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Mifox1956

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1 reviews

Review for MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC, Alexandria, VA, USA

Rating: 5 stars  

Until I found the Mesothelioma Applied Research Foundation, My wife and I had no hope in the treatment of her peritoneal mesothelioma. The information that was available through MARF was a lifesaver in that they were able to give us a direction and purpose in our battle, giving us above all else, HOPE that was not available to us anywhere.

What I've enjoyed the most about my experience with this nonprofit is...

Being able to interact with others around the country with this very rare disease.

The kinds of staff and volunteers that I met were...

The medical liason, Mary Hessendorf. and one of the officde staff.

If this organization had 10 million bucks, it could...

Fund even more grants for research into the cure of this disease.

Ways to make it better...

Not possible, my experience has been great.

In my opinion, the biggest challenges facing this organization are...

Getting a continuing revenue stream to keep funding the research grants. This is such an orphan disease that not that many people are aware of the problems facing the organization.

One thing I'd also say is that...

In my opinion this is the most professional, caring organization that I have ever seen.

When was your last experience with this nonprofit?

2009

Role:  General Member of the Public & I contacted their medical liason who helped me with referrals, common practices and results and reac tions to treatment.