I have been working with the PHF as a parent of a child with hydrocephalus and have always appreciated the transparency on where all the money is invested. No salaries are paid, no buildings leased; Al of the money goes toward the cost and they list the grants funded on the site. Although the Foundation has pediatric int eh title, the research funded can impact people of all ages. Always very quick in replying to question and have done a great job advocating for our community on capital hill.
PHF has always been there for us. They return calls or emails very quickly. One big organization which has been around many years asked for a donation. We were 3 hours from home and within miles of their main office and no one called us back for days. When they did they said they would mail me and envelope. They haven't really done much to help families or lend support. Another organization offered to send a stuffed bear but became hateful when I contacted PHF. PHF is there for everyone from infants to adults. I know that our daughter will have support even after she turns 18. PHF raises thousands of dollars per year which gets donated to research, helps with cost of materials for events and big event in DC each August. No office space or salaries. All volunteers!! If it weren't for the PHF there would be NO National Hydrocephalus Awareness Month in September. It was established in 2009 by the PHF! I am so proud to be a part of a truly amazing organization with amazing people