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2018 Top-Rated Nonprofit

International Association For Premenstrual Disorders (IAPMD)

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Nonprofit Overview

Causes: Health, Specifically Named Diseases

Mission: To provide women, trans-men, and non-binary assigned female at birth/AFAB communities with the education, support, resources, and tools necessary to live healthy lives, reduce interpersonal conflict, and eliminate self-harm.

Results: IAPMD began with the goal of providing representation, support, and advocacy to those affected by Premenstrual Dysphoria (PMDD). Since our formation in 2013, our organization has provided a place for women with PMDD to receive guidance in healthcare, symptom management, and coping skills.

Target demographics: anyone impacted by PMDD, PME, or Surgical Menopause

Direct beneficiaries per year: 8000+

Geographic areas served: Global

Programs: Awareness & Education, Peer Support & Crisis Intervention, TeleMental Health Services

Community Stories

31 Stories from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

I have found their website to be an incredible resource that has made a huge difference to me and my family. So many free resources to help you research treatment options and make plans for how to get through the bad days. The peer support though is what really blew me away. On one particularly bad day where I felt totally desperate and I couldn't get a hold of my husband or my one supportive friend and felt like I was imploding, I contacted the peer support and within half an hour or less I was chatting online with someone who totally got it. Got me, got PMDD, got what I was going through and for the first time in my life said the right things! Said things that actually helped when I didn't know there was anything anyone could say to help. (I made sure to tell my husband exactly what those things were that night at home) That conversation is still with in me head on the bad days. I didn't choose this, this is not my fault, I have gotten through every other bad day I've had.... Phenomenal! And obviously easy to access as I wasn't capable of much that day. You can pick your preferred method of communication too. For an introvert like me who is a little socially awkward and uncomfortable on the phone chatting online was perfect. Thanks IAPMD! I don't feel so alone anymore.

Cinnie

Volunteer

Rating: 5

Where do I even begin to express my gratitude and experience with this wonderful organization? I finally got diagnosed with PMDD in 2017, and it was an emotional experience. I was angry at my Doctors for not listening to me when I brought them a checklist of symptoms that linked suicidal thoughts and crippling anxiety to menstruation, but they said it was all in my head or it doesn't exist. I cried and grieved for the years lost, the relationships I had broken and the opportunities that slipped past my fingers because of PMDD. I had quit schools and jobs because PMDD was affecting my life and I didn't even know it. The day I was diagnosed I devoted my time to join support groups, research websites and came across IAPMD which was the Gia Allemand Foundation at the time. I cried when I saw they had a peer support line because a crisis line had saved my life before and to see they had this for those suffering from PMDD and PME made my heart happy. At first, I wanted to do the social media volunteer, but destiny had other plans for me to become a peer support provider, and I don't regret it at all. As the month's pass I saw these fantastic people running this organization and volunteering their time despite having PMDD, and other health issues amazed me. Their selflessness, hard work, and kindness just blew me away, and I was part of that. This organization and my job as a peer support provider gave me the confidence that PMDD took away from me. I'm currently a Wellness Management student to become a health educator which my specialty will be menstrually related mood disorders. I believe awareness and education will help and prevent women from committing suicide, get the proper treatments and diagnosis, and give them the knowledge they need to be their own health advocates and teach health care professionals about this little-known disorder. I'm excited to grow with this organization and thank you for the resources, and education you provide to the world.

Client Served

Rating: 5

This organisation has put me in touch with women like myself all around the world. I am so grateful for their love at bad times and advise, I have never rescieved such support for my disorder in my whole 45yrs and I am hugely glad of it now to help me through the days and month

General Member of the Public

Rating: 5

This organization is an amazing place where very committed and dedicated people work for a cause that is so important to fight for. It is a place where all the information you need regarding this illness is stored and checked by real experts and professionals.

I have used their information a lot to share knowledge about PMDD in my own country too (Italy), where the lack of visibility of this disorder is huge.

They are helping people worldwide not just in the States,by promoting knowledge and extending support to women in difficulty and their families.

Thank you so much for all your passionate work.

Paola Vallarino - Italy

General Member of the Public

Rating: 5

I only recently discovered this association existed and it’s already shone a huge ray of hope into my life. One of the only things worse than suffering a disorder is suffering a disorder that is very little studied and often not acknowledged. Knowing that this support is here and that I’m not alone - never mind being able to turn here for questions I have- has changed a lot for me. Thanks so much, keep doing all that you do. Much love and god bless

Professional with expertise in this field

Rating: 5

My daughter's journey with PMDD led us to IAPMD. We had an idea for a symptom and treatment tracking app (Me v PMDD)...the organization had the trust and support of the PMDD community. They welcomed us in with open arms! Today, both my daughter and I are a part of the IAPMD family - as a peer supporter and on the board of directors, respectively. The exciting thing about IAPMD is that it is poised at a unique moment in time where #MeToo and Time’s Up meets mental health awareness meets suicide prevention. Empowered by this increasing awareness around gender disparity and critical health issues, IAPMD has started a new movement - a global movement of millions of people who have Premenstrual Dysphoric Disorder (PMDD) and premenstrual exacerbation (PME) - to accelerate the progress being made around the world on premenstrual disorders and PMDD in particular. IAPMD has spearheaded a groundswell of people, raising their voices and growing the conversation to make an impact on how the general population, medical professionals and sufferers see this life-threatening condition! I'm thrilled to be a part of this vibrant and growing organization!

Professional with expertise in this field

Rating: 5

As a clinician and scientist with expertise in premenstrual mood disorders, I can confidently state that this is the most important global resource available for individuals with premenstrual disorders. Unfortunately, most doctors and other health professionals remain ignorant about the diagnosis and treatment of premenstrual disorders. Where these institutions fail, IAPMD picks up the slack, helping women get connected with the support and education they need to seek effective care. The foundation has been a pleasure to work with; they are always interested in the latest research and they do a fantastic job of engaging patients, clinicians, and scientists.

General Member of the Public

Rating: 5

Personally, I do not suffer from PMDD. However, I am a nurse practitioner who was interesting in learning more about this topic. My Colleagues and I attended the 2018 PMDD Annual Conference held this past May 2018 in Boca Raton, Florida. The presenters were quite knowledgeable about the symptoms and treatment of PMDD. As a health care provider, I felt that the information presented was insightful and valuable to my practice. I would definitely encourage other healthcare providers especially those practicing women's health to attend future PMDD conferences.

Laura M.8

Board Member

Rating: 5

When I first started finding out about PMDD - the website was (and still is!) the most useful resource. As a sufferer, to have clear, PMDD specific information, written by people who understand how it to feels to be on the patient side of the desk was just amazing!

I have since become involved with IAPMD - first by volunteering and then as a Board Member. We keep patients at the centre of everything we do - because we were (and often still are!) those PMDD patients. We know how it feels to be desperate, we know how it feels to be unheard, we know how it feels to be at rock bottom every month.

It's an exciting time to be involved in the Association as we go through a period of growth and change!

Client Served

Rating: 5

While experiencing symptoms of PMDD I searched online for PMDD information and discovered this organization. Miraculously they were having a conference in my state a few months later. I signed up immediately and discovered women who had gone through what I had and offered so many resources. This organization is such a blessing to those of us out here struggling alone and isolated. It's a community making sure others in our situation have the "light bulb moment" sooner rather than later and getting us the most up-to-date research. I don't know how much longer I could have gone on prior to my diagnosis and I was so lucky to find a doctor that knew what PMDD was and diagnosis me. With diagnosis leads to hope. This organization leads to community, connection, and solutions. I am forever grateful.

Adrienne P.2

Volunteer

Rating: 5

I was diagnosed with PMDD in 2014 and in 2016 found the Gia Allemand Foundation, now IAPMD, as the best resource available for accurate and up-to-date information about PMDD. IAPMD has connected me with services that fill the gaps in the current health-care system and provided me with a network of individuals who have been informed, supportive, and helpful along each step of my struggle with mental illness. IAPMD also provided me with an avenue as a volunteer mental health advocate after PMDD prevented me from working in the mental health field full-time, turning me into a productive volunteer at a time when there weren't avenues to be a productive individual in the traditional employment sense. I am very grateful to have found IAPMD.

Brett B.1

Professional with expertise in this field

Rating: 5

The Gia Allemand Foundation is an amazing organization that has already helped 1000s of people with PMDD (Premenstrual Dysphoric Disorder) find information and support. They have so much potential to grow even more and further advocate for PMDD awareness, research, and treatment. They're saving lives and leading a movement.

Client Served

Rating: 5

Gia Allemand Foundation has helped me so much, as there is much support when it is needed. The Foundation also helps woman by mentoring them to become stronger empowered individuals. I don't know what I would do without it, it has personally saved my life! Thank you for all that you do!

Client Served

Rating: 5

Having community while suffering with a little talked about issue is amazing

Professional with expertise in this field

Rating: 5

I have been presenting the PMDD at the ICNM International congress of Naturopathy médicine in London last weekend. I have been a PMDD women for about 30 years, I am a Naturopathe in France and during my presentation, I gave many solutions to better the life of these women and informations relating to this pathology. Lots of attendees, doctors haven't heard about it. It is time to spread the word ! I have sent articles to dozen of french magasines, only one published me, in return a few women called me crying by finding out what was wrong with them and knowing there were solutions ! I am very glad I have found this foundation and added it to my power point. Hopefully, it will create a ripple effect! cheer!

1

General Member of the Public

Rating: 5

A fantastic charity offering information and support to sufferers like me with PMDD and our families. Gia Allemand are also working hard to raise awareness of a condition that is not well understood and around which there are misconceptions and taboos. So many women and their lives are affected dramatically by this condition.

1

General Member of the Public

Rating: 5

Reading others stories helped me to understand this is not something only I deal with monthly. Having a support system of understanding first hand experienced people really makes a difference.?

1

Client Served

Rating: 5

So thankful for this foundation. There are so many people who are unaware of this disorder and it's been very comforting to me to know I'm not alone in my suffering!

1 Kevin168

Donor

Rating: 5

As a donor, a past and present volunteer of the organization, and now a staff member I can only say great things about this organization. The group of incredible women who service the organization, who volunteer countless hours of peer support, and who work every day to bring awareness to PMDD hold a very special place in my heart. The important work produced by Gia Allemand Foundation has saved numerous lives in the process and has provided countless women a platform to be heard, to be understood, and to be helped by people who have their best interest at heart. This non-profit is incredible and has truly changed the lives so many women, men, and children. I am proud to be aligned with such a passionate group of women!

1 joansimpson

Volunteer

Rating: 5

I was diagnosed with PMDD in March of 2016 after 10 years of misdiagnoses, confusion and feeling nothing but despair. I scoured the internet for resources on how to tackle PMDD head on as soon as I received my proper diagnosis. Time and again the GIa Allemand Foundation for PMDD website was where I built my knowledge base while on my quest. I am grateful to have had such wonderful women and amazing resources at hand. I have seen the camaraderie, support and genuine care and love displayed time and again to PMDD sufferers globally by all women who work in this organization. I am beyond thankful that I can now try and pay my knowledge forward and provide support as a volunteer to these women on their PMDD journey.