I had "severe" sepsis and 28 days of 24/7 intravenous antibiotics followed by antibiotic pills, in a hospital and then even longer in a nursing home. The doctors and nurses never said anything about potential sepsis after effects but after getting home I certainly did have some, so online I went and soon found Sepsis Alliance, thank goodness. I had never even heard of sepsis yet the Sepsis Alliance website provided very useful answers to my questions. And that meant, and does mean, a lot to me. I thank you, Sepsis Alliance sepsisalliance.org !
Sepsis Alliance helped in my recovery by connecting me to stories of survival and knowing I am not alone. Their awareness raising is essential
Our son survived septic shock at only two weeks old. We are very fortunate the hospital staff knew the symptoms and acted quickly. The information provided by the Sepsis Alliance is so important and needs to be shared!
My father-in-law's son was a victim of sepsis who ultimately died of cancer not too long ago.
My parents, both retired medical professionals (my father a retired Army veteran and anesthesiologist; my mother a retired Critical Care nurse) saw many sepsis cases during their professional careers. There are sepsis survivors in my family.
Like the Bill & Melinda Gates Foundation, Sepsis Alliance wants to inspire people to take action.
Sepsis accounts for nearly $24 billion in annual costs, making it the most expensive condition to treat in the entire U.S. healthcare system. It is the number cost of readmissions to hospitals, and the number one killer of children.
38 sepsis patients require amputation every day.
The CDC, always exploring ways to reduce patient risks and preventable deaths, analyzed hospital discharges between 2000-2010, and over that 10-year span, the top eight deadliest diagnoses all had double-digit declines in inpatient mortality except for one: sepsis.
Studies conducted by the National Institutes of Health (NIH), as well as the VA, showed that exposure to carcinogens, such as herbicides during the Vietnam War and contaminants from oil-well fires during the Persian Gulf War, left veterans with significantly higher rates of certain types of cancer than the general population.
Cancer patients, with their high frequency of hospital stays are particularly at risk of sepsis infection. One NIH study published in 2004 revealed that cancer patients are at almost 4 times greater risk to be hospitalized with severe sepsis ' which has at least a 28% mortality rate' than the general population.
Sepsis does not discriminate. It can affect anyone ' healthy or sick, young, old, and those in-between.
Its effects are devastating, and sepsis victims are not the only ones to suffer. Survivors, their families and caregivers, too are affected by the trauma caused by sepsis. All reasons why Sepsis Alliance created a Faces of Sepsis campaign to help support survivors and victims' families, by giving them a place to share their stories.
Effectively half the population of the U.S. has not heard of sepsis, and is not aware that recent research indicates sepsis is now increasingly acquired in the community, not as a hospital-acquired infection (HAI).
The Bill & Melinda Gates Foundation is on the front lines, helping combat infectious diseases, and we see good synergies on this basis and others, knowing where the foundation puts its emphases.
Sepsis Alliance is the nation's largest sepsis advocacy organization, and we work in collaboration with individuals and organizations nation-wide across the healthcare continuum ' from hospitals, those helping to translate scientific discoveries into solutions, to those working to develop and deliver innovative approaches to deliver health services in a bid to raise awareness in the public for sepsis - which the CDC this last fall raised to the status of a 'medical emergency'.
All lives have equal value. And Sepsis Alliance can save more lives with support from and in collaboration with the Bill & Melinda Gates Foundation.
Thank you for your support.
Review from #MyGivingStory
I went into severe Sepsis shock the day after Christmas 2015- I just thought I was unwell following a shorter than usual discharge from hospital due to the holiday season.Luckily my surgeon has an angel called Kathleen as his practice nurse who,luckily for me took my phone call and told me to,return ASAP to my hospital.
Following a record triage in ER ,and many tests I ended up in emergency surgery as I had developed severe Sepsis shock- everything was shutting down from my kidneys onwards.i remember seeing my family crying and me not knowing why - until about 3 weeks later when my Infectious disease doctor was telling me ,I was 45 minutes from death.i don't recall much except awful nightmares and visions,and having no ability to control my body.Luckily I recover physically a bit,but was shot emotionally as I had a feeling of not really being here and questioning why I was here.After nearly two years,of ongoing confusion about myself and my conditions,I was lucky enough to find the Sepsis Alliance website and it was
Ike a light went on.I finally understood what was going on and. I was not alone in feeling as I do today.Like many others,I found myself crying with relief as I now had answers.Thank you for your information,stories from fellow 'survivors ' and ideas about what I have been going through.Thank you for giving me a part of my old self back by giving me information.I am in Australia so maybe our protocols might be different as our medical systems are very different but that does not detract from the value of this Alliance.
After surviving sepsis in 1988, I was glad to find this great nonprofit alliance, raising the public's awareness of sepsis, by posting stories of victims and survivors of this little understood but deadly disease.
I have nothing but good things to say about the Sepsis Alliance. As I work with hospitals in Colorado on sepsis identification and treatment, the Alliance has been most helpful in providing time and resources to assist. I never hesitate to email or call, because i know they will be right there to help. They have helped me connect with sepsis survivors, propose a state proclamation for Sepsis Awareness Month, and so much more. They are my go-to organization for resources and education.
I lost my 40 year old husband, Jeffrey Ray Davis, to sepsis in 2012. Sepsis was missed by 2 different ED Dr. until he was in septic shock. I did not know what sepsis was. I did a Google search after he died and the Sepsis Alliance website came up first. They have been instrumental in my healing from becoming a widow. They have been with me from the first day I contacted them and have supported me ever since. They are no longer strangers to me, they are family! We are all in this fight together, and I am proud to be raising sepsis awareness and saving lives with them! 2018 will be the 5th annual In Loving Memory of Jeffrey Ray Davis Sepsis Challenge and to date I've raised over $20,000 for Sepsis Alliance, while educating the community on sepsis being a medical emergency and preaching the symptoms over and over again. I want them to be embedded in as many peoples brains that I can touch, so more survive! I have gotten my will to live back with Sepsis Alliance's help, and each time I get something accomplished to save more lives, I feel proud because I know my husband's memory lives on and his fight continues through me and his children!
Jeff's story: http://www.sepsis.org/faces/jeffrey-davis/
News stories I've done:
Member of Sepsis Alliance Advisory Board:
2016 Sepsis Hero:
My 40 year old husband died of sepsis October 20, 2012, leaving me a 35 year old widow and his 2 children 3 and 9 months old fatherless. Sepsis Alliance has been there for me since I first told them about my beloved husband, Jeff. His story just went live today on there website:
I will help them raise awareness so ER's catch this deadly infection quicker when time is so critical. The mortality rate for sepsis goes up 8% every hour it goes undiagnosed!
Sepsis Alliance has been instrumental in promoting sepsis awareness, recognition, and early intervention. They have developed tools and resources for health care clinicians and to the community. As a critical care educator and university faculty member, I have used several of Sepsis Alliances resources for teaching staff and students. I also use their resources for patients, family, and community member education.
The staff and volunteers at Sepsis Alliance are very helpful. My husband is a septic shock survivor. This organization has helped both me and my family with follow-up questions and providing a network of others to talk with. They are transparent with how my donations and time are used.
Sharon Hansen, MN, RN, CCRN
My interactions with Sepsis Alliance have mostly been with Thomas Heymann who was very informative about this growing problem. Since becoming aware, I have heard numerous stories of how this touched others directly or a loved one. The stories are quite harrowing, often sadly fatal. We have tried to connect make connections to further the awareness in the DFW area of this condition. Hence our donation(s) as a wellness company, Wello Inc. www.welloinc.com .
Exceptional organization. Provides excellent resources to professionals and the public to improve early recognition and treatment of sepsis.
Sepsis Alliance (SA) is the world's leading nonprofit for sepsis awareness. Working with dedicated medical professionals and advocates SA provides real-time information and education about sepsis prevention and early detection. There is a common theme at SA and it is a deep passion and strong desire to save lives by providing sepsis awareness.
The Sepsis Alliance was the only responsive and active resource for me, a sepsis survivor. They are doing truly amazing work saving lives and educating the public and health community.
Wonderful to connect with so many people in recovery. Definitely helped me pull through!
Thank you Sepsis Alliance. You have helped me to understand what I went through and what other people go through!
Sepsis Alliance was invaluable to me after my Mom died with Septic Shock in 2010. I didn't know what Sepsis was and was stunned, utterly speechless, when the doctors at a Level 1 Trauma Center told us that Mom was going to die. We thought Mom had the flu; her only symptom was a shaking chill. Despite their best efforts, Mom went from walking into the ER and talking to being in an induced coma, on dialysis, having 8 IV lines and many other treatments, all in the same day. Mom died two days later. I reached out to Sepsis Alliance and the fine people there cared so much, listened to me and taught me a lot. I raise awareness of Sepsis whenever and wherever I can.
Sepsis Alliance informs and educates the public and healthcare professionals. It is a valuable resource for all in learning more about this devastating condition. I will always be grateful to Sepsis Alliance for all it does, in memory of my Mom, who died before our eyes with septic shock.
The information I've gained from Sepsis Alliance has been invaluable in terms of understanding all that my body went through and the after effects of Sepsis. S.A. saves lives by spreading awareness. They also provide info and support to those who have survived Sepsis!
Sepsis alliance has been invaluable to me as a sepsis survivor. I've learned so much about sepsis that I never knew. I've also met other survivors, it's nice to know you're not alone. It's wonderful how SA educates the public and healthcare workers about this condition, and how they're fighting for mandatory sepsis protocols. I'm sure many lives have been saved due to this. It would've made all he difference for me if the ER I went to recognized sepsis as a medical emergency.
We lost our son to Sepsis in 2014. The information and on-going support of the Sepsis Alliance has been invaluable. If the medical community knew more about Sepsis in 2014, our son might still be with us.
The Sepsis Alliance has gone above and beyond in helping us cope with losing our son to Sepsis. In addition, the information that they provide, we have been able to share with many family, friends and co-workers -- and in return, raise funds for their cause. They are responsive to personal requests and never cease to amaze me. The information on their website is great and helped us make serious decisions at a critical time in our lives.
I got sick in March 2016 with what I thought was just a sinus infection. 7 days later I was fighting for my life. I had strep throat, a sinus infection, DIC and double lower lobe pneumonia, that lead to becoming severely Septic. I had never heard of sepsis before. My husband and mom were called back only to be told they needed to call my friends and family to have them come say good bye, because I was too sick to live.
I spent 2 weeks on a ventilator, sedated and the next month learning how to do simple things again like washing my hands, brushing my teeth and walking.
My body still feels foreign to me and without Sepsis Alliance I would have never known that Post Sepsis Syndrome even existed and that I also had PTSD. The information on this site is amazing and I sat and cried for an hour because of all the information. And it was everything that I was dealing with.
It took my ICU doctors 2 days to figure out what was wrong with me, so more awareness needs to be shared with hospitals and doctors.
Thank you so much for all the work you and your team do!! It has definitely helped me more than words could ever express!!!