This is a disease that is all most silent, when it is cold my hands, fingers and toes turn blue, white and sometimes black. It is not easy at all my fingers n toes just ache on a daily basis and also my joints. I am so happy there is this site to help us and others understand what this is and how they can help someone. And the vendors too are great giving ideas for warmth and special deals on pricing..best site ever..
I was diagnosed with Raynauds in 2013. This website is very much appreciated. My doctor couldn't really give me any tips on daily living, so your blog is invaluable.
I first experienced Raynaud's about 12 years ago and had no idea what it was. I went to my doctor, he didn't know what it was... I lived that way just "dealing with it" until I conducted some research, took that info to another doctor, and was officially diagnosed with Raynaud's. I was the only person I knew with this condition. Since that time, I have discovered the Raynaud's Association and am a huge fan of their site. They continue to keep me and several others up to date with the newest research, potential methods to help reduce the frequency of a Raynaud's flare up, as well as new gadgets that can help! It is definitely my "go to" for the latest and greatest for trust worthy information. It also helps to be able to hear the stories from others that experience this and to know that I'm not alone. I highly recommend this site!!!
I was diagnosed at age 52, 10 months ago. I had no idea there was a name for what I'd been experiencing. I was given minimal information from my doctor other than "keep warm". In searching the Internet, I found the Raynaud's Association. THERE I found useful information and was connected with a network of support. I've learned so much and am so grateful to have this resource. The things I experience can be scary at times, and thru this organization, I don't feel alone since I don't know anyone personally who has this condition.
The Raynaud's Association is, without a doubt, the best source of information for anyone with Raynaud's. They are always sharing the latest medical information, information about products and tips to help Raynaud's sufferers. So many people have Raynaud's but are undiagnosed because of the lack of awareness for this condition. The Raynaud's Association are working very hard at providing that awareness. I have found out more helpful information from them, than I have from my doctor.
I was diagnosed with Raynaud's 3 years ago and with little information from my Doctor I went to the Internet, and there I found the Raynaud's association Inc website. This group of dedicated individuals provide many fellow Raynaud's sufferers with a great resource for information, support, and awareness that I have found nowhere else. They provide information that helps living with Raynaud's more bearable!
Helps me not feel like I am not alone,gives me a way to stay connected to new products and the newest medical findings. Or new medical ways to treat Raynaud's.
When i was finally able to capture an episode òn my cell to show my doc, he said "just as i thought,but there's nothing we can do about it...but these ppl may be able to help" and gave me the raynauds website. Finally a whole group of ppl who know exactly what I'm going thru and even tips and products that really help. I can't tell you how much it means to not feel all alone. FROSTIES ARE COOL!
The Raynaud's Association has given me a platform to speak about my journey with Raynaud's Phenomenon. I felt alone, but once I found this association I met thousands of other sufferers. I have found some really great products to help ease the pain.