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Mucinous Ovarian Cancer Coalition (MOCC)

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Nonprofit Overview

Causes: Cancer

Mission: The Mucinous Ovarian Cancer Coalition is a 501(c)(3) organization. We seek to improve the survival rate and quality of life for women diagnosed with a rare form of ovarian cancer called mucinous adenocarcinoma of the ovary, also known as mucinous ovarian cancer (MOC). Coalition Goals Founded in 2020, the organization’s goals include: 1. Providing financial assistance to researchers investigating MOC and other diseases that may be linked to it. 2. Building and continuously updating an online resource center that connects women and their families with information and experts in this type of gynecological cancer. 3. Providing support to women undergoing treatment for MOC who may be struggling with household tasks and daily living expenses.

Results: The foundation launched on Sept 17, 2020, the birth date of our beloved, late founder. In less than three months we initiated the MOCC Care packages program, hosted several formal and informal fundraisers, conducted an annual campaign of individual donors, and started reaching out to potential corporate partners. We have also established an Advisory Board of leading physicians and researchers who have experience and interest in MOC. They will assist with our grant review process, and help our Board of Directors determine which organizations receive awards in early 2021. Finally, we created and will continue to expand a Resource center on our website with information and videos to help women with Mucinous Ovarian Cancer find the solutions and physicians they need.

Target demographics: Women who are diagnosed with a rare form of cancer, Mucinous Ovarian Cancer, and their loved ones.

Direct beneficiaries per year: Since our September launch, we have already started sending out care packages, helped connect women living with MOC with researchers, and will award our first grant in early 2021.

Geographic areas served: Primarily in the United States, but also offer support to women in other countries.

Programs: We send MOCC Cares packages to women struggling with the disease, as well as raise money to fund research for screening and treatment. Our ultimate goal is to find a cure.

Community Stories

13 Stories from Volunteers, Donors & Supporters

1

Volunteer

Rating: 5

My stepdaughter started this foundation for women with the same type of cancer so they could get the kind of help she was given through family and friends. Whether it be monetary or just help she needed by us being there for her every step of the way.

1

General Member of the Public

Rating: 5

Having lost my beloved Mother and now a precious daughter to this “stealth cancer” I believe I am in a unique position to address the need for early detection, research, and support for women suffering from this rare cancer and for their families. MOCC does all of this and more. Following up Rhonda’s vision, they have identified women who have personal needs and provided care boxes to them. Educational opportunities, support groups, painting and drawing classes are all offered free of charge. The low but deadly incidence of this rare cancer means that money for research is scarce. MOCC is working hard to raise money for research grants. All of this is being accomplished by a dedicated, talented and committed staff of volunteers. In less than a year they have been unbelievably successful and with help from all of this is sure to continue.

1

General Member of the Public

Rating: 5

I've learned so much through this organization, not only related to ovarian cancer itself, but also the people who have been touched by it and unique ways to support charities like MOCC. It is always a pleasure to be included in this group and the vision they hold.

1 Jamie B.8

Board Member

Rating: 5

MOCC has not even been in existence for an entire year, yet it has affected the lives of people all over the country (and even Canada!) MOCC offers support, comfort, compassion and encouragement to those in the trenches of this terrible disease. They offer this through gift packages, free counseling, support groups, fun activities, and even grant research. It is a buoy to ovarian cancer patients and their families!

1

Board Member

Rating: 5

MOCC has sent dozens of care packages to women suffering with this terrible disease, raised over $50,000 for research, offered free counseling sessions and much more. It’s nice to know there is a place women can go for support and resources.

1

Board Member

Rating: 5

Great organization.
I’m so proud to be a part of this great cause! Let’s keep the fight going.

1

General Member of the Public

Rating: 5

My cousins started this organization after one of them was diagnosed with this horrific cancer. Knowing she didn’t have great odds, she still spent her time alive working to create this nonprofit and help others who come after her. They are both inspiring and it’s such a great way to honor Rhonda!

1

General Member of the Public

Rating: 5

My daughter was diagnosed with Mucinous Ovarian Cancer in August, 2020. This has been a very traumatizing time for her, and she became active in participating in your charity. I read on Facebook where they sent victims gift bags, and I requested one for her prior to her going in for HIPec treatment. Shelley responded immediately and sent her one. Just knowing other people care and working for solutions was important for her. Bless you for what you do.

1

Donor

Rating: 5

I have learned a lot about a Cancer I knew nothing about. Loads of information!

1 Shannon S.9

Client Served

Rating: 5

I became acquainted with this organization in August 2020 after being diagnosed with Mucinous Ovarian Cancer. I read Rhonda’s story and found they were also based in Michigan and we were able to share treatment information on a personal level. I have been following the goals they have accomplished in such a short time and have been on the receiving end of some of their efforts. Most recently, I had Hipec and MOCC sent me a care package with some unique and thoughtful items that everyone can use during Chemo treatment.

5 Amy G.11

Volunteer

Rating: 5

Mucinous Ovarian Cancer Coalition was started not only because of cancer but because Rhonda had a selfless heart. Her diagnosis of MOC in 2019 was something none of her family of friends could believe. After several surgeries and rounds of chemo, Rhonda knew she had to do something for all of the women she saw going through the same thing she was going through She saw they didn’t have the emotional, spiritual, mental, physical and financial support that she was so fortunate to have. Unfortunately, my dearest friend I had known almost my entire life, passed in October 2020, just one month after the launch of MOCC. She and her coalition have already provided support to others and will be providing grant money early next year. This is Rhonda’s legacy and one I am proud to support and be a part of.

4

Board Member

Rating: 5

Rhonda was a very dear friend of mine who was diagnosed with Mucinous Ovarian Cancer in the fall of 2019. We were not aware of this rare cancer and found out that it represents only 3 to 4 % of ovarian cancer. Chemo treatments used for ovarian cancer are not as effective with patients that have MOC. Rhonda was always positive and often said how blessed she was to have the tremendous support system of family and friends. During her chemo treatments she was concerned when she saw women coming in so tired and drained or missing treatments because they couldn't make it in by themselves. She wanted to help them. She wanted to start a foundation. MOCC launched on September 17, 2020 with the goals to raise awareness of MOC, raise grant money for the much needed research, and to provide emotional and financial support to women with MOC. Sadly, we lost our gal Rhonda in Oct 2020, but we are determined to continue this foundation in her honor. Her fight is our fight.

4

Board Member

Rating: 5

MOCC was started by my late sister shortly before her passing in October of 2020. She had a great heart and joyful spirit, and wanted to help raise awareness about this rare type of ovarian cancer. Rhonda also felt it was essential to provide emotional and financial support to women with this disease who needed it. Less than three months after launch, MOCC is already helping women and preparing to award the first research grant. Rhonda is the inspiration for the organization’s work every day.