MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC
July 13, 2009
The Mesothelioma Applied Research Foundation, was extremely helpful during my husbands battle with Mesothelioma cancer. I was heartbroken after my husbands diagnosis and went searching for some info. about this cancer that I had never heard of.
From my first contact with MARF I was introduced to a nurse who listened to all my questions and then answered them one by one. She put me in touch with a Mesothelioma patient in my area and I was able to meet this person, hear about her treatments and make informed decisions. I have developed a strong bond with this wonderful lady. I was able to take my husband to see several doctors that are experts in Mesothelioma because of the information I had attained. This saved us precious time.
We met the best doctors on the East coast and we were able to make the most informed decisions on treatments, because this cancer has no cure each doctor has a different theory on treatment.
I believe with out the help of MARF, my husband would have never survived for the 17 months he did. Most patients are given a 6-9 month life expectancy.
MARF is heavly involved in getting the laws in the United States changed so everyday people will not be exposed to asbestos. Exposure to the deadly mineral is the main cause of Mesothelioma. Once Mesothelioma has taken a hold it is a terrible painful death. Ithink this is a wonderful Foundation and in much need of public exposure.
I've personally experienced the results of this organization in...
gaining advise from other patients. Meeting people currently fighting Mesothelioma and getting information on the treatments and the doctors
Ways to make it better...
If I had to make changes to this organization, I would...
get news coverage
What I've enjoyed the most about my experience with this nonprofit is...
meeting other people in the same situation and Getting quick and correct information
The kinds of staff and volunteers that I met were...
wonderful, caring and informed
If this organization had 10 million bucks, it could...
go before congress to get some laws passed to limit or stop the exposure to asbestos
Ways to make it better...
My husband,47, would have made a miraculous recovery.
In my opinion, the biggest challenges facing this organization are...
not enough exposure to the media. Very rare cancer
One thing I'd also say is that...
Please consider this Foundation, people use to be in their later years when the Mesothelioma would surface and now it is taking it's toll on younger and younger folks and kids.
When was your last experience with this nonprofit?
Client Served & I recieved help and information.