The Oral Cancer Foundation
July 29, 2009
I found the OCF site 15 years after I was diagnosed and treated for squamous cell tongue cancer. My diagnosis had come as a complete surprise, as I had never smoked and had been told by multiple doctors that I was not at risk for oral cancer. Long after my experience with it, I was actually looking for good resources for a couple of friends who had been recently diagnosed, and was amazed at the amount of current, relevant information that OCF had to offer -- far beyond what I could find on other cancer-related sites. If anything like this had existed when I was undergoing treatment, it would have been an enormous help and support to me. As someone who went through major oral surgery and weeks of radiation without the benefit of OCF's support network, I can appreciate how much this site can provide to someone facing this disease.
I've personally experienced the results of this organization in...
the way it has allowed people from all over the world to share their questions and their experiences with oral cancer and to strengthen their resolve to fight it.
The kinds of staff and volunteers that I met were...
unselfish, and deeply concerned about the problems of those on the forum who needed to 1) get an accurate diagnosis, 2) make an informed decision about treatment, and 3) deal with the pain and other side effects of battling this illness.
If this organization had 10 million bucks, it could...
do an even better job of helping more people to recognize the early warning signs and hopefully get a timely diagnosis to improve their chances of long-term survival.
When was your last experience with this nonprofit?
Volunteer & I have posted on the survivors'/patients' forum as a long-term survivor, focusing on the transition back to "normal" and the impact that this experience has had on my life since then.