My Nonprofit Reviews
Review for Patient Alliance Neuroendocrineimmu Disorders Org For Research & Adv Inc, Traverse City, MI, USA
We have had CFIDS in our family for 14 years now. When we first got sick, few people had heard of our illness, and fewer people could act as guides for what we were experiencing. When we could not find an informed doctor to help us, online we found an educational conference, for which PANDORA was a sponsoring organizer. At that conference, we finally - and for the first time - met others in our own situation. We were especially thrilled to meet doctors who not only treat patients, but who participate in research and know the cutting edge science of our illness. The conference, and the ongoing online support we've found through Pandora, changed our lives. We no longer feel alone, and believe me - it's a big and lonely world out there when you are sick and isolated, like we were before finding Pandora. They educate the public and medical personnel, and are an important and worthwhile cause for anyone looking for a good place for their donations!
I've personally experienced the results of this organization in...
Our whole family has experienced a dramatic change in our lives - we are no longer isolated, we have a doctor who understands our illness and helps us, we are heartened by the many more service providers who are available due to receiving training at the hands of Pandora and it's affiliated doctors and researchers, and trainers.
If I had to make changes to this organization, I would...
No changes - Pandora is doing great!