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MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC
July 22, 2009

MARF has been a true life line for me since being diagnosed with peritoneal mesothelioma in 3/07. It is by far the best clearing house for up to date information regarding treatment centers, trials, doctors and alternatives. It has a small compassionate staff of dedicated people that I have met personally at the annual symposium. They know each of the "Warriors" and Caregivers by first name and go out of their way to stay in touch with us by email or phone. The Scientific Advisory Board is comprised of what I consider the leading doctors in the field of mesothelioma treatment and are dedicated to finding a cure. This organization gets stronger each year and is dedicated to finding a cure. The annual symposium is unique in that it brings together doctors, patients and caregivers for 3 days of information sharing, networking, and relationship building. Finally, the medical liaison found under the "GET HELP NOW" link is our standard response to all new comers looking for direction. Mary is dedicated to our growing community and is up to date on all aspects of the disease and treatments.

The Great!

I've personally experienced the results of this organization in...

the relationships it helps build with staff, doctors, caregivers and "WARRIORS"

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

The kinds of staff and volunteers that I met were...

caring, compassionate, involved, sincere and dedicated.

Ways to make it better...

this ugly disease can be brought under control and eventually cured.

In my opinion, the biggest challenges facing this organization are...

first getting a total ban on asbestos usage in the United States. Second raising mesothelioma awareness by pushing for 9/26 as an annual mesothelioma awareness day. Third finding major grant dollars for serious long term research towards finding a cure.

When was your last experience with this nonprofit?

2009

MY ROLE:
Client Served & through a nomination by MARF I recently participated in the DOD peer review medical research grant program.