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Phyllis Goldstein

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Lung Cancer Alliance
July 11, 2009

I am a lucky 6 year lung cancer survivor. I was diagnosed at stage 3A. I had surgery followed by chemotherapy and radiation treatment. As a result of the radiation, two of my coronary arteries became weakened and would not allow the plaque to come through. I had dual by-pass surgery 9 months ago as a consequence. I lost my father, uncle and two friends to lung cancer. We were all never smokers. I also lost two friends who had given up smoking decades ago. When I saw a newsletter in my surgeon's office published by the Lung Cancer Alliance, I knew I had to become its advocate to help erase the stigma, elevate awareness, and change public health policy. I am now working with the Lung Cancer Alliance as a "full time" volunteer to accomplish our goals. I feel very committed and am thankful to the Lung Cancer Alliance for the support, guidance and energy that has been provided to help realize our efforts.

The Great!

I've personally experienced the results of this organization in...

patient support, Department of Defense bill appropriating $20M to lung cancer, and the introduction of HR2112 and S332 - Lung Cancer Mortality Reduction Act of 2009 - simultaneously in both Houses of Congress, and the updates and literature it provides.

Ways to make it better...

If I had to make changes to this organization, I would...

give clearer messages. Sometimes, I am not sure of what will be or can be done - dual messages.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the passion, commitment and professionalism of the staff.

The kinds of staff and volunteers that I met were...

professional, committed and passionate.

If this organization had 10 million bucks, it could...

hire staff to organize and fully support state chapters in all the states.

Ways to make it better...

there were quicker follow-through and clearer messages.

In my opinion, the biggest challenges facing this organization are...

Lack of funds to organize and fully support state chapters in all the states.

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & I have lobbied our members of Congress (S332 and Hr2112 - Lung Cancer Mortality Reduction Act of 2009 - and the NYS legislature, met with NYS Department of Helath, networked with various groups to findpartners, wrote letters to the editor, held a patient .