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jennlexi

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ANGELS PEDIATRIC HEART HOUSE
December 5, 2010

My daugerter Alexis was born with coarctation of the aorta. By the time she was one years old she had already undergone four heart surgeries. Lexi is now 9 years old and is doing amazing, but unfortunately she will probably need one more surgery, we are just not sure when. Her first year of life was the hardest thing I ever experienced in my life. I felt so alone, even though I had all the support of my family and friends nobody really could understand what I was going through. Finding APHH has been such a blessing in so many ways. My daughter and I love going to all of the events. I get to meet with other families, who unfortunately know exactly how I feel. I can hear their stories and we can all relate to our experiences. My daughter can meet other kids who have a "special heart" just like her! Sonia is one of the most caring peolple I have ever met and we love her dearly. She has given us many fun memories and hopefully many more to come.

The Great!

I've personally experienced the results of this organization in...

Meeting other families that know exactly what I am going through, and not feeling like I am alone anymore.

Ways to make it better...

If I had to make changes to this organization, I would...

nothing,

MY ROLE:
Client Served & go to events and meet other families.