The Great!
I've personally experienced the results of this organization in...
The information received by our son to guide him in his effort to find the most effective treatment. The participation of patients, caregivers and families to lobby Congress for public funding to help find a cure. The private fund raising efforts.
Ways to make it better...
If I had to make changes to this organization, I would...
More feedback
What I've enjoyed the most about my experience with this nonprofit is...
The depth of information they are able to provide with very limited staff and funding.
The kinds of staff and volunteers that I met were...
Dedicated and capable.
If this organization had 10 million bucks, it could...
Provide more information to the medical community to effect earlier detection of the disease. Also, it would have the resources to solicit more funds for research efforts to find a cure.
Ways to make it better...
More donations were available to help them provide more services.
In my opinion, the biggest challenges facing this organization are...
Funding. The information available to oncologists and physicians must be increased but there is precious little money available to disseminate the info.
One thing I'd also say is that...
M.A.R.F. is doing an outstanding job of assisting sufferers of mesotheliom and their caregivers in spite of a limited staff and funding.
When was your last experience with this nonprofit?
2009