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Nonprofit Overview

Causes: Human Service Organizations, Human Services

Mission: Honoring those born who never took a breath... Serving so all born may have a 1st Breath. 1st Breath is committed to providing education, advocacy, and public awareness of stillbirth, in addition to assisting families and professionals dealing with the death of a baby.

Target demographics: Families and professionals experiencing the stillbirth or early infant death of a baby.

Geographic areas served: USA

Community Stories

11 Stories from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

I am a mother who lost my daughter to still birth. I had never spoken about her to anyone. It was a few years later that I had a son who passed away of sids and that was all a mother's heart could take. I was referred to Patricia Flynn to talk with and quickly realized that her dream was one that would bridge the gaps in my heart. I'm very blessed and this organization helped restore and renew not only me but my family. I could never thank you all enough. May this blessing reach all of those who unfortunately have to face loss. Prayers for everyone.

1

General Member of the Public

Rating: 5

My comment is in relation to Dr. Pat Flynn. I have never suffered the tragedy 1st Breath Inc. addresses but I have some knowledge and feelings of the founder. I attended Mid America Nazarene University with Pat from 2005-2006 and spent a great deal of time studying with her. Pat's loss of a child was a personal inspiration for the life of 1st Breath Inc. and her passion to help heal the hearts of others. She simply wants to help and heal. I know of no finer lady with immeasurable kindness and caring she shares toward others. I highly recommend this organization and the wonderful person gifting these services.

1 1stBreath

Board Member

Rating: 5

1st Breath began as a program providing resources to families and medical professionals dealing with stillbirth. The Compassion Care Kits provide information, resources, keepsakes and tools to provide support for newly bereaved parents. We now have expanded into supporting and sharing research, advocating legislative issues, loss Doula support, memorial events, assisting with developing technical tools to provide support and comfort to women who become pregnant after losing a baby to stillbirth, along with other numerous efforts.

The national headquarters have relocated from the Midwest to the east coast where 1st Breath had been met with a great deal of support from city officials. In the first year two proclamations were made recognizing our babies. A Baby Loss Memorial Garden was also provided by one city and allows parents to plant notes embedded with flower seeds for their babies.
1st Breath continues to reach out and expand its support and service's, honor our precious babies who have gone on, serving to reduce the risk of babies death, and supporting all who are touched by stillbirth.

1

Board Member

Rating: 5

Dr. Patricia Flynn is absolutely the right person to be in charge of 1st Breath, and is directly responsible for its progress and success over the past decade and more.

The important thing about running a non-profit, and most assuredly this one, is a thorough and complete understanding of the experiences, assistance and results of the work being done. Dr. Flynn exceeds the requirement for all of those, having gone thru Stillbirth herself in 1978.

The experience she went thru in 1978 and the three and a half decades since serves her well, and gives her efforts, thoughts and actions added credibility. She's able to relate directly with those that 1st Breath assists. Singlehandedly she's been able to get state legislatures to recognize Stillbirth with the creation of "certificates of birth resulting in stillbirth" that enables much needed closure and lifetime remembrance of a parents' child born still. She has also traveled to educate and work with legislators in Washington DC for a nationwide standard for the handling of Stillbirth - and more importantly, trying to get the needed funding for proper and complete research into Stillbirth.

It's been incredible to watch her meet people from all over the world in person, on line and over the phone as they discuss their mutual feelings about the subject. Dr. Flynn has the ability (and indeed nationally-recognized training) to deal with these parents, siblings, family and friends.

1st Breath has been so very important in the continued attempt to keep Stillbirth in the American conversation about health care, prenatal services, and counseling.

1

Professional with expertise in this field

Rating: 5

1st Breath Inc is an incredible organization! They donated a beautiful Moses basket to our hospital bereavement program. This organization is a wonderful resource to the community. Last year, they organized a special remembrance day for local families. It was a beautiful event.

1

General Member of the Public

Rating: 5

1st Breath is amazing! Great people and a wonderful nonprofit. Always remembering our little angels

1

Client Served

Rating: 5

It has been a little over a year since we lost our beautiful son at 31 weeks and 5 days. Our son, was stillborn on December 8th 2015, but to me it still feels like yesterday. I suddenly became a static and part of a group of families that I never wanted to be a part of. There are still no answers as to why it happened. I know those answers will never come, that I have come to accept. It has been the hardest year of my life but I am thankful for the support of my husband and my family who seem to know even without asking that I am still hurting and that the pain is real and raw even a year later. About 6 months after loosing our son we moved our family from Raleigh to Wilmington for my husband to start a new job, after we moved through internet searches I found 1st Breath. We attended their event for Pregnancy and Infant Loss Remembrance Day this past October and it was there that I learned that I could get a certificate of stillbirth for my son. To some that might not seem like much, but to me that meant that I had something that proved my son was born, and even though he never took a breath he still recognized. Pat and her husband are amazing and are willing to sit and talk to you about anything and let you ask as many questions as you want. So although I am now part of this static and this group that I never wanted, I am thankful for people like Pat and her husband for bringing our families together so that we can feel less alone even if for short time.

1

Professional with expertise in this field

Rating: 5

Pat Flynn is a wonderful lady. She motivated me to try and make a difference. She has been a wonderful mentor....and over time a trustworthy friend. I have lost 3 babies and pat is a wonderful support. I am proud to work with her and 1st breathe.
She and I have created surveys on pregnancy loss. Those surveys can be found at www.babylosssurvey.com If you have been effected by pregnancy loss please answer one of our surveys. www.babylosssurvey.com

1 shiningstar

Client Served

Rating: 5

On January 29, 1986 my son Christopher was born still, it was the worst day of my life. I had no support from the people in my life that I thought would give it to me. They thought I should just get over it, and move on. They also believed that it was the best thing for me since I was in such a abusive mariage and now with the loss of my baby maybe I would leave my husband. But, they never considered the pain and hurt from the loss. Never considered he was my son
and how much I wanted him. As for my husband, he just drank the problem away and did not/would not discuss it. It was like he
was never born and the pain inside me just burned.


Time would pass and I had two more boys, but come January I would be depressed the entire month. I had no one to talk to.

I didn't want to hear anything from anyone, so I just kept it to myself. Come January 29th when everyone would be in bed

I would qietly sit by his urn, lite a candle and say a prayer and wish him a Happy Birthday and tell him I love him and Miss Him.


When I was pregnant with him and after and my husband and I had a fight or I needed just to get away I would walk down in
the park and just talk with him. It was a beautiful park, it had long paths with a few water falls and beautiful trees and brooks. I
loved going there it was so peaceful. Sometimes I would sit for hours on the rocks by the brook and sometimes if you were
really quiet you would see deer. I would talk to him and tell him how wonderful things were going to be and how no one was
ever going to hurt him and how I couldn't wait to hold him. No one really knew how special he was and how much I wanted him.


Well, finially my ex-did the wrong thing, he put his hands on my son and we got divorced and that was that. It was just me and
my boys. Now I could more openly put Christopher out, but not infront of anyone else. January was still rough, but I made it ok,
I guess.


A few years went by and I met a wonderful man. I didn't tell him about Christopher because I thought he would be just like
everyone else. Come January though I lit my candle like always and a few days later he asked me what that was all about and
also said I didn't have to tell him if I didn't want to. I told him the entire story and he couldn't believe I hadn't told him sooner.


The following Christmas there was one box under the tree on Christmas eve "To Mommy, Love Chriss." I started to cry. I was
not allowed to open it until 12:00am. When I did it was a gold necklace with a small head of child with his name engraved and
his birth date and birth stone. There also was a cross that was bless and I later received a heart. That is the only necklace I wear to
this day. The card that went with it was a card from a little child signed from my husband of course but in read "Christopher"
and said "so that he would be with me always" of course I cried.


This had happened every year since that time. One gift goes under the tree for me from my son and one gift goes under the tree
to my son. He never gets left out of our lives. On Christmas my husband would get him a small replica of something he would have
gotten if he were alive. Like a trycicle or a bike or a car one day during the summer he surprised me and we even had lunch
on the beached and guess who came, thats right Christopher, he can never say he wasn't on the beach.


I still never really talked about Christopher outside of my husband and my children. Then I started going to theropy and some things
came out. I wrote a children's book and it was published and so bad I wanted to help other. I wanted to help others not feel the pain
that I had to endore. I know that I cannot stop their pain and the loss of any child is hard. But when you lose you baby at birth the
pain seem unbareable. You anticipate the birth, you pick names, you talk to him/her and dream dreams and the he or she is gone, just
gone. The pain just stabs like its sickening stabs and with no support even with support its not good. I just wanted to help women and their families.


So, I did a google search and came up with 1st Breath and wrote them and them put me in touch with ISA and I started a web site
www.support-the-fight-against-stillbirth.com. I don't care if 1 or a million books sell. If people just go to their site and donate I will
be happy. Its not for me, its for them. I wanted everyone to know that stillbirth is real and see if there was some way I could help.

To make a long story short, even though this is a very long story....I just wanted to help them and in turn they helped me. I met through
1st Breath an Angel named Pat..her sons name was Christopher to, how amazing is that? She gave me information so that I could
get my sons Birth/Death Certificate. I tried to get that when he was born and was told that was impossible because he was born dead
and that he had to be born breathing. Do you have any idea what that does to a mother? He was alive, alive in me. I know it, I felt him.

NOW, after 26 years, 26 long years my boy is going to be recognized, not just by me and his dad. But by the state of PA. All those
people that told me to get over it, forget him, well he is now recognized by the state of PA . He was alive and he was here I know it

God knows it and the state of PA now knows it. Thanks to the wonderful works of Angels and the GREAT works of people the
ones I have been so Graced to meet at 1st Breath. I believe that it was by the Grace of God that I met Pat and pray that many others
are put onto the path of these wonderful people.


1st Breath needs to be more wide spread in more states so that more people can be helped by them. I will never be able to thank
them enough for what they have done for me and imagine.....I wanted to help them.........


God Bless all The People at 1st Breath

2

General Member of the Public

Rating: 5

I came across this site while trying to find comfort in the loss of our son earlier this year. When you think you are the only person in the world who has experienced the loss of a child, that nobody understands what you are going through,you come across a site that is everything you are looking for. This site i found to be, wonderful, comforting, undertanding, and now feel like that i am no longer alone.

Review from Guidestar