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Sepsis Alliance

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Nonprofit Overview

Causes: Health, Public Health

Mission: Save lives and reduce suffering by raising awareness of sepsis as a medical emergency.

Programs: Sepsis awareness and education programs for the general public and health professionals. Support to sepsis survivors and loved ones of sepsis patients.

Community Stories

171 Stories from Volunteers, Donors & Supporters

Henry L.2

Client Served

Rating: 5

This team does excellent work in increasing awareness about sepsis, even amongst health care personnel! I wished they had been in existence longer so that my youngest son could have lived! I very much appreciate their continued education to prevent recurrences with our current loved ones.

Xina I.

Volunteer

Rating: 5

They help raise awareness of Sepsis. They are nice and want to help others.

Norma J.2

Volunteer

Rating: 5

I am do glad that I discovered Sepsis Alliance. This is a great organization of survivors and of outreach.
AS soon as I found them I felt less alone and I also gained the courage to share my story here locally in Rhode Island with local newspapers. I am trying to make people aware of Sepsis and am also using my blog on Blogger "Back in the Bucket" to make more people world-wide aware of this global threat.to out health.

Hans G.

General Member of the Public

Rating: 5

I'm so thankful for the service, care, dedication and information provided by the people at Sepsis Alliance. I was thought to be in excellent health at 37 years old, when out of nowhere 6 months ago I fell ill with a racing heartbeat, mental decline, fever. After two days in the hospital I learned what sepsis was, however to this day I don't know what caused it or why it happened. I never heard about sepsis until I almost became just another statistic. I've turned to Sepsis Alliance many times since then and I educate as many people about sepsis as possible now. Take care of yourselves.

General Member of the Public

Rating: 5

I have worked with Sepsis Alliance in two capacities--as a source for content to develop community awareness campaigns for my company and as a vehicle to share my personal story about losing my father to sepsis. They are extremely knowledgeable on the topic and committed to eradicating this horrible disease. Everyone I have dealt with is professional and caring, and the resources they provide are top-notch. They are passionate about their cause, and it shows.

Katy R.1

General Member of the Public

Rating: 5

As a sepsis survivor, I'm excited to see the Sepsis Alliance raising awareness to educate and protect the public!

3 kasper3952

General Member of the Public

Rating: 5

My name is Shaun Wertz,

My sepsis story begins in late February of 2019. As I was laid up in a hospital in south Florida recovering from a serious 3rd burn covering about 20% of my body. I started to notice I was not only feeling the pain of the burn, but also starting to get bouts of fevers, and shakes. My shakes started to be constant and uncontrollable, and my fevers began to spike. My health care providers became increasingly more concerned as well as myself.

My doctors contacted the in-house intensivist who came up to see and speak with me in the burn ward. He began to tell me I was septic and that I was being moved to the ICU for more intensive treatment. I was scheduled for surgery the following morning to cover my wounds with a skin graft, and about that point my memory goes blank and I only remember tiny bits and pieces until I came too about a week later. Only accounts from loved ones, medical records, and my amazing army of health care providers tell the true devastation that septic shock had on my body.

After surgery my blood pressure began to drop. I had lost so much blood I needed several blood transfusions. My kidneys had failed, and I lost my ability to breathe on my own. They had to intubate me and put me in a medically induced coma for 6 days by dripping propofol into my system to keep me asleep so my body could heal. As well, they pumped vasopressors, antibiotics, and IV fluids through me to try and clean out my system from the infection. The only bits and pieces I remember during those 6 days were waking up with my hands tied to the bed rail because I was trying to pull the tube out of my throat because it felt like I was choking, but couldn’t. I remember being terrified because I had no idea what was going on, but only to succumb to the propofol and fall back to sleep. After that week in that terrible situation I finally came to, and began to find out exactly what happened to my body. I’m a testament to how devastating sepsis and septic shock can be to a human body. But more importantly how amazing my doctors and nurses were! They saved my life, and without their quick and decisive actions, I wouldn’t be here today to share my story. Quickness I’ve come to learn, is absolute and paramount to treating sepsis! Because it can go from bad to destructive in very little time if not noticed and treated quickly. My parting words are these. If you feel you may be septic you need to speak up and find help immediately, because if not it could be your last regret.

Volunteer

Rating: 5

In 2008 I survived septic shock. To this day the doctors are not sure why I became septic. I had ankle surgery and within 48 hours had a high temperature. I was lucky in that I was still in the hospital. My condition deteriorated quickly. I was diagnosed with sepsis and the race to find the critical combination of antibiotics to cure me was on. Within a week I had to be moved to the ICU; a coma induced so that I could be intubated and kept alive. The first organs to fail were the lungs which means I had ARDS (Acute Respiratory Distress Syndrome). I was in the ICU for 46 days with one crisis after another. At one point, my husband was told my chances of survival were 15% at best. I survived but suffer from Post Sepsis Syndrome (PSS). The ICU days were frightening for my family as they rode the rollercoaster of sepsis shock. The nightmare for me didn’t start until I was transferred to the rehabilitation hospital. I suffered from an acute case of delirium. Overall the delirium lasted for about four weeks, diminishing over time. For me that was the start of the nightmare. I had no idea where I was and what had happened to me. I was living in a frightening world where everyone was trying to hurt me. At the same time, no muscle in my body worked, which means I was physically helpless. It took me two long years and a tremendous amount of effort to come back to the point where I could hold a job. I am told by specialists that I have had an “amazing recovery”. I was spared the death penalty, but PSS is a life sentence. One of the most difficult things during recovery is that people, including medical professionals, have no concept of the long-term effects of this killer. The Sepsis Alliance is working to raise awareness and educate both the general public and the medical profession. In addition, they provide support for survivors. Knowledge and awareness of this condition is critical. We need much more research into what causes sepsis, effective ways to treat it and the long-term care of survivors. I look forward to continuing to support this cause. If anyone is interested in learning more about the journey from a caretaker’s perspective, I recommend reading Two Weeks in Winter by Mike Maranhas (my husband), available on Amazon.

1 Sue L. E.

General Member of the Public

Rating: 5

On November, 2018, I was admitted to a local hospital in acute pain and spent 5 days on an acute care floor under the care of several physicians who were trying to isolate and diagnose my infection. I am a 69 year old female who has been in excellent health my entire life, but after struggling for a couple of weeks with what I thought to be flu symptoms, it turned into a call to 911. I am also in the medical field and I thought sepsis struck only the critically ill or patients with compromised immune systems. I experienced the sobering reality of sepsis personally. Fortunately, I survived and I discovered Sepsis Alliance while seeking information about post-sepsis care. I have come to learn that they are an amazing organization that provides education and support for survivors of sepsis. I am grateful I found them and I want to be proactive by helping raise awareness in my own community.

Misty F.

General Member of the Public

Rating: 5

Sepsis Alliance has been very instrumental in helping me after my sepsis diagnosis! They are just amazing!

karisolis

Volunteer

Rating: 5

In early December of 2016 I had sever sepsis and organ dysfunction. I cried to my mom in the ICU, “I don’t know if I can fight through this”. But I did and on Christmas Eve I was discharged to go home to my husband and daughter. But 11 months later I went back to the ER with a 105.5 fever. I had some GM seizures and after an MRI I went into septic shock. My heart rate plummeted from 80 bpm to 14 bpm. Alert and awake I felt my organs shutting down. This couldn’t have lasted more than 1-2 minutes and they had hung some meds to help my heart regulate. Seconds later and I would have lost my life. Both causes for sepsis remain unknown, however having Rheumatoid Arthritis, for 8 years I was on weekly chemotherapy and biweekly biological injections. Because of these immunosuppressants, I was not capable of recovering from whatever was invading my body. The Sepsis Alliance Group has been amazing to me and have provided educational material that I have been able to share with the Arthritis Foundation to help educate the millions of adults and children taking immunosuppressants warning them of the urgent dangers of sepsis and the warning signs that can save their lives. Please support the Sepsis Alliance, raise awareness and educate the world.

1

General Member of the Public

Rating: 5

I Contracted septic shock in 2017. My parents and I had never heard of it. I was placed under heavy sedation and knock out while the medical team worked around the clock to save me. I was 34 and otherwise completely healthy. When i awoke, nearly three weeks later, they doctors were amazed at my progress. Today I live a full live with no side effects. I believe that awareness about sepsis in the emergency room I went to saved my life. The smart doctors knew what to do. Otherwise I would not be here today. Thank you Sepsis Alliance for working to educate the medical community about the techniques to recognize and treat sepsis quickly. You are saving lives.

1

Client Served

Rating: 5

I developed sepsis in December 2017. I went into septic shock and had to be put into a medically induced coma. The medications that were used to stabilize my blood pressure caused me to lose blood flow to my extremities, and my right leg had to be amputated below the knee. When I was finally back home, I went online to learn more about the condition that cost me my leg and almost cost my life. I learned that I was lucky that the hospital where I was treated had a code sepsis protocol, and I was amazed to find out how many hospitals don't. Sepsis Alliance was a great resource for me to find out more about sepsis. They have so much information on their site, and they are fighting to get information about sepsis out to hospitals, doctors, first responders, and patients so that people can survive.

1

General Member of the Public

Rating: 5

Sepsis Alliance is an incredible organization compiling and sharing information about a terrible condition that effects millions of people every year. Despite their size, the impact they have made for families and friends touched by sepsis has been enormous. Thank you for all your hard work!!

1

Advisor

Rating: 5

This is a great organization that promotes awareness for one of the most important causes of death in the US and the world. Tremendous progress has been made thanks to this organization.

1 Karen Y. M.

Advisor

Rating: 5

I absolutely love Sepsis Alliance. They have worked hard to help save the lives of many through sepsis education and awareness. Their research, educational materials and resources are incredible. Sepsis Alliance is definitely a valuable and much needed resource. Thank you for the work that you do.

Previous Stories
3

General Member of the Public

Rating: 5

Sepsis is now the “WHY” behind what I do. It is because of sepsis that I’m so passionate about my health and that of others. Over the last 9 years sepsis has reared its ugly head twice in my life. In 2009 I lost my husband, soulmate, business, partner and Bestie (Yes, he was all of that) to sepsis.

In 2016 my life was altered yet again as I was now staring this ugly illness square in the face. The only reason that I’m here today is that I fought for my life. My kidneys started to fail and shut down, my blood sugar level shot through the roof! My blood count totally abnormal. Fevers, chills, diarrhea, depression and the worst pain imaginable! All I can say is But God! He saved me.

1 Lisa K.8

Client Served

Rating: 5

Sepsis Alliance is much needed and amazing organization. Their research and educational materials have helped so many, including myself.

1 Dianne Prisco B.

Client Served

Rating: 5

I had sepsis 22 months ago. It was devastating to my family and me. We did not know much about it, but learned quickly how much damage it can do. Fortunately, I recovered relatively unscathed , but was left with emotional scars. I needed support and found it at the Sepsis Alliance! Not only is it a great site for people and their families, but it is also great for getting the word out—what sepsis is, symptoms, etc. Knowledge is power and that knowledge can save lives. Time is of the essence to get the necessary care! Thanks, Sepsis Alliance, for all your support and for saving lives through education!

1 Sue C.3

Client Served

Rating: 5

Great site and it has been a great help to me in learning about my post sepsis syndrome and what to expect. I value reading the site on a weekly basis.

1

General Member of the Public

Rating: 5

After a secondary diagnosis of septic shock due to appendicitis, a week’s stay in the hospital, and returning home; I spent weeks and months suffering from certain pain and without answers as to why this was happening. I found Sepsis Alliance and the support I needed to ask the right questions and be my own advocate. Many specialists could not give me answers to what was happening the weeks after my event - from incredible pain in my shoulder area to losing control of some muscles in that region to forgetfulness to lethargy - Bit Sepsis Alliance gave me the courage to be persistent, speak up, and stay strong during my 2-year recovery.