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MESOTHELIOMA APPLIED RESEARCH FOUNDATION INC
July 10, 2009

In January 2009, my Grampy was diagnosed with Mesothelioma, an awful cancer caused by asbestos. I had seen the commercials on tv about Meso but really did not know or understand it. We were told he had 5 months and left with no options and little hope. I decided to take to the internet. I stumbled upon the MARF website and it was a miracle. I learned about Meso and learned that there is some hope. I signed up for a book "100 Questions and Answers" and received it in about a week. The book was free and after I read it, I passed it on to my Grampy. He had more hope after reading that book than he did since he was disgnosed. My family has been passing the book on and it is on the 8th person now (with 20 to go). After signing up on the website, a nurse called to make sure I was getting the answers I needed. I genuinely felt like I was no longer alone, struggling for answers. As a young adult, I am a member of facebook. MARF has a page and I got to contribute by helping them raise money by adding friends. In a little over 3 months their members have increased by over 20,000! MARF is a great foundation helping to spread the world that Mesothelioma is an awful disease but one that can be fought! They have given me an opportunity to help, comfort and most importantly, they have given my Grampy hope.

Photos

The Great!

I've personally experienced the results of this organization in...

how they show people affected by this disease that they care. My Grampy had no hope until we found this organization.

Ways to make it better...

If I had to make changes to this organization, I would...

keep spreading the word and letting people know that asbestos is around us. It needs to be made illegal!

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

Although Mesothelioma is thought of as an "old person's disease" they keep current with facebook and other sites to keep young people involved.

The kinds of staff and volunteers that I met were...

caring, honest and helpful! They all went out of their way to make sure I got the information I needed.

If this organization had 10 million bucks, it could...

research to find a cure for this currently uncurable form of cancer.

Ways to make it better...

there was a cure for Meso!

In my opinion, the biggest challenges facing this organization are...

awareness and fundraising. Since Mesothelioma affects fewer people than other types of cancers, it does not get the attention it deserves. Also, since it affects fewer people, it is harder to raise money to find a cure.

One thing I'd also say is that...

Mesothelioma is an awful disease. It is painful and watching someone you love deal with it is heartbreaking. MARF helps with that heartbreak. Please help the cause!

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & I am a volunteer (currently helping on a project to raise internet awareness) and a donor.