a platform spreading awareness and also letting the people share their own stories from their viewpoints. There is nothing I miss more than my sweet father. I will always fight for Sepsis!

3

General Member of the Public

Rating: 5

My dear Dad passed away in January 2018 of sepsis. At the time of diagnosis at the hospital my family and I had no idea what sepsis was. I found the Sepsis Alliance while searching for information online. This organization has helped me immensely while grieving my Dad. Reading the stories of the survivors and those that are no longer here have really opened my eyes to this terrible illness.

3

General Member of the Public

Rating: 5

I became septic in 2016 from a typical UTI that progressed faster than I thought could ever happen. After finding Sepsis Alliance on Facebook, I have learned a lot from the site and from the stories they've published of people who've suffered from this little known condition. Their work in promoting the awareness of sepsis is critical in helping people to live and become aware of the signs and symptoms of sepsis.

2 sstagg

General Member of the Public

Rating: 5

April 2017 I went into septic shock and my chances of surviving were slim. After spending weeks in surgical intensive care I was well enough to go home. Scared and confused as to why this happened to me, I was searching the internet for answers and found Sepsis Alliance. I spent days on their website researching all the information and the stories of other people who encountered sepsis. Sepsis Alliance answered my questions when no one else could.

2

General Member of the Public

Rating: 5

The Sepsis Alliance provides a wealth of important information regarding Sepsis. We were able to share our son's illness in hopes to continue to educate and promote Sepsis.

My family is very grateful for the staff & volunteers at Sepsis Alliance for providing support and resources for sepsis survivors and for families that have been forever changed from this illness.

Thank you.

https://www.sepsis.org/faces/christian-wong/

2 Cheryl Buckley G.

Client Served

Rating: 5

I feel like I have been given a voice to try to be understood. It really matters that I don't feel alone in this experience. Sepsis Alliance has shown me that I am not the only one & I cannot express what that means. I don't really understand all the "after effects" of sepsis that I am going through. But today I have a place to go to find answers. Thank you from the bottom of my heart.

4 Kelly P.4

General Member of the Public

Rating: 5

My beautiful 28 yr old, seemingly healthy daughter, died from sepsis on October 4, 2016.
No one knew the signs. She just thought she was fluish and wanted to rest. Little did she know, as she was resting, her body was shutting down with organ failure. She was too ill to even reach for her phone to get some help. When her boyfriend got home and realised how sick she was the paramedics were called.
She went into cardiac arrest, not once. but 5 times while in the ER.
None of us including the Drs. even thought of sepsis. They kept asking if she was on drugs, could she have mixed meds together etc. I told them she didnt use drugs.
She had kidney, liver, heart amd brain damage. It was too late. She couldn't be saved. We often ask ourselved had she gotten help earlier instead of resting, would she be alive today?
This is an incideous disease. No one thought of sepsis as she was not in the hospital etc for anything.
Her septic shock came from Enterocolitis. From being constipated since birth, her intestinal walls had thinned out so much that one day fecal matter seeped through and killed her. No one should die from being constipated. My goal is to get the word out there and let people know about sepsis.
As you can imagine we are heartbroken. She was a sweet, caring person who loved life. She was taken much too soon.

1

Client Served

Rating: 5

I had "severe" sepsis and 28 days of 24/7 intravenous antibiotics followed by antibiotic pills, in a hospital and then even longer in a nursing home. The doctors and nurses never said anything about potential sepsis after effects but after getting home I certainly did have some, so online I went and soon found Sepsis Alliance, thank goodness. I had never even heard of sepsis yet the Sepsis Alliance website provided very useful answers to my questions. And that meant, and does mean, a lot to me. I thank you, Sepsis Alliance sepsisalliance.org !

2 Scott H.1

Client Served

Rating: 5

Sepsis Alliance helped in my recovery by connecting me to stories of survival and knowing I am not alone. Their awareness raising is essential

3 Patti S.1

General Member of the Public

Rating: 5

Our son survived septic shock at only two weeks old. We are very fortunate the hospital staff knew the symptoms and acted quickly. The information provided by the Sepsis Alliance is so important and needs to be shared!

3

General Member of the Public

Rating: 5

My father-in-law's son was a victim of sepsis who ultimately died of cancer not too long ago.

My parents, both retired medical professionals (my father a retired Army veteran and anesthesiologist; my mother a retired Critical Care nurse) saw many sepsis cases during their professional careers. There are sepsis survivors in my family.

Like the Bill & Melinda Gates Foundation, Sepsis Alliance wants to inspire people to take action.

Sepsis accounts for nearly $24 billion in annual costs, making it the most expensive condition to treat in the entire U.S. healthcare system. It is the number cost of readmissions to hospitals, and the number one killer of children.

38 sepsis patients require amputation every day.

The CDC, always exploring ways to reduce patient risks and preventable deaths, analyzed hospital discharges between 2000-2010, and over that 10-year span, the top eight deadliest diagnoses all had double-digit declines in inpatient mortality except for one: sepsis.

Studies conducted by the National Institutes of Health (NIH), as well as the VA, showed that exposure to carcinogens, such as herbicides during the Vietnam War and contaminants from oil-well fires during the Persian Gulf War, left veterans with significantly higher rates of certain types of cancer than the general population.

Cancer patients, with their high frequency of hospital stays are particularly at risk of sepsis infection. One NIH study published in 2004 revealed that cancer patients are at almost 4 times greater risk to be hospitalized with severe sepsis ' which has at least a 28% mortality rate' than the general population.

Sepsis does not discriminate. It can affect anyone ' healthy or sick, young, old, and those in-between.

Its effects are devastating, and sepsis victims are not the only ones to suffer. Survivors, their families and caregivers, too are affected by the trauma caused by sepsis. All reasons why Sepsis Alliance created a Faces of Sepsis campaign to help support survivors and victims' families, by giving them a place to share their stories.

Effectively half the population of the U.S. has not heard of sepsis, and is not aware that recent research indicates sepsis is now increasingly acquired in the community, not as a hospital-acquired infection (HAI).

The Bill & Melinda Gates Foundation is on the front lines, helping combat infectious diseases, and we see good synergies on this basis and others, knowing where the foundation puts its emphases.

Sepsis Alliance is the nation's largest sepsis advocacy organization, and we work in collaboration with individuals and organizations nation-wide across the healthcare continuum ' from hospitals, those helping to translate scientific discoveries into solutions, to those working to develop and deliver innovative approaches to deliver health services in a bid to raise awareness in the public for sepsis - which the CDC this last fall raised to the status of a 'medical emergency'.

All lives have equal value. And Sepsis Alliance can save more lives with support from and in collaboration with the Bill & Melinda Gates Foundation.

Thank you for your support.

Review from #MyGivingStory

3

Client Served

Rating: 5

I went into severe Sepsis shock the day after Christmas 2015- I just thought I was unwell following a shorter than usual discharge from hospital due to the holiday season.Luckily my surgeon has an angel called Kathleen as his practice nurse who,luckily for me took my phone call and told me to,return ASAP to my hospital.
Following a record triage in ER ,and many tests I ended up in emergency surgery as I had developed severe Sepsis shock- everything was shutting down from my kidneys onwards.i remember seeing my family crying and me not knowing why - until about 3 weeks later when my Infectious disease doctor was telling me ,I was 45 minutes from death.i don't recall much except awful nightmares and visions,and having no ability to control my body.Luckily I recover physically a bit,but was shot emotionally as I had a feeling of not really being here and questioning why I was here.After nearly two years,of ongoing confusion about myself and my conditions,I was lucky enough to find the Sepsis Alliance website and it was
Ike a light went on.I finally understood what was going on and. I was not alone in feeling as I do today.Like many others,I found myself crying with relief as I now had answers.Thank you for your information,stories from fellow 'survivors ' and ideas about what I have been going through.Thank you for giving me a part of my old self back by giving me information.I am in Australia so maybe our protocols might be different as our medical systems are very different but that does not detract from the value of this Alliance.

3

General Member of the Public

Rating: 5

After surviving sepsis in 1988, I was glad to find this great nonprofit alliance, raising the public's awareness of sepsis, by posting stories of victims and survivors of this little understood but deadly disease.