My Nonprofit Reviews
Review for ARTHROGRYPOSIS MULTIPLEX CONGENITA SUPPORT, INC.., Salyersville, KY, USA
I have watched AMCSI grow into a non profit over the years from the small informal group it started as. It began as a support group with online forums and has grown immensely over the years providing outreach to new families receiving the diagnosis, parents of children with AMC, and to adults with AMC from various parts of the globe.
AMCSI provides a wonderful way to connect with others whether you are a new expecting parent, parent to a child with AMC, or an adult looking to connect with others that understand where you have been or what you are going through. Our "family" connects through the free online support forums and through the annual conference which is a wonderful time to network and learn about current treatment options, make new friends, meet old ones, and to receive support. I am very proud to be a part of this growing organization as it continues to bring support to AMCers, educate the public and medical field, and bring awareness to the public of what arthrogryposis multiplex congenita is.
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