Hope Loves Company is a non-profit that serves a population in need. It serves children of parents or grandparents with ALS (Lou Gehrig's Disease). This is so necessary because ALS is an orphan disease and there are only a couple of organizations that focus on it. However, they focus on the patients more than the family and young children fall by the wayside. I myself didn't know about Hope Loves Company when my own mother was diagnosed with ALS in 2005. I have young children, one that was 19 months and one that was born 7 months after my mother died of ALS, and Hope Loves Company provides a way for them to meet other children who have to live with and understand this devastating disease at a young age. HLC puts together and hosts an annual Kids Day at an outdoor place like a farm in the fall. This includes a lunch, activities and time for the guests to talk with each other. They also have put together a camp for kids of parents and grandparents with ALS at a YMCA camp each June. The founder of HLC, Jodi, wrote a book for children with parents who have ALS written at their level for her very own child who was only 3 when her father got ALS. They also sell t-shirts as a fundraiser for the organization. Their slogan "Because if you live with ALS, so does your family." Jodi has worked hard to make HLC a success.
This is an amazing organization that helps the children of family members who are dealing with the horrific disease ALS. They give a wonderful weekend of hope, joy, education, understanding, and love to those children that are dealing with tragedy. The people that run this organization Are some of the nicest and most giving people you could meet. This is a wonderful nonprofit organization.
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This charity is amazing. It is based around a very difficult and horrible disease, but it focuses on the children that are affected. The people that run it are top notch and truly care. I have been so impressed by Jody and the amazing staff at camp H LC. This to me is one of the best experiences I have ever been involved with. They treated my children with care and understanding. They are great people and this is a great charity.
My husband who had been diagnosed with Bulbar ALS disease for 2 years at the age of 63 had all his symptoms reversed with Ayurveda medicine from naturalherbscentre. com after undergoing their ALS/MND natural protocol, he no longer requires a feeding tube. God Bless all Lou Gehrig’s disease Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.
i read alot of positive reviews on Kycuyu Health Clinic and their success rate with the ALS Herbal treatment and i immediately started on the treatment. Just 10 weeks into the ALS Herbal formula treatment I had great improvements with my coordination, speech, breathing and muscle movements. I have basically gone stronger than i’d thought i could ever be again, visit Kycuyu Health Clinic official website www. kycuyuhealthclinic. com The fatigue and general muscle weakness had also declined, this treatment is nothing less of a miracle!
When my husband was diagnosed with ALS in December 2015 my oldest daughter and her family moved in to help. This included my two grandchildren Antonio who was 13 and Savanah who was 8. It was very stressful for them to see their grandpa so sick and scared. They attended their first HLC camp in New Jersey in June 2016. They had such an amazing time. Antonio was very resistant to go and ended up having an amazing time. They went to the HLC camp in Maine in August as well. The camp was also helpful and informative for my daughter and son-in-law. My husband passed away in September 2017 so we didn't get to participate this year. We are already talking about going next year. We can't wait. Thank you for being such a wonderful organization. And Jodi O'donnell is amazing!!
I had the opportunity to see this organization in action, executing In support of their mission.
I enjoy reading about how HLC has grown over the years, supporting more and more children who are in dire need of the services it provides.
You are providing valuable services for our youth. You are greatly appreciated Jodi and team.
XOXOXO
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I have had the pleasure of meeting the Hope Loves Company Board of Directors twice now. The first time was at a board meeting that they invited me to, even though I had never met them previously. The second time I met them was at one of their fundraising dinners. On both occasions I was made to feel very welcome and as if I had been a member of their cause for years past.
The positive energy that this organization exudes, after all they have been through individually and together, is, well there really aren't words to describe the energy. But believe me, as I did, you will feel charged up to work with this organization. And if you choose to drive towards meeting some other goal, it will have been the time you spent with the Hope Loves Company family of volunteers, especially Jodi, that gave you the energy and inspiration to get done what your are seeking to accomplish.
Lastly, from what I have seen and felt in a few hours over two different days, this organization will meet my goal of helping children where there is an unmet need.
Thank you Hope Loves Company
hopelovescompany 09/15/2016
Thank you for deciding to attend our Annual meeting and for expressing your interest in helping at HLC. We are very fortunate to have wonderful volunteers and amazing families to work with. We are happy that you noticed our positive energy as that is paramount in our mission to support children and young adults!
Jodi and her team of dedicated volunteers were there for my children through my wife's very difficult illness - and HLC continues their compassionate care every day.
hopelovescompany 09/15/2016
Thank you very much for taking the time to share a review of HLC with others and for making our day!
When my mom was diagnosed with ALS in August 2014, I felt as though no one could possibly understand what I was going through. But, this camp has truly changed my life. It has not only provided me with many new friends who have been touched by ALS in their lives in one way or another, but it has also provided me with the courage, bravery and hope to continue to fight through the tough times which this terrible disease brings on.
hopelovescompany 09/15/2016
Thank you very much for your kind review of Hope Loves Company and Camp HLC®. YOU are the reason that we work so hard and care so much!
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hopelovescompany 09/15/2016 Thank you for this heartfelt and complete review of HLC. WE are so grateful that you took the time to share your opinion of our work, people and programs. It is a joy to serve the ALS community!