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Scott Benjamin

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The Oral Cancer Foundation
July 30, 2009

As a private practicing dentist and lecturer oral cancer I had the great fortune to stumble on the OCF website several years ago. The quality and level of knowledge that was directed toward both the healthcare professional and the public, especially to those individuals afflicted with some stage of the disease process, was extremely impressive. The dissemination of this accurate up to date information is curial on this “Forgotten Disease” and what I found on the OCF website immediately motivated me to become a member and volunteer to assist the OCF to do whatever I could to make a difference. The very small original OCF lapel pin I received for my membership is one of my prize possessions, which I wear proudly to help promote discussions about oral cancer and the OCF, as awareness is how a positive difference will be made. A few years later in 2005, I was again fortunate, and had the opportunity to meet and get to know the founder and executive director of the OCF, Brian Hill, a survivor of Stage 4 Oral Cancer himself. His tireless energy, dedication, and perseverance to promote awareness, sensitivity, and research is truly remarkable and a model for us all and has been an inspiration for me. As a presenter on clinical evaluation, case management, and oral cancer; the key point I always start and end all of my presentations with is that the OCF the most value resources they have and the OCF website is also a valuable resource for their patients and their families. If they only learn that fact they have greatly benefited from the course. Society’s awareness of oral cancer is how this disease state will be changed. Brian Hill and the people of the OCF are making a positive difference. The more assistance we can give to the OCF, the sooner we can move this terrible disease process in a positive direction. I have never seen an organization with so little resources do so much. THE OCF IS MAKING A DIFFERENCE

The Great!

I've personally experienced the results of this organization in...

raising the health professional awareness and knowledge which is leading to earlier discovery of the disease. Patient’s being comforted by peer to peer experience and information sharing.

Ways to make it better...

If I had to make changes to this organization, I would...

keep doing the same things that Brian Hill is doing.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

having a place to refer healthcare professionals, patients, and their families to for accurate up to date information. Knowing that there is a place to refer patients to for quality peer to peer support that is accurate and relevant.

The kinds of staff and volunteers that I met were...

The people of the OCF are the most dedicated to changing a disease state and compassionate and reassuring to the patients that I’ve ever experienced. Brian Hill's dedication, and perseverance is truly remarkable.

If this organization had 10 million bucks, it could...

change the state of a type of cancer that is common, but virtually unknown, by rising the awareness to it and the risk factors that cause it. This would enable early discovery of the disease process, by routine, low cost, non invasive screening.

Ways to make it better...

if the OCF had the funds to spread their knowledge through out the general public and the oral health community.

In my opinion, the biggest challenges facing this organization are...

the lack of exposure and funds.

One thing I'd also say is that...

THE OCF IS MAKING A HUGE DIFFERENCE!!

When was your last experience with this nonprofit?

2009

MY ROLE:
Professional with expertise in this field & Educate oral health professionals and examining patients.