I was diagnosed with Type 1 Diabetes just before I turned 40yrs old. There was not a lot of information I could find on Type 1 to help me with this big adjustment to my life. A JDRF volunteer I met at a group meeting for people with diabetes (there were 200+ people there and only 2 Type 1’s) gave me really helpful information about how to manage all the changes I needed to make and she helped me from feeling so overwhelmed. Don’t get me wrong, it’s been almost ten years and I still get overwhelmed sometimes but I know where I can find information and I have this peace that someone is looking for a cure so someday people won’t have to deal with everything that comes with this diagnosis. Thank you JDRF for being there when I needed you!
My nephew was diagnosed with Type 1 diabetes. Through communication with his mother I see all of the activities designed for these kids to help make their life normal. Logan has made a great many friends that understand his life. Without JDRF, life for these children would be difficult. At the same time JDRF is working tirelessly to find a better way to control this disease and find a cure.
Less than 50% of contributions go to research. Salaries are equivalent to grants for research. Too much overhead here.
Review from Guidestar
I am a volunteer, donor and client served of this great organization. It wasn't on our radar until our son was diagnosed with type 1 diabetes in 2011. For over 5 years, I've witnessed the great programs and results of research funded by JDRF. Type 1 is an incredibly relentless and demanding disease, the number of needle sticks and infusion sites and sensor sticks these kids endure is hard to imagine. The kids impacted have so much potential to live full, healthy lives, and technological advancements will not only makes their lives easier, it will ultimately help reduce healthcare spending. By supporting JDRF you are are impacting approximately 200,000 kids and over a million adults in the US. Thank you!
Several years ago I made a modest donation to JDRF, and I continue to be inundated by junk mail from the organization--and several other non-profits with whom JDRF must have shared my contact information--despite repeated attempts to block these communications. The postage alone of these letters has exceeded the value of my donation, making my contribution essentially worthless, or worse given the great waste. Though the mission and outcomes of the agency may be admirable, the way they conduct business is shameful, in my opinion.
Our son was diagnosed with type one diabetes almost 5 years ago at age 8. I became involved with JDRF shortly thereafter. It is an organization devoted to funding research to prevent, treat and cure this disease. Since our son was diagnosed we have personally seen advances in his care as a result of JDRF funded research (insulin pump, constant glucose monitor). Further the direction of current research honestly has me hopeful for real life changing management for our son if not for his college years then certainly for his early adulthood. After living with this disease and being the primary manager of it for him. I really do not wish him to assume this burden for the rest of his life. The research JDRF is doing will have a positive impact in his lifetime. I'll settle for less than a cure (happily) if it means easier management and easing his burden. Finally, JDRF s a fiscal responsible charity with a volunteer CEO. I feel comfortable giving to this cause (80+% of each dollar goes to research) because it is about funding the research.
Back in 2004 when my daughter was diagnosed with type 1 diabetes, there were five clinical trials and few were actual human clinical trials. Today, there are more than 30 clinical trials and we have seen improved treatments for some complications and for daily type 1 diabetes management. JDRF was a main funder of this research and a driving force behind federal funding of diabetes research.
I am a Mother of a child with type 1 diabetes. I am the sister of a brother with type 1 diabetes. More than anything I want a cure for this disease. Being a research librarian, I have studied the many diabetes organizations and I find after 20+ years of volunteering with JDRF, that they are the best hope for forwarding prevention, better treatments and a cure for my loved ones and thousands of others. JDRF understands the best approach to get us to a cure. What other organization can say that 85 cents on every dollar raised goes to research? I am proud to be a JDRF Mom, but I look forward to the day I can say I am just a Mom with a child who no longer has diabetes. I believe that day will come sooner because there is an organization called JDRF!
Review from Guidestar
JDRF is very close to a cure and as the mom of a 9 year old, I am very appreciative. It is healing to me to volunteer for them and to know that 85 cents on every dollar goes directly to research for a cure. You won't find a better organization to find a cure for Type 1 diabetes. The others are NOT research driven, but JDRF is.... And that's what parents of juvenile diabetes want - a cure so our children will not have to worry about an uncertain future and to suffer through their daily rituals of testing 8-10 times a day and either shots or an insulin pump a permanent part of their life. Thank you JDRF! I will be by your side until there is a cure and no more need for your organization! ;)
JDRF has worked hard over 40 yrs and has developed genetic engineered human insulin, glucagon for severe hypoglycemia,A1C testing, artificial pancreas, continuous glucose monitoring, insulin producing islet cell and pancreatic transplants, insulin pumps, how arteriosclerosis and diabetic retinopathy occurs in diabetics , anti auto-immune drugs, coutless inroads to name a very few but continues to need money for costly durg trials to get a drug or cure to all those suffers and their families
Review from CharityNavigator
In the archived comments (from link below), a reply (Share Donor Information Posted by LG August 16, 2010 6:37:48 AM) was made to my review regarding the sharing of information (They share your name while saying they don't Posted by KD April 21, 2010 11:45:15 AM) which stated, “I think you have JDRF confused with another organization.”
Let me assure the author of this reply, and anyone else who might have doubts, that I keep very accurate, detailed records regarding the charities I donate to and as I stated, not only did I obtain a CONFESSION of the policy breech FROM THE ORGANIZATION DIRECTLY, I was informed by more than one of the unwelcome solicitors that they had received my name and address from the JDRF. (Moreover, this confirmation was provided to me WITHOUT any mention of the JDRF on my part. When I gave them my name, they were able to identify the source. I gave no leading information or any indication of where I thought the information had come from.)
I would not have posted this comment unless I was CERTAIN of the accuracy of the information I was relaying. I still have the notes of the conversations regarding this breech of privacy and I stand by my observations. My donations toward finding a cure for juvenile diabetes will be directed elsewhere.
Review from CharityNavigator
Im president of my school's Spanish Club and our club adviser's little boy unfortunately suffers from Type 1 diabetes, it is just heartbreaking to have to see him take test bloods at least 6 times a day and even be discriminated in his soccer team just for being a diabetic. Last year we were able to raise $2000 for the Walk that took place in Sacramento, the event was emotional and overall just super fun. (Oh we got free t shirts :]) All money went for research and we know JDRF is close to finding a cure!