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Defeat MSA

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Nonprofit Overview

Causes: Health, Specifically Named Diseases Research

Mission: Realizing that much of the current attention is focused on more widely known diseases, Multiple System Atrophy is overlooked. MSA patients are confronted with a dim prognosis and left with few options. The purpose of Defeat MSA is to receive and administer funds: To develop effective treatments to combat the debilitating effects of MSA. To foster promising research in an effort to slow the progress of MSA. To nurture collaborative studies into the underlying causes of MSA. To raise awareness and promote understanding about living with MSA. Defeat MSA aims to increase AWARENESS, help ALLEVIATE disease symptoms and ADVANCE research toward the cure for MSA!

Results: 1) Led fundraising for first full-length feature documentary film about a world champion athlete with Multiple System Atrophy. 2) Sole sponsor of the MSA patient loaner closet for durable medical equipment. 3) Sponsor 2 of the only 3 MSA patient support groups in North America. 4) Sole sponsor of the MSA Shoe, a tool to raise awareness about MSA (www.MSAshoe.org) 5) Participating charity in the Global MSA Research Roadmap 6) Led two successful campaigns to declare March as MSA awareness month on the state level. 7) Participating charity in 3 national and international neurological and rare disease conferences.

Target demographics: people suffering from Multiple System Atrophy.

Direct beneficiaries per year: Many families affected by Multiple System Atrophy throughout the world ...

Geographic areas served: Michigan, United States, International

Programs: 2 Support groups, MSA Durable Medical Equipment Loaner Closet, National Billboard Awareness Campaign, funded research, sponsored two film documentaries

Community Stories

76 Stories from Volunteers, Donors & Supporters

5 Elena F.1

General Member of the Public

Rating: 5

Defeat MSA is a truly powerful organization, giving voice to those affected by this little known, devastating disease. I have watched this grass roots effort grow since the beginning as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to grow and prosper.

Comments ( 1 )

defeatmsa Thank you Elena! We will keep trying to help those that suffer so much from MSA.....

1

Client Served

Rating: 5

Defeat MSA is the only nonprofit we found to provide support and education as well being the only loaner closet in North America, provided a Barton chair that makes it possible to easily transport Mom from having to lie in bed to a sit up position. It's efforts to raise awareness and proper diagnosis with the public as well as the medical profession, including doctors is astounding. Defeat MSA does it all. Being all volunteer and seeing what has been accomplished since its inception is nothing short of miraculous. It's also gone global. Being nontechy myself, I don't totally get how but the numbers of those able to be supported and educated has exponentially increased daily by this genius move. I cannot say enough about the integrity of this organization and all it has done for those suffering from this dreadful disease and their family members. God bless you all for all you do. We are all in for DEFEAT MSA!!!

2

General Member of the Public

Rating: 5

Defeat MSA works tirelessly to help those afflicted with this terrible disease. They provide resources, support and education to families, caregivers and patients. Defeat MSA is dedicated to DEFEATING MSA.

Previous Stories
2

General Member of the Public

Rating: 5

Defeat MSA has assisted patients and families with this fatal disease. They've played a critical part in educating health care/medical professionals. MSA continues to strive to raise a greater public awareness for this disease. The MSA community is better for having an organization such as Defeat MSA advocating for them.

2

Client Served

Rating: 5

While witnessing a loved one lose a parent to this viscous disease, I learned about this great organization. DefeatMSA has great resources for patient support and they helped the family out in countless ways. They are an amazing organization with a great mission.

2

General Member of the Public

Rating: 5

I love knowing that all funds donated are used to help find a cure for MSA since all work done is done by volunteers (most, if not all, who have been impacted personally by this devastating disease).

2

Donor

Rating: 5

I first learned about MSA from a friend whose husband died from this terrible disease. Each year during the month of his birthday, she has started an "Eat Cake for Breakfast" tradition to honor him and to raise awareness of MSA. Many donations are made to defeat MSA, to fund research and public awareness. It has been a blessing to all of us!

2

General Member of the Public

Rating: 5

We have a very good friend who lost her husband to MSA and have become involved in the fight and fundraising to help bring a cure to this terrible disease.

2 Sandra B.1

Volunteer

Rating: 5

DefeatMSA is an amazing organization. They put MSA patients at the forefront of every program, project and decision. Run by a small group of dedicated volunteers!

Previous Stories
2

Donor

Rating: 5

My husband passed away 5 years ago from the devastating disease MSA. Since that time I have become familiar with Defeat MSA and the important work they do. They run the only loaner closet for MSA patients and they have created a wonderful online tool to connect patients who would otherwise have no access to support groups. Great work, great charity!

2 Jacqui D.

Volunteer

Rating: 5

This organization is comprised of many passionate, hard-working people who are making a real difference in raising awareness of MSA.

2

Client Served

Rating: 5

As we struggle every day searching and hoping for a cure or for something to just get better, we must always stay strong and this organization provides hope to all those with MSA. This organization took its time to come to my home and see my father and speak to him, and not only be there for us, but works every day to do their best to fight this disease for all who have it.

2

Volunteer

Rating: 5

Awesome bunch of people working together for a great cause. My wife and I love our tee shirts. Chocolate cake for breakfast could become a habit!

2

Donor

Rating: 5

Defeat MSA has brought hope and comfort to many who struggle with this disease. They are a critical organization in terms of connecting people, raising awareness about MSA, and advocating for research funding.

2

General Member of the Public

Rating: 5

Great place for support! We cant thank you enough for everything that you do.

Previous Stories
2

Volunteer

Rating: 5

Defeat MSA has been an integral part in helping our family cope with this terrible disease. With the help of Defeat MSA we look forward to advancing the knowledge of this disease.

2

Client Served

Rating: 5

I am connected to this charity as a general member of the public. I knew nothing about this strange disease - never heard of it at all. But one of my friends was diagnosed with it and since then, I have learned a lot of them. One of the leaders of the charity is a brain doctor. None of them are paid for their work - they are all volunteers, and they are constantly working to help people suffering with this disease. They invented a mobile app to help support people all over the world with this disease. They raise money for research. I know where donations are going - directly to help people with the disease and their families with support programs. I hope they continue to reach more and more people.

Previous Stories
2

Volunteer

Rating: 5

Defeat MSA has raised a good deal of awareness about multiple system atrophy. They have taken on a role of helping to support patients too, through their support group too. I hope they continue to grow and develop into a successful charity. I am happy to contribute to them, because I know where the money will go, to a good cause!

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2

General Member of the Public

Rating: 5

Defeat msa is ran by volunteers all directly connected to multiple system atrophy, they have a loaner closet for people in need of different medical devices, they also have an online hub where people can chat live with others around the world, their website has alot of very helpful information and their new monthly newsletter is awesome.. This non profit is the best out there!!

1

Client Served

Rating: 5

DefeatMSA is very knowledgable about Multiple System Atrophy. They support the persons with and their significant others in this difficult disease with no yet known treatment or cure.
Great advocates for a worthy cause.

1

General Member of the Public

Rating: 5

This nonprofit holds a place near and dear to my and my family’s hearts. Thank you for all you do, in the fight to find a cure for MSA

1

Client Served

Rating: 5

Defeat MSA has been a powerful voice in raising awareness. They were very involved with my uncle as
He battled MSA. Keep up the good fight!

1 Shauna R.1

General Member of the Public

Rating: 5

Since Defeat MSA's (5013b) inception it has continued to set an exquisite precedent for nonprofits committed to spreading awareness about Multiple System Atrophy. During this time Defeat MSA has put in countless hours and time to create a global presence. Multiple System Atrophy is a debilitating Neurological disorder that isolates the warriors (patients) with MSA. I'm continuously in awe of the frequent consistent and thoroughly planned progress due to the strategic constant work by Defeat MSA.
Truly yours, Shauna Ruttan MA

1

Client Served

Rating: 5

We are thankful for Defeat MSA! It has worked hard to support people dealing with this disease. This year, they invented the first application for the phone. I have it on my mobile phone. MSA is what my nephew had, it killed him. Unlike many other charities, this organization is completely operated by volunteers and everyone in charge has an immediate family relationship to this horrible disease. It matters, because at least, I know that their motivations are in the right place. I know first hand, up close, the enormous suffering involved. I am praying for the day when we can defeat this forever!

Previous Stories
2

Donor

Rating: 5

I have supported Defeat MSA in the past. They are all volunteers and have no paid staff at all . Most importantly, they are personally connected to MSA. My nephew died of it. I know the organization's founder had a brother die of MSA. Having people in a group with a biological connection is very important to me. With a lot of other charities, the people running the organization have no connection to the disease or charity.

Pam Smith H.

Volunteer

Rating: 5

My brother Mike Smith is living with MSA and through all this we learned about Defeat MSA.
We have volunteered, to help this grow and now we are a part of Defeat MSA. It's a rear disease, Most Doctors will never see any one with MSA. But we are trying and getting it out there and 100% of our donation go to research. There is no cure or medical help. Defeat MSA will not give up in trying to find a cure and that is what make this a great noprofit.