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diamondgirl

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1 reviews

Review for American Behcets Disease Association Inc, Brooklyn Park, MN, USA

Rating: 4 stars  

I suffer from Behcets Disease. I was first diagnosed almost 19 years ago. This is an orphan disease. Less than 20,000 Americans have this disease. Most doctors don't even know about it, and I lived in NYC! This organization practically saved my life. They helped me with information, doctors, medications, support groups... I just can't say enough good things about them! I have watched them grow over the last two decades. Their members go to international conferences and bring back information from all over the world to help Americans. The organization is mostly volunteer run.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

The CDC in Atlanta, GA.

What, if any, change in your life has this group encouraged?

I'd probably be dead from this disease if I had not found this organization.

When was your last experience with this nonprofit?

2010

Role:  Client Served & I received an enormous amount of information from them, I also donate money, joined as a member, and have gotten family and friends to join as members also.