I have suffered with this condition for 41 years. It has severely affected me and in many ways defined who I am. I learned of IPA perhaps 12 years ago and was too afraid to take action. Last month I finally decided to attend a workshop and I can't even believe what happened. By meeting and connecting with others with this same condition in an environment with an outstanding leader, in one weekend my life has changed dramatically. I would consider myself 80 percent recovered and I know what to do to work on the remaining 20 percent. For anyone even considering attending, take the plunge. You won't regret it!
I’ve attended an in-person and virtual workshop both of which have been extremely helpful in my recovery. Just meeting other people and hearing their stories itself was an amazing experience. IPA gives voice to those embarrassed by their condition and hope to those wanting to move forward without being dominated by the fear of public restrooms. They are critical to the emerging dialogue in public policy and workplace drug testing surrounding shy bladder syndrome. I highly recommend reaching out, attending a workshop or reading the invaluable information on their website. Thank you, IPA!
IPA has been helping me for years with Paruresis. They are always finding new ways to help and keep their communication consistent. Finding IPA was one of the most important moments in my life since Paruresis is not a well-known condition and not even doctors have knowledge about it. IPA has been helping me guide myself through the challenges of living with it.
I attended one of the very first virtual workshops and it really helped me dealing with my Shy Bladder Syndrom (Paruresis). We worked in breakout sessions with people all over the world, shared our stories and learned from professionals. It was a great experience for a very reasonable price. The IPA is a great leader in terms of digitalization of support groups!
IPA is the only organization I know which serves people with shy bladder disorder (paruresis), a common social phobia. Shy bladder disorder can negatively impact one's family life, friendships and career. IPA provides valuable information and conducts workshops in which participants use graduated exposure therapy to treat this problem. Until recently, workshops were held in various U.S. cities and abroad. During the Covid-19 pandemic, IPA began conducting virtual workshops through Zoom. I personally have participated in one live workshop and three virtual workshops. Through these, I've made progress at managing my shy bladder problem.
I have been living with paruresis for the past 45 years, but have always been able to get by by using safe bathrooms. However, something terrible happened early last year and the paruresis took a tremendous turn for the worse and it was actually debilitating. I even had to resort to self catheterizing a number of times. I participated in the IPA virtual workshop in April 2020, and it was a tremendous help - literally life changing. I learned that this is not an uncommon issue, and was given a number of very helpful pointers that I have put to good use ever since. I am so very glad I participated in the virtual workshop. It far exceeded my expectations. Highly recommended.
I was looking for an organization that would provide some information and support with my problem. IPA provides a clearinghouse for information and resources for help with paruresis.
They also are trying to get legislation passed to give people with paruresis an alternative to urine drug testing.
The international paruresis association helps people with “shy bladder”. The
Help bring attention to this social phobia which can be crippling. The have given me tools and support to help manage more public places to pee. They provided workshops to help overcome this, at times crippling phobia.
Ten years ago I attended an IPA workshop, and my life changed. I not only started down the path toward overcoming a condition that I had kept hidden most of my life, I learned how to put this condition in perspective and accept (and respect) myself for who I really am. I now proudly serve on the Board of Directors and hope to help guide others toward that same path.
Amazing organization that's helped me a lot with working with my paruresis.
The IPA was very helpful to me in my recovery. They gave me support, the information I needed and their workshops gave me successes that I needed to start my recovery. Thank you. Brad K.
The IPA has been a great help to me in my recovery and has allowed me to function with lower anxiety around other people.
I first found the IPA online in 2001. I was struggling and felt alone in my struggle with paruresis. The IPA workshop was such an eye opening gift to me. It showed a path out of the darkness, and towards recovery. I have been gratefully involved with the IPA ever since!
My son was in prison. He could not urinate in front of the guard for the drug test. Not urinating meant he was guilty of using drugs. He was confined to solitary. Thanks to IPA’s help, the prison used an alternative method for testing drug use. My son was released from solitary confinement after five months. I’ve read stories where some inmates were confined to solitary for years and even decades for not being able to urinate in front of someone. To mean, that is cruel and unusual punishment and should not be tolerated.
The IPA has given me the direction to recover from paruresis. They also advocate for different ways to drug test for employees.
I thought there was something special and wrong about me for 50 years until I found the IPA and the wonderful people who started it and understood how my life has been a private self berating struggle with shame and desperation. They showed me many suffered like I have and empathized with me . I am grateful for the oranization and count myself lucky to have found their support and advocacy for all who have this condition
The IPA is great organization. I have experienced and witnessed the good work of the IPA through its website, workshops and counselors. They truly help people get there life back. Paruesis is a silent phobia and most sufferer's never get help. The IPA is spreading the message that help and recovery are available. Through the website and workshops people's lives are being changed for the better every day.
Until I found IPA I thought I was alone and hopeless. With IPA, I feel part of a community of support, and I believe in the possibility of overcoming my phobia. I just finished reading some chats on-line. The insights, friendship, and encouragement that others share mean so much. Dr. Soifer's Ted Talk was inspirational. It took courage. It was honest. It showed the universality of bathroom issues even beyond paruresis. IPA is a great nonprofit.
I had a Paruresis problem for 36 years. I attended my first IPA workshop at age 49 and had immediate success. By attending 3 more workshops and volunteering to lead a support group, I no longer suffer from the psychological effects of this condition. The IPA has changed my life and I am truly thankful for the support they offer.
Thanks again IPA for another successful year in helping others overcome this condition.
The modern look user friendly website is now online! We just finished a really great 20th anniversary convention/workshop in Las Vegas. Thanks again to the IPA for another great year of helping people with shy bladder.
They have been instrumental in bringing a social and mental health issue that has been so hidden out into the open and given those of us that suffer from it an outlet to process our experience and to begin to heal and obtain the hope of leading a normal life.
The IPA provided the much needed support I needed in a difficult time in my life. Without them my recovery would not have come so far. Dr. Soifer, who leads the IPA, personally made sure I go the help I needed, and I can't thank him enough. I now regularly participate in a IPA support group which is a very valuable component of my recovery.
Learned about this organization about 10 years ago on an internet search. Found members to be extremely helpful and caring. Glad I found them.
The IPA champions people like me who live with pee-shyness or paruresis. My particular symptoms show up in airplane bathrooms where I just cannot relieve myself. Through the IPA I have been able to learn to manage this social phobia and pee in almost any public bathroom or airplane bathroom. Steven Weinraub, Santa Monica, CA
The IPA has truly changed my life. Being a paruretic is quite the ordeal and I'm glad that the IPA is there with their support groups, workshops, and numerous materials that have been helpful in my recovery of shy bladder. Their website https://paruresis.org/ is full of many other resources to help other paruretics.
No other non-profit organization supports this condition. It remains the best support for anyone anywhere to get help regardless of ability to pay. The organization makes very good use of its resources to help as many people as need it.
When I found IPA over 15 years ago, I finally realized I was not the only person with a shy bladder and whose life was affected by it to a great extent. I did not realize recovery was possible. I attended a workshop and from that point on have been treating this condition as a social anxiety and working on my recovery. The IPA, with its message board and workshops that offer support and help, have been my lifeline.
If it were not for the IPA, I would not be where I am today. The help and support that I have received from the workshops they offer and the wonderful support of the people on the message board, have helped me to partially recover from paruresis. When I found this website for IPA, I thought it was too good to be true. Other people have shy bladder too? I thought it was just me! When I finally got up the nerve to sign up for a workshop, that is when things started to change. When I left that workshop, on the long drive home, I stopped at a large rest area for the first time in my 44 years. Why the first time? Because before I knew I couldn't "succeed" in one, so why stop? This time I had a little bit of hope. Low and behold I was able to "leg go" for the first time ever in a public rest room with others present. This opened up new hopes for me. Travelling had always been very difficult. Now I have less fear and more freedom to do the things I want to do. IPA is a wonderful organization, one of a kind. I'm so glad I found it.
The IPA is one of the best in serving people with shy bladder. From workshops to support groups the IPA has been incredibly helpful for me.
The International Paruresis Association has literally changed my life. I spent decades trying to understand this social phobia, knowing that it was irrational and still being unable to overcome it, until I found the IPA and was able to start the process of overcoming it. The IPA has a network of caring volunteers who provide information and guidance in how to overcome and recover from Paruresis, and their statement that "you are not alone" is from the heart.
This organization has changed my life and the life of so many who have been lucky enough to find its website, thus beginning the recovery process from avoidant paruresis.
I have been increasingly involved with the IPA since I first attended a workshop in 2001. In fact, I ran their most recent workshop. Those of us who have been profoundly helped by the IPA tend to stick around and help in any way we can, as we know how difficult it can be to thrive with paruresis. As an organization, we strive to be a user-friendly resource for all affected by paruresis.
I have been affiliated with the IPA for 15 years and they have been great years for me--years in which I have been in a constant state of improvement and recovery from avoidant paruresis. My association with the IPA has quite literally given me areas of my life back--I can travel more comfortably, and my day-to-day stress levels are markedly less than they were before I discovered the IPA. I happily support the IPA as they have supported me all these years!
I have been involved with the IPA as a member and board member. The organization changed my life many years ago. I want others to get the help and support that I received from this great organization. That is why I continue to serve with this excellent non-profit.
I found this organization about 15 years ago. It changed my life and allowed me to conquer paruresis. I am so grateful for the help this organization has given me that I am now a board member. I want to help other people get help for paruresis and have the life changing experience that I have had.
This is a great group to be a member of if you suffer from shy bladder! They hold workshops all over the world to help people deal with and reduce the anxiety associated with Paruresis!
The IPA does an excellent job at raising awareness of paruresis and without them I wouldn't even know that it existed, that other people went through the same problem and that there's a pathway for getting better. I've attended one of their workshops and I would recommend it to anyone that might be suffering from the shy bladder syndrome
Provides great workshops and connection to others for support. Along with organizing support groups crucial for recovery. The IPA made all the difference for me and I don’t how I could have made it without it.
The only organization out there that is of real help for the social phobia paruresis. Great workshops and support. They made all the difference for me.
Currently, I serve on the board of the International Paruresis Association (IPA). The IPA is a wonderful organization that has helped me tremendously with my shy bladder. As a member of the board, I hope to give back by helping others with paruresis to live their lives to the fullest. In addition, the IPA as an organization provides resources such as workshops and educational materials, and most of all a caring and compassionate community to assist you on your road to recovery. I love the IPA!
The best organization of its type. IPA is committed to helping people who have shy bladder with emotional support, recovery techniques, advice for dealing with medical personnel, and advocacy for legal and legislative issue related to this condition. The best decision I made was to attend a workshop 15 years ago. Travel is so much easier, events are not anxiety-inducing, and I no longer judge myself for a condition that is surprisingly common.
I've been involved with IPA for about ten years now, and it is truly a life-changing organization. I joined mainly because I wanted to travel but my fear kept me from doing so. I now have a passport and am a frequent traveler.
I've attended two IPA workshops for shy bladder treatment. They are unlike anything any doctor, therapist, or psychiatrist has ever done for me. It is really amazing to be in a room full of people who know the same shame you experience. The knowledge provided at these workshops and on IPA's website is diverse- people explore the many psychological and medical methods for how they are able to move beyond this painful condition, but the actual practice that occurs at the workshops really is powerful and would be difficult to recreate at any doctor's office.
IPAs objectives are equally diverse- not only helping people recover from shy bladder, but working to change drug-testing laws to accommodate paruretics; and working to influence public restroom access and design to accommodate paruretics. There is just so much to be accomplished by this organization, and it's the only one like it out there!
The workshops that Steve and his team have been immensely helpful for me in dealing with my phobia. Thank you all soooooooooo much!!!!
Exceptional workshops, volunteerism and support to those suffering from a relatively common condition, paruresis, often referred to as shy bladder syndrome. This non-profit works to change regulations to support the building of bathroom that provide more privacy for individuals and for drug testing methodologies, i.e., oral fluid analysis, to substitute for urinalysis where people are watched as they provide a sample. As someone who has paruresis the organization has helped me to reduce the severity of issue (it may always be there to some extent but I live more comfortably now) and meet and work alongside others in support sessions who also identify as paruretics. This condition can have an enormous negative impact on people's lives if one can imagine not wanting to go anywhere where there might not be a "safe" bathroom or not taking a long plane flight due to discomfort with using the restroom on the plane. IPA is the only organization addressing this issue.
I found out about the organization after I read a book by the Exec. Director. Once I found out that there were other people with the same type of problem, that knowledge alone helped me get started to reduce the phobia I have had for over 50 years. This is a wonderful organization and is helping a lot of people who have paruresis.
Living with Paruresis is really difficult... especially in silence! The IPA's existence and continued efforts has helped greatly in this internet age because before you even tell the 1st person in your life about your problem you have already been met w/ the fact that you are not alone. The IPA plays an indispensable role in recovery from Paruresis as it is a keystone to build around and look to for guidance through this difficult journey.
I have had paruresis during my entire adult life. Using public restrooms was always a challenge, and it made my life so much more difficult than it seemed to be for my friends who were able to function easily and without stress. Thanks to the coaching of IPA and its local chapter I was able to overcome my paruresis and now no longer have that great interference in my life -- which is important since in my work life as well as in my personal life I am in public places almost every day and this always caused anxiety for me. I can never thank IPA enough for their care in publicizing this rarely-talked-about subject and for providing nonjudgmental support and coaching for us ordinary citizens.
I just wanted to say thank you to the international Peruresis association for helping me with my shy bladder syndrome. I attended a workshop in Detroit Michigan in 2018 and it helped with my understanding of the condition and also improved my fear of urinating in public
I have worked with and for non-profits large and small, and have never met another that does so much with such a modest budget. Ethical in its spending and accountability, decade after decade, IPA pursues new avenues and persists at long standing ones, to improve the lives of paruretics around the world.
Excellent organization! Great tools and information at a minimal cost.
For over 40 years, I suffered from the damaging effects of Shy Bladder Syndrome (paruresis). I simply could not urinate at will when I needed to, no matter how hard I tried.
The serious emotional toll that was exacted was just as debilitating as the physical discomfort. My daily life became severely restricted: I constructed it around the presence or absence of bathroom facilities - and the people I might encounter in them. I missed out on all kinds of life-affirming activities and opportunities.
Over the course of many years, I consulted with a host of urologists, psychologists, psychiatrists, and social workers. No person or technique helped because the nature of my condition was misunderstood.
In 1997, I made a startling discovery that ultimately changed the course of my life. I located an Internet-based Discussion Forum that is now operated by The International Paruresis Association (IPA). Here I found others with my symptoms - people who communicated and commiserated about this condition. I felt as if I had just found a lifeboat full of survivors from the same nightmare.
Supported by members and leaders of the IPA, I began a journey toward a goal of complete recovery from paruresis.
I learned that Shy Bladder Syndrome could effectively be treated through exposure-based Cognitive-Behavioral Therapy. I enrolled in two workshops that the IPA sponsored and at each made tremendous progress, step by step. Armed with new-found confidence and dedication, I continued to practice many of the exercises I learned - over and over. Instead of avoiding bathrooms, I confronted them head on. Gradually, I won my battle over paruresis, to the extent it no longer controls my life.
I am eternally grateful to the International Paruresis Association, which, for over 20 years, has helped those who are afflicted with and affected by Shy Bladder Syndrome. Operated by a small group of professionals and primarily staffed by a core of hard-working volunteers, the IPA has helped thousands of men and women realize a difference in their lives through its workshops, newsletters, websites, counseling sessions, research and outreach.
As someone who suffered from a severe case of shy bladder syndrome for 40+ years, I didn't know who else to turn to. All the professionals from whom I had sought help had failed me, and the people in my life, while supportive, didn't know what to say or do to relieve the constant and heightened anxiety I felt each time I entered a bathroom. My life had become increasingly limited because of my condition. Then, back in 1997, I discovered the IPA, then in its infancy stages. Suddenly I found others with my symptoms who commiserated and communicated. I went on to take two IPA-sponsored workshops, practiced the exercises that were taught to me there, and gradually recovered. As a result, I regained my life. What more could one ask? At the same time, I developed meaningful and longstanding friendships with many of those people who are either fellow sufferers of paruresis or equally dedicated to helping people recover from this debilitating condition.
Great organization. It helped me deal with my persona situation and learn how to recover from it. If you suffer from Paruresis, I highly recommended contacting IPA and attending a workshop.
I attended an IPA workshop many years ago. It was at an airport hotel in Los Angeles. And it helped, a LOT! I have been pee-shy ever since my mother scolded me MANY years ago, for peeing on a hedge in our backyard. (I'm now 83.) By no means did the workshop "cure" me, but it has made an enormous difference in my life. I am much emboldened now and, given the "modesty panels" that most rest rooms have these days, I have little or no trouble peeing (urinating sounds too "clinical"). I have supported IPA with a donation most every year, I believe. And hey, it's tax deductible.
The IPA workshops that I attended with Dr. Soifer and his team were extremely helpful. I was so happy that I could find a group that could help me work through these pee shy issues that I suffered from for years and years.
Great group. Dr. Steve Soifer has put together something not available anywhere in the world!
IPA is truly a fantastic organization. They provide a service to so many that no one else does and do a great job. I have donated to them since 2012 when I found them and will continue to do so. Keep up the great work IPA!
IPA is an amazing non-profit dedicated to dealing with a social anxiety called paruresis. They address the hidden phobia that no one wants to talk about with an excellent website, education materials and workshops. They have made a huge difference in thousands of lives.
I first met Dr. Steven Soifer in 1997 when he was the President of the National Paruresis Association, which now is the International Paruresis Association. I sought Dr. Soifer out after my then-boyfriend revealed to me he had paruresis. As a writer, my initial intent in requesting a meeting with Dr. Soifer was to interview him for an article. By the time I left his office, his passion and dedication to the education about, and treatment of, paruresis was so persuasive that I accepted his invitation to be a Board Member of the association on the spot. I then served as the Secretary and Advisory Board Member of the organization for many years, and was invited to co-author the definitive book on the subject, "Shy Bladder Syndrome: Your Step-By-Step Guide To Overcoming Paruresis." I can personally state that for more than twenty years, Dr. Soifer has earnestly and successfully navigated, along with a team of dedicated staff and volunteers, the International Paruresis Association with time, ethic, integrity, and unparalleled commitment. To take on a topic that is not publicly appealing (no one likes to openly talk about embarrassing bathroom phobias) and to persevere in difficult economic times, is nothing short of heroic. The International Paruresis Association is fiscally responsible and socially impactful. It is an amazing organization that serves a hidden suffering population. I enthusiastically endorse this non-profit.
IPA is the only organization in the world offering support, educAtion and advocacy for parauresis. It is a lifesaver to thousands who are stigmatized and isolated.
I had the opportunity to participate in both a week-end workshop and a local support group. Both were extremely positive experiences that made me realize I was not alone and that there was hope to deal with paruresis. They were very powerful experiences. Thank you IPA.
Dr. Soifer and IPA gave me the path to true recovery. They were my last hope after almost 30 years of misery.
This organization has changed my life in the most positive way. After 30+ years, I am truly free!!!
IPA has helped thousands of people with parauresis know that they are not alone. They provide education, support and legislative/regulatory advocacy for an issue that no other organization addresses. They are a lifeline to many internationally.
Paruresis is such a hidden and personal problem, it’s difficult to reach out for help. IPA not only helps you connect with others, they host workshops where you can work to overcome your anxiety in a safe and empowering environment. Most of all, you learn to be comfortable with yourself at whatever level you’re at, to stop beating yourself up, and to find the courage to keep working.
I lived with the frustration and the embarrassment of Paruresis for fifty years before finding this wonderful organization. The help and support that I have received through wonderful volunteers has taken me to a high level of recovery, and thankfully this condition no longer controls my life. Now I am giving back by helping others.
IPA literally changes people's lives. Paruresis is a social phobia that affects all aspects of one's day-to-day experience from going out to accepting that next big promotion that requires travelling. IPA workshops help people experience live to its fullest and I'm honored to support this great organization.
Proud to be a part of the group that advocates on behalf of 7% of American population who can't urinate in public. This disability makes one's life miserable: people can't travel, date, go to concerts, get promoted if the job is related to flying, pass a drug test...thankfully, there is a treatment that IPA uses in its workshops all around the world. It has helped thousands of people and is continuing to do so by raising awareness of this problem and treating sufferers. I've been supporting them for 5 years and will stay a loyal member for more years to come.
IPA has completely changed the life of myself and others with shy bladder. Thanks to their workshops and the advice I've gotten on their message forums, I can now lead a completely normal life while previously my life was severely curtailed by my shy bladder. The people involved with IPA are completely devoted to helping people cope with and overcome this condition. It is a wonderful organization, and any money given to them will have REAL benefit and POSITIVELY change people's lives!
Wonderful group of people! They really helped me to help my son (he has shy bladder) who is in prison. So thankful that my son can use a "dry cell" for his scheduled drug testing. Thank you IPA!
I am a long term member of this fabulous organization. My ability to go places and to do things is vastly expanded due to my work with IPA.
IPA helps people recover from paruresis. Paruresis (also known as "shy bladder" or "bashful bladder") is a social phobia which makes it difficult or impossible for the sufferer to urinate in the proximity of other people, such as in a public restroom.
Paruresis may extend to private places away from the sufferer's home, such as the home of a friend. This phobia makes it almost impossible for those suffering from it to enjoy the social activities of daily living that non sufferers, most people, take for granted, such as enjoying an evening at a concert, bar or restaurant with friends and family.
Currently, I am 65 years old, educated and moderately successful by most standards. I had gradually become nearly disabled socially from paruresis, beginning in my late twenties. In 2006, I discovered IPA by happenstance. Subsequently I enrolled in my first IPA workshop which was programmed to help sufferers of paruresis to recover: that is, to help them to learn to urinate in the proximity of others, in public restrooms and in other "difficult" situations, such as in the bathroom of an airplane.
The results of the workshop were almost immediate: I was able to go in a public restroom! It was not easy, but I could go. Through continued practice and workshop participation, I have recovered from paruresis to an extent that I never believed would be possible. It is not perfect. I still cannot urinate as I imagine a non sufferer does, but i am no longer a hostage to paruresis.
Urinating in an airplane bathroom was perhaps the most "phobic" situation for me. Since working intensively with IPA, I have travelled extensively. I was able to use the bathroom on the airplane to China and Africa. I have travelled to Central and South America and Europe as well.
I cannot say too many positive things about IPA, the program, the workshops and the people. It has helped me to live a better, happier, more productive life by helping me to recover from the social phobia of paruresis.
I've suffered with Shy Bladder since my early teens. Ten years ago, when I was in my early 50s, I discovered the IPA and finally found a group of people who understood me. I had never told a soul before joining and what an experience to attend my first workshop and listen to others tell their stories! I immediately identified with these people and found that I could talk for hours about something I had never discussed in my life. Through the IPA, I learned about ways to deal with this thing that had controlled me my whole adult life. Now, I don't let it control my life and I can confidently deal with any situation. I decided to join the board as a way to help support the organization and help others along the way. None of this would have been possible without the support of this organization.
Have known about IPA since 1998. I is certainly the most fiscally responsible non-profit I have ever observed. If you want your donation dollars to yield greatly, this is an organization to give to. IPA is tireless in its advocacy, and its Board continually generates creative projects. Bravo IPA!
I PA gives hope to those of us struggling with shy bladder. It's often a lifelong struggle, and we can use all the support we can get with this humiliating, misunderstood condition.
As I said in a previous review a few years ago, the process of getting free from shy bladder is a long one, and IPA has been with me every step of the way. They really understand the problem and have developed an effective workshop-based program for overcoming it. It has been little short of a miracle - still unfolding!
I have had a shy bladder for over 50 years, and it was a constant source of worry. My first workshop with IPA and Steve Soifer in Detroit in about 2000 was a revelation; I discovered I was not alone, and that there was a solution to my problem. I have been to many workshops, and many practice sessions with a Toronto group, and the improvement has been amazing - and relieving! Don W