My Nonprofit Reviews
Review for Patient Alliance Neuroendocrineimmu Disorders Org For Research & Adv Inc, Traverse City, MI, USA
NEI disease is mostly ignored and misunderstood. Most doctors know little or nothing about NEI disease, and there is no reliable treatment. I can no longer work because of NEI disease. Before NEI disease forced me to stop working, I was a Senior Administrative Analyst. Part of my work was to pick companies to work for us as on specific projects. P.A.N.D.O.R.A. impresses me so much I don't hesitate to recommend them. For example, they spearheaded an effort which led to the State of New Jersey approving the building and funding of a a NEI research and treatment center. This is exactly the kind of result we need if we want find a cure.
I've personally experienced the results of this organization in...
The treatment and research center is not open yet. So there is nothing for me to directly experience, except the feeling of hope it brings.
If I had to make changes to this organization, I would...
"If it ain't broke, why fix it."
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What specific problem, purpose, priority, or project prompted your gift?
They advance the cause of people with NEI disease