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kellysmom

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1 reviews

Review for Encephalitis Global, Inc., Tarrytown, NY, USA

Rating: 5 stars  

Encephalitis Global, Inc. provides an excellent source for survivors of encephalitis, caregivers and family members. Encephalitis, recovery and rehabilitation can be mysterious, puzzling and extremely stressful for all involved. Whether the formal diagnosis is viral, bacterial or a resulting condition from head and brain injuries, the Encephalitis Global, Inc. forum is a place for survivors and caregivers to gather and share experiences and suggestions. Common residual deficits, both cognitive and physical, are easier to understand and cope with when information is shared among survivors and other caregivers. The founders of Encephalitis Global, Inc., Wendy and Ingrid, are both survivors of Encephalitis. They have provided online access to a safe and nurturing environment.

What I've enjoyed the most about my experience with this nonprofit is...

it provides valuable social support to encephalitis survivors and caregivers.

The kinds of staff and volunteers that I met were...

the founders, other survivors and caregivers.

If this organization had 10 million bucks, it could...

reach out more widely with brochures, as well as announcement space in medical publications. It could also set up a fund for a speakers bureau.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & I shared caregiver experience and survivor rehabilitation strategies.