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Lupus Foundation of America, Arkansas Chapter
June 25, 2009

The Lupus Foundation of America, Arkansas Chapter is the only organization within the state of Arkansas under the umbrella of the Lupus Foundation of America in Washington, DC. The organization has been in existence in Hot Springs since October 1993 working as volunteers to help lupus patients understand what the disease is and what it can do. Many lupus patients benefit from the job this Chapter does to improve the quality of life for lupus patients. Monthly support group meetings and free literature on lupus gives the lupus patients hope after being diagnosed with lupus. I rate this Chapter as being a 5.

The Great!

I've personally experienced the results of this organization in...

I have seen the results of this organization in the past few years. The growth, the interest the community gives. The support strangers and non-lupus patients have in the organization. The financial help given by strangers.

Ways to make it better...

If I had to make changes to this organization, I would...

I would try to get more people interested in lupus if I ran this organization. If people could see 1 sick lupus patient, they would pay some attention to a lupus patient.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

I enjoy being with other lupus patients to show them there is life after being diagnosed with lupus. Knowing that you do not have to give up. Knowing that you have someone to talk to regarding the pain you must endure.

The kinds of staff and volunteers that I met were...

The staff and volunteers were all friendly and willing to help. They all showed concern for what I was going through. They were interested.

If this organization had 10 million bucks, it could...

Send more money in for lupus research. Hopefully, get some lupus research and clinical trials in Arkansas.

Ways to make it better...

My experience would have been better if the chapter was financially able to do more for lupus patients to better help their needs in obtaining medical help.

In my opinion, the biggest challenges facing this organization are...

Finances. Support. Interest. Taking the disease serious.

One thing I'd also say is that...

I am glad there is a Lupus Foundation of America, Arkansas Chapter.

When was your last experience with this nonprofit?

2009

MY ROLE:
Volunteer & I artrended support group meetings, and seminars to learn more about lupus. I am reaching out to help others as I was helped.