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Stephanie Haney

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3 reviews

Review for American Lung Association, New York, NY, USA

Rating: 2 stars  

I am a 42 year old woman living with Stage IV lung cancer. I advocate tirelessly for this disease, as I have learned that anyone can get lung cancer.

I've personally experienced the results of this organization in...

I see the public emphasis of the smoking-cessation campaigns undermining the progress in funding research for lung cancer. The over-emphasis on smoking-cessation (which I might also argue the effectiveness of the dollars spent there) actually focuses people on the stigma and the blame, versus working toward effective treatments and a cure. Eradicating smoking, which would make a positive impact on people's health in MULTIPLE areas, would not eradicate lung cancer. I'd still be dying of it...

If I had to make changes to this organization, I would...

Not work so hard to remind the public to blame people for their lung cancer...progress is set back because people feel justified sending their money elsewhere and neglecting the disease further. Work as hard on lung cancer as on other lung diseases. Make smoking-cessation programs about more than lung cancer...partner with other organizations for breast cancer, bladder cancer, and heart disease to coordinate smoking-cessation message (ever notice that they don't go out of their way to make that link??).

Role:  Volunteer & I have participated in strategy meetings.
 

Review for Lung Cancer Alliance, Washington, DC, USA

Rating: 5 stars  

I am a 42 year old woman living with Stage IV lung cancer. The Lung Cancer Alliance is a strong and vital organization in the fight against this historically neglected disease. They keep their eye on the ball and fight for the dollar...they look to level the playing field for federal funding as compared to many other diseases and medical conditions that have benefitted from far greater funding even though dramatically less fatal. They provide very personalized, high quality patient support programs. And the staff of the organization are bright, committed, passionate individuals.

I've personally experienced the results of this organization in...

I have participated in training offered by this organization and worked directly with its talented staff. They have secured funding in the Department of Defense for lung cancer, which was unprecented (though not for other diseases).

If I had to make changes to this organization, I would...

I wouldn't.

Role:  Volunteer & I have visited the offices of congresspeople and utilized their patient support services. .
 

Review for Free to Breathe, Madison, WI, USA

Rating: 5 stars  

I am a 42 year old woman living with Stage IV lung cancer. I turned to the National Lung Partnership because I was angry and looking for a place to help change the face of this neglected disease. The Partnership funds research directly, provides patient support materials, and trains advocates to expand the army of fighters trying to get the word out. They are staffed with great talent and professionalism.

I've personally experienced the results of this organization in...

Through their training, they change people's lives and turn them into real activists. They stay connected to their advocates and use our expertise to further their mission and toward accomplishing our shared goal.

If I had to make changes to this organization, I would...

I wouldn't.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

Role:  Volunteer & I have raised funds through their Free To Breathe program, I have attended their advocacy training programs, I have carried out advocacy projects for groups based on their recommendations.