Great support for those of us with shy bladder syndrome through workshops, regional support groups, and an online forum. Well-run by dedicated people.
Great support network and resources to help with a problem that many avoid or don't understand well enough to be able to seek support/help they need. IPA makes this process easier to manage and achieve what ever level of improvement an individual is willing to work to achieve.
IPA changed my life. I was worried I could never take my children anywhere. I was worried I would live the rest of my life sneaking away to find a private restroom. I thought I could never advance my career. I would always be rushing to the airport and last on the plane fretting about the length of the trip. All those thoughts left after meeting new friends at my very first IPA workshop. Just sharing my anxieties and knowing I was not alone helped immediately. I am still apprehensive in certain situations but nothing that prevents me from leading a “normal” existence. No pills, hypnosis, tricks, or lies. This organization offers anyone who needs it real answers and real solutions. This is no exaggeration. Happiness. Confidence. Hope. Life.
The IPA is essentially the only resource for people with Paruresis. Until finding the IPA I thought I was the only one with this issue. They have helped on my my way to recovery. Without this organization I would not know how to handle this.
For over 40 years, starting in 1960, I suffered from a severe case of Shy Bladder Syndrome - the inability to urinate in the presence of others. The physicians and psychologists who my parents and later I consulted were unfamiliar with the underlying condition of social anxiety and how best to treat it. Until I discovered the International Paruresis Association and registered for its excellent workshops, I thought I was the only person in the world who had this affliction which, at times, could be debilitating. The help and support I received from the compassionate members of this organization were instrumental in my recovery, and as a result , I regained my life.
For over 40 years, I suffered from the damaging effects of Shy Bladder Syndrome (paruresis). I simply could not urinate at will when I needed to, no matter how hard I tried.
The serious emotional toll that was exacted was just as debilitating as the physical discomfort. My daily life became severely restricted: I constructed it around the presence or absence of bathroom facilities - and the people I might encounter in them. I missed out on all kinds of life-affirming activities and opportunities.
Over the course of many years, I consulted with a host of urologists, psychologists, psychiatrists, and social workers. No person or technique helped because the nature of my condition was misunderstood.
In 1997, I made a startling discovery that ultimately changed the course of my life. I located an Internet-based Discussion Forum that is now operated by The International Paruresis Association (IPA). Here I found others with my symptoms - people who communicated and commiserated about this condition. I felt as if I had just found a lifeboat full of survivors from the same nightmare.
Supported by members and leaders of the IPA, I began a journey toward a goal of complete recovery from paruresis.
I learned that Shy Bladder Syndrome could effectively be treated through exposure-based Cognitive-Behavioral Therapy. I enrolled in two workshops that the IPA sponsored and at each made tremendous progress, step by step. Armed with new-found confidence and dedication, I continued to practice many of the exercises I learned - over and over. Instead of avoiding bathrooms, I confronted them head on. Gradually, I won my battle over paruresis, to the extent it no longer controls my life.
I am eternally grateful to the International Paruresis Association, which, for over 20 years, has helped those who are afflicted with and affected by Shy Bladder Syndrome. Operated by a small group of professionals and primarily staffed by a core of hard-working volunteers, the IPA has helped thousands of men and women realize a difference in their lives through its workshops, newsletters, websites, counseling sessions, research and outreach.
An Internet search connected me to IPA when I was anticipating--with dread--an overseas trip. Paruresis was part of my life five decades before I could name it (and I was 50 when I made my lifesaving discovery). One conversation with then-executive Steven Soifer made me realize for the first time that I was neirher alone nor lost. The mere existence of IPA gives me hope every day, every successful visit to a public restroom.
I am a college student, who has suffered from paruresis for as long as I can remember. The IPA website proved to be a gift from God in my journey to recovery. Finally being able to find a shy bladder certified therapist helped me tremendously, and I was only able to encounter him through this wonderful website.
They do a great job sharing information and trying to make positive change to help those of us with paruresis. I attended a support group they offered and it was invaluable.
Very beneficial to me. I recommend it to anyone needing their services.
Great organization. It helped me deal with my persona situation and learn how to recover from it. If you suffer from Paruresis, I highly recommended contacting IPA and attending a workshop.
Terrific organization, working to better the people it serves
Helpful, supportive information. Workshops, videos and books all provide great insight into this social phobia and methods to improve attitude and performance.
International Paruresis Association, Inc serves those who suffer from a common social phobia which interferes significantly in their lives, an estimated 7% of men and women. Paruresis is a fear that one will be unable to urinate in public facilities. This fear then triggers that inability. As a consequence, sufferers may avoid doing many things, both personally and professionally. IPA has developed a program for people to overcome this fear in small, graduated steps. I've participated in an IPA workshop in Doral Florida in 2010. During the Covid-19 pandemic, I've participated in seven IPA workshops held virtually through Zoom. These workshops are excellent! IPA has now begun to conduct in-person workshops, but also plans to serve a wide audience through the virtual Zoom format.
IPA is the only organization I know which serves people with shy bladder disorder (paruresis), a common social phobia. Shy bladder disorder can negatively impact one's family life, friendships and career. IPA provides valuable information and conducts workshops in which participants use graduated exposure therapy to treat this problem. Until recently, workshops were held in various U.S. cities and abroad. During the Covid-19 pandemic, IPA began conducting virtual workshops through Zoom. I personally have participated in one live workshop and three virtual workshops. Through these, I've made progress at managing my shy bladder problem.
IPA raises awareness about an important issue that affects 7% of the population and provides strategies for navigating life with paruresis. I'm happy to support them.
IPA is vital source to me for both continued learning and growth relative to this social phobia condition. The assistance that this organization has and is providing for many similar to me with this condition is unlimited. Through their support groups and conferences they offer practical assistance. The IPA blog and newsletters and general information on this condition is very important to me. I cannot underestimate the importance of this organization. I plan on being more involved in the future and to donate more resources to this organization. IPA is a blessing to me and many others.
Glad to have you onboard Mark!
This nonprofit takes the secrecy and shame out of a situation that millions silently suffer alone thinking they are the only person feeling the inability to urinate in public restrooms or around other people. Some people are driven to the verge of suicide while others face insurmountable anxiety over a condition that seems hopeless. Thankfully the IPA does offer the help and hope needed to take practical steps in facing this problem. I am very grateful for the organization's existence.
I have struggled with "shy bladder syndrome" most of my life. Recently the condition has caused me great distress in drug testing for probation and sober living programs. After a failed drug screening due to inability to give a urine sample, I joined IPA. Through the literature they provide, virtual support group meetings, and connection to therapy for the condition, I now feel much more on-track to overcoming this social phobia and living a full and complete life.
We'll keep working to change the drug testing situation!
I’m an individual who grew up with Paruresis. I’ve had to dig deep to find the cause for this stigmatizing condition. It may not be listed in the DSM-V and support it’s future updates under the classification of psychological disorders.
Men & women struggle with this condition and are often categorized as liars for not being able to provide urinalysis while being supervised. In my observation, protocol needs to be updated in this country. The IPA provides excellent resources and support to those who have Paruresis.
IPA helped me learn how to self cath in stressful situations such as public places and airplanes.
I learned the self cath techique and what catheters to buy. Suffered for 40 years before I found IPA!
I have suffered from Paruresis since childhood. I attempted to manage my condition through my career and personal life by avoiding fluids and running or bathing to dehydrate before travel or social events. The 14 hour flights to Asia were the worst! Many miserable and painful memories. Through IPA I learned to self cath.....learned what and where to buy catheters and supplies and had some helpful tips. I was successful the first time I tried and it was/is extremely easy and painless. Now I can travel freely anywhere and not worry about long bus rides or plane trips. Thanks to IPA....several visits to urologists were useless....they did not understand or help. Free after 50 years!
The IPA is doing valuable, healing work with those dealing with paruresis. I've been afflicted with it for 50 years and it has hindered my ability to travel and take part in social settings. Their workshops have provided me with the tools to better understand my condition and to take steps to overcome it. The executive director and volunteers are performing a valuable service.
Although I didn’t know the name for it at the time, I began suffering from “Shy bladder syndrome” when I was in Junior High School in the early 1960’s. I was able to manage it for most of my life, but was so happy to find IPA, Inc. around 2008 by doing a Google search for “can’t go pee in a public restroom”. It was wonderful just knowing that I was not alone. IPA is doing a great job through research, workshops and support groups to help people like me.
My involvement with the International Paruresis Association has been life-changing. First, it provided me with proper treatment for my paruresis. Then, it gave me an opportunity through board service to pay it forward to others who suffer similarly; this has been a treasure to me.
This organization has changed my life and the life of so many who have been lucky enough to find its website, thus beginning the recovery process from avoidant paruresis.
I have been increasingly involved with the IPA since I first attended a workshop in 2001. In fact, I ran their most recent workshop. Those of us who have been profoundly helped by the IPA tend to stick around and help in any way we can, as we know how difficult it can be to thrive with paruresis. As an organization, we strive to be a user-friendly resource for all affected by paruresis.
This excellent organization does excellent and pioneering work in its field.
This is a great non-profit organisation that promotes advocacy, and helps people recover and significantly improve from this social anxiety and neurological disorder.
IPA is an outstanding organization devoted to people who suffer from paruresis. They are possibly the only organization in the world which is focused on this issue, and they've been instrumental in advancing awareness and governmental policies. In addition, they provide direct support to people dealing with parurersis through workshops and support groups. Their work cannot be underestimated for its impact towards society. Outstanding organization!
The IPA has greatly helped me in trying to overcome my paruresis. After attending both a virtual and in-person workshop, I have seen a great improvement. I would not have had this success without the help of this wonderful nonprofit. I can’t say enough good things about the people and their mission!
I first discovered IPA, Inc. in 2007 through an article in a men’s health magazine that provided me with a source of information for helping those of us with paruresis, commonly known as shy bladder. At the time, I did not know the extent to which this condition affected others and was excited to find a resource that could provide information and cognitive exposure therapy to lessen the impact of shy bladder. I was able to attend three of the graduated exposure therapy group sessions sponsored by a local IPA support group where about 20 of us shared our stories and practiced techniques to increase the success of peeing in public with others nearby. I have been a benefactor and supporter of IPA, Inc. since 2007 and believe that IPA is a great resource and may be the only organization dedicated to education and treatment of paruresis.
For one, they educated me about a not-so-widely known condition. But more importantly, the workshops that they host provide an opportunity for people to make huge strides in their condition over the course of a weekend. It is incredible seeing how much this organization helps peoples' lives. It is a wonderful non-profit that is a doing great work every day.
When I found the IPA in January of 2021 my life literally changed forever. The IPA has provided a community for me and others to feel welcome and encouraged to be a beacon of light for one another when dealing with various life challenges. The IPA's impact on me is so valuable and I am proud to be a member of such an amazing association.
IPA is an incredible organization that has made a profound impact on my life.
I have been a member of IPA, Inc. for twenty years and find it a robust, dynamic and invaluable resource for individuals with shy bladder. IPA, Inc. provides individual counseling, group workshops, group meetings and regular newsletters to its members, advocates for "restroom rights" and workplace equity for its members, and works tirelessly to reach new members, both nationally and internationally, who by the very nature of this condition do not want to be public about it. In its 25+ years, IPA, Inc. has grown in membership and services and its dedicated leadership is to be commended for doing excellent work.
For people with shy bladder syndrome there is no other organization like IPA. I was at my wits end when I found them. I had struggled for fifty years hiding this affliction with no one to turn to for advice and sharing. Doctors and psychologists don't understand how this works like IPA. The help is there. It's easy and works. I still have paruresis but it doesn't run my life. I don't spend every minute worried about where my next safe opportunity will be.
I can't imagine how my life would look today if I had not found IPA 15 years ago.
If only IPA had been around when I was in school! I never used the urinals in grade school, junior high, high school or college! I thought I was the only one in the world who could not do this thing that everyone else could do. It seemed so simple for them. Impossible for me.
The harder I tried, the worse it got. I snuck around. I went in alleys, bushes, held it in for hours and hours. Never told a soul.
Until I got into the long term relationship that I am still in and found some understanding. But that didn't change the fact that I could not pee at the movies .
Then I Googled "pee shy" late one night about eight years ago and up popped the IPA website! I went to the first local meeting that I could get to. I met people who I could talk to about paruresis (it had a name!).
The next meeting I made some progress and started to see that I could get better.
So I signed up for the very next workshop and flew from LAX to Detroit! The best thing Id ever done for my own well being. Before leaving Detroit and saying goodbye to my new friends I peed at the urinals at Comerica Stadium during a Tigers game!
Since then I've used the troughs at Dodger Stadium! That's right! I sometimes still have issues but it doesn't stop me from doing anything or going anywhere anymore. And it never will again!
Paruresis can be rather debilitating. The Internation al Paruresis Association has done an excellent job of dissemulating information to assist in overcoming the problems caused by this condition and geting back to living a normal life.
I found IPA years ago, and have attended one of the seminars. They and the forums have been a great help in dealing with my paruresis.
I am a long time paruresis sufferer. I remember when I first heard that there was a local group right in my city and how nervous I was attending my first meeting. I was surprised that there were 5 or 6 of us in the group.
When I went to a regional workshop in Baltimore I was really surprised at the number of people who attended.
While I can’t say that I am totally “cured”, my experiences with IPA have all been very positive ones and they have emboldened me to this day
the IPA has done a marvellous job of serving so may people who have been challenged by this affliction
The International Paruresis Association (IPA) plays a vital role in serving the almost 20 million people in the U.S. suffering from paruresis (shy bladder syndrome). I have attended two of their workshops and found them to be life-changing in terms of reducing the severity of my paruresis. IPA also lobbies Congress in support of legislation to make alternative ways of providing urine samples for drug testing, for example, saliva or blood. IPA also lobbies for more paruresis-friendly public restrooms. There is no other organization I know of that does this work. I am also a health care provider and former U.S Public Health Service Officer and IPA's work does a tremendous public health service for the millions who suffer from paruresis. Their extraordinary efforts should not go unnoticed.
My son was in prison. He was unable to urinate in front of the guard for the drug test. Failing to provide a sample was considered the same as failing the drug test. Prison is bad, but the consequence of failing a drug test was solitary confinement. He was in solitary confinement for over six months. Solidarity confinement is much worse than being in the general prison population. I found the International Paruresis Association (IPA) on the internet and reached out to them for help. IPA wrote a letter to the warden of the prison explaining the condition of Paruresis. The warden removed my son from solitary confinement and placed him back in the general prison population and used an alternative testing method. My son was not using drugs.
My son was in prison. He could not urinate in front of the guard for the drug test. Not urinating meant he was guilty of using drugs. He was confined to solitary. Thanks to IPA’s help, the prison used an alternative method for testing drug use. My son was released from solitary confinement after five months. I’ve read stories where some inmates were confined to solitary for years and even decades for not being able to urinate in front of someone. To mean, that is cruel and unusual punishment and should not be tolerated.
I have been suffering from shy bladder for 40 years. This is the one and only community that could make a difference in my recovery from it. It's an amazingly supportive group where all are welcome and free to share their stories. It's truly a great community of empathic individuals helping each other. I've been to countless workshops both in person and online and it is the only real way to make progress in my recovery to this paralyzing condition.
The IPA has been an incredibly valuable source of information for me over the years as I educate myself on the most recent information related to paruresis. I attended an IPA workshop, which was the start of my recovery process, and knowing that I am not alone and that there is a path to healing has given me the courage to move forwards. My progress would not have possible without the IPA!
IPA does a fantastic job supporting the people with this condition! They provide resources, workshops, and emotional support. I am glad I found them and will continue to work on my recovery with them.
I've worked with the International Paruresis Association for over 20 years and I have seen the great work that they do everyday. They have helped countless people from all over the globe who had no where else to turn to for assistance.
Everyone at the IPA has always been helpful and supportive of anyone asking for help or advice. Since most of the members have "walked the walk", they understand the struggles that each person joining has in their life. My life has truly been transformed since finding the IPA over 10 years ago.
The International Paruresis Association has hosted workshops that changed my life for the better. I would not be able to live the same quality of life without the support of the IPA and the education they provide to so many individuals. I am grateful that the nonprofit leadership takes their roles seriously and strives to make the IPA work for its members.
I attended two IPA sessions which were well organized, conducted in a sensitive manner and, most importantly, helped myself and others with a personal difficulty. I would go so far as to say this organization changed my life in a very positive way.
The IPA has been helping me and other Portuguese-speaking people to find guidance on dealing with Paruresis and to connect with other community groups. With monthly updates and incredibly fast responses it has been instrumental in my recovery.
Thanks for all you do for the IPA!
IPA has been helping me for years with Paruresis. They are always finding new ways to help and keep their communication consistent. Finding IPA was one of the most important moments in my life since Paruresis is not a well-known condition and not even doctors have knowledge about it. IPA has been helping me guide myself through the challenges of living with it.
The IPA is a great foundation helping those who suffer from shy bladder syndrome. Most people don’t understand the difficulties of this condition. This foundation helps to inform and treat those affected by this troublesome condition. I am most grateful to be apart of such a wonderful association.
I have had increasing difficulty urinating in washroom s other than in my home. This reduced my enjoyment of life and limited what I was able to do. After attending an IPA weekend session, a lot of my anxiety lessened. While still not as at ease as I would like, I can at least use stalls in public rooms and be comfortable relieving myself in other homes.
Paruresis limits so many people from living a "normal" life. The association has been a godsend for countless folks.
Having endured many years coping with paruresis I have been really pleased to learn and share more with others. Although I still have some difficulty dealing with it, I have improved and understand it much more.
I have suffered from Paruresis for over 28 years. The IPA has been such a wonderful and supportive organization for me and has helped me begin my recovery. It has been and invaluable resource for myself and others.
This is a great organization advocating for people with shy bladder syndrome and offering workshops to assist those who have the problem. I have taken several of their workshops, and they are all of very high quality, and helped me enormously.
As I said in a previous review a few years ago, the process of getting free from shy bladder is a long one, and IPA has been with me every step of the way. They really understand the problem and have developed an effective workshop-based program for overcoming it. It has been little short of a miracle - still unfolding!
Great workshops and information source to help over come paruresis.
The International Paruresis Association is the first stop for many people suffering with the social anxiety of paruresis. Here they get information about the disorder, including access to an active web community, treatment workshops, and tips on overcoming this disorder which has many people quite baffled and unnecessarily ashamed.
I first found the IPA online in 2001. I was struggling and felt alone in my struggle with paruresis. The IPA workshop was such an eye opening gift to me. It showed a path out of the darkness, and towards recovery. I have been gratefully involved with the IPA ever since!
I am honored to be part of the IPA, the organization that truly saves the lives of people with paruresis!
I’ve attended an in-person and virtual workshop both of which have been extremely helpful in my recovery. Just meeting other people and hearing their stories itself was an amazing experience. IPA gives voice to those embarrassed by their condition and hope to those wanting to move forward without being dominated by the fear of public restrooms. They are critical to the emerging dialogue in public policy and workplace drug testing surrounding shy bladder syndrome. I highly recommend reaching out, attending a workshop or reading the invaluable information on their website. Thank you, IPA!
I attended one of the very first virtual workshops and it really helped me dealing with my Shy Bladder Syndrom (Paruresis). We worked in breakout sessions with people all over the world, shared our stories and learned from professionals. It was a great experience for a very reasonable price. The IPA is a great leader in terms of digitalization of support groups!
I have been living with paruresis for the past 45 years, but have always been able to get by by using safe bathrooms. However, something terrible happened early last year and the paruresis took a tremendous turn for the worse and it was actually debilitating. I even had to resort to self catheterizing a number of times. I participated in the IPA virtual workshop in April 2020, and it was a tremendous help - literally life changing. I learned that this is not an uncommon issue, and was given a number of very helpful pointers that I have put to good use ever since. I am so very glad I participated in the virtual workshop. It far exceeded my expectations. Highly recommended.
I was looking for an organization that would provide some information and support with my problem. IPA provides a clearinghouse for information and resources for help with paruresis.
They also are trying to get legislation passed to give people with paruresis an alternative to urine drug testing.
The international paruresis association helps people with “shy bladder”. The
Help bring attention to this social phobia which can be crippling. The have given me tools and support to help manage more public places to pee. They provided workshops to help overcome this, at times crippling phobia.
Ten years ago I attended an IPA workshop, and my life changed. I not only started down the path toward overcoming a condition that I had kept hidden most of my life, I learned how to put this condition in perspective and accept (and respect) myself for who I really am. I now proudly serve on the Board of Directors and hope to help guide others toward that same path.
Amazing organization that's helped me a lot with working with my paruresis.
The IPA was very helpful to me in my recovery. They gave me support, the information I needed and their workshops gave me successes that I needed to start my recovery. Thank you. Brad K.
The IPA has been a great help to me in my recovery and has allowed me to function with lower anxiety around other people.
The IPA has given me the direction to recover from paruresis. They also advocate for different ways to drug test for employees.
I thought there was something special and wrong about me for 50 years until I found the IPA and the wonderful people who started it and understood how my life has been a private self berating struggle with shame and desperation. They showed me many suffered like I have and empathized with me . I am grateful for the oranization and count myself lucky to have found their support and advocacy for all who have this condition
The IPA is great organization. I have experienced and witnessed the good work of the IPA through its website, workshops and counselors. They truly help people get there life back. Paruesis is a silent phobia and most sufferer's never get help. The IPA is spreading the message that help and recovery are available. Through the website and workshops people's lives are being changed for the better every day.
Until I found IPA I thought I was alone and hopeless. With IPA, I feel part of a community of support, and I believe in the possibility of overcoming my phobia. I just finished reading some chats on-line. The insights, friendship, and encouragement that others share mean so much. Dr. Soifer's Ted Talk was inspirational. It took courage. It was honest. It showed the universality of bathroom issues even beyond paruresis. IPA is a great nonprofit.