My daugerter Alexis was born with coarctation of the aorta. By the time she was one years old she had already undergone four heart surgeries. Lexi is now 9 years old and is doing amazing, but unfortunately she will probably need one more surgery, we are just not sure when. Her first year of life was the hardest thing I ever experienced in my life. I felt so alone, even though I had all the support of my family and friends nobody really could understand what I was going through. Finding APHH has been such a blessing in so many ways. My daughter and I love going to all of the events. I get to meet with other families, who unfortunately know exactly how I feel. I can hear their stories and we can all relate to our experiences. My daughter can meet other kids who have a "special heart" just like her! Sonia is one of the most caring peolple I have ever met and we love her dearly. She has given us many fun memories and hopefully many more to come.