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Raynauds Association Inc

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Nonprofit Overview

Causes: Health, Voluntary Health Associations & Medical Disciplines

Mission: The Raynaud''s Association was founded to help Raynaud''s sufferers cope with day-to-day activities for maintaining or improving their quality of life.

The organization is committed to:

(1) Member Support Services - offering sharing, support, and education to fellow Raynaud''s sufferers.

(2) Increasing Public Awareness of Raynaud''s - so more sufferers recognize the symptoms and seek treatment.

(3) Helping the Medical Community Research Treatments and Potential Cures for Raynaud''s - through patient recruitment and, eventually, funding for research.

Results: Awareness Campaign results: Through 2016, our public service campaigns achieved over 620 million impressions and generated over $13 million in donated media support. This past year’s press announcement regarding Raynaud’s Awareness Month was picked up by 177 sites with a potential audience of 88 million.

Target demographics: Raynaud’s sufferers, their families, friends and associates.

Direct beneficiaries per year: In 2016, the website had more 315,000 unique visitors. We’re engaged with over 14,000 Facebook fans, 2,000 Twitter followers, and reach over 9,000 people on Pinterest a month across our social media platforms. We host an active Discussion Forum with nearly 11,000 participants. Through 2016, our public service campaigns achieved over 620 million impressions and generated over $13 million in donated media support. This past year’s press announcement regarding Raynaud’s Awareness Month was picked up by 177 sites with a potential audience of 88 million. Through our hotline and emails we assisted just under 1,000 sufferers and their families with support, and our newsletter reached over 4,000 active subscribers.

Geographic areas served: We're a national organization with members across the globe.

Programs: Services include a toll-free hotline and a website with an active discussion forum, informative blog, newsletter, social media pages and numerous other resources, along with broadscale awareness-building efforts to reach the 90 percent of the 15-30 million people with Raynaud’s who do not realize their pain and discomfort has a medical explanation. Awareness and medical attention are important to prevent permanent blood vessel damage and to rule out more serious autoimmune diseases.

Community Stories

57 Stories from Volunteers, Donors & Supporters

Gail M.1

General Member of the Public

Rating: 3

I have dealt with Raynauds for over 40 years mostly on my own. Most people don't understand that it's not just a matter of cold hands or the impact that it has on day to day life I appreciate the information that is on this site as well as learning from the experiences of others.

General Member of the Public

Rating: 5

I appreciate all the helpful information this organization shares.

Nicola D.

General Member of the Public

Rating: 5

This site is amazing, I've now meet great other people thay are in the same boat as myself and that there are people out there that can help.

Hilary E.1

General Member of the Public

Rating: 5

This page is a great way for me to get valuable and up-to-date information about a condition that is not widely spoken about. It's also nice to connect with others with the same struggles.

Lisa Funari C.

Client Served

Rating: 5

So helpful for recommendations of survival tips, product reviews and discounts. Humorous posts to get you through challenging days. This is the only site that speaks to Raynauds.

Emmylou Medina T.

General Member of the Public

Rating: 5

I found this site long after I was diagnosed with Raynauds, but found the information on products to help me cope with this disease very informative and helpful. The product reviews are exactly what I was looking for. Also, I find the information quite helpful.

General Member of the Public

Rating: 5

For me the raynaud's association has been a great source for information from other members as well as articles from magazines and health care professionals. When I was originally diagnosed i had no idea there were so many others having to deal with the pain, discomfort and embarrassing moments those of us with Raynaud's have to deal with. through the raynaud's association i have been able to better manage the disease as well

Pam J.1

General Member of the Public

Rating: 5

I've had Raynaud's for years and was pleased to find this group. It's a wealth of information about the disease and a great assistance in coping with its symptoms

Julie O.1

General Member of the Public

Rating: 5

Gives very helpful information products that make living with Raynaud's. Shows that you are not alone and that there are others that understand what you are going through.

General Member of the Public

Rating: 5

After years of issues, I was finally diagnosed in my late 30s after a very severe incident that sent me to Urgent Care. Because my doctor was unable to provide much information, I went to the internet for my own research. This group has been essential not only for providing helpful information, but also for support from others who suffer from Raynauds.

Jennifer W.1

General Member of the Public

Rating: 5

This organization keeps me informed of ways to manage my Raynauds. From reviewing & testing warming products to keep us up to date on the latest medical developments I really appreciate it.

General Member of the Public

Rating: 5

Love them for keeping us updated on products, and sharing stories of other people who live with Reynauds.

General Member of the Public

Rating: 5

I have primary raynauds, newly diagnosed. I had never heard of this condition until I was diagnosed and immediately started researching, I came upon the Raynauds Association website where I was provided with a wealth of information and tips on how to deal with this disease. I am glad to be able to read about the stories, experiences, symptoms etc. that other people share through the Raynauds Association Facebook page.

General Member of the Public

Rating: 4

Has been a very informative group. Prior to them - there was no one that talked about it and way's to help. Thankful they are out there with tips and information needed!

General Member of the Public

Rating: 5

The Raunauds Association provides a lot of essential tips and resources to help me manage my day to day symptoms. I'm able to manage much better thanks to this association.

Client Served

Rating: 5

I stumbled upon The Raynaud's Association when I was diagnosed with Raynaud's. They have come to be a great source of information for me and my family. I am very appreciative of the work they do.

Jolene W.

General Member of the Public

Rating: 5

When I was diagnosed with Raynaud's, my Doctor provided very little information about the disease, or how to live with it. Upon searching for information online, I found the Raynaud's Association to be the best source for information and support.

Previous Stories

General Member of the Public

Rating: 5

The Raynaud's Association is, without a doubt, the best source of information for anyone with Raynaud's. They are always sharing the latest medical information, information about products and tips to help Raynaud's sufferers. So many people have Raynaud's but are undiagnosed because of the lack of awareness for this condition. The Raynaud's Association are working very hard at providing that awareness. I have found out more helpful information from them, than I have from my doctor.

Read more

General Member of the Public

Rating: 5

I appreciate all the helpful information this organization shares.

1 Barbie D.

General Member of the Public

Rating: 2

After years of feeling alone. I am not.

Thank you,
Barbara R Dean

Client Served

Rating: 5

This is a disease that is all most silent, when it is cold my hands, fingers and toes turn blue, white and sometimes black. It is not easy at all my fingers n toes just ache on a daily basis and also my joints. I am so happy there is this site to help us and others understand what this is and how they can help someone. And the vendors too are great giving ideas for warmth and special deals on pricing..best site ever..