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Review for Patient Alliance Neuroendocrineimmu Disorders Org For Resech & Adv Inc, Traverse City, MI, USA

Rating: 4 stars  

It's not hard to describe the comfort, love and understanding this organization gives to so many as support. "PANDORA" rises above all the rest. I'm an Advocate Extrodinaire and proud to be part of PANDORA and their mission. As a patient "52" years of age with a condition called "EHLERS DANLOS SYNDROME" it falls under other related disorders. Not knowing what I had until the age of 48 - the loss of my home,job,husband and eventually benefits. No one believing in me was an emotional and physical struggle I wish on no one. Yes diagnosed at 48 and born with the condition. Pandora and it's staff/volunteers supported me and still do to this day with e mails and phone calls from time to time. If I ever need to reach out they are there to listen and have BIG shoulders. Being single is something I've accepted as some see us in public as defected. We are not - my companion dog "Stitch" helps me with company. Marly - founder is a beautiful person and deserves to shine above being noticed for her efforts. I sincerely hope that one day people in public will not judge for looking healthy and patients being so sick. It will be a great mission to get our court system and government to believe in people like me that look healthy and are so ill. It may be hard to understand but God created us all equal as his children just some he made a little more special. For me life now has no boundries and challenges for I can! I can do anything for I believe in myself because of foundations like PANDORA that have given me the hope, dreams and possibilities we all can! Any one person that may feel alone and lost when it comes to ME/CF/FM I sincerely hope you will take the time to join in the efforts TOGETHER WE CAN. THANK YOU PANDORA -

Role:  Volunteer & Volunteer to bring awareness.