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Sepsis Alliance

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Nonprofit Overview

Causes: Health, Public Health

Mission: Save lives and reduce suffering by improving sepsis awareness and care.

Programs: Sepsis awareness and education programs for the general public and health professionals. Support to sepsis survivors and loved ones of sepsis patients.

Community Stories

194 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

I was looking for info re Sepsis, Sepsis Shock, and Post Septic Syndrome as I almost died twice this year and was heading for a third time that luckily was caught in time with sepsis. My husband researched SS and PSS b/c the doctors never made us aware of the consequences etc. and it seems that the only thing he could find was info outside of the US. I went through a horrible year. I found Sepsis Alliance and wrote to them and they communicated very promptly. I also sent in my story and how I am coping with the after affects of this ordeal. Any questions we have have also been promptly answered. It is wonderful how communicative they are, which means they do care about what they are doing. I ran several nonprofits in my time and am very pleased with this one!

Kendra T.

Client Served

Rating: 5

There has not been a more useful tool in my opinion on the web for teaching the public about sepsis than Sepsis Alliance. They not only share information on this beast that most don't know of, but they also honor those we've lost and who have battled and won, some more than once. A lot of awareness sites aren't as in-depth as SA gets, and that is another aspect that makes it great.

Everything I know about what my mom went through before septic shock took her from me is thanks to this wonderful site. Everything I continue to learn comes from them. There are few sites like it and I'm grateful for its existence

Lee Saufley S.

Donor

Rating: 5

I'm very grateful that I have found the Sepsis Alliance. I had looked for 10 years after my mother passed from sepsis to find a non profit that brought awareness to the forefront. I don't think it was by accident, that I shared their post on a Friday and that very afternoon a friend saw it and went to the ER. She is a nurse but had ignored the symptoms until I posted a
FB post on creating awareness. In a day.... Sepsis Alliance helped save a friend's life.

Tina L.3

General Member of the Public

Rating: 5

I'm incredibly grateful I found the Sepsis Alliance after my diagnosis and treatment. I'm experiencing some trouble with post-sepsis syndrome, and it was incredibly helpful to find a place that offered learning materials and support for my condition.

Catherine Ong K.

Client Served

Rating: 5

My first and only experience with sepsis began when I was taking care of patients who were going through this as a nurse in the 5 ICUs I was working in as a float nurse. The thought never crossed my mind when I consented to have surgery to remove a uterine fibroid that was causing me to be severely anemic. My small intestine was punctured during my surgery and was not found to be the cause of my feeling ill for 2 days post-operatively, even though I returned to the hospital twice. When I couldn't breathe on the 3rd day and went to the ER, the cause was found, my intestine was emergently repaired over 7 surgeries in 11 days. I was in septic shock with the maximum amount of blood pressure medication used to sustain my blood pressure. I stayed a total of 39 days in the hospital, losing and regaining my kidney function, dealing with painful procedures that gave me perspective on what the patients I took care of go through. The after effects of my life-saving medication caused me to lose my toes, which as a runner and triathlete was devastating to me. Sepsis Alliance has done great work to provide awareness with their more than daily posts that tell stories of those affected by sepsis, the patient and family and friends!

1

General Member of the Public

Rating: 5

I did some research into a close family members' death, shared my story while on the website. I felt like I was in a learned community, finally, that understood the absolute shock and devastation that is sepsis. I am so pleased that others can read about my personal experience, and I can reach out if I need to. There is hope that sepsis can be cured if caught early, and it is so easy to misdiagnose. Sepsis can happen to anyone at any time. I feel like this nonprofit is getting this message across! Thank you.

General Member of the Public

Rating: 5

I survived sepsis after childbirth. I knew little about sepsis when I caught it...what this organisation does in terms of the knowledge and support and raising awareness of sepsis is outstanding.

Rebecca D.6

General Member of the Public

Rating: 5

Being a terrible sepsis survivor I have been very grateful for the help and information the sepsis alliance puts forth! Being able to read others stories and not feel alone in these issues has been a blessing. Thank you!

Volunteer

Rating: 5

I am very grateful to be able to share my story in Sepsis Alliance. I have been able to compare experiences with so many people that have experienced sepsis. Its an incredible source of information, contacts and motivation.

Volunteer

Rating: 5

For so many reasons this organization is special to my heart. As an amputee, I have countless friends who have lost limbs due to sepsis. As a yoga practitioner I have been fortunate to practice yoga with your current director who has deepened my awareness of this silent disease . This organization is necessary and helps so many, i am grateful to be some small part of it.

Katy G.1

Board Member

Rating: 5

When I had sepsis and went into severe septic shock a year and a half ago, Sepsis Alliance was an incredible resource for my family and has been an amazing support for me as I have recovered. I have been incredibly impressed by the quality of the staff as well as the depth and breath of online resources and informational materials. I have such faith in this organization that I recently committed three years of my life to being a board member, volunteering my time and energy to help spread sepsis awareness with this amazing group of people.

General Member of the Public

Rating: 5

MY MOM WENT INTO THE HOSPITAL WITH A UTI. BECAUSE SHE DID NOT GET THE CORRECT TREATMENT IT THEN TURNED TO SEPSIS. SHE DIED FROM SEPSIS 2 1/2 MONTHS LATER.

1

General Member of the Public

Rating: 5

Sepsis alliance has served not only me as a sepsis survivor but has helped me with patients I encounter as a student nurse. Sepsis Alliance also serves the many individuals and families that are faced with sepsis. They provide awareness, research and educational tools needed for patients families and medical staff. I don’t know what I would have done without their resources.

1 Marie-Maxime B.

Volunteer

Rating: 5

I am a sepsis survivor and find the Alliance such a great organization. From sharing stories to providing valuable information on many topics on sepsis.

Volunteer

Rating: 5

Your love support effort and hard work is brilliant it fills my heart with pure and deep gratefulness. It is so necessary to spread the word so less people have to die or suffer so much.
Thank you and god bless you

1

General Member of the Public

Rating: 5

My daughter, Millie Rose Giani, died unexpectedly of sepsis and myocarditis at age 5 on October 27, 2019. The Sepsis Alliance has been a tremendous resource for me to find more information on sepsis, this terrible disease that took my baby from me. I want to arm myself and others with this knowledge. For me, it gives me some understanding of something that is otherwise incomprehensible. For others, I hope that raising awareness will empower caregivers and medical providers to make smart, quick, lifesaving decisions in as many situations as possible. I am grateful to the Sepsis Alliance for giving me and others an outlet to share our stories and for helping to disseminate information and raise awareness of sepsis.

General Member of the Public

Rating: 5

My Daughter, Gracelynn Hope, passed away at the age of 7 months old from sepsis. I reached out the the Sepsis Alliance for information that I could provide to the senators in order to get more education about sepsis. The hospital my daughter was at does not know all the signs and symptoms of sepsis. When she passed I ordered her medical records and she tested positive for sepsis 7 days before she passed away. They waited the day before she gained her wings to start heavy doses of antibiotics. She had mottling and they said she was bruising. The Sepsis Alliance has been a huge help.

Leslie Iversen A.

Client Served

Rating: 5

SURVIVOR
I had gastric bypass revision on 9/24/19. Came home on 9/26. (Sepsis and Surgery) Two weeks later terrible pain in my back and went to ER. I had a leak from my surgery, severe UTI and a collapsed lung. I had no idea I had any of that going on. (Sepsis and Urinary Tract Infections)

I ended up with sepsis, had to have a chest tube, over a liter of fluid was drained from the collapsed lung. I had a fungal infection in that lung. (Sepsis and Fungal Infections) I was on an antifungal medication for that and had to have additional surgery for the stomach. I woke up in ICU with breathing tube down my throat and a tube down my nose. I was terribly weak for some time.

I came home on 11/20/19. I’m still weak and when I take the occasional deep breath, I have pain on my side. I have a 2nd follow up with my regular doctor in a few days. I fear I will feel weak and have that lung pain for the rest of my life. It’s so depressing but since I had no signs but the pain in my back that brought me to the ER, I believe God was looking out for me, saved me.

General Member of the Public

Rating: 5

My elderly mother suddenly became very ill one evening. It turned out that her body went into septic shock. I am so very thankful that St. Jude Medical Center, in Fullerton, CA, is "code sepsis" trained and had us watch patient educational videos from Sepsis Alliance, which also contained patient testimonies. The videos clearly explained what sepsis is and cleared up the misconceptions that sepsis is not "caught" in hospitals, but the body's response to an infection that has threatened or affected organs. Sepsis Alliance's mission in helping educate the public and medical professionals to promptly recognize and treat sepsis is an absolute must when a mere 36 hours can make all the difference between life and death. My dear friend recently lost her sister to sepsis, and I can't help but think if the medical professionals had been better trained to recognize sepsis, she might still be with her family today. It's for this reason that I have shared my mother's testimony with Sepsis Alliance and offered to volunteer to team up with them to help others. They care about making others aware.

Donor

Rating: 5

I've been an avid reader of the Sepsis Alliance's website, have shared my story as a septic shock survivor, raised almost $1,000 through birthday donations on Facebook and have taken courses and attended webinars to learn more about the illness. The Sepsis Alliance was very appreciative of my donation and personally contacted me to thank me. I do believe this non-profit does an excellent job with their concentration on raising sepsis awareness in order to save lives by offering an extensive amount of learning opportunities and printable handouts for educational purposes.

Alba G.

General Member of the Public

Rating: 5

Desarrolle Sepsis por una infección urinaria después del parto de mi bebé que subio a mi riñon izquierdo y luego a la sangre positivo por bacteria E coli
Recibi tratamiento de antibióticos y fluidos IV de inmediato tuve fiebre de 101 grados dolor de cabeza y dolor fuerte en mi riñon
Ingresada por 4 dias
Luego fui a casa y regrese al hospital por 7 dias mas con un catéter intravenosa para recibir antibióticos
Gracias a Dios por una nueva oportunidad de Vida

Client Served

Rating: 5

This is an outstanding organization that brings awareness to many people. Sepsis is such an unknown disease that affects so many patients, family and friends. It is easy to miss if there is no education on the subject. It has truly affected my life in so many ways. I wish I had known more about the disease and not allowed myself to be so near death because of it. I am one of the blessed that have come out fairly unscathed. Not so many are so lucky and education is the key! Keep up the great work!

Volunteer

Rating: 5

My healthy happy 5 year old daughter developed sepsis from pheumonia. She nearly died. She survived and is here to tell the tale. Unfortunately she was seen at a&e and was sent home with a virus with no further tests. This was 24 hours before I called 999. We are so grateful for the work of this charity. Everyone needs to know. I will keep shouting sepsis from the rooftop.

Henry L.2

Client Served

Rating: 5

This team does excellent work in increasing awareness about sepsis, even amongst health care personnel! I wished they had been in existence longer so that my youngest son could have lived! I very much appreciate their continued education to prevent recurrences with our current loved ones.

Xina I.

Volunteer

Rating: 5

They help raise awareness of Sepsis. They are nice and want to help others.

Norma J.2

Volunteer

Rating: 5

I am do glad that I discovered Sepsis Alliance. This is a great organization of survivors and of outreach.
AS soon as I found them I felt less alone and I also gained the courage to share my story here locally in Rhode Island with local newspapers. I am trying to make people aware of Sepsis and am also using my blog on Blogger "Back in the Bucket" to make more people world-wide aware of this global threat.to out health.

Hans G.

General Member of the Public

Rating: 5

I'm so thankful for the service, care, dedication and information provided by the people at Sepsis Alliance. I was thought to be in excellent health at 37 years old, when out of nowhere 6 months ago I fell ill with a racing heartbeat, mental decline, fever. After two days in the hospital I learned what sepsis was, however to this day I don't know what caused it or why it happened. I never heard about sepsis until I almost became just another statistic. I've turned to Sepsis Alliance many times since then and I educate as many people about sepsis as possible now. Take care of yourselves.

General Member of the Public

Rating: 5

I have worked with Sepsis Alliance in two capacities--as a source for content to develop community awareness campaigns for my company and as a vehicle to share my personal story about losing my father to sepsis. They are extremely knowledgeable on the topic and committed to eradicating this horrible disease. Everyone I have dealt with is professional and caring, and the resources they provide are top-notch. They are passionate about their cause, and it shows.

Katy R.1

General Member of the Public

Rating: 5

As a sepsis survivor, I'm excited to see the Sepsis Alliance raising awareness to educate and protect the public!

5 kasper3952

General Member of the Public

Rating: 5

My name is Shaun Wertz,

My sepsis story begins in late February of 2019. As I was laid up in a hospital in south Florida recovering from a serious 3rd burn covering about 20% of my body. I started to notice I was not only feeling the pain of the burn, but also starting to get bouts of fevers, and shakes. My shakes started to be constant and uncontrollable, and my fevers began to spike. My health care providers became increasingly more concerned as well as myself.

My doctors contacted the in-house intensivist who came up to see and speak with me in the burn ward. He began to tell me I was septic and that I was being moved to the ICU for more intensive treatment. I was scheduled for surgery the following morning to cover my wounds with a skin graft, and about that point my memory goes blank and I only remember tiny bits and pieces until I came too about a week later. Only accounts from loved ones, medical records, and my amazing army of health care providers tell the true devastation that septic shock had on my body.

After surgery my blood pressure began to drop. I had lost so much blood I needed several blood transfusions. My kidneys had failed, and I lost my ability to breathe on my own. They had to intubate me and put me in a medically induced coma for 6 days by dripping propofol into my system to keep me asleep so my body could heal. As well, they pumped vasopressors, antibiotics, and IV fluids through me to try and clean out my system from the infection. The only bits and pieces I remember during those 6 days were waking up with my hands tied to the bed rail because I was trying to pull the tube out of my throat because it felt like I was choking, but couldn’t. I remember being terrified because I had no idea what was going on, but only to succumb to the propofol and fall back to sleep. After that week in that terrible situation I finally came to, and began to find out exactly what happened to my body. I’m a testament to how devastating sepsis and septic shock can be to a human body. But more importantly how amazing my doctors and nurses were! They saved my life, and without their quick and decisive actions, I wouldn’t be here today to share my story. Quickness I’ve come to learn, is absolute and paramount to treating sepsis! Because it can go from bad to destructive in very little time if not noticed and treated quickly. My parting words are these. If you feel you may be septic you need to speak up and find help immediately, because if not it could be your last regret.

Volunteer

Rating: 5

In 2008 I survived septic shock. To this day the doctors are not sure why I became septic. I had ankle surgery and within 48 hours had a high temperature. I was lucky in that I was still in the hospital. My condition deteriorated quickly. I was diagnosed with sepsis and the race to find the critical combination of antibiotics to cure me was on. Within a week I had to be moved to the ICU; a coma induced so that I could be intubated and kept alive. The first organs to fail were the lungs which means I had ARDS (Acute Respiratory Distress Syndrome). I was in the ICU for 46 days with one crisis after another. At one point, my husband was told my chances of survival were 15% at best. I survived but suffer from Post Sepsis Syndrome (PSS). The ICU days were frightening for my family as they rode the rollercoaster of sepsis shock. The nightmare for me didn’t start until I was transferred to the rehabilitation hospital. I suffered from an acute case of delirium. Overall the delirium lasted for about four weeks, diminishing over time. For me that was the start of the nightmare. I had no idea where I was and what had happened to me. I was living in a frightening world where everyone was trying to hurt me. At the same time, no muscle in my body worked, which means I was physically helpless. It took me two long years and a tremendous amount of effort to come back to the point where I could hold a job. I am told by specialists that I have had an “amazing recovery”. I was spared the death penalty, but PSS is a life sentence. One of the most difficult things during recovery is that people, including medical professionals, have no concept of the long-term effects of this killer. The Sepsis Alliance is working to raise awareness and educate both the general public and the medical profession. In addition, they provide support for survivors. Knowledge and awareness of this condition is critical. We need much more research into what causes sepsis, effective ways to treat it and the long-term care of survivors. I look forward to continuing to support this cause. If anyone is interested in learning more about the journey from a caretaker’s perspective, I recommend reading Two Weeks in Winter by Mike Maranhas (my husband), available on Amazon.

1 Sue L. E.

General Member of the Public

Rating: 5

On November, 2018, I was admitted to a local hospital in acute pain and spent 5 days on an acute care floor under the care of several physicians who were trying to isolate and diagnose my infection. I am a 69 year old female who has been in excellent health my entire life, but after struggling for a couple of weeks with what I thought to be flu symptoms, it turned into a call to 911. I am also in the medical field and I thought sepsis struck only the critically ill or patients with compromised immune systems. I experienced the sobering reality of sepsis personally. Fortunately, I survived and I discovered Sepsis Alliance while seeking information about post-sepsis care. I have come to learn that they are an amazing organization that provides education and support for survivors of sepsis. I am grateful I found them and I want to be proactive by helping raise awareness in my own community.

Misty F.

General Member of the Public

Rating: 5

Sepsis Alliance has been very instrumental in helping me after my sepsis diagnosis! They are just amazing!

karisolis

Volunteer

Rating: 5

In early December of 2016 I had sever sepsis and organ dysfunction. I cried to my mom in the ICU, “I don’t know if I can fight through this”. But I did and on Christmas Eve I was discharged to go home to my husband and daughter. But 11 months later I went back to the ER with a 105.5 fever. I had some GM seizures and after an MRI I went into septic shock. My heart rate plummeted from 80 bpm to 14 bpm. Alert and awake I felt my organs shutting down. This couldn’t have lasted more than 1-2 minutes and they had hung some meds to help my heart regulate. Seconds later and I would have lost my life. Both causes for sepsis remain unknown, however having Rheumatoid Arthritis, for 8 years I was on weekly chemotherapy and biweekly biological injections. Because of these immunosuppressants, I was not capable of recovering from whatever was invading my body. The Sepsis Alliance Group has been amazing to me and have provided educational material that I have been able to share with the Arthritis Foundation to help educate the millions of adults and children taking immunosuppressants warning them of the urgent dangers of sepsis and the warning signs that can save their lives. Please support the Sepsis Alliance, raise awareness and educate the world.

1

General Member of the Public

Rating: 5

I Contracted septic shock in 2017. My parents and I had never heard of it. I was placed under heavy sedation and knock out while the medical team worked around the clock to save me. I was 34 and otherwise completely healthy. When i awoke, nearly three weeks later, they doctors were amazed at my progress. Today I live a full live with no side effects. I believe that awareness about sepsis in the emergency room I went to saved my life. The smart doctors knew what to do. Otherwise I would not be here today. Thank you Sepsis Alliance for working to educate the medical community about the techniques to recognize and treat sepsis quickly. You are saving lives.

1

Client Served

Rating: 5

I developed sepsis in December 2017. I went into septic shock and had to be put into a medically induced coma. The medications that were used to stabilize my blood pressure caused me to lose blood flow to my extremities, and my right leg had to be amputated below the knee. When I was finally back home, I went online to learn more about the condition that cost me my leg and almost cost my life. I learned that I was lucky that the hospital where I was treated had a code sepsis protocol, and I was amazed to find out how many hospitals don't. Sepsis Alliance was a great resource for me to find out more about sepsis. They have so much information on their site, and they are fighting to get information about sepsis out to hospitals, doctors, first responders, and patients so that people can survive.

1

General Member of the Public

Rating: 5

Sepsis Alliance is an incredible organization compiling and sharing information about a terrible condition that effects millions of people every year. Despite their size, the impact they have made for families and friends touched by sepsis has been enormous. Thank you for all your hard work!!

1

Advisor

Rating: 5

This is a great organization that promotes awareness for one of the most important causes of death in the US and the world. Tremendous progress has been made thanks to this organization.

1 Karen Y. M.

Advisor

Rating: 5

I absolutely love Sepsis Alliance. They have worked hard to help save the lives of many through sepsis education and awareness. Their research, educational materials and resources are incredible. Sepsis Alliance is definitely a valuable and much needed resource. Thank you for the work that you do.

Previous Stories
3

General Member of the Public

Rating: 5

Sepsis is now the “WHY” behind what I do. It is because of sepsis that I’m so passionate about my health and that of others. Over the last 9 years sepsis has reared its ugly head twice in my life. In 2009 I lost my husband, soulmate, business, partner and Bestie (Yes, he was all of that) to sepsis.

In 2016 my life was altered yet again as I was now staring this ugly illness square in the face. The only reason that I’m here today is that I fought for my life. My kidneys started to fail and shut down, my blood sugar level shot through the roof! My blood count totally abnormal. Fevers, chills, diarrhea, depression and the worst pain imaginable! All I can say is But God! He saved me.

1 Lisa K.8

Client Served

Rating: 5

Sepsis Alliance is much needed and amazing organization. Their research and educational materials have helped so many, including myself.

1 Dianne Prisco B.

Client Served

Rating: 5

I had sepsis 22 months ago. It was devastating to my family and me. We did not know much about it, but learned quickly how much damage it can do. Fortunately, I recovered relatively unscathed , but was left with emotional scars. I needed support and found it at the Sepsis Alliance! Not only is it a great site for people and their families, but it is also great for getting the word out—what sepsis is, symptoms, etc. Knowledge is power and that knowledge can save lives. Time is of the essence to get the necessary care! Thanks, Sepsis Alliance, for all your support and for saving lives through education!

1 Sue C.3

Client Served

Rating: 5

Great site and it has been a great help to me in learning about my post sepsis syndrome and what to expect. I value reading the site on a weekly basis.

1

General Member of the Public

Rating: 5

After a secondary diagnosis of septic shock due to appendicitis, a week’s stay in the hospital, and returning home; I spent weeks and months suffering from certain pain and without answers as to why this was happening. I found Sepsis Alliance and the support I needed to ask the right questions and be my own advocate. Many specialists could not give me answers to what was happening the weeks after my event - from incredible pain in my shoulder area to losing control of some muscles in that region to forgetfulness to lethargy - Bit Sepsis Alliance gave me the courage to be persistent, speak up, and stay strong during my 2-year recovery.

1

General Member of the Public

Rating: 5

February 2018 my husband felt ill as if he had the flu which was going around our community. Within 5 days he was in the emergency room as the doctors attempted to find the cause of the various symptoms he had. Within the next 24 hours he had to be flight for lifed to a large hospital that had an ICU that would save his life. He had gone into septic shock and had staph aureus throughout his body. After reading so many stories on the Sepsis Alliance site I learned that this is a serious illness that so many people and health professionals don't react quickly enough to the obvious symptoms. This non-profit has convinced me I need to help others in any way I can so another family doesn't have to go thru this.

1

General Member of the Public

Rating: 5

I read the survivors' stories with much interest as my mom died unexpectedly of septic shock. My heart goes out to them. My husband and I are both college educated professionals, well-respected and established in our community. But we were unaware of the symptoms of sepsis and trusted the medical professionals with mom's care. Unfortunately, the system let mom down and we lost her. I think there are still many medical professionals who don't fully understand and recognize the indications of sepsis, and there are still hospitals without effective sepsis protocols in place. This is especially true in small towns with mediocre staff. We still have a lot of questions regarding how and why mom died, but it is a great comfort to us to have the Sepsis Alliance readily available to assist.

2

General Member of the Public

Rating: 5

I knew next to nothing about sepsis util I ended up spending a week in the hospital being diagnosed and treated for sepsis. Afterwards, I did some internet research on the topic and found Sepsis Alliance. After reading dozens of posts I realized that little is known of sepsis within the general public. Many people begin experiencing the symptoms of sepsis and do not realize that they are confronting a serious and even deadly disease. The more people can be taught about sepsis, its symptoms and its seriousness, the better chance they will have to seek treatment timely and, in many cases, survive this horrible, deadly condition.

2 gaillynda

General Member of the Public

Rating: 5

My mother died due to Sepsis and it took her life very quickly and unexpectedly. This website has comprehensive information on the ways Sepsis can take a fatal grip on you from something seemingly insignificant like a minor cut or insect bite. In my mother's case it started with a kidney infection. Unfortunately, Doctors and Nurses are not fully aware or do not act quickly enough when the signs are noticed.

3

General Member of the Public

Rating: 5

I developed Sepsis in April 2011 after the birth of my daughter. It was caused by retained placenta products that were not discovered until almost two weeks after the birth. I had hemorrhaged so many products got left behind and later became infected despite an antibiotics course after I was discharged home. I made lots of calls to the doctor during that time due to pain and constant fevers only to be told my estrogen levels were coming back down. Having never had a child prior, I never questioned it.
It was not until I spike a 105 temp, an emergency U/S was done and then a D&E was performed that the toxins were released into my bloodstream and I went into septic shock. An All Hands Code was called and streams of doctors and nurses came in and out of the room. I was finally moved to ICU and stabilized.
I discovered Sepsis Alliance when I was home looking for information to finally understand the depths of what happened and what could have resulted. It was harrowing at best. I am here and do whatever I can to raise awareness and funds for this fabulous group. It is amazing how few people really know what sepsis is.

Review from Guidestar

3

General Member of the Public

Rating: 5

I am a Sepsis/Septic Shock Survivor as a result of an obstructed Kidney Stone. I spent eight days in ICU, six days on a ventilator & medically induced coma, requiring dialysis treatments, several kidney procedures following, and numerous plastic surgeries on my feet and fingers due necrotic tissue. Needless to say, I was very uneducated about Sepsis and the damage it does to a person both physically & emotionally.

Sepsis Alliance Organization has provided me, my healthcare providers, and family with critical information on what to look for & how TIME plays such an important role. Most importantly, by reading Sepsis Survivor Stories & sharing my own experience, it has enabled me to gain the validatation I need to know I am not alone.

2

General Member of the Public

Rating: 5

After I suffered Septic Shock caused from a bladder infection, and spent 6 nights in Critical ICU and 9 nights in hospital overall I was desperate to learn more about this condition and to read other survivors stories.
Sepsis Alliance taught me so much more about the condition and reading others stories helped me to heal.
I had never thought I would ever suffer from this and not knowing much about it could not identify it until I nearly died. Thank you so much to Sepsis Alliance. I will definitely be supporting them always in the future

2

Client Served

Rating: 5

As a septic shock survivor, and now a health care professional (nurse), Sepsis Alliance has been an invaluable resource for me along the way. I have been able to share my story, hear the stories of others (which has helped with reminding me I’m not alone) as well as been a wealth of info for me.

1 Phcygal

Professional with expertise in this field

Rating: 5

Sepsis alliance is one of my favorite non profits-I recommend it as a resource for many of my patients and I have benefited from it myself as I also was diagnosed with sepsis several years ago. Raising awareness and providing information in ways that everyone can understand are things that Sepsis Alliance excels at.

1 Lynn S.1

Volunteer

Rating: 5

I started working with the Sepsis Alliance in 2016 after my college best friend died suddenly from Sepsis. I wanted to honor her memory by holding an event and did so in April 2018 by holding the Inaugural Washington DC Sepsis Awareness event.

Everyone at Sepsis Alliance was very supportive with the event and made sure I had everything I needed.

As a small non-profit, they do a tremendous job of spreading awareness about Sepsis and as a result have reached millions of people to educate them about the signs and symptoms of this condition, albeit with their limited staff and budget.

I feel confident in asking others for donations for this organization, as I have seen first hand that they use their funds very effectively.

I would encourage anyone seeking to donate to a cause that will help save lives to think about Sepsis Alliance as their first choice.

2 Tif S.

General Member of the Public

Rating: 5

Thank you so much for promoting awareness about sepsis. I just recently lost my father to sepsis and reading the stories about others who have experienced such an illness makes me feel less alone!

9 Pena86

General Member of the Public

Rating: 5

My heart got shattered the day I found out that my mother had sepsis. At first doctors just said she had an infection and needed to stay in the hospital for treatment. They never told me she had sepsis u til my mother got a septic shock. I never knew what sepsis was until my mother was diagnosed with it. She had two septic shocks and after that she was in life support for 3 weeks. The doctors heartlessly had encouraged me to let her go since day one but my mother was a warrior and never gave up. She was resuscitated twice and survived it. She was able to fight off sepsis, however sepsis had already done enough damage to all of her organs and there wasn’t much to do about it. This has forever changed my life and it took away the most precious treasure God had given me. The doctors didn’t seem too concerned about it as it seemed like they didn’t know what to do. There was plenty of other patients going through a similar experience and my mother got sepsis after a surgery and negligence. I feel obligated to spread the word about sepsis, this is a life and death matter and your whole life can change within a few days! My heart is broken and I miss my best friend, first love, my amazing mother Rosa Peña. I will forever remember her and will do whatever I can to spread the word about sepsis and for doctors to find a way to preventing it in hospitals after a surgery and have enough knowledge to save more people’s lives. We’re here to fight off sepsis with the sepsis alliance organization and I am ecstatic that they exist! I wish there were more organizations recognizing how dangerous Sepsis is. I love you Mommy! I will fight for you because you taught me how to be a fighter and never give up till my very last breath, just like you mommy!

3 abell106

General Member of the Public

Rating: 5

I didn’t know about Sepsis until it affected me personally with my father. I’m so glad there is a platform spreading awareness and also letting the people share their own stories from their viewpoints. There is nothing I miss more than my sweet father. I will always fight for Sepsis!

3

General Member of the Public

Rating: 5

My dear Dad passed away in January 2018 of sepsis. At the time of diagnosis at the hospital my family and I had no idea what sepsis was. I found the Sepsis Alliance while searching for information online. This organization has helped me immensely while grieving my Dad. Reading the stories of the survivors and those that are no longer here have really opened my eyes to this terrible illness.

3

General Member of the Public

Rating: 5

I became septic in 2016 from a typical UTI that progressed faster than I thought could ever happen. After finding Sepsis Alliance on Facebook, I have learned a lot from the site and from the stories they've published of people who've suffered from this little known condition. Their work in promoting the awareness of sepsis is critical in helping people to live and become aware of the signs and symptoms of sepsis.

2 sstagg

General Member of the Public

Rating: 5

April 2017 I went into septic shock and my chances of surviving were slim. After spending weeks in surgical intensive care I was well enough to go home. Scared and confused as to why this happened to me, I was searching the internet for answers and found Sepsis Alliance. I spent days on their website researching all the information and the stories of other people who encountered sepsis. Sepsis Alliance answered my questions when no one else could.

2

General Member of the Public

Rating: 5

The Sepsis Alliance provides a wealth of important information regarding Sepsis. We were able to share our son's illness in hopes to continue to educate and promote Sepsis.

My family is very grateful for the staff & volunteers at Sepsis Alliance for providing support and resources for sepsis survivors and for families that have been forever changed from this illness.

Thank you.

https://www.sepsis.org/faces/christian-wong/

3 Cheryl Buckley G.

Client Served

Rating: 5

I feel like I have been given a voice to try to be understood. It really matters that I don't feel alone in this experience. Sepsis Alliance has shown me that I am not the only one & I cannot express what that means. I don't really understand all the "after effects" of sepsis that I am going through. But today I have a place to go to find answers. Thank you from the bottom of my heart.

4 Kelly P.4

General Member of the Public

Rating: 5

My beautiful 28 yr old, seemingly healthy daughter, died from sepsis on October 4, 2016.
No one knew the signs. She just thought she was fluish and wanted to rest. Little did she know, as she was resting, her body was shutting down with organ failure. She was too ill to even reach for her phone to get some help. When her boyfriend got home and realised how sick she was the paramedics were called.
She went into cardiac arrest, not once. but 5 times while in the ER.
None of us including the Drs. even thought of sepsis. They kept asking if she was on drugs, could she have mixed meds together etc. I told them she didnt use drugs.
She had kidney, liver, heart amd brain damage. It was too late. She couldn't be saved. We often ask ourselved had she gotten help earlier instead of resting, would she be alive today?
This is an incideous disease. No one thought of sepsis as she was not in the hospital etc for anything.
Her septic shock came from Enterocolitis. From being constipated since birth, her intestinal walls had thinned out so much that one day fecal matter seeped through and killed her. No one should die from being constipated. My goal is to get the word out there and let people know about sepsis.
As you can imagine we are heartbroken. She was a sweet, caring person who loved life. She was taken much too soon.

1

Client Served

Rating: 5

I had "severe" sepsis and 28 days of 24/7 intravenous antibiotics followed by antibiotic pills, in a hospital and then even longer in a nursing home. The doctors and nurses never said anything about potential sepsis after effects but after getting home I certainly did have some, so online I went and soon found Sepsis Alliance, thank goodness. I had never even heard of sepsis yet the Sepsis Alliance website provided very useful answers to my questions. And that meant, and does mean, a lot to me. I thank you, Sepsis Alliance sepsisalliance.org !

4 Scott H.1

Client Served

Rating: 5

Sepsis Alliance helped in my recovery by connecting me to stories of survival and knowing I am not alone. Their awareness raising is essential