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beachbabe32136 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
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June 22, 2010

I am distantly related to members of this family who has been individually and personally affected by a horrible disease. Reynold and Henry Deater were the first people afflicted and I remember them as a child slowly losing first toes and fingers and then half their legs. No one in the medical field could diagnose the disease, even after they volunteered themselves to be "guinea pigs" in a hospital in Philadelphia, undergoing horrific treatments including radiation to find a cure.


The Great!

I've personally experienced the results of this organization in...

I have seen them finding a physician on their own who was willing to take on the disease as a challenge and grow the Foundation to fund his research. This is no government grant seeking whining organization. I admire their stoicism.

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If this organization had 10 million bucks, it could...

End the pain and debilitating degeneration of their bodies.

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General Member of the Public & I am a distant family member.

Review from Guidestar